Question about life after treatment

[lajr]

Hello Lucinda,
I am new to this forum, not at all experienced with posting  and hoping I'm doing this right!
I am four weeks post s/o tx and just turned 63.  After other tx I've experienced, this was a piece of cake, side effects minimal and virus  undetectable after the first mo, and at 12 weeks.
I am wondering about body heat.  I'm way past menopause but have continued to have hot flashes, which during the last few weeks of treatment increased in temp and frequency significantly.  I am still experiencing this. I do have cirrhosis, and my blood tests are normal.  I'm wondering if this has been experienced by others. Can you give me any information on this heat problem? Thanks.
lajr
 

[lporterrn]

Hi,
Welcome to the forum and congrats on jumping in. You absolutely did it correctly. I took the liberty of moving your post to a new topic so it can get separate attention.

As to your question, I am not certain of the answer, since these S/O post-treatment issues are just starting to be noticed. If it was interferon treatment, I'd say yes, but can't say about S/O. Anyone else with this issue.

Because you have cirrhosis, I would mention it to your doc. Keep us in the loop, since someone down the line may have this issue.

[AnnW]

  My husband is 8 wks out from final
S/O dose.  HCV 1b has returned with
a viral load of 318,000.  He had been NDC
@ <43 at both 6 and 12 weeks of treatment
and Detected, still at <43.  Both ALT and
ALP spiked as well.  Doctor is very
surprised and "bummed" that the
treatment failed and wants to try
latest med (just approved Oct 10). 
Will update post as events unfold.
Wishing all of you the best possible
outcome with your treatment plan.

[lporterrn]

Thanks AnnW - please keep us posted as your husband's case is unusual, and I'd like to know what happens.

[steve]

Has anyone else had the virus return after treatment? I am 9 days post treatment and was non detectable after 2 weeks and my GI doesn't want me to take another blood  test until 6 months post treatment.

[hopefulAries]

I am waiting on my viral load results. My GI dr did a post s/o viral load just after 4 days post treatment. Awaiting on DR to sign off on the results so the nurse can let me know. I am anxious to know the results. I will keep everyone updated.

[lporterrn]

Hi Steve,
Although this is a time of waiting and wondering, perhaps you will get more responses if instead you ask, "Has anyone NOT had the virus return after treatment?" It is hard to believe it when you are the patient, but the vast majority are cured on the new treatments.

[steve]

2 weeks off combo and still no side effects or withdrawal from olysio/sovaldi

[Mike]

Hi Steve,

I was virus free at the end of treatment. I was tested at 12 and 24 weeks port treatment, and was still undetected.

I recv'd the final clinical note from my GI on Thursday, indicating "cured."

Best wishes, Mike

[steve]

Great news Mike, I am encouraged best of luck

[oldmarco]

First day off the s/o. felt good not having to take pills this morning, I already feel better mentally. I'll have labs done first week in Dec. My last two labs Oct and Sept came back fine I didn't ask for the numbers though, but I will for 30 days after and most of all the 12 weeks after.I'll have to say this was nothing compared to back in 2001 when I took 3 shots a week of interfuron with ribavarin, I did that for 10 months and the doctor took me off it It was horrible and I was sick as a dog, of course being a street corner DR. I knew how to get relief, and it took a while to get back and I put together 8 yrs. During the last 8 years I have had blood work on a regular bases, ultrasounds couple liver bios where scaring and swelling was minimal and liver function levels were in range. So I am hopeful with this new tx. Grateful for the Dr. and his staff for getting me approved by ins, now I'll get a shingle shot for $8.77 because I shot right through the doughnut hole. All I can say is stick it out keep seeing your Dr. get you blood work done regularly, and may the god of your understanding be as good to you as the god of my understanding has been to me .

[Mike]

Hi  oldmarco,

Congrats on finishing treatment! Looks like another dragon is slayed!!!

Best wishes for an SVR12 and a lifelong freedom from the pernicious Hep-C virus,

Mike