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Author Topic: Buying Harvoni but worried about allergic reaction  (Read 9100 times)

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Offline rp616

  • Member
  • Posts: 9
Buying Harvoni but worried about allergic reaction
« on: June 05, 2015, 10:04:17 am »
I am at a place where the only way to get this treatment for HepC is to pay it yourself. My doctor said I would have to pay for the entire 24 week treatment in one lump sum. So if I found out I have allergic reaction to this drug, the entire sum would be wasted. I would be very interested to know if anyone tried Harvoni and found that he/she is allergic to it, What would be the odds for that to happen, etc.
1975 contracted hcv
2003 diagnosed
2003 interferon nonresponder
2009 PEG + ribavirin nonresponder

Offline sabre

  • Member
  • Posts: 77
Re: Buying Harvoni but worried about allergic reaction
« Reply #1 on: June 05, 2015, 02:16:38 pm »
Sorry to read you're having to flip the bill for Harvoni.

Harvoni is very well tolerated. If you experience any side effects, they should be manageable at worst. I'm a couple weeks from finishing treatment and have not had any sides and there are a lot of folks like me.

I've not read anything about 'allergic reactions' at all.

Good luck.
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Buying Harvoni but worried about allergic reaction
« Reply #2 on: June 05, 2015, 02:19:39 pm »
Although I've not heard of a single allergic reaction, I am wondering if you have exhausted all the patient assistance programs that help with paying for treatment: http://www.hepmag.com/articles/hepatitis_paps_copays_20506.shtml
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline rp616

  • Member
  • Posts: 9
Re: Buying Harvoni but worried about allergic reaction
« Reply #3 on: June 05, 2015, 08:23:49 pm »
I am currently living in Hong Kong. As Harvoni has not been registered in the hospital authority here, the only way to get this treatment now is to pay for it myself. Although I can wait a few years until it finds its way into the government registry, the risk of further liver damage is a big motivation for getting this treatment asap.
1975 contracted hcv
2003 diagnosed
2003 interferon nonresponder
2009 PEG + ribavirin nonresponder

 


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