Author Topic: Approved for Harvoni (Read 49485 times)

mikeyman · « **on:** November 05, 2014, 01:06:48 pm »

Just got the call from my doctor. Gilead just comfirmed they have approved me for a 24 week plan of Harvoni. I failed interferon / rib and peg/ rib over 10 years ago. I now have chirrosis and genotype 1. My insurance denied me for Harvoni . They did approve Solvardi/interferon. Not a chance! I would rather die first. I should have my first bottle next week. $189,000 at no cost! Unbelievable! Thanks mysupportpath. You are the best! There is hope for us all! I've waited 17 years for a miracle drug! God is good! I'll post regularly on how it goes.

art1951 · « **Reply #1 on:** November 05, 2014, 01:12:04 pm »

Congratulations!! Let's hope that the flood gates are opening now and everyone will start getting on board.

- Art

mikeyman · « **Reply #2 on:** November 05, 2014, 02:09:56 pm »

Thanks Art. What I have a hard time with is I pay big bucks to my insurance company . They gladly take my money, but fail to cover Harvoni. Even 24 weeks of it is way cheaper than a liver transplant! Gilead is doing the right thing .

BattleTheBeast · « **Reply #3 on:** November 06, 2014, 09:22:01 am »

Mikeyman, so thrilled for you! I am so so happy you got this and hope it beats the beast for you! I will be watching and praying for you.

~Mel~

mikeyman · « **Reply #4 on:** November 06, 2014, 09:41:55 am »

Thanks Mel, I just got another call from my doctor and my support path is going to call me today and hopefully I will have it by Friday (tomorrow) or Monday. Going to slay the beast! I'm going to give it a one two punch with 24 weeks of Harvoni! Kaboom!

mikeyman · « **Reply #5 on:** November 06, 2014, 12:29:24 pm »

I will start Harvoni on Tuesday. Got the call just now. Yea!
Here we go! Wish me luck.
Mikey

Mike · « **Reply #6 on:** November 06, 2014, 12:57:42 pm »

Hi Mikey,

Time to slay this dragon!

Best wishes! Mike

mikeyman · « **Reply #7 on:** November 06, 2014, 01:26:50 pm »

Thanks Mike! I'm so ready.
Most patients that my doctor started Harvoni have no or very little side effects! He is at Ohio State University Hospital and has a very large practice.
My starting numbers are...
alt 131
ast 110
bill .08
Viral load 1,529,773
I will get an MRE next year to see what stage my chirrosis is.
Peace
Mikey

fllazylady · « **Reply #8 on:** November 09, 2014, 08:26:01 pm »

Congrats Mikeyman
I am starting Harvoni tomorrow. I am a 67 yr old woman that has been Living with HepC since 1987. I am ready to cut this dragon loose..
Have you decided what time of day you will start? Will watch your post for your progress. May we both be HepC free...

mikeyman · « **Reply #9 on:** November 09, 2014, 08:56:32 pm »

Fllazylady, I am 62 and have known about my hep c since 1997. I think I got it in 1970 when I was in Navy boot camp from those air guns. They would shoot you in the arm to give you all kinds of drugs. They finally banned them in the 90's. They thought because they had no needles, they were safe. They would cut your skin and blood would blow back on the gun head and the next guy got what you had. I'm thinking I'm going to do mine at 8pm. Hopefully I will sleep thru the sides. If any. I did that with interferon and it seemed to help. But after all not much helped with that nasty stuff! Day after tomorrow I am popping my first pill! Let's roll! Fitting eh, Nov 11 veterans day! Let's kill this beast!!!!
Let me know how you feel after your first dose. Good luck! How long are you on for?

JoeK9999 · « **Reply #10 on:** November 10, 2014, 05:58:23 am »

I felt so fine after the first day that I went out and ate cajun food that night.
The food bothered my stomach for a few hours after that. Eat light non greasy, no spicy food the first few days and you should be fine. Drink lots of water.

mikeyman · « **Reply #11 on:** November 11, 2014, 11:22:05 am »

Harvoni on the UPS truck for delivery today. Down the Hatch!

mysupportpath was very helpful. They did what they said they would do, right down to the day of on time shipment. 24 weeks here I go!

