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Author Topic: what to do  (Read 8398 times)

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Offline shadowace6969

  • Newbie
  • Posts: 2
what to do
« on: January 08, 2015, 03:47:27 pm »
Just found out my fiancé has hep c, she has been hospitalized for 4 days now from liver failure. Nearly comatose, and when she does talk it's all negative delusional things that she says. They have strapped her arms to her sides and havn't started any kind of liver treatment, all they have done is give her potassium in her IV. Should I be concerned that they are aware of the very high ammonia content in her body and not giving her anything for it?

Offline workingonit

  • Member
  • Posts: 7
Re: what to do
« Reply #1 on: January 08, 2015, 04:58:13 pm »
I am just a guy fighting hep c and am not qualified to make judgments. I can only imagine what you are going through right now.Have you spoke to the attending Physician? From what I have read low potassium can be part of the problem with the liver processing ammonia. I would think the Drs are doing what they think is best for her. If it were me and I was worried about the direction the treatment was going I would ask for a second opinion from a specialist.
If you are not listed as a person to be told about her medical condition then get her closest relative or whoever is listed to do it. Good Luck! I hope things go well!

Offline shadowace6969

  • Newbie
  • Posts: 2
Re: what to do
« Reply #2 on: January 11, 2015, 11:12:46 pm »
Thanks a lot, been in the hospital about a week now. They are going to re-evaluate her liver and call in a psyc to evaluate her. She is still pretty much unconscious and spacey though.

Offline workingonit

  • Member
  • Posts: 7
Re: what to do
« Reply #3 on: January 12, 2015, 03:57:57 am »
hopefully the docs can get her stabilized where she can take meds for the hep c. Harvoni is the current  wonder drug. Side effects are minimal.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,542
  • Get tested, get treated, get cured, fight Hep c!
Re: what to do
« Reply #4 on: January 12, 2015, 04:53:39 am »
Have they given her Lactulose? From what I understand that is the treatment for high ammonia levels causing hepatic encephalopathy. Possibly a lactulose enema.

Is on of her treating physicians familiar with treating patients with cirrhosis hopefully a hepatologist?

Has she previously been diagnosed with cirrhosis?

best of luck to you both
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: what to do
« Reply #5 on: January 12, 2015, 09:13:20 am »
I agree totally with Lynn; it's hard to be thrown into a situation like this where you have no clue what to do. Basically if her ammonia level is high that will very likely cause her confusion and delusions and once they can get her ammonia level back to where it should be then she should be back to her normal sweet self.

Here's a decent article explaining Hepatic Encephalopathy that's a quick read to bring you up to speed.

http://www.nlm.nih.gov/medlineplus/ency/article/000302.htm

Hang in there, if they can lower her ammonia level it should really help the situation.

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

 


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