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Author Topic: Starting mavyret today...really scared  (Read 2118 times)

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Offline Shellae

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Starting mavyret today...really scared
« on: March 22, 2019, 04:04:25 pm »
Hi all. I didn't think I'd have this much apprehension starting treatment, but here I am. I have to eat before I take my first dose, and my stomach is doing flips from the anxiety. I'm gonna do it though as this is the only way to get rid of this virus. So grateful for the less invasive meds today...just have to bite the bullet and swallow them. Glad this forum exists for us all. I read your stories and follow some of your treatment paths and am hopeful.

Offline Lynn K

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Re: Starting mavyret today...really scared
« Reply #1 on: March 23, 2019, 02:31:51 am »
Best of luck on treatment and just to add most people tolerate treatment very well with the most common reported side effect being a few mild headaches which may be avoided by keeping properly hydrated the good old 8 each 8 ounce glasses of fluids daily that we all should be doing anyway.
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #2 on: March 23, 2019, 07:56:12 am »
Thanks Lynn. When I saw the size of the pills I almost fell over. I was expecting little tiny ones. They went down easy though. I think my anxious nature makes things worse than they are.

Offline LindaBalz

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Re: Starting mavyret today...really scared
« Reply #3 on: March 23, 2019, 08:45:31 am »
Don't be scared! I did it and I am the biggest chicken, and I am undetected. Caught the flu during my treatment but it didn't alter the outcome, and not a lot of side effects. You can do this. Yea the pills are big! I have an anxious nature too. Took them at 9pm with a snack. and actually slept well. I feel pretty normal now and my last pill was in Jan. 2019.
Did 12 weeks-how about you?


Linda
« Last Edit: March 23, 2019, 08:49:28 am by LindaBalz »
LB

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #4 on: March 23, 2019, 03:10:06 pm »
Thanks Linda. I take them in the evening too after dinner...I slept normal last night. They have me on a six week regime, then another two weeks after that, and after test results, etc.  :)

Offline LindaBalz

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Re: Starting mavyret today...really scared
« Reply #5 on: March 23, 2019, 04:09:27 pm »
Many of us cleared after 4 weeks. But take every single one for the amount of weeks prescribed. The time goes by real fast!

 8)

Linda
LB

Offline Lynn K

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Re: Starting mavyret today...really scared
« Reply #6 on: March 23, 2019, 05:59:26 pm »
Heck have you ever seen glucosamine chondroitin tablets some of us older folks take to help with stiff joints? The make Mavyret look tiny in comparison lol :)
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline slats1056

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  • SVR to all and to all a good life!
Re: Starting mavyret today...really scared
« Reply #7 on: March 23, 2019, 11:22:37 pm »
 Hey there Shellae,

    Welcome to Heplandia! I just finished 16 weeks of Mavyret about 4 weeks ago. I found that it was pretty easy Tx. compared to My ordeal on Harvoni in 2015. Seem to have had more problems during and post Tx. with 12 weeks of Harvoni than the full 16 weeks on Mavyret. Piece of cake. Just remember to take it easy and take care of Yourself as You go through Your Tx. , You should breeze through it. The worst problem I had was trying not to stress over waiting on Lab results to come back! You got this , just remember that there are a lot of knowledgeable folks here on the Forums if You have any questions or need to vent. Not medical people just a ton of experience and brain power that You can use if needed. ;)

                                           Slats

 I DON'T THINK IN THE BOX AND I DON'T THINK OUT OF THE BOX......I DON'T EVEN KNOW WHERE THE BOX IS! ;D
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #8 on: March 24, 2019, 08:37:21 pm »
Thank-you everyone for your responses and understanding. Very much appreciated.

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #9 on: March 26, 2019, 02:22:05 pm »
Can't believe it is day 5. No real side effects. I did catch a cold this week.

Offline LindaBalz

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Re: Starting mavyret today...really scared
« Reply #10 on: March 27, 2019, 06:41:49 pm »
Yeah and I had the flu like I said in an earlier post....lasted a month turned into bronchitis and a sinus infection. but hey....I'm cured of Hep C  and feel normal again....mostly!