BattleTheBeast · « **Reply #12 on:** November 11, 2014, 02:00:42 pm »

Congrats Mikey!

mikeyman · « **Reply #13 on:** November 11, 2014, 02:21:27 pm »

UPS Man just delivered my first bottle of Harvoni as promised. 8pm down the hatch!
I'm going tear this beast up! HEPC you are out of here! I am done with you! Harvoni, I have been waiting for you since 1997! Its about time your showed your pretty orange face!
Mikey

Just 5 more bottles to go after this one!

penny · « **Reply #14 on:** November 11, 2014, 03:11:07 pm »

Mikey
How come you are on 48 weeks of Harvoni? I thought only 8-12 or 24?

mikeyman · « **Reply #15 on:** November 11, 2014, 04:30:56 pm »

Sorry, it is 24 weeks. Not 48. Must have been thinking of the interferon I did in the past. I failed that peg and rib, twice, genotype 1 and chirrosis = 24 weeks of Harvoni max. Sorry about that. 6 months is not 48 weeks! Ha! Guess it just seemed like 48

mikeyman · « **Reply #16 on:** November 11, 2014, 05:21:16 pm »

Thanks Mel. I hope you are hanging in there. Stay strong, you will be cured! Odds are in your favor big times!
Peace
Mikey

mikeyman · « **Reply #17 on:** November 12, 2014, 06:08:39 am »

Wow, Harvoni is amazing stuff so far. No sides the first day. 8pm seems to work for me. Slept fairly well. I've been waking up a few times a night for as long as I can remember. I was able to go right back to sleep last night. If this keeps up, I can do this. Let's see what day two has in store. Let the battle continue ! I'm gonna kick some hepc butt!
Mikey

willie g · « **Reply #18 on:** November 12, 2014, 06:41:35 am »

GOOD for you mikeyman,,I was wondering about that drug,,looks like its kicking in due to advocates ..like our moderators were fighting for. like I said GOD DOESNT LIKE UGLY 'just' willie g

mikeyman · « **Reply #19 on:** November 12, 2014, 09:14:21 am »

I do feel lucky to be one of the first. I am amazed that in four weeks its here. My doctors office did all the work to get me approved. I hope this new drug is the Real Deal and the floodgates open for everyone .
But it is early yet. Time will tell. Everyone is different . Hope is alive in me.
Peace
Mikey

mikeyman · « **Reply #20 on:** November 12, 2014, 10:12:29 am »

Delete this quote please. Posted by mistake.

fllazylady · « **Reply #21 on:** November 12, 2014, 11:22:17 am »

I am on day three now I take mine in the morning but I really haven't had any side effects except for a slight headache the first day little earache yesterday but I don't think it was related. I feel a little irritable but that's probably just my nature. LOL
I'm feeling pretty good I hope this is the real deal I'm happy for you Mike that you're having a good time with it will see how things go this could be our cure....
Please keep posting and I'll keep following I'm doing good. Ya Hoo...

penny · « **Reply #22 on:** November 12, 2014, 11:52:34 am »

Mikey and flyzy
please post side effect everyday.

mikeyman · « **Reply #23 on:** November 12, 2014, 11:56:11 am »

Fllazylady, That is awesome news! Thanks for the update. I am so glad you are doing well. Keep posting and so will I.
I remember how scared I was when holding that needle full of interferon in my hand all those years ago on my first injection . I really felt pretty aweful. But what a wonderful surprise when I woke up today feeling great! We can do this! Let's keep our fingers crossed! Thanks to all those men and women who spent countless days and years developing Harvoni! You guys ROCK!
Blessings and prayers to all of you in treatment.
Mikey

mikeyman · « **Reply #24 on:** November 12, 2014, 11:59:01 am »

Penny, after the first day, I had no side effects . Today will be day 2. I will post regularly as to my Harvoni journey. So far so good!
Peace
Mikey

mikeyman · « **Reply #25 on:** November 13, 2014, 08:17:45 am »

Day two with my new friend Harvoni....
Nothing really to say. Feeling great, slept well. Woke up a couple of times to pee as normal for me, but went right back to sleep. I drink water every chance I get. Even during the night. If this keeps up, this should be a walk in the park. I can feel something is changing, but it's all good. Can't really put my finger on it. God is with me on this journey and He has my back. I'm thankful just to wake up each day!

