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Author Topic: Pretty Intense Back Pain  (Read 31577 times)

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Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Pretty Intense Back Pain
« on: January 29, 2015, 06:00:36 pm »
Hi Guys,

Yucky day, major lower back pain, not sleeping well at all. Blurry vision from being so tired and in pain.

Tired of being sick and tired. I need to win the lottery so I can hire someone to help me instead of being the one with the load all the time. This girl needs a break so I can regroup! I think I have been so overwhelmed with so much for so long that it's just getting worse instead of better.

Then of course I keep thinking about my Mom who was diagnosed at just about the age I am now with Pancreatic Cancer (she didn't smoke or drink) and went through Chemo and Radiation misery just to die 8 months after diagnosis. Her issue started with this lower back pain that wouldn't go away, it took them months to diagnose it and by that time it was wrapped around her aorta.

Just totally feeling the weight of the my world these days. Worried about losing my job and the impact of what that will mean to us. Right now I couldn't even go out and handle a job interview.. This just stinks and I need a flipping break!

Thanks for letting me vent, it does help a little.

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Red Hen

  • Member
  • Posts: 187
Re: Pretty Intense Back Pain
« Reply #1 on: January 29, 2015, 06:13:28 pm »
It does suck! Go ahead and vent when you need to. No wonder you feel so awful with what happened to your mother. Get the back pain checked out. I'm hoping it is something completely unrelated and not serious.
genotype 1a
completed 12 weeks Viekira pak and ribavirin
final results due around the end of April
Undetected 12 weeks post treatment!

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: Pretty Intense Back Pain
« Reply #2 on: January 29, 2015, 08:25:49 pm »
.
« Last Edit: January 29, 2015, 09:03:54 pm by Lukey »
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #3 on: January 29, 2015, 08:32:20 pm »
Thanks Red Hen,

it's good to be able to vent here. I am wondering if it's possibly Kidney stones or related to my Interstitial Cystitis (very possible). I am just trying not to freak out but even pain medication from the doctor isn't touching this. I have some serious pain meds (no tylenol or advil in the either) and they aren't helping really but they do knock me out for an hour or so.

Honestly right now I am just venting because whatever it is the docs need to figure it out, Had a ton of blood work done today and going to see my IC specialist on Monday.

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline anniemybaby

  • Member
  • Posts: 133
Re: Pretty Intense Back Pain
« Reply #4 on: January 29, 2015, 08:35:45 pm »
Awww Mel hope you feel better I honestly need 2 to 3 days every wk that I need to stay home my GI Dr signed n FMLA to secure my job
Annie

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #5 on: January 29, 2015, 08:52:54 pm »
Hi Annie,

Thanks, I have been working from home since June when the chaos began. I have a letter with permission to continue through March. The year rolled over so I have 3 weeks vacation to use and some personal days. I am allowed to take the time off but I worry about the impact it will have. So many layoffs and tons of instability so it's scary. The last thing I need right now is to have to look for a new job. It's just me and my grandson so I need to work to keep a roof over our head and I don't have too much saved up, I tend to be the one who is always helping my kids and friends/family. I see someone in need I try to help them. Call me a sucker I guess but I don't like seeing others suffer or go without. I just figure life is too short to be selfish and perhaps some day it will come back to me :)

I am so tired, pain has been really severe for over a week and I just keep hoping it will get better but I am not sleeping well. It's crazy because more pain = no sleep and no sleep means more pain. It's a horrible cycle. Then the whole anxiety about my Mom and what happened with her....

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Long_Haul

  • Member
  • Posts: 161
  • Slayed the Dragon
Re: Pretty Intense Back Pain
« Reply #6 on: January 29, 2015, 08:53:49 pm »
Mel, I can see why you need a break, We will pray for your peace of mind. Hang in there and keep your chin up, you will make it.  So sorry to hear about your Mom. I agree with Red Hen, you should get that checked out, even if it is to eliminate some of your worry. Big hugs along to you and we will try to help you conquer this present challenge. Hopefully your IC specialist can offer some answers and relief.

Lukey, hang in there! We all come from different walks in life and we will not always find agreement on everything we discuss.  You provide a lot of information and sometimes a differing point of view. The support we all offer here is needed and sometimes responses may differ in what we believe. It is natural and sometimes helps us to review what we really believe.  Keep asking questions and people will answer those they can and know that some may touch a hot button. It is part of sharing and learning.  Please keep offering support as you have been, I learn a lot from the people here including you.

