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Author Topic: Started Epclusa today 2/1/2019  (Read 3102 times)

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Offline ODAAT

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  • Posts: 11
  • Going for the CURE
Started Epclusa today 2/1/2019
« on: February 01, 2019, 06:58:55 am »
Hello All... This is day one, 2/1/2019 of my Hep C 12 week treatment with Epclusa.  83 more days to go for the cure.   :D  I scheduled myself to take the Epclusa pill at 6am every morning. I'm going to try and keep track of any side effects and overall feelings in general.  I did get a metallic taste in my mouth when drinking my first cup of coffee.  I can deal with that... haha...   Thanks for this forum.  Maybe my journey can help others... I have two friends that have Hep C and want to be treated and go for the cure ... they are watching my journey closely.  I have faith and hope all will be well. Thanks again.
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Started Epclusa today 2/1/2019
« Reply #1 on: February 01, 2019, 12:07:24 pm »
Hope you breeze through to the finish line. Welcome to the beginning of freedom!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline ODAAT

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  • Going for the CURE
Re: Started Epclusa today 2/1/2019
« Reply #2 on: February 02, 2019, 06:57:11 am »
Thanks lporterrn... I appreciate the support.  Yesterday, the first day side effects were mild. I had a headache and little bit of an upset stomach but not too bad.  I slept ok, tossed and turned in the early hours.  All in all, I had a good day. So, day 2 has begun.  We shall see how it unfolds.  ;D
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

Offline Lynn K

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  • Get tested, get treated, get cured, fight Hep c!
Re: Started Epclusa today 2/1/2019
« Reply #3 on: February 02, 2019, 12:44:25 pm »
Hi and welcome

Fortunately the majority of people who undergo hep c treatment with these relatively new DAA meds report little in the way of side effects. The most often reported side is having some mild headaches. Most have found if they try to keep properly hydrated the old eight glasses containing eight ounces of fluids seems to ward off headaches. So if your not already see if being hydrated helps with that.

Best of luck and wishing you smooth sailing on treatment
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline ODAAT

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  • Posts: 11
  • Going for the CURE
Re: Started Epclusa today 2/1/2019
« Reply #4 on: February 03, 2019, 10:22:53 am »
Thank you Lynn K., I really appreciate the support.  This is Day 3 of 84.  Yes, hopefully my side effects stay tolerable.  I've been drinking lots of water and the headache is mild.  I have some nausea, some nervous jitters, and I'm a little bit irritable. I still have a long way to go.... one day at a time.  My taste buds have changed.  I have a metallic taste to almost everything... weird.   Yesterday seemed real long and slow moving... maybe it was just me.  I guess like anything else, I have to stay busy doing other things while I recover and go for the cure.  Today has started out alright.  Its raining and warm here on the southeast coast.  Thanks for the forum.
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

Offline Mugwump

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  • My number of posts means nothing, piscor ergo sum!
Re: Started Epclusa today 2/1/2019
« Reply #5 on: February 04, 2019, 12:40:29 am »
Seems that Epclusa works about the same as Harvoni as far as what happens during treatment. You can find yourself having a sudden boost starting at about week 2, we called it the "harvoni high".

I did a little checking and it seems that most of the members here who experienced a boost during treatment had higher alt and ast readings at the beginning of treatment and as the liver function normalized down into the normal range, the sudden jolt of normal liver function can really seem like a happy pill! The specialist and clinic that treated me confirmed that others here who were in a similar boat with high liver enzyme counts at the beginning of treatment also experienced something very similar.

Would be interesting to confirm that this is the case. This would explain a great deal.

Personally I found that getting some exercise was almost as important during treatment as keeping well nourished and hydrated. I was not in very good condition at the beginning of treatment so the sudden change to my metabolism was astonishing to say the least.