I'll probably only post if something changes or when I get blood work done.
Peace and may we all be cured very soon!
Mikey

penny · « **Reply #26 on:** November 13, 2014, 12:44:40 pm »

OK so it's like taking a tylenol?

fllazylady · « **Reply #27 on:** November 13, 2014, 02:00:41 pm »

Day 4 and feeling great this drug is amazing I think I'm going to get along with it..
Looks like we are all in for an upswing of this journey

penny · « **Reply #28 on:** November 14, 2014, 12:56:24 am »

Wow great news Flazy and Mikey

Lynn K · « **Reply #29 on:** November 14, 2014, 03:41:44 am »

Finally approved for Harvoni 24 weeks! Fed Ex arrived this morning. Will be starting next Thursday 11/20/14. Good luck everyone!

mikeyman · « **Reply #30 on:** November 14, 2014, 06:15:55 am »

Congrats Lynn K! Looks like the gates are opening wider! Good luck and may we all be cured!
Peace
Mikey

willie g · « **Reply #31 on:** November 14, 2014, 10:11:01 am »

yeah!!!!! mikeyman, lynn k,fllazylady,and penny to soon start[right?] sounds awesome! SOON the snake will be out of the woodpile! ''just'' willie g''

fllazylady · « **Reply #32 on:** November 14, 2014, 08:16:53 pm »

Hello all you wonderful heppers..I am on day five with Harvoni and I am very pleased hardly any or no side effects. Feeling very excited about this cure..
Please keep the posts up so we can keep track of each other..
Sending you all light and love

BattleTheBeast · « **Reply #33 on:** November 14, 2014, 08:40:03 pm »

Great news Filazylady! Hope you continuing on the path you are and get all the positives and the only negative is the dreaded VL!!

mikeyman · « **Reply #34 on:** November 14, 2014, 08:58:51 pm »

Day 4 for me on Harvoni . No sides at all. Matter of fact I feel better than before I started. One thing I do notice, food tastes better! That could be a bad thing!

I just hope my new Harvoni friend is Killin all those nasty little buggers!
Peace
Mikey
My first blood work is Dec 12.

fllazylady · « **Reply #35 on:** November 14, 2014, 09:05:38 pm »

Is anyone on this site using medical marijuana???

zeena · « **Reply #36 on:** November 16, 2014, 05:19:00 pm »

is haroni just for genotype 1? what other drugs are out there for genotype 3?

Lynn K · « **Reply #37 on:** November 16, 2014, 07:41:52 pm »

Currently yes Harvoni is only approved for Genotype 1

Per the American Association for the Study of Liver a Disease treatment guidlines

http://www.hcvguidelines.org/sites/default/files/full_report.pdf

The treatment protocol for GT 3 is

"Recommended regimen for treatment-naive patients with HCV genotype 3, regardless of eligibility for IFN therapy:
Daily sofosbuvir (400 mg) and weight-based RBV (1000 mg [<75 kg] to 1200 mg [≥75 kg]) for 24 weeks is recommended for treatment-naive patients with HCV genotype 3 infection."

Hope that helps
Lynn

mikeyman · « **Reply #38 on:** November 24, 2014, 10:50:03 pm »

Well, 14 days in on Harvoni and still no sides. This is amazing! I feel great. Even better than before treatment. Now if this stuff works, it truly is a miracle drug.
Peace to all
Mikeyman

zeena · « **Reply #39 on:** November 25, 2014, 02:50:09 pm »

thanks lynn!

edstaze · « **Reply #40 on:** November 25, 2014, 09:38:44 pm »

hey all,
just joined site today.actually stumbled upon it,i was lucky enough to have beaten cancer at age 14. now I'm 45,after routine blood work about 10 yrs ago, found out I have the hidden beast!...so I do the normal,why me ,am I gonna die..all that happy horseshit..do the pegintro,ribavirin..twice..no luck..then i started harvoni on Nov. 15Th. I have to say I feel the best I have in a long time! if this is any indication on how this is gonna be,shoot I did the pegintron and ribavirin twice with no luck.this is gonna be a cakewalk!.now when I get my bloodwork we will see how its going..i do agree with mikey,i do feel something,cant explain either...kinda like a new lease on life..I'm gonna go with it.
glad to be here and will post my effects (if any) as they happen.
will post blood results when have them also.
keep your heads up guys an gals..i think we might have just gotten the break we all need!.