Sleep well,

AL
Genotype 1A

Diagnosed 1989
Biopsy-cirrhosis stage 4 2000, no starting VL this round

3 rounds of Int+Rib
(Combo/48wks,Peg/26 Wks,Triple with Incivek/16wks)
UND with Incivek, Relapsed
Started 12 weeks Harvoni and Rib Jan 2nd,2015
4 weeks Undetected
8 weeks Undetected!
EOT at 12 weeks Undetected
EOT at 24 weeks STILL UNDETECTED
Completed TX Mar 26th,2015

EOT plus 4 weeks UNDETECTED
EOT plus 12 weeks UNDETECTED !!!!!!!!!!! I am DONE!

NO LONGER a member of the "WAITING GANG"

Offline Katie

  • Member
  • Posts: 784
Re: Pretty Intense Back Pain
« Reply #7 on: January 29, 2015, 08:58:19 pm »
Oh Mel, I am sorry you are suffering both physically and mentally and you go ahead and vent as you always listen to us!  Are you sure you didn't pull a muscle in your back? Where in your lower back are you hurting and what kind of pain?  I have a horrible lower back so am a bit of and expert with back pain due to a long history of it.  Every disc in my lumbar region is ruptured or bulging and slipped.  Too many damn sandbags out at the weir research projects.  I need to see a back specialist which I have to travel to WA and told them I just need to take care of this nasty alien virus monster first.

Do you have any leave available to take some time off to feel better and for those inconvenient but necessary doctor appointments?  Be sure to put a pillow under your knees to help keep pressure off your lower back and an ice-heat-ice is good to apply in case it is muscle related.  Don't use just heat and always end with ice because heat can cause swelling.  Doing that allows the medication to go directly to the muscle as the blood flow increases with the heat after being chilled.

I wish I was there to help you because you have helped me so much.  Please feel better.

Thinking of you!

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline bsmith9876

  • Member
  • Posts: 29
Re: Pretty Intense Back Pain
« Reply #8 on: January 29, 2015, 09:00:31 pm »
Hugs, Mel, I feel ya.  Hang in there  :)
G 1b

Offline Katie

  • Member
  • Posts: 784
Re: Pretty Intense Back Pain
« Reply #9 on: January 29, 2015, 09:01:45 pm »
Sorry to hear that. I'd chip in my 2 cents but it doesn't seem as though most of you would pay any attention to it, or would even attack my attempt to try to help you.

That is not a good attitude Lukey.  We are all interested in everything everyone has to say and are supportive.  We can politely disagree, but no matter what, we can learn from each other and care about what each and every person is going through.  We all care about you so stop that negativity!

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: Pretty Intense Back Pain
« Reply #10 on: January 29, 2015, 09:05:33 pm »

Lukey, hang in there! We all come from different walks in life and we will not always find agreement on everything we discuss.  You provide a lot of information and sometimes a differing point of view. The support we all offer here is needed and sometimes responses may differ in what we believe. It is natural and sometimes helps us to review what we really believe.  Keep asking questions and people will answer those they can and know that some may touch a hot button. It is part of sharing and learning.  Please keep offering support as you have been, I learn a lot from the people here including you.

Sleep well,

AL


Thanks AL. There are a few of you that I like here, and many I don't like.
Thanks for being one of the few decent people here.

Joe
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: Pretty Intense Back Pain
« Reply #11 on: January 29, 2015, 09:11:56 pm »
That is not a good attitude Lukey.  We are all interested in everything everyone has to say and are supportive.  We can politely disagree, but no matter what, we can learn from each other and care about what each and every person is going through.  We all care about you so stop that negativity!

Katie

It sure is a good attitude, unless that is, that you like to keep hitting your head on a brick wall.
Yes but some of them IMpolitely disagree, and not only that, they butt into things they know nothing about. When I made a post they didn't like the other night, all they needed to do was flag the post or PM the admin and ask them to remove it, not reply with a bunch of insults and judgments about the type of person I may be. That's what you call adding fuel to a fire, or actually flaming. Some admins will BAN people just for adding insults to a post they don't like. All I was looking for was INPUT, not attention, but I asked it at the wrong place and made the awful mistake of including more info than I needed to. That made so & so think I hated women, which was nothing I ever felt in my whole life. She took it all wrong and then went off on me like an idiot, which is what I think she truly is.
« Last Edit: January 29, 2015, 09:25:08 pm by Lukey »
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: Pretty Intense Back Pain
« Reply #12 on: January 29, 2015, 09:18:56 pm »
There is no block feature here, which is why I don't plan to post much more here.
 
