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Author Topic: I am scared and I don’t want to die  (Read 658 times)

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Offline KeepingitPositive

  • Newbie
  • Posts: 2
I am scared and I don’t want to die
« on: July 09, 2020, 05:47:24 pm »
I hope someone can help me and give me advise . I was diagnosed at age 19 for hep b till on this day I have no clue on how gotten it . I was a virgin when they tested me . I am 38 now . My older sister also have it but not sure if my other two siblings have it. My mom never mentioned anything about the disease. Anyways I never had any treatment
As all of my results is good and I’ve only seen my dr.  In 2018 my alt is 22 and my viral load is 860 but this year my viral load is 3140 and alt is still 22. When I heard that my viral load increased significantly I cried . Am I going to die now ?

I’ve searched online and it said if your viral load is more than 2000 need treatment . But then it also said if your alt is normal no need for treatment . I am confused?

I am just scared that significant increased of my viral load and def don’t want my liver damage . I was referred to Hepatology and I did more blood tests and have a appt for liver scan . Please advise . Any advise would be appreciated . I hope this forum is still active as it doesn’t seem like there is any active forum in regards to hep b . This is just driving me crazy and depressed .
« Last Edit: July 09, 2020, 06:40:52 pm by KeepingitPositive »

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,511
  • Get tested, get treated, get cured, fight Hep c!
Re: I am scared and I don’t want to die
« Reply #1 on: July 10, 2020, 12:30:44 am »
Hang in there your doctor will have the best advice for you. But just know that many people have lived long normal lives while chronically infected with hep B.

Start with being kind to your liver starting with no alcohol and eating a healthy diet.

Best of luck
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline KimInTheForest

  • Member
  • Posts: 1,970
  • Believe in yourself
Re: I am scared and I don’t want to die
« Reply #2 on: July 10, 2020, 12:32:31 am »
Hi! There aren't too many people active on the Hep B board. Most of us here on the forum have or had Hep C. Art Vandelay wrote a really good running commentary of his Hep B experience and treatment that he posted here from 2015-2018. Many people commented with additional information. Here is the link in case you haven't already seen it. It might be of some help to you. https://forums.hepmag.com/index.php?topic=3133.0

I don't personally know much about Hep B. Wish I could help. But good luck to you!

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,511
  • Get tested, get treated, get cured, fight Hep c!
Re: I am scared and I don’t want to die
« Reply #3 on: July 10, 2020, 12:34:31 am »
Just saw this post from another member who is living with chronic hep B you may want to communicate directly with him not sure if he has been around in a while but his post has some good advice

https://forums.hepmag.com/index.php?topic=4352.msg44999#msg44999
« Last Edit: July 10, 2020, 12:40:40 am by Lynn K »
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

 


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