Eddie

mikeyman · « **Reply #41 on:** November 26, 2014, 12:20:22 am »

Awesome news Eddie! Congrats! I'm just a few days ahead of you. Can't wait for my first labs on Dec 12. Just a bit nervous about it. God please let this be the real deal.
Amen

willie g · « **Reply #42 on:** November 27, 2014, 12:23:10 am »

MIKEYMAN,,,, you should put your hair in braids or pigtail cause the GRAVY Is gonna kick your but,, heck I wouldn't shave though, that way youll have leftovers for the next few days. have a good one brother,, and RAY, DESERT, SANTA, SUE , MEL, TESS, ETC. ETC. GOBBLE GOBBLE GOBBLE and MIKE are you still faithfully making your bed ha ha [remember that was your first good rush during treatment? ha ha NOW my FRIENDS that is GRATITUDE,,, HELL TELL YA
HTG all you lepers [sorry I met HEPERS!] ''JUST'' WILLIE G and you can never can tell where hes gonna b [maybe ward C please VISIT IF THATS MY DESTINY!] now GiddyUp

mikeyman · « **Reply #43 on:** November 27, 2014, 01:52:51 am »

Hey Willie G, truth is, I wish I had that much hair!

but I do have a killer beard! Not shaving till I'm cured! It went from my head to my face! HaHa! Got a flu shot two days ago, not good! Reminded me of my Inf/riv days! Just a slightly elevated fever 99.6 /headace. Tylenol seemed to help. I slept longer than I have in years. A good 12 hrs! I was getting something like a cold coming on. Just barley, feeling better now. You all have a great Thanksgiving and I truly enjoy reading all these posts. We are not alone!
One good thing, I have lost 6 lbs since I started Harvoni Nov 11. That's a good thing! Food tastes good, just can't eat more than I should. I sure pee a LOT, I drink a cup of water every trip.
Peace
Mikeyman
I order my second bottle of Harvoni next Tuesday. One almost down 5 to go! 24 weeks is a long time!

willie g · « **Reply #44 on:** November 27, 2014, 07:45:20 pm »

hey, mikeyman! they say you CAN get flu shot with these meds, I remember I got the pneumonia shot and that was a weird ride and far as peeing goes oh BROTHER ,it sure takes it to another LEVEL eh? after awhile you say the hell with it, grab your mas flower vase and at night use that or a 3liter cranberry juice container with the handle on it and that way you got a days worth and you have a nice tight cap on it that is if you don't have to modify it lol if you do well GOD BLESS YA ''just'' Willie g ya know I have a son in law [part of my outlaw family] that kinda raises the hair on my butt so I gave him a spiritual name because my daughter is LITTLEMOON,grandchild is HALFMOON,[we almost started a MOON FAMILY lol grandboy WHITE CLOUD AND ANOTHER boy IRONHORSE, so ya I gave him a nickname today SITTING BIRD, he seemed to like that a lot but the MELONHEAD doesn't know what it stands for,. it means a bird who is so full of shit he cant fly,, later brother,,,i tried sitting turkey and he frowned about that so I gave him SITTING BIRD, [wait till he reads my journals when I die, then he will know hahaha ''just''willie g

mikeyman · « **Reply #45 on:** December 10, 2014, 04:34:17 pm »

One bottle of Harvoni down, 5 more to go!
Got the second one right on time. Ordered it when I was down to 10 pills left.
So 29 days done so far, feeling excellent. No headaches, more energy than in the last 17 years. The only thing I noticed, when I sit up in bed or bend over, sometimes I get a bit dizzy for a few seconds. Kind of weird, but goes right away.
I'm getting my first blood work this Friday, will know the results from almost 5 weeks early next week and I will post them. Hoping for UD!!!

mikeyman · « **Reply #46 on:** December 18, 2014, 01:18:37 pm »

Hi all, Got my results today after 4 weeks of Harvoni
Starting Viral Load 1,529,773 Now 23
Starting AST 110, Now 49 (Normal Range 14-40)
Starting ALT 131, Now 60 (Normal Range 10-53)
Bil Starting 0.8, No Change

My Doctor said with the Cirrhosis, it may take a bit longer. But I have seen this with many folks and my next blood work is Feb 14. It should be Undetectable!

