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Author Topic: Insomnia  (Read 2145 times)

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Offline Sage

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  • Posts: 19
Insomnia
« on: June 19, 2019, 01:14:55 pm »
Rounding up my third week of Mavyret and I have nights when I can only stay asleep for an hour. Feeling stressed but I can’t put a reason to it. Yes, sometimes I am the Queen of denial, lol. I can’t say this is a side effect because I’ve had this problem for a while. It’s just increased a lot. I usually drink a little kava kava tea but I am afraid there is no way to know if it will effect the Mavyret. Any ideas?
1a
F2
Viral load 3,260,000

Thyroid Cancer
Basal Cell Cancer
Breast Cancer

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Insomnia
« Reply #1 on: June 19, 2019, 02:04:04 pm »
It's hard to say, but one thing I know about sleep is that when it gets disturbed it can be frustrating. As a recovering insomniac, I have learned a few things, and nothing has helped me as much as meditation, especially doing sleep relaxation exercises when I can't sleep. They don't always help me sleep, but they side-step the frustration and make the experience more tolerable. The Calm app has sleep stories. 10% Happier and Headspace have lots of sleep stuff - these all have free trials. There are some free sleep-related podcasts that are fun to check out.

That said, there are some big safety concerns with kava kava and the liver. I wouldn't take it even if it helped me sleep. Taken as tea may be safer, and although unlikely to interact with Mavyret, there is the inevitable problem of needing to relieve oneself of the tea, which I find interferes with my sleep.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline Sage

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  • Posts: 19
Re: Insomnia
« Reply #2 on: June 19, 2019, 04:26:21 pm »
I can use meditation to fall asleep but I wake up in an hour then after a few times of that I can’t get back sleep. I’ll try the Calm thing.
How do I find out about other herbs.
1a
F2
Viral load 3,260,000

Thyroid Cancer
Basal Cell Cancer
Breast Cancer

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Insomnia
« Reply #3 on: June 21, 2019, 10:10:58 am »
I totally relate to the waking up thing - it's aggravating.
Melatonin appears to be safe. Valerian root has some scientific backing too - but really needs to be avoided if you have liver damage - fine to use if you don't. Magnesium can help, but if you do tale it, be sure you take it alone (with a couple of hours window between other meds) as it can interfere with other drugs.
My go to favorite is lavender aromatherapy - I spray lavender on my pillow and dab some essential oil on my wrists for an occasional whiff while I sleep. I don't think it really helps but it makes me content. 
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline Becca333

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  • Posts: 28
Re: Insomnia
« Reply #4 on: June 21, 2019, 09:15:41 pm »
I am just over 2 weeks on Eclupsa and I have a hard time sleeping. Even when I do sleep for what seems like a decent amount of time I feel like I haven't at all. Sometimes I have bursts of great energy or I am exhausted and depressed. It is either one extreme or the other. I wish I was put on Mavret and only had 8 weeks to complete instead of 12.

Offline Sage

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  • Posts: 19
Re: Insomnia
« Reply #5 on: July 08, 2019, 02:12:06 pm »
Just got hep A B and pneumonia booster. nervous about what effects they will have mixed with mavyret.
1a
F2
Viral load 3,260,000

Thyroid Cancer
Basal Cell Cancer
Breast Cancer

Offline Becca333

  • Member
  • Posts: 28
Re: Insomnia
« Reply #6 on: July 08, 2019, 02:14:43 pm »
My GI Dr told me not to get the hep A and hep B vaccine during treatment. I am on Epclusa. He didn't go into detail why.

Offline Sage

  • Member
  • Posts: 19
Re: Insomnia
« Reply #7 on: July 08, 2019, 02:27:48 pm »
I guess we will see if it kills me or not.
1a
F2
Viral load 3,260,000

Thyroid Cancer
Basal Cell Cancer
Breast Cancer

Offline Becca333

  • Member
  • Posts: 28
Re: Insomnia
« Reply #8 on: July 08, 2019, 03:31:00 pm »
I think you will be ok. Your getting boosters I was going for the first one. I wish he went more into detail why but I am  sure nothing to serious. I read that ppl have gotten it during treatment with no issues.

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Insomnia
« Reply #9 on: July 09, 2019, 04:43:09 pm »
Sage - The vaccines won't interact, and in fact, getting the vaccine while on treatment is a great idea because a) it boosts your immune system, and b) protects you from the diseases you don't want to get. It is completely normal to feel like you are coming down with something (aches, chills, fatigue, etc) for 1 to 2 days after the vaccine. That is your immune system responding and it is a good thing although it feels lousy.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline Sage

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  • Posts: 19
Re: Insomnia
« Reply #10 on: July 19, 2019, 11:59:38 am »
I went to the beach and slept well. Came home and slept too much for a few days and now heading back towards insomnia. I’m not sure I will get answers to this question or if I should even ask. I live with a functional addict who smokes meth. They never do it around me but they do it in the shop which is attached to the house and heating system. Could I be effected by this?
1a
F2
Viral load 3,260,000

Thyroid Cancer
Basal Cell Cancer
Breast Cancer

Offline andrew j

  • Member
  • Posts: 477
Re: Insomnia
« Reply #11 on: July 20, 2019, 10:03:47 pm »
Hi Sage,

Two things:

1) I don't think the meth is likely to affect you (amounts of smoke too small).
(Tell them to stop smoking that crap!) ...

2) I notice that you're taking - or were taking kava.

I might have noticed somewhere that, chemically - it's not such a good idea with these drugs.
... Maybe it was something I picked up from Harvoni liner notes . I was thinking of taking some myself. I did a bit a of research ... Can't remember exactly.
Also - I'm prone to digging into things a little deeply, sometimes.
... Different drug I know - but with some similarities I guess.

Hoping this doesn't freak you out!

P.S. I can't get back to this computer for a few days.

Best,

A.

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Insomnia
« Reply #12 on: July 21, 2019, 04:48:55 pm »
Living with a meth addict would affect me, not because of the substance, but because it's healthier for me to be among people who aren't actively addicted. I'd lose sleep over this.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline Mugwump

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  • Posts: 775
  • My number of posts means nothing, piscor ergo sum!
Re: Insomnia
« Reply #13 on: July 22, 2019, 02:41:22 am »
My GI Dr told me not to get the hep A and hep B vaccine during treatment. I am on Epclusa. He didn't go into detail why.
There is growing evidence that HCV and HBV co-infection effects the way that HBV progresses. It seems that HCV treatment can cause a change in the way that the human immune system deals with HBV. So it is only logical that HCV treatment might cause a failure of the HBV vaccine.
There are documented cases of dangerous HBV flair ups during HCV treatment in some people who are co-infected and have previously successfully been treated for HBV or at least seemed to be in a stable remission.


My theory on the subject is that HCV itself effects the human immune system in ways that may protect the HCV virus from competing viral infections.


For all the years that I was HCV active I rarely if ever caught a case of the flu or even the common cold. Before successful treatment and cure I did not even experience reactions to my annual flu shot. This changed; last years flu shot put me out of commission for 4 days. The reaction was so strong that it was almost as bad a catching the flu for real. This being said: Certainly get the vaccinations for A and B or a renewal of the inoculation once you are clear of HCV, especially if you intend to travel. I sure as hell would because having had HCV do continuous damage to my liver for over 40 years I certainly would not take the chance of catching either A or B!
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

 


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