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Author Topic: The Door to Hepatitis C Treatment is Now Wide Open  (Read 8509 times)

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Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
The Door to Hepatitis C Treatment is Now Wide Open
« on: October 24, 2014, 03:23:30 pm »
Dear Forum Members: I can't tell you how bummed out I've been about insurance companies misusing the AASLD treatment guidelines, and restricting treatment. I have good news - AASLD has made it very clear that nearly everyone can be treated. They just announced:
Quote
The introductory statement of When and In Whom to Initiate Therapy has been revised to reiterate that treatment will benefit almost all patients in all stages of chronic infection and that urgent initiation of therapy is needed in patients with certain conditions.

When you click on the page: http://www.hcvguidelines.org/full-report/when-and-whom-initiate-hcv-therapy, it takes you to this highlighted text at the top of their page:
 
Quote
Successful hepatitis C treatment results in sustained virologic response (SVR), which is tantamount to virologic cure, and as such, is expected to benefit nearly all chronically infected persons. Evidence clearly supports treatment in all HCV-infected persons, except those with limited life expectancy (less than 12 months) due to non–liver-related comorbid conditions (See Unique Patient Populations). Urgent initiation of treatment is recommended for some patients, such as those with advanced fibrosis or compensated cirrhosis.

Folks, for the first time in many years, I am feeling like we can really live free of hepatitis C. The war isn't over, but we are going to win this. As Kim Bossley says, "Not without a fight." http://blogs.hepmag.com/kimbossley/2014/10/pbs_second_opinion_show_hepatitis.html 
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Bucky

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  • Posts: 341
Re: The Door to Hepatitis C Treatment is Now Wide Open
« Reply #1 on: October 24, 2014, 04:04:40 pm »
http://www.hcvguidelines.org/full-report/when-and-whom-initiate-hcv-therapy

The second section about the Clinical Benefit of Cure brought me to tears.

Bucky
« Last Edit: October 24, 2014, 04:06:40 pm by Bucky »
I HAVE SLAYED THE DRAGON.....CURED SVR24!

Offline BuRRy

  • Member
  • Posts: 7
  • Genotype 1b
Re: The Door to Hepatitis C Treatment is Now Wide Open
« Reply #2 on: December 22, 2014, 06:22:12 pm »
Hi everyone , i am very new to this forum and very happy to find it.
I am 37 year old woman from turkey , i learned i have hcv on 2011. I must have got hcv between 2009 and 2011  during medical operations ( in 2008 and 2009 i had anti hcv tests negative)  my geno 1b , with hcv rna less than 600,000. My liver enzymes are high ( alt and ast around 100 ) i am planning to start harvoni treatment although its not yet available in turkey. I wonder whether there is anyone from turkey and as i will have the treatment in turkey , most doctors dont know yet bout harvoni. Would you pls advice me about which blood tests should be followed before and during treatment other than liver panel and viral load. And one more question i learned that 1 box harvoni 28 tb is 22600 euro in germany. Is there any other country that its cheaper? As i am geno 1b and having viral load less than a million and treatmnent naive 2 box meaning 8 weeks treatment will be ok for me i hope. 
Do you know whether the price in france for ex is said to be 13,000 euro. available only for french citizens or can i fly to france with valid prescr. And buy 2 boxes of harvoni for 26.000 euro and turn back??
some ideas thanks everyone and hope all of us will get rid of hcv as soon as possible .

 


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