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Author Topic: Last Week of Sovaldi and Olysio ( 24 weeks)  (Read 15944 times)

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Offline Picnic

  • Member
  • Posts: 110
Last Week of Sovaldi and Olysio ( 24 weeks)
« on: January 19, 2015, 12:47:48 pm »
It has been a long haul! I have to say it was very bearable. Some anxiety and some down days. I have been UND for for last 6 tests. Liver enzymes all normal. CBC looks good also. Did last HCV today. Next on will be SVR 4 after treatment is over. Its funny I waited so long for these meds and many of you are already on better ones. Go figure! Wishing you all the best! I have really enjoyed the forum! Thanks!
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Larry

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #1 on: January 19, 2015, 01:35:59 pm »
Larry, these milestones are worthy of celebration. Thank you for sharing this with us. I appreciate your presence on this forum, and look forward to celebrating your freedom from hep C.
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Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Doluska

  • Member
  • Posts: 86
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #2 on: January 19, 2015, 06:56:13 pm »
I am done too: my 12 weeks finished and hope is my motto now. Good luck!d
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Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #3 on: January 19, 2015, 10:15:49 pm »
Wow - it is like one big graduating class! Congrats Doluska.
Logged
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Doluska

  • Member
  • Posts: 86
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #4 on: January 20, 2015, 09:04:21 am »
 Thank you, Lucinda! You was very helpful! It is very nice to have somebody so knowledgebale and honest during our fight! D
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Offline Picnic

  • Member
  • Posts: 110
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #5 on: January 20, 2015, 10:00:33 am »
Congrats Doluska! Lucinda, thanks for the kind words! I remember that you were very reassuring when I went from undetected for three periods and then had <15.
You said it had happened to you. I guess we all love to hear that we are not the only one that things happen to. I still feel that it was a lab test abberation( I hope). I have to say that the moderators keep this forum in great shape and it is valuable to all of us. I will keep you all updated and hoping for a happy ending for all of us!
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Larry

Offline badbradley

  • Member
  • Posts: 294
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #6 on: January 20, 2015, 10:33:34 am »
Picnic and Doluska,
                Congratulations on finishing treatment! Best of luck to both for the coveted SVR12,24! Have been off S/O 10wks. and feeling great. Best wishes!
           Brad
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Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24

Offline Picnic

  • Member
  • Posts: 110
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #7 on: January 20, 2015, 10:40:28 am »
Did you do an SVR 4?
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Larry

Offline Long_Haul

  • Member
  • Posts: 161
  • Slayed the Dragon
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #8 on: January 20, 2015, 10:49:49 am »
Picnic, Doluska, and Brad, congratulations on completing treatment Undetected.  I wish you success in pursuit of SVR12/24 and also pass along the same message to all who are in treatment in this forum.  2015 will be a good year in slaying the dragon.

Best wishes,

AL
Logged
Genotype 1A

Diagnosed 1989
Biopsy-cirrhosis stage 4 2000, no starting VL this round

3 rounds of Int+Rib
(Combo/48wks,Peg/26 Wks,Triple with Incivek/16wks)
UND with Incivek, Relapsed
Started 12 weeks Harvoni and Rib Jan 2nd,2015
4 weeks Undetected
8 weeks Undetected!
EOT at 12 weeks Undetected
EOT at 24 weeks STILL UNDETECTED
Completed TX Mar 26th,2015

EOT plus 4 weeks UNDETECTED
EOT plus 12 weeks UNDETECTED !!!!!!!!!!! I am DONE!

NO LONGER a member of the "WAITING GANG"

Offline badbradley

  • Member
  • Posts: 294
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #9 on: January 20, 2015, 10:53:13 am »
I did not do any post treatment tests. Just EOT which is undetected. Why no post tests? Just wanted to hang with the UD and go for all the marbles. It thickens the anticipation for sure! Will post results. Draw is 2 wks from today.    Brad
Logged
Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24

Offline Picnic

  • Member
  • Posts: 110
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #10 on: January 20, 2015, 11:16:04 am »
Badbradley,
Saying a special prayer for you!

Long_haul,
I was airforce also! 70-74, Korea,Thailand, Japan,!
Logged
Larry

Offline Red Hen

  • Member
  • Posts: 187
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #11 on: January 20, 2015, 11:17:30 am »
Just wanted to congratulate you all on finishing treatment and wish you the best!
Logged
genotype 1a
completed 12 weeks Viekira pak and ribavirin
final results due around the end of April
Undetected 12 weeks post treatment!