The bummer for me was catching a really terrible case of the flu right at eot! It sent me for a hell of a loop and I almost wound up in hospital. I had the flu shot in late 2014 but the shot missed that year and the flu season was hell on earth. But the changes that having normal liver functions for the first time in many years made were truly amazing.
All the best in an easy and happy treatment and a 2019 free from HCV
Cheers

Eric
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline ODAAT

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  • Posts: 11
  • Going for the CURE
Re: Started Epclusa today 2/1/2019
« Reply #6 on: February 04, 2019, 08:41:13 am »
Hi Eric, thanks for your support.  Its good to know a fellow fisherman has gone for the cure and made it.  Hook to the head and all...  8)  Congratulations.  My Day 3 was spent close to the toilet.... yikes.  I had an upset stomach most of the day and cleared out a lot of stuff.  I'm drinking lots of water as suggested by others.  I feel better today on Day 4.  I suppose its all part of the process.  I'm going to take your suggestion and start exercising on a daily basis.   Beginning slowly of course.  Several months ago, I was real active and this thing hit me all of a sudden, like a freight train, knocked my for a loop.  I was tired all the time.  That's when I went to the doctor to get blood work and was diagnosed with HVC.  It seems I've had since the mid 80's.  My diabetes (type 2) went wacky and my blood sugar shot up to 360 and would not come down with pills... my internal medicine doctor has me on a sliding scale with insulin as a backup plan.  Surprisingly, in the last month, I've gained some weight back (10 pounds) and my blood glucose has been more manageable.  So, that's it for now.  My daily day by day online journal may seem boring, but hopefully it may help others to make a decision to get treatment for this virus.  Thanks again, Joe
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

Offline ODAAT

  • Member
  • Posts: 11
  • Going for the CURE
Re: Started Epclusa today 2/1/2019
« Reply #7 on: February 05, 2019, 08:59:04 am »
Hello All, Day 5 has started.  Yesterday was two days in a row with nausea, mild headache, and diarrhea.... yikes.  Today, so far, is much better.  Just say NO to loose stools...haha.  Just kidding of course, the treatment is no joking matter but maintaining a positive attitude is going to be my thrust for the cure.  I took a number of short walks yesterday and it seemed to improve my energy level.  The weather here is real nice and that helps.  It was sunny and 72 yesterday and today is predicted to be the same.  Sunshine and fresh air for today too.  Ok, thats it from my neck of the woods.  Thanks for the forum.
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

Offline dandyindeed

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  • Posts: 12
  • Retired in Colorado *hits blunt
Re: Started Epclusa today 2/1/2019
« Reply #8 on: February 06, 2019, 01:52:44 pm »
I"m starting my Epclusa rx today 2/6/2019 in about 39 minutes.... i'm scheduling 12:30.    Then I have to take my Prilosec 4hrs later.   

It's nice to meet you. 
Type 1
Dx'd 1995

No liver damage
Started Epclusa 2/6/19

Offline dandyindeed

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  • Posts: 12
  • Retired in Colorado *hits blunt
Re: Started Epclusa today 2/1/2019
« Reply #9 on: February 06, 2019, 02:02:33 pm »
I had a metallic taste before on a med but I just opted for a diff med.    The smell of microwave popcorn  gave me a metallic taste.   Cheap chocolate bars and processed foods were notorious  for tasting like metal.    I couldn't stand hydrogenated oils.   

Hmmm... I wonder if that will happen to me again.   
Type 1
Dx'd 1995

No liver damage
Started Epclusa 2/6/19

Offline ODAAT

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  • Posts: 11
  • Going for the CURE
Re: Started Epclusa today 2/1/2019
« Reply #10 on: February 06, 2019, 02:43:46 pm »
Day 6 

Hi dandyindeed, thanks and welcome.  I hope your Epclusa treatment goes well.  Mine so far has had minimal side effects. Headache, nausea, and two days of diarrhea. I drink lots and lots of water every day.  No heartburn yet.  I did have trouble sleeping last night... slept for 3 hours and woke up.. tossed and turned the rest of the night. I hope it passes..  We shall see.  I noticed in the morning when I take the pill at 6am, I get the jitters soon after for about 4 to 5 hours.  Just nervous energy.  I really try to stay  busy and get things done. I started taking walks (2 miles today) and I get outside as much as possible to clear my head.  Also, I've gotten used to the metallic taste, its not so bad. Best of luck, Joe
« Last Edit: February 06, 2019, 02:48:58 pm by ODAAT »
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

Offline dandyindeed

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  • Posts: 12
  • Retired in Colorado *hits blunt
Re: Started Epclusa today 2/1/2019
« Reply #11 on: February 06, 2019, 03:22:34 pm »
Since i'm 5 days behind you, we'll just have to be  new best friends!  hahaha.    It really is nice to meet you.    I was gona make an OP saying the same thing you said … so I figured no need for a duplicate.    Don't mean to derail your thread. 
« Last Edit: February 07, 2019, 10:26:42 am by dandyindeed »
Type 1
Dx'd 1995

