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Author Topic: The hunt for treatment  (Read 2256 times)

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Offline Hogan1956

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  • Posts: 13
The hunt for treatment
« on: July 28, 2018, 02:01:46 pm »
I figured i hijacked the "unwilling to get tested" thread long enough and its time to start one detailing my hunt for affordable treatment.
I received the Harvoni co-pay coupon from Harvoni support path website yesterday, and since it still requires a 70 thousand plus cash outlay on my part, i can cross that off the list as i crossed Medicare off.
I did however get approved for VA medical after breaking the promise to myself decades ago that i would ever use them for any type medical care. They said i would get scheduled for an appointment in the next 15 business days, so maybe by Halloween i will see a doc and start the fight to get them to cover costs.

So....its hurry up and get in line and wait for now ;)
Updates to follow.

Offline andrew j

  • Member
  • Posts: 432
Re: The hunt for treatment
« Reply #1 on: July 28, 2018, 07:27:00 pm »
I don't live in the U.S., Hogan - but from what I've read - mainly here - the VA offers really good coverage for people with Hep C.
Hoping that that's the case for you!

Best wishes,
A.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,042
  • Get tested, get treated, get cured, fight Hep c!
Re: The hunt for treatment
« Reply #2 on: July 28, 2018, 07:50:11 pm »
Many here have been treated by the VA just takes time and waiting from what I understand.
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Hogan1956

  • Member
  • Posts: 13
Re: The hunt for treatment
« Reply #3 on: August 02, 2018, 08:21:01 pm »
VA got back to me in only 3 days time, i was impressed. 1st appointment comes september 20th, specialty appointments not likely before 2019....the wait goes on.

Offline Hogan1956

  • Member
  • Posts: 13
Re: The hunt for treatment
« Reply #4 on: October 10, 2018, 11:41:07 pm »
A quick update,

Saw the VA doc on the 20th, got referrals for the hep c and my cardiovascular problems, heard from the infectious disease department the same day and they set up a video teleconference call with a nurse practitioner for Oct4th.
After the consult they took a slew of blood and set up another for November 8th. She stated they will be able to tell me at that time whether or not treatment will be imminent or deferred.
The wait continues...

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,042
  • Get tested, get treated, get cured, fight Hep c!
Re: The hunt for treatment
« Reply #5 on: October 11, 2018, 12:47:29 am »
Really this is fairly similar to what occurs on the civilian side.

Forward progress good deal
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Hogan1956

  • Member
  • Posts: 13
Re: The hunt for treatment
« Reply #6 on: November 13, 2018, 12:58:58 pm »
The hunt is over... Harvoni treatment begins today!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,042
  • Get tested, get treated, get cured, fight Hep c!
Re: The hunt for treatment
« Reply #7 on: November 13, 2018, 02:06:31 pm »
Woo whoooo!

Congrats!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Hogan1956

  • Member
  • Posts: 13
Re: The hunt for treatment
« Reply #8 on: November 13, 2018, 10:06:16 pm »
Thanks Lynn.

Offline Hogan1956

  • Member
  • Posts: 13
Re: The hunt for treatment
« Reply #9 on: December 10, 2018, 03:18:41 pm »
Well i reached the 1/3 mark in my treatment today. I haven't noticed any side effects from the medication except for the fact that i feel cold in the evenings.I've always been the one walking around in a tee shirt in 50 degree weather. But... that could also be from the caloric deficit state i've been keeping myself in while losing some weight ( down 36 lbs since feb).
I hope skipping a couple days between bottles don't hurt the treatment since the VA in their infinite wisdom didn't fill the 2nd bottle until this afternoon so i most likely won't see it until thursday.
Will update again at the 2/3 mark next month.

Offline KimInTheForest

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  • Believe in yourself
Re: The hunt for treatment
« Reply #10 on: December 10, 2018, 06:20:07 pm »
Congrats on reaching the 1/3 mark. Way to go!

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Hogan1956

  • Member
  • Posts: 13
Re: The hunt for treatment
« Reply #11 on: December 11, 2018, 12:55:14 pm »
Thanks Kim. On a side note the VA shipped the Harvoni next day air so no interruption occured. 

Offline KimInTheForest

  • Member
  • Posts: 1,914
  • Believe in yourself
Re: The hunt for treatment
« Reply #12 on: December 11, 2018, 03:56:38 pm »
Thanks Kim. On a side note the VA shipped the Harvoni next day air so no interruption occured.

That's good news - no interruption. :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

 


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