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Author Topic: When does Maviret start working????  (Read 13986 times)

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Offline PhoenixRising

  • Member
  • Posts: 3
When does Maviret start working????
« on: December 20, 2018, 07:43:36 am »
I am into week 4 of an 8 week Maviret treatment and I feel as bad, if not worse, since I started. Please - anybody here who has gone through treatment with this drug, when did you finally start to feel like things were at a turning part? I’m feeling so depressed about it all.

Offline lporterrn

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  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: When does Maviret start working????
« Reply #1 on: December 20, 2018, 11:42:16 pm »
Is it possible that something else is also going on? I do know of people who have had a rough time going through treatment. I also know that sometimes people have a concurrent medical problem that went untreated because they assumed the HCV treatment was causing them to feel poorly.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline andrew j

  • Member
  • Posts: 477
Re: When does Maviret start working????
« Reply #2 on: December 23, 2018, 11:30:35 pm »
Our bodies go through a profound transformation during treatment.

Most people have only very mild side-effects ... a few transient headaches, and some mild joint and muscle pain.
Others feel a bit yuk - and a few experience severe adverse reactions, leaving them more-or-less debilitated.
You appear to be in the middle group? ... just feeling a bit yuk?
Typically - the recommendation is to hang in there.
... You should feel better once you finish treatment - if not before.

If it's worse than that, and you're feeling like things have gone decidedly wrong - you should probably consult your doctor.

Are you drinking plenty of water, and eating OK?
(These can make a real difference) ...

I can't get to a computer very often at the moment - so for now I'll just wish you well.

Hoping that you feel better soon,

A.

Offline LindaBalz

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  • Posts: 91
    • FB
Re: When does Maviret start working????
« Reply #3 on: December 27, 2018, 09:14:51 am »
Pheonix

some days I feel great. somedays I feel ick. But in 4 weeks I was undetectable for the virus. On my 9th week (12 being my full treatment). 2 days ago I did a hike 5.2 miles, next day in bed with a stomach ache all day. the point is...one day at a time. worth the bad days if cured.

Linda B
LB

Offline PhoenixRising

  • Member
  • Posts: 3
Re: When does Maviret start working????
« Reply #4 on: January 06, 2019, 12:04:14 pm »
Thank you for your kind responses! Week 5 was pretty good, but week 6 has been sheer hell with increase in insomnia, headaches and exhaustion- and my joint pain has also ramped up. I am having a hard time walking today. I eat well, drink oodles of water, but I don’t have the stamina/energy to help my body with some exercise.

I am starting to suspect that while Mavyret is the catalyst for SVR, time itself is also a huge  part of the healing journey. I have to say the Mavyret TV ads make it look like you’ll feel like a million bucks in no time at all, and even my Hep C nurse said she had patients who felt amazing in a few weeks. Not so for me, but, like a Phoenix, I hope to rise from the ashes of this disease. Hoping weeks 7 and 8 are nicer to me.

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: When does Maviret start working????
« Reply #5 on: January 06, 2019, 02:52:13 pm »
At least you only have 2 more weeks to go, PhoenixRising. Hope it gets better soon. It will be worth it in the end when you are rid of Hep C.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

 


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