No liver damage
Started Epclusa 2/6/19

Offline ODAAT

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  • Posts: 11
  • Going for the CURE
Re: Started Epclusa today 2/1/2019
« Reply #12 on: February 07, 2019, 08:21:16 am »
Day 7 (1 week of 12 weeks)   Good Morning.  So far so good... typical hyper morning after taking the pill. It makes me edgy to say the least but I'm not complaining for real. I'm still having an upset stomach and slight headache.  So far, these are the typical daily side effects unless others show up along the way.  I slept fairly well last night.  I took a benadryl for seasonal allergies and it makes me sleepy.  I'm drinking lots of water with 2 cups of coffee, toast, and scrambled eggs for breakfast.   On another note, my gastro doctor has scheduled me for a 4 week followup visit.  I imagine he will want to take blood-work.  So, I'm scheduled for March 4th, 2019.  That's it from me for today.  Morning walk up next... later. Its a beautiful day in the low country of SC.
 
Dandyindeed, I hope your first day went well.
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

Offline dandyindeed

  • Member
  • Posts: 12
  • Retired in Colorado *hits blunt
Re: Started Epclusa today 2/1/2019
« Reply #13 on: February 07, 2019, 10:24:36 am »
Good morning indeed!   I was edgy yesterday but I woke up that way.    I'm quitting smoking and on a med that will helps w/ sleeping.      I"m drinking  diluted grape juice which is really enhancing my compliance with water.     


Not one issue so far.    Next pill due in 8hrs.   I'm so excited!   This has taken me since last august to get going. 
:

I already have my 4 week visit scheduled with md and two lab visits : one in march and one in may.   
« Last Edit: February 07, 2019, 10:28:21 am by dandyindeed »
Type 1
Dx'd 1995

No liver damage
Started Epclusa 2/6/19

Offline ODAAT

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  • Posts: 11
  • Going for the CURE
Re: Started Epclusa today 2/1/2019
« Reply #14 on: February 08, 2019, 06:45:55 am »
Day 8.... Good Morning.  Yesterday was a little bit rough.  Same morning jitters and mild headache but in the afternoon around 3pm nausea (puked) had a pounding headache, irritable, and slight depression most of the day... I took Tylenol, drank diet ginger ale (diabetic) and lots of water.  It seemed to help.  Did not sleep very well.  So, hopefully, today will be better.  Self care is everything it seems.  One day at a time.  This too shall pass. 

“Starbucks says they are going to start putting religious quotes on cups. The very first one will say, ‘Jesus! This cup is expensive!'”
« Last Edit: February 08, 2019, 08:03:29 am by ODAAT »
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

Offline Sierraglee

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Re: Started Epclusa today 2/1/2019
« Reply #15 on: February 09, 2019, 01:51:28 pm »
Good morning all, so happy to have found this website.  I started taking Epclusa on 1.31.19. Going on day 10 of the 12 weeks regimen.  The first few days experienced a headache and slight dizziness.  What is the recommended time to take medication? Currently, I am taking the med in the evening between 7 and 8pm.  My concern is that in the last couple of days, I am having shortness of breath.  I spoke with the pharmacist and he indicated this is not a common side effect.  What are your thoughts?  Thanks

Offline andrew j

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  • Posts: 455
Re: Started Epclusa today 2/1/2019
« Reply #16 on: February 09, 2019, 05:34:48 pm »
Hi Sierraglee,

Drinking plenty of water can help with that dizziness, and those [hopefully mild and transient] headaches.
I had some shortness of breath during Tx (Harvoni) - and I've heard of it happening to others.
... It's part of that slightly high feeling that can come after taking your pill (='Harvoni High').
If it's a more pronounced thing - get it checked out - as shortness of breath can indicate some serious medical conditions.

I took my pill at about 9 p.m. with dinner - and sort-of wished I'd taken it in the morning, in order to benefit from the above surge in energy - but it worked out fine
anyway.
You can [slowly] shift the time you take your pill if you want to.
I was too scared to do that.

Hoping that you're doing OK today.

A.


