Welcome, Guest. Please login or register.
September 25, 2018, 04:51:49 am

Login with username, password and session length


Members
Stats
  • Total Posts: 52686
  • Total Topics: 4349
  • Online Today: 52
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 17
Total: 17

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Epclusa from fixhepc?  (Read 351 times)

0 Members and 1 Guest are viewing this topic.

Offline rrmc

  • Newbie
  • Posts: 1
Epclusa from fixhepc?
« on: September 03, 2018, 03:07:24 pm »
Hello,

My mother (60 years old) was recently diagnosed with Hep C Gen 3 viral load around 100,000. Fibroscan 2.5.

The hepatologist prescribed 3 months Epclusa but the medication is no yet available in the public health system in Mexico. They say they have already requested the medication but don't know when it will be approved, it might be 6 months, 1 year, 2 years, they can't tell us a date. They say Harvoni took a little more than a year to get approved so Epclusa might arrive in about 6 months but they can't tell us for sure when.

So my mother wants to order Epclusa from fixhepc.com to start treatment as soon as possible. I'm worried about it being a generic and also about it getting damaged during shipping due to heat. We have up to 40 degrees celsius weather right now and I've seen most medications have labels indicating to store it under 25 degrees celsius.

Does anyone have any experience with Epclusa or other medications from fixhepc? What would you do, wait for Epclusa to be available or order from fixhepc?

Also I've read some threads/articles about people getting aggresive HCC a few months after getting treated with DAA such as Epclusa. Should I tell her that it's a possible, although unlikely, side effect? Would you have liked to know that before starting treatment?

Thanks to all.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 3,909
  • Get tested, get treated, get cured, fight Hep c!
Re: Epclusa from fixhepc?
« Reply #1 on: September 03, 2018, 07:32:27 pm »
If she has no or little liver damage she could afford to wait. Many people here did get meds from fix hep c with no problems I am aware of at least don’t recall any posts about that. Transient (brief) temperature excursions should not have much if any effect but I could see that as a concern. We have had problems shipping anything to our relatives in the DF getting “lost”.

The HCC link was initially a concern but has since been disproven. It was more of a concern for those who previously had liver cancer. But in any case, if your mother doesn’t have liver damage if F3 or F4 fibrosis score then it is not an issue.

https://www.healio.com/hepatology/hepatitis-c/news/online/%7Bd649edd1-f647-451e-b395-5db9370e5515%7D/research-continues-to-invalidate-link-between-daa-treatment-liver-cancer

Best of luck I hope Epclusa becomes available in Mexico sooner that later
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

 


© 2018 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.