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Author Topic: Side effects Viekira Pak + Riba  (Read 11833 times)

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Offline Napo

  • Member
  • Posts: 11
Side effects Viekira Pak + Riba
« on: November 16, 2016, 11:30:48 am »
Hi

I am normally OK with the side effects (major issue has been the itch and feeling tired sometimes...  but the freakin itch is the worst) but lately my stomach (I always take my medicine with food) has been all over the place and concentration has been difficult.... plus the irritability has been horrible I stopped talking to people because I cant even stand myself... has anyone been through this?

Week 8 (out of 12) this week... almost there.

Jorge
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Side effects Viekira Pak + Riba
« Reply #1 on: November 16, 2016, 04:51:21 pm »
Not me personally but a lot of people experience riba rash and or riba rage often enough they have nick names.

As far as the itching I have heard people say oatmeal soap and oatmeal bath soaks can help and some folks used Benadryl but you should check with your doctor about any medicines or if they have any additional suggestions to help.

Best I can say is hang in there for a few more weeks and you can put this in the rear view mirror

Good luck
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Pete

  • Member
  • Posts: 110
Re: Side effects Viekira Pak + Riba
« Reply #2 on: November 16, 2016, 10:57:39 pm »
I've been lucky in term of side effects thus far.  I'm 21 of 24 weeks of VP/Riba now, so far so good.  After an slight drop in hgb in the first few weeks, it came back into normal range and has stayed there ever since.       

I tend to get dry itchy skin in the winter.  Best thing I've found is Cortizone-10 skin cream with aloe. The stuff works amazingly well. 

Good luck,
Pete
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Offline Napo

  • Member
  • Posts: 11
Re: Side effects Viekira Pak + Riba
« Reply #3 on: November 17, 2016, 09:42:11 am »
Thanks, my hgb dropped but almost nothing and is getting back to normal levels so that is fine... I wil talk to the doctor because I am also getting rashes in my face.

Its not that much of a problem really, if it cures me I will take it... even the irritability.
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Offline victor333x

  • Newbie
  • Posts: 1
Re: Side effects Viekira Pak + Riba
« Reply #4 on: November 22, 2016, 08:03:48 am »
Riba is the worst med out there.  I did the old peg interf +riba 12months.  Lost 40lbs and the depression set in about month 7.  Never did riba by itself but I've heard that it's effects are like cemo. Felt like death for sure!
 Did you try just harvoni first?  My sister just  finished after they tried riba-combo first.  She couldn' t take it so just H.  She is finished after 12wks and g1 HVC free!
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Offline Napo

  • Member
  • Posts: 11
Re: Side effects Viekira Pak + Riba
« Reply #5 on: November 22, 2016, 12:44:56 pm »
Harvoni is not an option in Mexico yet, right now is my stomach, I started sunday with a burning sensation that ended in nausea, couldnt eat and a very upset stomach... Dr prescribed Dexivant which help a little bit with the burning and therefore the nausea... so its getting better.
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Offline its time

  • Member
  • Posts: 102
Re: Side effects Viekira Pak + Riba
« Reply #6 on: November 27, 2016, 12:37:53 am »
hi napo
I was on same treatment and exp.  the  rash within the first week   I was told to up my water in take and use aveeno...  for me this worked...  def pay attention to the amount of water your drinking because it does help with the sides
now thinking about it I was more tired then I actually thought... I functioned ok for most part all thru work did have some brain fog...lack there of concentration  n  when I came home I layed down on the couch and slept for lil... I did have some riba rage but not to the point you are expressing... what really got me was the riba cough.... and the heart palpitations...
talk to your nurse thru the vp and talk to your dr...see what they say.. good luck.. and just remember easch day past is one day closer to end of treatment...
I go for my 12 week bloodwork Christmas eve... I'm a basket case but praying hard..   
keep posting 
Logged
4.16.16  VL 1.7 million  AST 62   ALT 80  RBC  4.84
HBG  15.4
GENO TYPE 1A
7.9.16   Viekira + Riba 12 WKS (EOT 9.30.16)
7.23.16  2 wk lab
     VL  20    AST  20   ALT  16   RBC 4.05   HBG 12.6
8.6.16  4 WK LAB
     VL UNDETECTED  AST 14   ALT 14   RBC 3.98
HBG 12.4
9.3.16   8 wk lab
     VL UNDETECTED  AST 14   ALT 10    RBC 3.74
HBG  11.9
10.8.16  12 WK EOT
    VL  UNDETECTED  AST 16   ALT  12   RBC  3.76
HBG  12.0
END DECEMBER GO FOR 12 WK BLDWK
1/5 2017 HEP C FREE.. CURED :)

