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Author Topic: Low hemoglobin, reduced ribavarin  (Read 5659 times)

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Offline dixiebelle

  • Member
  • Posts: 11
Low hemoglobin, reduced ribavarin
« on: June 21, 2017, 02:29:11 am »
hi all-Am on 4th week of viekira pak+ribovarin, feel great-feels like a breeze so far compared to old interferon treatment. already at week 2 bloods vl down from 13mil to 413!!!!!Cannot believe it am so happy. But got wk 4 bloods done y/day and hemoglobin down to 9 so they want to reduce ribavirin. any thoughts? I feel great, better than I have in years and will go through ANYTHING to be rid of this. How important is the ribavarin? I don't want to jeopardise any success, just want to power through this and get my life back

Offline sandrooney

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  • Posts: 43
Re: Low hemoglobin, reduced ribavarin
« Reply #1 on: June 21, 2017, 06:06:25 am »
Congrats on the blood work. I have read other post where they had reduced ribavarin and they still cleared the virus. Sounds like you are doing well other wise.
SR

Offline lporterrn

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  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Low hemoglobin, reduced ribavarin
« Reply #2 on: June 21, 2017, 10:28:23 am »
Wish I could lay my  hands on more recent research, but it appears that the reduction doesn't reduce risk. Here is one article: https://www.hepmag.com/article/ribavirin-reduction-24297-1797671724
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline dixiebelle

  • Member
  • Posts: 11
Re: Low hemoglobin, reduced ribavarin
« Reply #3 on: June 21, 2017, 03:40:59 pm »
thanks for the info-less worried after reading report. Interesting that those who reduce ribavirin seem to be getting better svr results. Maybe they'll ditch it eventually.       To be honest I was on it before with interferon and didn't get good results so I really feel the miraculous response I'm getting is from the new drugs. Also am starting to feel bit weak now so maybe it is time to reduce it a bit. Am so happy with my treatment results so far though-feel I'm looking at a totally different future...

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Low hemoglobin, reduced ribavarin
« Reply #4 on: June 21, 2017, 05:55:14 pm »
Let us know how this ends. Hoping to celebrate your cure.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline dixiebelle

  • Member
  • Posts: 11
Re: Low hemoglobin, reduced ribavarin
« Reply #5 on: June 22, 2017, 03:39:11 am »
thanks so much for your support. This forum is a lifeline, it's so great. Pity I only found it recently, as I'm heading into treatment. It's been a rough 9 years- I found out when I started to train as a midwife so it fairly scuppered my career and was quite isolating. So thank you for being here now, thanks to the companies whe developed the treatment and here's to a happy ending! 

 


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