 ;D :D ;) :) 8)
LB

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #11 on: March 28, 2019, 11:08:49 pm »
Day 7 of treatment. Mouth is still super dry at night, and I am real itchy. Did a really warm shower and slathered with coconut oil, drinking lots of water.

Offline andrew j

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Re: Starting mavyret today...really scared
« Reply #12 on: March 30, 2019, 05:43:31 pm »
A little food can also help with that dry mouth.

A.

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #13 on: March 30, 2019, 06:28:19 pm »
I started doing my protein smoothies today. I literally can't get meat past my palette for 3 months now...pork once in a while. chicken rarely, and fish maybe once a week. The smoothies are much easier on the stomach...2 % milk. half a banana, two pineapple rings, 2-3 dollops of Greek yogurt, bee pollen, and 1/4 cup of ground flax seeds...and the 2 scoops of protein powder. It makes 2/3 of a blender and I slowly drink it down. I did this for two years when my thyroid dived about 12 years ago, slowly incorporating solid food. I have been off the thyroid meds for about six years, but my thyroxine is on the low side of OK. My stomach is the first thing to tell me something is off. It's reactions to sugars, fats, fried, and spicy foods has been almost instant lately.

Offline andrew j

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Re: Starting mavyret today...really scared
« Reply #14 on: March 30, 2019, 07:58:05 pm »
Shellae,

You seem to have your nutrition pretty well sussed.

I am 3 years or so post - Tx - and my diet has gradually come back to normal - or - at least - a new and better normal.
Like you - I couldn't really tolerate much meat at all.
I used to live on oils (healthy oils) - and oily fish (tinned salmon, and sardines) mostly.
That seemed to keep my symptoms (which were bad), reasonably under control.

Down here (I live in New Zealand) - lamb was always considered to be the safest meat for Hep C sufferers.

... But again - you seem to have a good and healthy diet sorted out for yourself.

Best of luck with your Tx!

A.


Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #15 on: March 31, 2019, 02:42:29 pm »
Thanks Andrew. I can do all the veggies in the world and fruit, but know I need protein. Tunas packed in water are best for me of the canned fish. Bread is barely tolerable and I love it when I can eat a little. Sprouted breads and multi-grain are the best for me. Oatmeal is a staple with bananas and pineapple juice...absolutely no added sugars. Nuts and seeds are another. Organic carrot juice is the bomb...yum...and my friend gave me a juicer for fresh carrots. I will be growing carrots this year. Also high on the glycemic index, but I get no adverse reactions. I also add 1/4 cup of the orange shavings back to the juice for fiber. Anaszi beans, lentils and black beans...another staple. I crock pot these, add lots of garlic, onion, vegies, basil, rosemary, and pepper...a touch of salt. I have cut my salt intake considerably as I have high blood pressure.

Offline andrew j

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Re: Starting mavyret today...really scared
« Reply #16 on: April 01, 2019, 05:04:06 pm »
Fantastic!

For me (again) - it was mostly good oils, and things high in Vitamin E (for whatever reason).

I used to pursue avocadoes with an almost religious zeal.
... Gentle on the liver.

Meats are best in a medium (like a stew, or whatever).

There are some good, natural gluten free breads down here.
You have to toast them (twice), but ...

Natural sea salt is OK, generally ... or at least, better.
(My blood pressure is high, too - but I seem to be able to bring it down by relaxing, and by using conscious breathing etc.).

Best,

A.
« Last Edit: April 01, 2019, 05:10:31 pm by andrew j »

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #17 on: April 02, 2019, 05:47:16 am »
Will start to incorporate chicken and meats into my beans and make some light beef stews. Thanks Andrew j. That might get me back to more substantial protein intake. I do focused breathing techniques too, and guided meditations/affirmations. They calm me incredibly over the past year of higher than usual stress.

Offline LindaBalz

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Re: Starting mavyret today...really scared
« Reply #18 on: April 02, 2019, 08:32:35 am »
exercise woks wonders too. From a simple walk, pilates or jogging....works for me.
LB

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #19 on: April 05, 2019, 06:45:10 pm »
Starting on week 3 :)

Offline KimInTheForest

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Re: Starting mavyret today...really scared
« Reply #20 on: April 06, 2019, 11:42:32 am »
Congrats on starting your 3rd week, Shellae! Sounds like you are eating very healthily. Keep up the good work. Those pills will be gone before you know it.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #21 on: April 07, 2019, 05:52:38 pm »
Hi Kimin The Forest...Yes, The treatment is going fast it seems. I'm surprised in a good way.