If I could block some of you like I can on facebook, I'd stay here, but I have no need to deal with a bunch of people I can't stand. Too many grumpy, judgmental, ignorant, sick, know it alls.
« Last Edit: January 29, 2015, 09:25:44 pm by Lukey »
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline Katie

  • Member
  • Posts: 784
Re: Pretty Intense Back Pain
« Reply #13 on: January 29, 2015, 09:23:21 pm »
Maybe it is how you interpret our comments. What I just said was supportive and it seems you were offended by it.  I am sorry for that and hope you are doing well and on the road to recovery.

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline CE

  • Member
  • Posts: 147
  • Genotype 3. Sovaldi & Ribavirin 24 weeks.
Re: Pretty Intense Back Pain
« Reply #14 on: January 29, 2015, 09:27:20 pm »
Mel, so sorry for the loss of your mom. It's always hard to understand why bad things happen to good people. But it's times like this that her memory will give you strength and courage. Your back pain may well be from all the stress you are going through. I have been there too. My dad was dying of cancer and my husband lost his job, and my 10 year old daughter was severely sick with ulcerative colitis. I was beside myself with worry. I had pain in my lower back for months, to the point that I could hardly sit or walk. Nothing was found and as I became less stressed, it gradually got better.  Please request an MRI to be sure there is no serious problem, but I am thinking you just need some major stress relief. My faith helped to pulled me through. I will keep you in my thoughts and prayers.
Chris
Chris :)
Diagnosed July 2014
Genotype 3
Viral load of 950,000
Most likely from blood transfusion in 1978
Treatment started November 2014
Sovaldi and Ribavirin for 24 weeks
End of treatment April 2015
SVR12 July 2015!!!!!!
SVR24 October 2015!!!!!
Cured!!!! Praise the Lord!!

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: Pretty Intense Back Pain
« Reply #15 on: January 29, 2015, 09:28:20 pm »
Go right ahead and ignore me and hate me BTB.
With your attitude, you will never find true health.
You reap what you sow, now sit back and enjoy it.
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline Katie

  • Member
  • Posts: 784
Re: Pretty Intense Back Pain
« Reply #16 on: January 29, 2015, 09:31:18 pm »
Chris, you are so right.  When you are under a lot of stress you muscles get tight, your energy doesn't flow correctly and you seize up.  Acupuncture has helped me with that as it forces muscles to relax.  I don't know how it works but it does for me.

Thanks for your words of encouragement to Mel and all of us.

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: Pretty Intense Back Pain
« Reply #17 on: January 29, 2015, 09:31:29 pm »
Yeah, it's very "supportive" to tell me you think I don't have a good attitude. What a joke. The trouble with many of you is that you think your opinion is fact or the last word.
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline Maxlaw

  • Member
  • Posts: 20
Re: Pretty Intense Back Pain
« Reply #18 on: January 29, 2015, 09:54:33 pm »
Hi Mel, gosh it seems like you have so much on your plate. Really sorry you are having such a rough time, and I hope things get better for you soon!

Katie already mentioned it, but acupuncture worked great for me. I have back problems too (spondylithesis & disc degeneration L5-S1, with sciatic pain). I did PT, which helped some, but I still had quite a bit of pain...so much so that I decided to try acupuncture. I wasn't sure I would like it, but it was tolerable, and I think it helped a lot. I still have some back pain, but not nearly what it was...and no more leg pain.  Anyway, I just hope you find some relief...back pain is the worst.

Sending healing thoughts your way,
Max
GT 3a, dx 07/2014, baseline VL <400K, Fibrosis stage F2 prior to treatment; Completed AbbVie trial drugs ABT-493 & ABT-530 03/01/2015; achieved SVR 12 on 5/27/15...CURED!!

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #19 on: January 29, 2015, 09:58:01 pm »
@ CE - I had an MRI about two months ago and all was good. I think it could be stress related as well. Time will tell, working on my Yoga breathing techniques and rotating heat and ice for now.

Go right ahead and ignore me and hate me BTB.
With your attitude, you will never find true health.
You reap what you sow, now sit back and enjoy it.

