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Author Topic: On Harvoni But Confused  (Read 6617 times)

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Offline Johnny_Wayne

  • Member
  • Posts: 47
On Harvoni But Confused
« on: November 11, 2014, 02:38:46 pm »
Hi everyone, I'm new here and am hoping someone's experience will be of benefit. Thanks in advance for any advice or information you may have to offer. About me:
No drinking, no smoking, no drugs in the pat 25 years. 8 months ago I was stunned to go into acute liver failure and to be diagnosed with Hep C all in one feld swoop. I presented with massive ascites, varices and all that "really scary" stuff. At that time my MELD score was 16, but has since improved to 12. (for now anyway) After 5 separate denials for Sovaldi, both me and my transplant hepatologist had given up hope for treatment options. Then suddenly, out of the clear blue sky, BAM! Harvoni approved. Now my question is this. Will curing this virus allow my liver to heal itself somewhat and delay the need for a transplant? Or.... Does cirrhosis continue to get worse all on it's own after a certain point? Thanks for any insight.
« Last Edit: November 11, 2014, 04:13:54 pm by Johnny_Wayne »
Diagnosed 04/2014
Started Harvoni 10/2014
Undetectable 01/2015
Relapsed 04/2015
F4 Cirrhosis (Compensated - barely)
Child Pugh Score 6-7
MELD Score 10
Started Olysio/Sovaldi/Ribavirin (24 weeks)
EOT Not Detected 11/9/2016
--------------------------------
5-10-2017
Virus undetected SVR 24 Achieved
I AM FINALLY CURED!

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: On Harvoni But Confused
« Reply #1 on: November 14, 2014, 07:26:23 pm »
Hi Johnny,
I am sorry you have had this happen so quickly. I will do my best to address some of your issues.

If you are treated and cured, it is considered a virological cure since you will still have cirrhosis. There have been a few cases of reversal, but these are rare. However, it may arrest the cirrhosis. If your cirrhosis is "decompensated" then you are a not a candidate for treatment, and since you are showing signs of decompensation, this may be why you were denied. If your doc feels like you are compensated then he/she may go ahead and try again to prescribe the treatment. If you are denied, contact http://www.mysupportpath.com/ They help with the co-pay and getting the meds if there is a denial.

If you aren't eligible for the meds, you will be immediately post-transplant.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

 


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