Offline Sierraglee

  • Newbie
  • Posts: 2
Re: Started Epclusa today 2/1/2019
« Reply #17 on: February 09, 2019, 06:22:32 pm »
Hi A,
Thanks for your feedback and being mindful in drinking more water on a daily basis.  As far as the shortness of breath.  I was recovering from bronchitis that might not have fully cleared up.  I had an appt with a dermatologist about my skin rash prior to being dx w/ hep c that has been ongoing for the last 4 years.  I asked the doctor if this was related to the inflammation from contracting hep C.  She did not think so and prescribed Prednisone for the itching.  Funny, how the universe works and actually Prednisone is prescribed for breathing problems.  I went ahead and scheduled an appt to see my primary this coming Mon.  By the way, I looked at other hep C support websites and came across the skin condition; Pruritus which is a common symptom of hep C.  I was beginning to think I was a nut case knowing I am not imaging my symptoms.  I further researched herbal supplement; liver support and detox on Amazon and had good reviews.  Thanks so much for your support.  Glenda 

Offline ODAAT

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  • Going for the CURE
Re: Started Epclusa today 2/1/2019
« Reply #18 on: February 10, 2019, 07:35:24 am »
Good Morning All, Day 10 Epclusa diamond pill .... Not much to report, side effects seem to be more tolerable.  Drinking lots of water, ginger ale, hot green tea, walking and light stretching daily.  Eating small meals. Hopefully, my body and mind is adjusting, and my liver is healing.  I've had some emotional bouts lately.... ups and downs... hope they level out.  Deep slow breathing meditations helps to center.  One day at a time. :D  All in all, may the universe of love heal us.
« Last Edit: February 10, 2019, 07:37:20 am by ODAAT »
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

Offline dandyindeed

  • Member
  • Posts: 12
  • Retired in Colorado *hits blunt
Re: Started Epclusa today 2/1/2019
« Reply #19 on: February 10, 2019, 04:17:21 pm »
Took  " day number 5 pill " and so far I've got nothing in terms of side effects.    Every day so far has been just a normal day .   




« Last Edit: February 10, 2019, 04:20:05 pm by dandyindeed »
Type 1
Dx'd 1995

No liver damage
Started Epclusa 2/6/19

Offline ODAAT

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  • Posts: 11
  • Going for the CURE
Re: Started Epclusa today 2/1/2019
« Reply #20 on: February 13, 2019, 11:44:04 am »
Good Morning All, Day 13... so far so good.  Steady as she goes.  Side effects has eased off.  One day at a time. 
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

Offline dandyindeed

  • Member
  • Posts: 12
  • Retired in Colorado *hits blunt
Re: Started Epclusa today 2/1/2019
« Reply #21 on: February 14, 2019, 09:36:48 am »
Today I will take my 9th pill.     There's really nothing to say about it.   It's all completely and wonderfully boring.    I have zero need for emotional support and have no need to share.

I no longer wonder why these forums aren't hopping 24/7 with activity.     I"m out. 
Type 1
Dx'd 1995

No liver damage
Started Epclusa 2/6/19

Offline KimInTheForest

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  • Believe in yourself
Re: Started Epclusa today 2/1/2019
« Reply #22 on: February 14, 2019, 10:34:12 am »
Good Morning All, Day 13... so far so good.  Steady as she goes.  Side effects has eased off.  One day at a time.

That's great, ODAAT. May the rest of your treatment journey be smooth sailing for you. Wishing you the best. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Lynn K

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  • Get tested, get treated, get cured, fight Hep c!
Re: Started Epclusa today 2/1/2019
« Reply #23 on: February 14, 2019, 05:06:42 pm »
Hey dandy glad to hear all is going well with you best of luck!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline ODAAT

  • Member
  • Posts: 11
  • Going for the CURE
Re: Started Epclusa today 2/1/2019
« Reply #24 on: February 15, 2019, 08:28:40 am »
Good Morning All, Day 15...  one day at a time.  I found an informative article about taking Epclusa.  Here it is if you're interested.

https://www.generichepatitiscdrugs.com/tips-for-taking-epclusa/

Give yourself a wonderful day.  Thanks for the forum.
HCV - contracted 1985 diagnosed 2018
Genome 2b
VL 5,790,000 
Fibrosis score .36
Fibrosis stage F1 - F2
ALT 161 AST 64
Treatment 12 weeks Epclusa started on 2/1/2019
#goingforthecure #slaythedragon

 


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