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Author Topic: Drug choices = Please help  (Read 755 times)

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Offline RAIA

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  • Posts: 4
Drug choices = Please help
« on: September 20, 2018, 08:56:23 am »
I was told I am genotype 3, no cirrhosis, didn't mention fibrosis. going to get more info this morning when I give them last years tax return and get my first shot for Hep A/B.

They want me to do Marvycet (sp?) which is 8 wks, that part I like, shorter time.
I've been reading all the side effects people before me have listed. They only told me about headaches, which I hydrate myself well, and fatigue, which there is no way around it but I have to work. Reading the other side effects people said they went through and still feel even after finishing scared me.

Can you tell me if this is a good drug to take in spite of all I'm reading? Are there other drugs for genotype 3 that are better. I read that #3 can be resistant.

Please tell me me your opinion, feelings, anything, that will help me get through this. I have to work. I have no one to rely on. In the middle of this, perhaps right before I get approved and start, I have to move. Not to stressed about that.
More concern over the fatigue, blurred vision, etc. Is it debilitating?

Thank you, everyone.

Offline RAIA

  • Member
  • Posts: 4
Re: Drug choices = Please help
« Reply #1 on: September 20, 2018, 07:44:47 pm »
I'm a bit saddened that I received no replies. Us newbies come here looking for support and information from those who have gone before us. And it's not just here, I've tried other forums and it's the same. Is it too painful or a stressor to have to think of this.? I know I sometimes don't want to come on and read people's posts because I find it overwhelming and scary. But us newbies need you.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,185
  • Get tested, get treated, get cured, fight Hep c!
Re: Drug choices = Please help
« Reply #2 on: September 20, 2018, 10:12:58 pm »
Hi Raia and welcome

You only posted this morning we are not constantly monitoring the forum so it may take a day or two for you to receive a response.

The majority of patients only experienced minimal side effects the occasional mild headache which can hopefully be avoided by staying properly hydrated.  While some people sadly have had a more difficult time with treatment this is not typical for the majority of patients. Most patient tolerated treatment very well and you can likely expect the same experience with treatment.

Mavyret is the recommended treatment for genotype 3 and what your doctor has selected. I suggest you trust your doctors choices they are the experts in these matters.

Best of luck with your treatment let us know how it is going
« Last Edit: September 21, 2018, 06:40:52 pm by Lynn K »
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline RAIA

  • Member
  • Posts: 4
Re: Drug choices = Please help
« Reply #3 on: September 21, 2018, 01:27:32 am »
thank you

Offline lporterrn

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  • Posts: 1,937
  • LucindaPorterRN
    • LucindaPorterRN
Re: Drug choices = Please help
« Reply #4 on: September 21, 2018, 02:36:11 pm »
I find it helpful to do a Forum search - if you put Mavyret into the search field, you can read posts of others who have experience with it.

Personally, I think one of the reasons that we don't have lots of people on the forum at any single moment is because treatment is so much easier, people are out having fun and keeping busy. In the old days with interferon, I was on the support forums constantly. I'm delighted those days are gone!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

 


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