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Author Topic: Anyone have issues with legs aching? UGH!  (Read 16394 times)

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Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Anyone have issues with legs aching? UGH!
« on: November 24, 2014, 09:12:19 pm »
Hi All,

Tonight my legs are achy so bad, not sure why. Maybe it's the weather? Maybe I am getting old. I didn't have this issue before I started treatment so not sure if it's the S/O battle or the Cirrhosis. It seems like the cirrhosis has flared so much since I got  treatment but that could be because the medications are so strong and my liver is working harder than ever, not sure but want the aching to stop. No supposed to take hot showers or sit in a hot tub because of the itching so just being miserable. Thanks for letting me whine (again)

~Mel~
It's Day 45 of 84
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline zeena

  • Member
  • Posts: 114
Re: Anyone have issues with legs aching? UGH!
« Reply #1 on: November 24, 2014, 09:23:43 pm »
beast, when my legs hurt i go for a walk, even at night, sometimes i have that weird leg syndrome muscle spasms, and a hot bath helps with that.my doc says these meds do cure cirrohis, is that true?

Offline zeena

  • Member
  • Posts: 114
Re: Anyone have issues with legs aching? UGH!
« Reply #2 on: November 24, 2014, 09:26:20 pm »
just bought 2 artichokes!! have an artichoke happy holiday, to  one and to all!!the best medicine for your lill  liver. the water you boil it in is good for you too, if its organic.

Offline badbradley

  • Member
  • Posts: 294
Re: Anyone have issues with legs aching? UGH!
« Reply #3 on: November 24, 2014, 09:47:03 pm »
Hey!  I didn't have any problems before treatment. I am not cirrhotic. About 3 wks into treatment I started experiencing muscle pain in my thighs and calfs. Also some minor joint aches. At about wk 6 or 7 it seemed to subside. Then at about wk 10 it returned to about the same level. Almost immediately after stopping meds at wk 12, it disappeared. Now - 2 wks post treatment I'm having some minor discomfort- thigh and joint pain. The weather has been very precipitous (is that a word?) here the past mth. so I'm thinking that's probably causing it. Be well all.
                                                                                            Bad Brad
Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: Anyone have issues with legs aching? UGH!
« Reply #4 on: November 24, 2014, 09:50:15 pm »
My legs ached during treatment especially my right leg.  I figured since I had some varicose veins that the meds were aggravating it.  I did find that during treatment I sat more at first and then when I made a point of walking around more even at home it really helped.  The leg issues were worse a month into treatment than got less and less.  If i sat too much, it did make it worse.  I am post treatment now and my leg will cramp every now and then yet.

Offline sunrise

  • Member
  • Posts: 463
Re: Anyone have issues with legs aching? UGH!
« Reply #5 on: November 24, 2014, 10:00:10 pm »
Hey Mel
       Yes yes they are stiff and achey. 8 weeks in tx and they have been getting more stiff. My ankle on right side is swollen on Achilles tendon.Ialso stand at work for hrs at a time so Iit can be a combination. Hope you feel better

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Anyone have issues with legs aching? UGH!
« Reply #6 on: November 25, 2014, 04:31:35 am »
Thanks everyone, I hate to share the pain but it sure helps to know I am not a complete anomaly! Some days I sure feel like I am.

Currently it's 4:30 in the morning, haven't slept at all but totally sick to my stomach over this mess in Ferguson (and across the US), just breaks my heart to see this happening. I respect the right for people to protest against something they don't agree with but I can't come to terms with the looting, fires and damage.

Life is just so precious and can be gone in an instant, I wish more people could understand that and fight for peace, harmony and medication for those who need it and can't get it!!!!

~Mel~
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline zeena

  • Member
  • Posts: 114
Re: Anyone have issues with legs aching? UGH!
« Reply #7 on: November 25, 2014, 02:58:35 pm »
try rubbing flax seed oil on your itchies.

Offline hoping4thebest

  • Member
  • Posts: 11
Re: Anyone have issues with legs aching? UGH!
« Reply #8 on: November 25, 2014, 03:52:40 pm »
Sorry to hear Mel my legs were aching also last night i figured it's this crazy weather we have been having. Hoping you find some comfort, perhaps a Tylenol might help if your able to take it?