@Lukey -  I have no clue why you are attacking me, you posted something that made no sense to me. I am in pain, don't feel good and just wanted some support. Your post was a little off kilter so I felt like anything I said would be taken wrong, therefore i choose not to respond because I have no clue why you posted that here in the first place or what you were talking about. I still don't know what's going on and I really don't want to know.

If you have something positive to say and contribute I'd love to hear it but I don't need negativity or hostility.

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline anniemybaby

  • Member
  • Posts: 133
Re: Pretty Intense Back Pain
« Reply #20 on: January 29, 2015, 10:04:53 pm »
This sight is alittle scary n negative hope everyone feels OK
Annie

Offline Katie

  • Member
  • Posts: 784
Re: Pretty Intense Back Pain
« Reply #21 on: January 29, 2015, 10:06:24 pm »
Mel:  I have a feeling Lukey was saying that to me, not you (but who knows).  Sorry I even responded to him but sometimes things just need to be said as his post previously directed at you struck me the wrong way.  Either way, that type of message is not what this forum is about.

Feel better and I'm glad you are at least able to work at home.  That is so much better as I did that a lot when I ruptured my disc.  Back injuries are miserable.

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #22 on: January 29, 2015, 10:21:45 pm »
Nah, he was talking to me, he said

"Go right ahead and ignore me and hate me BTB.
With your attitude, you will never find true health.
You reap what you sow, now sit back and enjoy it."

BTB - Battle the Beast - My Screen name so it was directed at me and I am clueless what the issue is and would prefer to not be involved in any BS. The very last thing I would want when i come here is negativity.

I didn't respond because it was a negative post that wasn't called for and didn't really require a response. It was just a statement he made which he can do as he chooses but I don't have to engage. As I previously posted I am happy to hear everyone's feedback if it's positive and supportive.

Ok, I am sp done with that topic!!!!

I don't think it's a disc, it's too far from my spine. Upper left butt check and radiates to my hip so possibly something to do with my sciatica is more likely. It's a vicious cycle and one thing triggers the next and then it comes and goes. Pain has gotten so bad at times I just had to stop and sit. When I take sit or lay down the pain completely eases up, compared to standing. It's goes from an 11 back to a 5-6. Honestly it's so bad it's bringing tears to my eyes, craziness because I am normally pretty tough. The other day I picked up groceries and was trying to bring them in and actually had to sit on the kitchen floor to get it to settle down.

This girl just needs a flipping break!!!!

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Pretty Intense Back Pain
« Reply #23 on: January 29, 2015, 10:32:00 pm »
Hi Mel,
If it is sciatica, one thing to try (if you haven't already) is ice. When I was in the amount of pain you are describing, I laid on a huge cold pack and then covered the rest of me with as much warmth as I could. Then I listened to music and podcasts and it kept me out of despair, which that kind of pain can send us.

Wish I could offer more - you give us so much.
Hugs,
Lucinda
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #24 on: January 29, 2015, 10:48:53 pm »
Thanks Lucinda,

I was using a smaller ice bag but I have a big one from knee surgery a few years back. I will put that in the freezer and try it tomorrow or in a few hours. This is crazy pain like I have never had before. It literally brings me to the floor.

I've been using a Shiatzu neck massager on my tush/back with the heat turned on and then cycling with the little ice bag. I will break out the big bag now.

Appreciate the advise and I give what I get; some really amazing people in this group but thank you for the compliment :). Honestly being positive on here reminds me to be positive everywhere, it's contagious!!!

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Katie

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Re: Pretty Intense Back Pain
« Reply #25 on: January 29, 2015, 10:59:59 pm »


This girl just needs a flipping break!!!!

Mel

It probably is sciatca but I get the pain you're describing and it comes from my hips getting off and tilted causing one leg being shorter than the other which throws everything for a loop.  That's when I see my Acupuncturist who is also a chiropracter but not the crunching bone type. She does a lot of pressure points and other gentle manipulation along with the acupuncture.  She is a true healer and we're so lucky to have her here.  I started with her after my disc blew out, (I couldn't walk for a month) had 6 weeks of PT and got so I could go to work with a cane but could only last half days, and someone told me to try her.  I had 2 previous uneventful treatments with acupuncture so was a skeptic, but with 2 treatment with her, I was walking and doing much better.  I continued to see her for the next 8 years while working on a very regular basis due to sitting all day at a desk, and now see her as needed.

