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Author Topic: Thoughts for Gaj  (Read 12170 times)

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Offline I fightis thetitis

  • Member
  • Posts: 129
Thoughts for Gaj
« on: January 11, 2019, 03:53:38 am »
Hi Everyone and Happy New Year!

I hope this is a happy, healing and healthy year.

Some of you that have been on the forums for a while will remember Gaj (Guy was his real name) and many of his articulate and well informed post and replies. Sadly, he passed from HCC last January in Melbourne Australia.

We had been PMing back and forth and then suddenly his PM and post stopped mid thread. His sister sent me a PM informing me he succumbed as his previously treated hcc came back and must have been very aggressive.

He was a big supporter of getting CT scans once a year along with bi annual Ultra S as some Liver cancers, like his, are not picked up by US.

I miss his post and hope he will inspire others with cirrhosis, as he did for me to get annual CT scans of the liver. 
Thank you Guy!!
Keep up the good fight!

Best always,

Greg
M59  56@start of TX. date infected:1976
diagnosed 1997 - asymtomatic
Genotype 1a
AST 111 -ALT 124 - AFP -89
Viral Load 1900000 - Log 6.28
Fibro Test F4 ActiTest A3
Harvoni 24 wks - start date 11/24/15

6 Week Labs VL Undetected!
104 weeks EOT Undetected.

8/25/17 Fibrosure score 80 = F4
11/10/17 Fibroscan 7.5 mean 1.6 m/s = F2
8/2018 Ultra sound normal.

Offline Mugwump

  • Member
  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Re: Thoughts for Gaj
« Reply #1 on: January 11, 2019, 09:25:53 am »
Thanks for informing us about what happened to Guy. He was an inspiration and a calming spirit who did much to inform and comfort us all. Another kind spirit taken from us early by the dangers we face from having had long term HCV infection.
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Thoughts for Gaj
« Reply #2 on: January 11, 2019, 11:40:42 am »
Thank you for holding space for one of our, now gone, members. This is a heartfelt reminder of why we want to cure hep C early, and when that doesn't happen, why rigorous follow-up is essential.

And to care for each other while we are on this journey.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Thoughts for Gaj
« Reply #3 on: January 11, 2019, 12:53:51 pm »
Oh my gosh so sad to hear this thanks for letting us know :(
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline andrew j

  • Member
  • Posts: 477
Re: Thoughts for Gaj
« Reply #4 on: January 12, 2019, 04:56:58 pm »
Thanks for the post, Greg.

This is sad news.

I had some interesting exchanges with Gaj.
It's strange you know - I was just thinking about him the other day.
I live in New Zealand.
There aren't a lot of us down here - and it was good to know that he was close by.

Gaj gave a lot to these forums - esp. to Fix Hep C in Australia.

I think he gave a lot, just anyway.

Best to all,

A.

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Thoughts for Gaj
« Reply #5 on: January 15, 2019, 10:55:55 am »
Very sorry to hear this news. Thanks for letting us know. I'll miss Gaj.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

 


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