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Author Topic: Keeping your chin up with cirrhosis.  (Read 609 times)

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Offline Mugwump

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  • Posts: 716
  • My number of posts means nothing, piscor ergo sum!
Keeping your chin up with cirrhosis.
« on: September 04, 2018, 02:55:40 pm »
With 3 years free from HCV under the belt, I feel like a thief who has stolen time from the grim reaper in some ways. I did not expect miracles to happen with treatment and cure because having compensated cirrhosis does reduce the efficiency of ones metabolism in general.

I do feel that I have been gifted the ability to do things that otherwise I may never have accomplished without a successful DAA treatment. But all things considered the devils bargain of having HCV leading to cirrhosis has taken its pound of flesh. My recovery rate when doing serious exercise is still down to the point that I can no longer hike difficult terrain without the risk of serious injury. I develop weakness that is slow to recover in my major muscles after serious exercise for more than an hour or two of work.
This tells me that the portion of what is left of my liver still metabolizing energy is not adequate for the job. However this certainly also means that stopping doing things will only make the situation worse.

Here is to all of us with cirrhosis who must now reduce our physical expectations accordingly. And in doing so adjust to the reality of having cirrhosis in a way that helps us remain as active and useful as is possible.   
 
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,009
  • Get tested, get treated, get cured, fight Hep c!
Re: Keeping your chin up with cirrhosis.
« Reply #1 on: September 04, 2018, 05:10:41 pm »
Never give up!
Never give up!
Never give up!

Keep calm carry on ;)
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Mugwump

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  • Posts: 716
  • My number of posts means nothing, piscor ergo sum!
Re: Keeping your chin up with cirrhosis.
« Reply #2 on: September 04, 2018, 05:51:01 pm »
My wife and I just hiked out to see a petroglyph of what looks like a seal on the coastal rocks here on Vancouver Isle. The hike was close the limit of my ability and lower leg strength and I am back using a cane to make sure I don't take a serious tumble when hiking trails and climbing over rocks and the like.
My goal is to put off needing more assistance as long as I can and perhaps wading and fishing a little bit of river again this year if I get the chance. I am dropping excess baggage and maintaining upper body strength, so I am certainly not about to throw in the towel just yet!
Lynn;

this is exactly why I have posted this thread. I feel we all need to encourage each other all we can to do what we are capable of doing post treatment; this is as important for all of us as being cured of HCV.   
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline KimInTheForest

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Re: Keeping your chin up with cirrhosis.
« Reply #3 on: September 04, 2018, 05:51:23 pm »
Good advice Mugwump!

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Keeping your chin up with cirrhosis.
« Reply #4 on: September 05, 2018, 01:32:21 pm »
This inspired me. Thank you!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

 


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