Steve 

Offline Picnic

  • Member
  • Posts: 110
Re: Anyone have issues with legs aching? UGH!
« Reply #9 on: November 25, 2014, 04:19:32 pm »
My right upper thigh has been painful especially at night. I may have hurt it at the gym. I am on week 15 of s/o. X-ray and vascular study are negative. Waiting for MRI. We tend to blame a lot of our issues on the meds!! It may or may not be. Larry
Larry

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Anyone have issues with legs aching? UGH!
« Reply #10 on: November 26, 2014, 11:44:31 pm »
Honestly not blaming the Meds, I'm blaming my buddy Cirrhosis :(

Just want to get this virus out of me so I can start the next chapter.

Happy Thanksgiving to you and yours,

~Mel~
« Last Edit: November 27, 2014, 09:25:49 am by BattleTheBeast »
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Picnic

  • Member
  • Posts: 110
Re: Anyone have issues with legs aching? UGH!
« Reply #11 on: November 27, 2014, 08:11:06 am »
Beast,
I know what your talking about. I also had cirrhosis before my transplant. Celebrating 9 years this Thanksgiving! Hopefully I will be cured next thanksgiving! Happy Thanksgiving to all!
Larry

Offline Deck

  • Member
  • Posts: 16
Re: Anyone have issues with legs aching? UGH!
« Reply #12 on: November 28, 2014, 11:52:07 am »
Yes, Battle the Beast,

My hips and knees ache pretty badly at some point in every day.  We've talked before I'm geno 2 riba/solvaldi combo. Looks like skiing is out of the question this season! 

Ryan

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Anyone have issues with legs aching? UGH!
« Reply #13 on: November 28, 2014, 12:22:08 pm »
Hi Ryan,

I just tell the grandkids that they are too heavy to sit on my lap!! Grandma is getting old!! I just didn't think I'd feel this old at 56!!

Sorry your knees and hips hurt; this pain stuff is no fun and not too many things are helping with it. I'd kill for a big soaking tub with Lavender and Epsom Salts!! I even looked to see if any of the hotels close by had soaking tubs!! Trying to keep any extras except what is absolutely critical from going in me except for my S/O. And with me having the itch/rash from the Olysio hot baths are out right now. praying the change to Harvoni goes through and quickly too!

Hope you feel better!

~Mel~
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: Anyone have issues with legs aching? UGH!
« Reply #14 on: November 28, 2014, 03:24:37 pm »
The Aveeno colloidal oatmeal bath treatment stops the itch temporarily.  It worked for me that first month and then I just used some of the topical Aveeno itch products for the real itchy spots is how I was able to deal.

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Anyone have issues with legs aching? UGH!
« Reply #15 on: November 28, 2014, 04:55:45 pm »
Thanks Tess!

I buy my soap from https://lehsoap.com/product-category/hand-made-soap/

They have an awesome oatmeal soap and also a detox soap I really love.

I highly recommend these lovely ladies and their homemade products!! The have scrubs soaps lotions all kinds of good stuff!!
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: Anyone have issues with legs aching? UGH!
« Reply #16 on: November 29, 2014, 01:25:18 pm »
Check out Vitacost.com as they carry most handmade natural soaps at wholesale prices.  I buy the dead sea salt soaps that go for $6 at Whole Foods and get it from them. been using them for many things from vitamins, makeup, soaps, even some natural food items for years now.  Name brands…...

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: Anyone have issues with legs aching? UGH!
« Reply #17 on: November 29, 2014, 01:26:38 pm »
The dead sea salts that go for $6 are $3 at Vitacost.  For some reason this board does not behave when typing fast……….

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Anyone have issues with legs aching? UGH!
« Reply #18 on: November 29, 2014, 04:27:00 pm »
Check out Vitacost.com as they carry most handmade natural soaps at wholesale prices.  I buy the dead sea salt soaps that go for $6 at Whole Foods and get it from them. been using them for many things from vitamins, makeup, soaps, even some natural food items for years now.  Name brands…...

Great! I will check them out. Do you get anything for referring a friend?

Marcie
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: Anyone have issues with legs aching? UGH!
« Reply #19 on: November 30, 2014, 12:29:22 am »
Yes, we would each get $10 credit if I send a link through them, but, have to send to an email address.

Offline sunrise

  • Member
  • Posts: 463
Re: Anyone have issues with legs aching? UGH!
« Reply #20 on: November 30, 2014, 09:00:33 am »
I love vitacost! That is a good idea. I didn't think about oatmeal bath... great idea. My skin doesnt itch all the time but it gets dry for sure. Im going to store today to pick some up! Thanks ladies

 


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