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Author Topic: Hello and in treatment! Yeaa!  (Read 571 times)

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Offline Tommy E

  • Member
  • Posts: 7
Hello and in treatment! Yeaa!
« on: June 18, 2017, 07:30:54 AM »
Hey guys! Just started my third and last bottle of Harvoni. First time treatment with almost no side effects. Actually, Harvoni makes me feel relaxed. I do notice a tendency to headaches if I'm doing something that may create headaches like wearing my hat for hours. But no complaints here.

You know what's weird? I had given up on treatment when I heard about the price of Harvoni. My previous doctor didn't do anything to help me. Never mentioned getting me into treatment. I didn't much like her (for other reasons) so I got a new doctor who immediately sent me to a terrific gastroenterologist. This doctor told me he was going to treat me and not to worry about the price of Harvoni. His office would deal with the insurance company. He was a 'grab the bull by the horns' kind of doctor. So here I am 3 weeks from completion and $0 out of pocket costs - except for the office visits of course. How good is that! 

Offline gnatcatcher

  • Member
  • Posts: 1,112
Re: Hello and in treatment! Yeaa!
« Reply #1 on: June 18, 2017, 09:33:18 AM »
Welcome, Tommy!

Glad your treatment has gone so well. At $0, you have set a new record (AFAIK) -- some of us paid just $5 per bottle in 2015 because Gilead was drumming up business for Harvoni. Interesting that it relaxes you. Some of us got the "Harvoni High" (lots of extra energy); others were fatigued. As for the headaches, you're staying well hydrated, right?

May you sail through these last 3 weeks.

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED at SVR50
FibroScan 9.4 kPa [F2-F3]
ALT 14
AST 20
ALP 79

Offline Tommy E

  • Member
  • Posts: 7
Re: Hello and in treatment! Yeaa!
« Reply #2 on: June 18, 2017, 12:15:37 PM »
Hello Gnatty and thank you. I'm pretty good with hydration. Loads of bottled water in the fridge though I didn't know about the link between headaches and keeping hydrated. I've been trying to keep my liver in shape. Doc says I have mild cirrhosis which may clear up after treatment. Fingers crossed this all works out. 

ps. congrats on your results.
« Last Edit: June 18, 2017, 12:17:35 PM by Tommy E »

Offline gnatcatcher

  • Member
  • Posts: 1,112
Re: Hello and in treatment! Yeaa!
« Reply #3 on: June 18, 2017, 05:39:57 PM »
Yes, your mild cirrhosis may indeed go back to just fibrosis, as mine did. Several other people here have had their F numbers go down quite a bit after successful treatment. Good thing you "fired" your original doctor and found a specialist who knows the game, so that you didn't develop more serious cirrhosis before starting treatment.

Harvoni seems to like a lot of water. My hepatologist's assistant stressed liquid intake, and there are people here who said it minimized their headaches.

Thanks for the congrats. I'm looking forward to congratulating you when you reach the official cure point.

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED at SVR50
FibroScan 9.4 kPa [F2-F3]
ALT 14
AST 20
ALP 79

Offline andrew j

  • Member
  • Posts: 297
Re: Hello and in treatment! Yeaa!
« Reply #4 on: June 18, 2017, 08:16:58 PM »
Nice one, Tommy!

I had a breeze of a time on Harvoni like you.
... Well, maybe not exactly like you ... I was really unwell before Tx - but things just got better and better for me - almost from Day One.

Good luck with the rest of your Tx.
Sounds like you won't be needing it!

Best wishes,
A.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 3,179
  • Get tested, get treated, get cured, fight Hep c!
Re: Hello and in treatment! Yeaa!
« Reply #5 on: June 19, 2017, 02:47:59 AM »
Hey Tommy congrats on getting treatment and being almost finished. I also have cirrhosis by was diagnosed 7 years before I finally was cured with Harvoni two years ago. 

Not sure for me that I will improve but at least I should stop progressing. So you could say that Harvoni saved my life!

Congrats again 
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Tommy E

  • Member
  • Posts: 7
Re: Hello and in treatment! Yeaa!
« Reply #6 on: June 19, 2017, 08:51:13 AM »
Andrew, we're more alike than you think. I was losing weight (dropped 35 lbs) and losing sleep over itchy skin before treatment. And yeah, from day one things improved. Ditched ichy skin meds and now up 10 lbs.

Offline Tommy E

  • Member
  • Posts: 7
Re: Hello and in treatment! Yeaa!
« Reply #7 on: June 19, 2017, 08:54:28 AM »
That's a huge plus, Lynn. I'm hoping Harvonni will save mine too. Like everyone else here, I've got things to do. :) Cure verdict around Halloween.

Offline Tommy E

  • Member
  • Posts: 7
Re: Hello and in treatment! Yeaa!
« Reply #8 on: June 21, 2017, 04:00:06 PM »
After second month, blood tests showed negative viral load. Nurse said this is exactly where we want to be. :) Harvoni treatment is over July 6.

Offline andrew j

  • Member
  • Posts: 297
Re: Hello and in treatment! Yeaa!
« Reply #9 on: June 22, 2017, 10:52:17 PM »
Good stuff!

 


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