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Author Topic: Australian needing Harvoni  (Read 9628 times)

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Offline Sally2

  • Newbie
  • Posts: 2
Australian needing Harvoni
« on: January 20, 2015, 06:58:22 pm »
Hi,

I'm new to this forum. Unfortunately, Australia has not yet approved Harvoni and although Sovaldi has been approved it is fairly inaccessible due to its astronomical cost. This means that the thousands of thousands of hep c sufferers must just sit out the wait until our Government finds enough compassion for its people to decide to save their lives. It will be too late for many,
So, that is why I'm here. My mum needs Harvoni fast. Do any of you know where we can go to get it. If we can raise the money we are prepared to go anywhere.
I would so appreciate your  help and advice . We are desperate.

Thanks,
Sally

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: Australian needing Harvoni
« Reply #1 on: January 21, 2015, 12:00:36 am »
Is there a reason she cannot take Sovaldi? Do you know her genotype? Does she have advanced cirrhosis?

Harvoni was approved in the EU on November 24, 2014 surely it will be coming to Australia soon one would think?

Is Sovaldi Olysio available to her? If she is genotype 1 that has a high rate of cure. Also there is Viekira Pak is that available there yet?I t was approved in the US in December

Good luck to you both
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Sally2

  • Newbie
  • Posts: 2
Re: Australian needing Harvoni
« Reply #2 on: January 27, 2015, 06:02:19 pm »
Hi Lynn,

No, none of these drugs are available. It is very backward in Australia in this regard. We don't yet know if she had cirrhosis. She is GT 1a.
It's a terrible wait for the 233,000 people here in Australia with hep c.

Thanks
Sally





Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: Australian needing Harvoni
« Reply #3 on: January 28, 2015, 06:19:48 am »
You did say Sovaldi was available but at high cost so that means you are unable to get it?

Here in the US Harvoni costs a minimum of $94,500.00 dollars I guess if you are buying in the US you could try to get help from my support path. But you would have to get here and stay here and get a doctor here I would think.

If you mom does not have cirrhosis she has time for things to get sorted out in Australia.

Does she have any symptoms of cirrhosis? When will you be finding out if she does have cirrhosis?

Even here in the US many have had great difficulty getting Harvoni from their insurance if they don't have cirrhosis. The insurance companies are trying to make patients take Viekira Pak from Abbvie instead because they made deals with Abbvie for better pricing.
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline sawsome

  • Member
  • Posts: 13
Re: Australian needing Harvoni
« Reply #4 on: March 12, 2015, 12:57:41 am »
Personally I've unknowingly have Hep C G1A for 40 years. I received air gun shots for going over seas with the US Navy in 1972. When I went blind in my left eye during blood work it was found. That was 3 1/2 yrs ago. Free Australian health care is a joke. No health care would be the norm here. Dr's spend 10 minutes for appointments unless you have private health care. Also you wait months for scans and appointments. Since diagnosed I haven't receive ANY treatments at all. By the time I went through the system in my case I went from F2 to F4 Cirrhosis. My platelet count fell below 30 and interferon wasn't an option for me. Harvoni still hasn't been approved here which is the only drug (except Viekera Pak) that could help me beat this. I'm thinking it will be 1 or 2 more years before the public will speak out against this. I've sent many letters to the Aus Gov I'm returning to US

 


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