Offline its time

  • Member
  • Posts: 102
Re: Side effects Viekira Pak + Riba
« Reply #7 on: November 27, 2016, 12:39:07 am »
p.s are you eating yogurts???   
Logged
4.16.16  VL 1.7 million  AST 62   ALT 80  RBC  4.84
HBG  15.4
GENO TYPE 1A
7.9.16   Viekira + Riba 12 WKS (EOT 9.30.16)
7.23.16  2 wk lab
     VL  20    AST  20   ALT  16   RBC 4.05   HBG 12.6
8.6.16  4 WK LAB
     VL UNDETECTED  AST 14   ALT 14   RBC 3.98
HBG 12.4
9.3.16   8 wk lab
     VL UNDETECTED  AST 14   ALT 10    RBC 3.74
HBG  11.9
10.8.16  12 WK EOT
    VL  UNDETECTED  AST 16   ALT  12   RBC  3.76
HBG  12.0
END DECEMBER GO FOR 12 WK BLDWK
1/5 2017 HEP C FREE.. CURED :)

Offline its time

  • Member
  • Posts: 102
Re: Side effects Viekira Pak + Riba
« Reply #8 on: November 27, 2016, 12:53:01 am »
i am under  " started vp & riba 8 a.m this morning.
Logged
4.16.16  VL 1.7 million  AST 62   ALT 80  RBC  4.84
HBG  15.4
GENO TYPE 1A
7.9.16   Viekira + Riba 12 WKS (EOT 9.30.16)
7.23.16  2 wk lab
     VL  20    AST  20   ALT  16   RBC 4.05   HBG 12.6
8.6.16  4 WK LAB
     VL UNDETECTED  AST 14   ALT 14   RBC 3.98
HBG 12.4
9.3.16   8 wk lab
     VL UNDETECTED  AST 14   ALT 10    RBC 3.74
HBG  11.9
10.8.16  12 WK EOT
    VL  UNDETECTED  AST 16   ALT  12   RBC  3.76
HBG  12.0
END DECEMBER GO FOR 12 WK BLDWK
1/5 2017 HEP C FREE.. CURED :)

Offline Napo

  • Member
  • Posts: 11
Re: Side effects Viekira Pak + Riba
« Reply #9 on: November 28, 2016, 10:00:15 am »
So I followed your advice and started drinking more water, we'll see how it goes... I dont particularly eat yogurt but I do have them once in a while...

I havent had the cough, the itch is getting better and the mood also... just the stomach and I still have some rashes (in my face mostly) tomorrow will be the end of the 9th week, so 3 more weeks.
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Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Side effects Viekira Pak + Riba
« Reply #10 on: November 29, 2016, 03:29:21 pm »
I remember feeling nauseated on VP/riba. They cut back my riba dosage and things went back to normal. I particularly struggled with high acidity foods, you might want to see if they affect you also. I love Mexican food and couldn't eat a lot of it - which would suck for you, living in Mexico as you do! :)

Good luck, you're getting close to the end.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Napo

  • Member
  • Posts: 11
Re: Side effects Viekira Pak + Riba
« Reply #11 on: November 30, 2016, 12:31:39 pm »
I finally got a hold of the doctor, turns out he had Dengue... only in Mexico I guess... he prescribed Tecta and Almax for the stomach and at least the burning sensation is better.

And I am sorry but I literally cant stay away from Mexican food :) which it is a problem I agree, everything has some sort of spice. Tastes good you just regret it later.

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Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Side effects Viekira Pak + Riba
« Reply #12 on: November 30, 2016, 02:38:56 pm »
Glad you are feeling better. :)
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline its time

  • Member
  • Posts: 102
Re: Side effects Viekira Pak + Riba
« Reply #13 on: December 30, 2016, 12:10:57 am »
Napo
how have you been feeling???

I remember stomach being somewhat off and for me what helped was eating more?? weird... I would eat yogurt...cottage cheese etc... that worked for me but always temporary fix ... my dosage of 1200 was never reduced and hearing when I was going thru treatment that most had reduction why my dr never did...I don't believe I ever got a straight answer from him either... 

how much more time till end of treatment???   