Offline Doluska

  • Member
  • Posts: 86
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #12 on: January 20, 2015, 12:31:23 pm »
Thank you all! This site was a good support during the treatment! And I am going to post my 4 and 12 weeks post treatment results. Hope it will be positive. We all so desperately looking for good results: it gives us hope that we will be cured too.
So, SVR 12 for all fighters! D
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Offline Long_Haul

  • Member
  • Posts: 161
  • Slayed the Dragon
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #13 on: January 20, 2015, 06:21:24 pm »
Larry, Awesome assignments. I spent 3 years in Minot. Not a great place to be in the military. Great food , did you get involved in any martial arts while there?
I was in the Judo club and learned a little Karate as well.


AL
Logged
Genotype 1A

Diagnosed 1989
Biopsy-cirrhosis stage 4 2000, no starting VL this round

3 rounds of Int+Rib
(Combo/48wks,Peg/26 Wks,Triple with Incivek/16wks)
UND with Incivek, Relapsed
Started 12 weeks Harvoni and Rib Jan 2nd,2015
4 weeks Undetected
8 weeks Undetected!
EOT at 12 weeks Undetected
EOT at 24 weeks STILL UNDETECTED
Completed TX Mar 26th,2015

EOT plus 4 weeks UNDETECTED
EOT plus 12 weeks UNDETECTED !!!!!!!!!!! I am DONE!

NO LONGER a member of the "WAITING GANG"

Offline Picnic

  • Member
  • Posts: 110
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #14 on: January 26, 2015, 04:23:33 pm »
Took my last pill Saturday morning. I still look for my pills after breakfast. It is  hard to forget after taking them for 6 months every day and I never missed a dose. Looking forward to SVR 12 and 24!
Logged
Larry

Offline kate0b1

  • Member
  • Posts: 293
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #15 on: January 26, 2015, 05:08:47 pm »
Larry, congrats and good luck on the labs.

kate
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Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #16 on: January 27, 2015, 09:52:34 am »
Larry,

YOU DID IT!!!!! Hooray, you finally finished! I can only imagine how you are feeling and what you have to go through now; honestly I think this is the most stressful time for all of us. You've done all you can do, you've done everything right and you followed the TX to a tee for 6 whole months. That stupid Beast better stay gone!!

I am sure I will be a basket case when I get to that day and have the wait start (hearing the jaws music in my head). I will probably end up on anti anxiety medication! Just kidding!

I am crossing all body parts in the hopes that you stay Undetected and get to the Magic SVR. It's your turn and you deserve it! There should be a whole section for just waiting for SVR because it's going to be a really big topic soon with everyone in treatment!

I am going to want to know what things everyone did to make it through :)

Anyway I just keep reminding myself that worst case there are more options out there, my liver is getting a major break and some day very soon the Beast will be dead never to rise again!

You've got this and Sunrise does too, it's going to be all SVR!!

Mel
Logged
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19
EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Picnic

  • Member
  • Posts: 110
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #17 on: January 28, 2015, 02:28:46 pm »
Thanks BTB. When is your finish date?
Logged
Larry

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #18 on: January 28, 2015, 06:14:31 pm »
Larry,

That's kind of up in the air depending on how big of a fight we get into with the Insurance Company for my last 8 weeks. I honestly haven't calculated it.

Saturday 1/31/15 I start bottle 3 of Harvoni which means I have 16 weeks left as of 1/31/15 if they extend my approval which expires on 3/3/15. Otherwise I have 8 weeks left as of 1/31/15.

Let's not forget the 8 weeks of Sovaldi and Olysio that I took before I started the Harvoni.. it's all way too much so I am just going for the ride :) I do not think Express Scripts will deny the last 8 weeks, my doctor will sit on the phone and fight with them again and I also have the magic email address guy courtesy of Lynn K, he's supposed to call me next month after I get bottle 4. He didn't want to mess up my approval by pushing it until it was needed.

Great visit with my IDhero today, what a special doctor I have. Anyway he sent me next door to Lab Corp for blood work due to the swelling in my hands, no where else right now but stiff swelled fingers.  So I should have some updated results early next week and get to see another test that says Undetected! He did a Quant, CBC, Thyroid, Ammonia Level (mine went a little crazy for a bit) and something else. I also got my last Hep A/B immunization. I got back in four weeks for the next visit.

Might as well use up all my deductible and get it over with! Last blood work was done just shy of 9 weeks.

Keep smiling fellow warriors!!!

Mel

Logged
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19
EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #19 on: January 29, 2015, 02:50:53 am »
Alright Larry Congrats!

You have done your part my hope for you is the meds have done theirs.

Good luck and wishing you SVR 12
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Doluska

  • Member
  • Posts: 86
Re: Last Week of Sovaldi and Olysio ( 24 weeks)
« Reply #20 on: January 29, 2015, 06:00:55 pm »
Hi all! It is 2 weeks since I finished my 12 weeks of S/O + RIBA. It is so strange: I am feeling  now worst than I was lately. It looks like withdrawal, some flu symptoms, fatigue, blood pressure is up. Did somebody experience the same? I am so spooked by this! D
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