Welcome, Guest. Please login or register.
September 25, 2018, 05:48:40 am

Login with username, password and session length


Members
Stats
  • Total Posts: 52686
  • Total Topics: 4349
  • Online Today: 52
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 40
Total: 40

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Doctor says my Hep C has returned - but I disagree  (Read 1386 times)

0 Members and 1 Guest are viewing this topic.

Offline cementjungle

  • Member
  • Posts: 11
Doctor says my Hep C has returned - but I disagree
« on: July 09, 2018, 06:07:26 pm »
I moved to another state about 4 months ago, and finally got hooked up with a new general practice doctor. He sent me for the usual blood work, and I asked that they add the Hep C tests (including the quantitative) because I just did the treatment last summer/fall (I was still ND as of January before I moved).

I then had my appointment with my new doc and all the results had come back except for the quantitative part. He went over my results, and explained that the HepC antibody test will always show positive, which I knew.

So, today I call the office and ask if the Quantitative part had come back yet.... they said yes, but had to talk to the doc to get permission to tell me results over phone. They call back and say "Your Hep C has returned... you are active again".

My heart sank.... I am about 9 months post treatment. I asked that they email me the test results, which they did.

I'm looking at the thing... and it says under the results in range column:

REAL TIME PCR
HCV RNA, QUANTITATIVE  < 15 NOT DETECTED
  REAL TIME PCR               < 1.18 NOT DETECTED

So.... am I going crazy, or is this doctor just an idiot???
« Last Edit: July 09, 2018, 06:13:38 pm by cementjungle »
1978 (or thereabouts) contracted
2001 Discovered HepC (quit drinking immediately) Genotype 1a

Jan 2017 Viral load 22,800,000 7.36 H
Jan 2017 AST 36 ALT 65
Jan 2017 Fibrosis score 0.78 (F4)

July 2017 start tx (12 week course)

3 weeks into tx: not detected
AST 17 ALT 19

7 weeks into tx: not detected
AST 18 ALT 21

3 months post treatment: not detected

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 3,909
  • Get tested, get treated, get cured, fight Hep c!
Re: Doctor says my Hep C has returned - but I disagree
« Reply #1 on: July 10, 2018, 12:20:06 am »
If that is your most recent test result I think you need to discuss this with your new doctor and educate them on how to interpret a HCV RNA by PCR test result. Many general practitioners are not up to speed on hep c testing.

Was this discussion with your doctor or their nurse? Did you ask how they interpretate this result as a positive result?

Not detected as you likely know means the test cannot detect any virus in your blood and the <15 IU/mL and the same number in logarithmic form <1.18 log IU/mL is the LLOQ the lower limit of quantification of the test. Basically, the lowest level of virus the test can detect. The LLOQ describes the capability of the test it is not your result.

Your result was not detected. It doesn’t get any better than that.

Here is an article on the subject from the Mayo Clinic hopefully that will inform and educate your doctor.

https://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/97291

“Interpretation
This assay has a result range of 15 to 100,000,000 IU/mL (1.18 log to 8.00 log IU/mL) for quantification of hepatitis C virus (HCV) RNA in serum.
 
An "Undetected" result indicates that the HCV is absent in the patient's serum specimen.”

If you can please try to educate your doctor before they unnecessarily scare other patients. If you can’t get your doctor to understand this I would look for a new, new doctor.
« Last Edit: July 10, 2018, 12:25:15 am by Lynn K »
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

 


© 2018 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.