Logged
4.16.16  VL 1.7 million  AST 62   ALT 80  RBC  4.84
HBG  15.4
GENO TYPE 1A
7.9.16   Viekira + Riba 12 WKS (EOT 9.30.16)
7.23.16  2 wk lab
     VL  20    AST  20   ALT  16   RBC 4.05   HBG 12.6
8.6.16  4 WK LAB
     VL UNDETECTED  AST 14   ALT 14   RBC 3.98
HBG 12.4
9.3.16   8 wk lab
     VL UNDETECTED  AST 14   ALT 10    RBC 3.74
HBG  11.9
10.8.16  12 WK EOT
    VL  UNDETECTED  AST 16   ALT  12   RBC  3.76
HBG  12.0
END DECEMBER GO FOR 12 WK BLDWK
1/5 2017 HEP C FREE.. CURED :)

Offline Napo

  • Member
  • Posts: 11
Re: Side effects Viekira Pak + Riba
« Reply #14 on: December 30, 2016, 12:59:26 pm »
Hi

I actually completed my treatment 10 days ago (more or less), I just got the results this morning, is undetectable after 12 weeks so all is good! I just need to wait for another 6 months and do the viral load test again...

last weekend I had a really upset stomach but the dr. prescribe something and it got better, I dont have the itch as much but I still have a horrible rash in my face I guess is a matter of time.

So far so good! I remember you were taking your 6 month test this month right? how did that go?

Happy Holidays.
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Offline its time

  • Member
  • Posts: 102
Re: Side effects Viekira Pak + Riba
« Reply #15 on: January 01, 2017, 03:49:37 pm »
CONGGRATS on completing treatment!!!   :)
now that's behind ya...I feel this is the hard part ...waiting lol
keep moving... drink the water and you will b on your way back to you.. the new you .. 
yes I went Christmas eve...
I got results back Friday but not THE ONE ive been anxious about..
I was told thou I am pre diabetic now   6.4 is diabetic  I am a 6   :(
and couple other things along with that....that I know what I have to do ...however  I should know my results by jan 6th ...
best wishes to you for a great new year !! 

Logged
4.16.16  VL 1.7 million  AST 62   ALT 80  RBC  4.84
HBG  15.4
GENO TYPE 1A
7.9.16   Viekira + Riba 12 WKS (EOT 9.30.16)
7.23.16  2 wk lab
     VL  20    AST  20   ALT  16   RBC 4.05   HBG 12.6
8.6.16  4 WK LAB
     VL UNDETECTED  AST 14   ALT 14   RBC 3.98
HBG 12.4
9.3.16   8 wk lab
     VL UNDETECTED  AST 14   ALT 10    RBC 3.74
HBG  11.9
10.8.16  12 WK EOT
    VL  UNDETECTED  AST 16   ALT  12   RBC  3.76
HBG  12.0
END DECEMBER GO FOR 12 WK BLDWK
1/5 2017 HEP C FREE.. CURED :)

Offline Noony2k

  • Member
  • Posts: 4
Re: Side effects Viekira Pak + Riba
« Reply #16 on: February 25, 2017, 08:03:15 am »
Hi I've just joined on here and this is my first post,but anyway I've just started on same as you I'm on to my 3rd day and all is good so far. Just try hang in there and do some searching on Google to see what has worked for other people who has or is going through the same treatment (I'll do some searching myself and let you know) when did you start noticing your first side effects?
Take care now and chat soon.
Ps I love this forum.Thanks!!
Logged
Havn't got mine at moment but will request it at 2week blood work(1wk&2days time)

Offline Irishgirl

  • Member
  • Posts: 11
  • Viek/Exviera/Rib - It's a gift for new life
Re: Side effects Viekira Pak + Riba
« Reply #17 on: April 06, 2017, 04:11:17 pm »
Could I ask if anyone noticed more sensitivity in their right hand side? I usually get the odd little twinge but since starting my med's I've noticed it's more sensitive, am I imagining this ?
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Diagnosed in 2004, Cured in 2017

Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: Side effects Viekira Pak + Riba
« Reply #18 on: April 06, 2017, 11:54:59 pm »
Never had anything specific to just one side Irishgirl- but who knows I might not have missed it with so much else going on!

Did have the skin itch aka 'creepy crawlies' but hang in there Napo it is all worth it. Do remember to avoid the sun. That is a sure way to get a rash with riba.
Logged
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015
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