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Author Topic: Limbo  (Read 748 times)

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Offline Salal

  • Member
  • Posts: 34
Limbo
« on: August 28, 2018, 12:45:38 pm »
Where I live (BC, Canada) they make you wait 24 weeks post-treatment before you have your follow-up blood test for HCV to see if you have been cured.  As you all know, there is a very high cure rate nowadays, and I anticipate I will get an "undetected" result from the test.  But my rheumatologist sent me to be treated for HCV when my autoimmune vasculitis (which he believed to be cryoglobulinemia) came out of arrested mode and I had a couple of episodes of purpura.  He thought HCV was likely the underlying cause of the vasculitis and that if the HCV was treated the episodes of purpura would stop.  Here I sit, 20 weeks post treatment suffering again from episodes of purpura, which is not fun. Either I am not cured of HCV or it is not the underlying cause of the vasculitis, and at this point I do not know.  September 25 is the day I am to take my requisition for an HCV test to the lab.  Meantime my rheumatologist is going through the process of getting approval for treatment for the vasculitis itself.  And I sit in painful limbo. I sure look forward to having some answers...

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,309
  • Get tested, get treated, get cured, fight Hep c!
Re: Limbo
« Reply #1 on: August 29, 2018, 01:58:38 am »
Is it possible to get a liver enzyme test? If your liver enzymes are still normal there is a good chance your remain cured
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

 


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