So, This is way better than the Inf/Riv ever got. I'll take it! I feel better than I have in 17 years so it is doing its thing!

Gonna get this nasty beast!
Keep me in your prayers!
MikeyMan

HHburme · « **Reply #47 on:** December 18, 2014, 02:27:29 pm »

Mikeyman ....so exciting to see your 4 week results. Sure looks like this Harvoni is doing the job. Keep fighting the good fight!!

mikeyman · « **Reply #48 on:** December 18, 2014, 02:57:02 pm »

Thanks hhburme! I'm not going to get too bummed out that it's not undetectable, I'm on for 24 weeks . I'll kick it's butt in the next 5 months!
Keeping the faith
Fighting the battle. ....
to be continued. ....
MikeyMan

BattleTheBeast · « **Reply #49 on:** December 18, 2014, 04:35:22 pm »

Quote from: mikeyman on December 18, 2014, 02:57:02 pm

Thanks hhburme! I'm not going to get too bummed out that it's not undetectable, I'm on for 24 weeks . I'll kick it's butt in the next 5 months!
Keeping the faith
Fighting the battle. ....
to be continued. ....
MikeyMan

Mikey,

Mine wasn't gone at 4 weeks either and at 9 it was, keep the faith, we have a long road ahead to kill the beast!

Mel

mikeyman · « **Reply #50 on:** December 18, 2014, 04:54:00 pm »

Thanks for the encouragement Mel. I was hoping for UD, but I'll take 23! It is a lot better than 1.5 mil! My doctor seems to think it was not a problem at all. A lot of his patients are in the same situation after 4 weeks that have had treatment before and have Chirrhosis. So far, after the second blood work they are all coming out UD! He and his team have a very large practice and wrote 40 scripts out last week for Harvoni.

Killin it! Only 23 more to slay! HA!
MikeyMan

BattleTheBeast · « **Reply #51 on:** December 18, 2014, 04:57:33 pm »

Hey MM,

That's all great news and makes me smile. It's so nice to hear all the positives!

Right now I am on hold with my specialty pharm to order my next bottle of magic orange pills; somehow they have an error message. Hope they can fix it because it would really suck to spend a bunch more time dealing with them. I still have 2 weeks left so there's time.

Mel

JillLynn · « **Reply #52 on:** December 18, 2014, 05:07:10 pm »

Mikeyman.....you ARE gonna kill this beast! Amen to that!
I am too.
We all are!

praying for everyone on here and those who aren't and doing it alone. I hope they find us.

Jill

BattleTheBeast · « **Reply #53 on:** December 18, 2014, 05:27:24 pm »

Quote from: JillLynn on December 18, 2014, 05:07:10 pm

Mikeyman.....you ARE gonna kill this beast! Amen to that!
I am too.
We all are!

praying for everyone on here and those who aren't and doing it alone. I hope they find us.

Jill

Ahhhh Jill,

I love that, I hope they find us too so they aren't doing it alone. I'd be a mess without all of you!

Mel

mikeyman · « **Reply #54 on:** December 18, 2014, 05:40:04 pm »

Jill, Thanks for the encouraging words. NO doubt this beast is going DOWN! I'm gonna hammer it for five more months! This is only round one! I got most of them in one punch!

I truly enjoy reading all the posts from you all. We hold each other up! No hepc virus is safe from the magic orange pill! Not one!
Peace
MikeyMan

sunrise · « **Reply #55 on:** December 18, 2014, 07:35:37 pm »

Hey MM
Here you are already on your 2nd bottle! I hope your next test shows UD. Well I have 3 more doses of S/O and im scared s***. I tbink because while on tx my next dose will keep finishing off virus. After that om out on a limb waiting for 4 week 12 wk and 24 UD eot for sure.
Have a great Holiday and kick some HCV butt!... Sunrise

mikeyman · « **Reply #56 on:** December 18, 2014, 09:36:06 pm »