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #22 on: April 13, 2019, 12:24:39 pm »
Started week 4 yesterday. I have noticed more energy in the past week. I don't collapse straight to bed after work. Thought it was age related but maybe the hepc fatigued me. It's been years since I've had energy to do anything after work.

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #23 on: April 13, 2019, 12:28:20 pm »
Also that dull achy feeling under the ribcage where the liver is, is gone. Digestion is better too and there seems to be less inflammation in my joints. That could be my amended diet though.

Offline Lynn K

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Re: Starting mavyret today...really scared
« Reply #24 on: April 13, 2019, 01:41:02 pm »
Glad to hear your doing well on treatment :)

The most commonly reported symptom for hep c is a feeling of being chronically fatigued without other explanation. That really is the only symptom most experience. Most of us cured now feel like that weight of fatigue we carried for many years or decades is now lifted.
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #25 on: April 14, 2019, 10:38:16 am »
I'm working on pacing the energy spurts. I feel over-energized in the mornings so am trying to calm down and not overtax the extra energy. My thyroid readings are on the low side, and so maybe that is coming back into a better range. Will find out after my next doctor visit. I took thyroid meds for 5 years and stopped them about six years ago as my thyroid balanced out. It was on the low side, but the docs said it was ok to come off the meds as long as it didn't go lower. I was still fatigued but could function. Would lose energy after 5 hours of work, and have been maintaining that pace. I have to work until age 70 to get sustainable retirement income. This treatment has come at the most convenient time in my life. I honestly don't think I could have survived when the interferon was the only thing available. I have friends that have gone through that, some came thru and others succumbed before the newer meds were available as their treatment didn't work.
















Offline Lynn K

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Re: Starting mavyret today...really scared
« Reply #26 on: April 14, 2019, 02:17:45 pm »
Before Mavyret became available most of us were taking Harvoni. Many of us experienced what we called the Harvoni high where we were feeling extra energized like maybe having a little too much coffee. Most found it to be a pleasant side effect while a few did not like that feeling.

I think a couple of other people also reported feeling extra energized while taking Mavyret. Or it could also be from no longer having the virus allowing us to feel normal for the first time in many years.

Hope all continues to go well for you
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #27 on: April 19, 2019, 10:32:30 pm »
I was blood tested today and hope the results are good. Starting my 5th week.

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #28 on: April 23, 2019, 06:57:18 am »
 ;DI am so stoked...My blood testing came back and from 8,420,000 a few months ago, has dropped to <15 NONDETECTED

Offline Lynn K

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Re: Starting mavyret today...really scared
« Reply #29 on: April 23, 2019, 07:51:35 am »
Hey congrats!

Now onwards to finishing treatment and get that 12 weeks after treatment test that says not detected

Best of luck with the rest of your treatment
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline LindaBalz

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Re: Starting mavyret today...really scared
« Reply #30 on: April 23, 2019, 09:04:31 am »
Is there a difference between non detected and not detected, Lynn?
Good for you, Shellae, either way!

Linda
LB

Offline Lynn K

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Re: Starting mavyret today...really scared
« Reply #31 on: April 23, 2019, 11:34:57 pm »
Is there a difference between non detected and not detected, Lynn?
Good for you, Shellae, either way!

Linda

Probably just a different labs way of reporting results. Of course the <15 refers to the tests sensitivity
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Shellae

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Re: Starting mavyret today...really scared
« Reply #32 on: April 25, 2019, 06:45:43 am »
Yes, it actually read <15 NOT DETECTED

Offline LindaBalz

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Re: Starting mavyret today...really scared
« Reply #33 on: April 25, 2019, 08:57:27 am »
great!!!

Linda
LB

Offline KimInTheForest

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Re: Starting mavyret today...really scared
« Reply #34 on: April 25, 2019, 09:22:17 am »
Yes, it actually read <15 NOT DETECTED

Congrats Shellae! It's wonderful when you finally get to read that on the lab report.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

 


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