Hey Sunrise, thanks for the kind words. I do hate waiting for the results as well. My first go with inf/rib showed reduced vl. But it never got ud and starting getting higher. After a wasted 48 weeks of hell for nothing! Then along came the peg/rib. That made me nuts and I would have to pull over my car cuz I would feel like I was going to pass out. Just two months into that, they told me to stop as it was worse than the first time. So this Harvoni is a walk in the park. I did not expect to go UD at 4 weeks, but 23 is pretty low!
Like I say I have just under 5 months to go and have about 3 weeks left of the second bottle. The new one will hopefully be here tomorrow. I feel great so far. I could do this for 48 weeks if I had to. But they think 24 should do the trick. I'm one of the hardest to go svr as I failed the two prior rounds and have cirrhosis.
All is well in my head!
Hope you and all of us stay UD for life. Keep up the fight!
Peace
MikeyMan

JTbow · « **Reply #57 on:** December 21, 2014, 03:21:55 pm »

This is my 2nd day taking harvoni
I have stage 4 Cirohsis Ge no 1, doe's
Anyone have an idea how it would affect
You driving a truck that is what I do for a
Company. Thanks much!

Lynn K · « **Reply #58 on:** December 21, 2014, 03:38:34 pm »

Hi JTbow

I don't know specifically about truck driving but I think this might give you some ideas. Do you take a DOT physical? If you do did you have to tell them about your cirrhosis? If so did they say anything on your paperwork that if you take a new medicine you should tell someone for example you doctor you did the physical with?

If none on that applies and you just drive around locally but not with a specific truck drivers license I would think as long as you feel ok and not too tired to drive you should be fine just remember to consider you own safety as well as the other people out there on the road.

Another suggestion is ask your treating physician for their thoughts about driving professionally with your health problems.

Good luck

mario555 · « **Reply #59 on:** December 21, 2014, 04:04:39 pm »

About driving and taking the medicine. I do find I have "flashes" on the corner of my eyes for 3 hours after taking the pill. It looks like if car lights would be at the peripheral. I found it OK on the highway. I take my pill at 5 pm after I don't have the need to drive far.. I guess everybody is different so try different recipes. Harvoni is a dream compared to the old medication. Good luck!

mikeyman · « **Reply #60 on:** January 08, 2015, 07:36:48 am »

Two bottles of Harvoni down, 4 more to go! Feeling great! This is a walk in the park. I have had almost no side effects at all, except for a slight occasional dizziness a couple of hours after taking the pill. I take it at 8 pm and by morning it's gone. I dont get my next blood work until Feb. After 4 weeks, it dropped from 1.5 million to 23. Hopefully it will be gone!
Still here!
Peace
Mikeyman

mikeyman · « **Reply #61 on:** February 07, 2015, 08:23:05 am »

Half way through bottle four of Harvoni. I am getting my second lab Feb 13. Hoping for good news. Still no real sides to report. The dizziness seemed to disappear when I wake up. Harvoni for me is like taking vitamins. Lol.
I'll post my results as soon as I get them. Peace and healing to all.

Mikeyman

sunrise · « **Reply #62 on:** February 08, 2015, 07:02:03 pm »

Hi Mikeyman!
Glad to hear your doing so well! Halfway done. Im 7 weeks out and 4 week post tx was UD . So hopeful 12 week post will stay that way. Saw your post and had to say hey :-). Best wishes on treatment. .. Sunrise

Lynn K · « **Reply #63 on:** February 08, 2015, 10:00:05 pm »

Congrats Mikeyman

I finish bottle 3 on Monday starting number 4 on Tuesday so half way :-)

Wishing you continued easy treatment and SVR in your future

sunrise · « **Reply #64 on:** February 08, 2015, 10:04:44 pm »

Hi LynnK
Good to hear you're halfway! Saw that your labs are cool with the riba. How are you feeling? Hope your skin isn't giving you problems from the added weapon against the.dragon. ..best wishes on the next half..... Sunrise

Lynn K · « **Reply #65 on:** February 08, 2015, 10:28:31 pm »

Hi thanks

My prior to riba HGB was 13.7 week 1 was 11.9 and week 2 was 10.3 no other Riba sides except the anemia as HGB is below min of 11.1 so I imagine we will be discussing dose reduction soon maybe.

The interesting lab that was a present surprise is my platelet count which has been in the 80 to 90 range for probably 5 years jumped to 148 just shy of min normal 150 woo whooo!

Can't explain it but not complaining!

sunrise · « **Reply #66 on:** February 08, 2015, 10:55:56 pm »

I hope the anemia doesn't get worse either. The platelet count is good! Hoping you beat this Lynn. I am sending healing energy to you.... Blessings Sunrise..:-)

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