If you can get on the floor and place a small hard object on either side of the spine, out a couple of inches to put pressure on the upper cheek areas where it is hurting, it may give you relief.  I use 2 small hand barbells (their rounded ends).  You wouldn't want them very big.  You could probably use 2 small cans of tomato paste, sideways or something similar to put even pressure.  It will be uncomfortable at first but try and relax and sink into the floor and it gets better.  I also put a pillow under my knees since they don't like to overextend.  I would try it when you are at a 5-6, not at an 11 to see if it helps at all.  Sometimes those little things can make a big difference and anything you can do to interrupt the pain and relieve the tension is good.

If you don't want to try that, I understand but I just had to give you the option as it works for me.

Ice Ice Ice and a bag of frozen veggies works great if you don't have one that works as they can mold to the area.  I really think alternating with heat is beneficial but ice is the important one.

I hope you rest well tonight as that makes such a difference for everything.  Sleep is a beautiful thing.



Katie

I missed the BTB.  Strange! :-\
« Last Edit: January 29, 2015, 11:40:52 pm by Katie »
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline BattleTheBeast

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  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #26 on: January 29, 2015, 11:20:18 pm »
Hi Katie,

That's why I broke out the little neck shiatzu goodie, it's got those little rotating balls inside and because the moving some (not a alot) it's something i can live with . It spreads the pain out :)

When I am not blurry I will re-read your post better and try it out.

I also have the following goodies that I have tried:
http://www.amazon.com/gp/product/B00FP1SXLM/ref=oh_aui_detailpage_o06_s00?ie=UTF8&psc=1


http://www.amazon.com/gp/product/B0006VJ6TO/ref=oh_aui_detailpage_o06_s00?ie=UTF8&psc=1


http://www.amazon.com/gp/product/B00JXDQK7M/ref=oh_aui_detailpage_o01_s00?ie=UTF8&psc=1

Oh and this one is amazing for your feet, really best 12.99 ever:!
http://www.amazon.com/gp/product/B002CVTU0G/ref=oh_aui_detailpage_o05_s00?ie=UTF8&psc=1

Yeah this has been going on for a while and I kept thinking it was going to get better and the doctors haven't found anything so I have been trying all kinds of options.

I am going to choose to ignore the other thing. I don't care for meanness in any way shape or form and it's banned from my world :)

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Katie

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Re: Pretty Intense Back Pain
« Reply #27 on: January 29, 2015, 11:50:54 pm »
A couple of those look pretty bizarre.   ;D  It's funny as we get older, the more gadgets we get.  I have something called the True Back.  The Orthopedic medical school in Iowa, I think, came up with it and it is definitely a good thing to have.  My Step father got it for me years ago and this one looks a little different, but the same.  Just updated.

http://www.amazon.com/True-Back-Orthopedic-Traction-Device/dp/B005SS5GSK

It has little "nubs" under that foam that helps align and stretch out the spine and it helps my hip pain too.  I use this all the time and it prevents as many trips to the acupuncturists as my health insurance no longer covers that.   :'(

Good night Mel.

Tomorrow is a new day and may all your pain drift away tonight!

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Pretty Intense Back Pain
« Reply #28 on: January 29, 2015, 11:58:50 pm »
Mel -  Have you talked to your doc? May want to rule out a kidney stone and other conditions.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline BattleTheBeast

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  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #29 on: January 30, 2015, 02:45:59 am »
@Kate
I have way too many gadgets but that foot roller really is my favorite, get to work on all those pressure points on the bottom of your feet. Then again the long bar has rollers in them so you take and roll it back and forth over any area, it's great for achy legs and thighs and also lower back, The crazy looking one has knobs all over it and depending on how you hold you can hit those hard to reach pressure points and put some great pressure on them without working to hard. The neck shiatzu is cool because it's got the serious roller balls in it with optional infrared heat and you can massage any small area. I was desperately trying anything I could to make this better!

@Lucinda
I was there today, he didn't think it was and did an exam. It's been going on and off for months. I've have had 2 ultrasounds, the one I had when I swelled up was in December and they were very very thorough. I had to fast and was in there getting pushed with that wand for almost an hour and no issues anywhere. He had them check everything inside basically. He also ordered a ton of blood work today, total of 5 tubes and one went on ice right away(i forgot to ask what that one was). I know we did a HCV Quant, CBC, Blood Ammonia Level, Thyroid and one more.

On Monday I am going to my IC Specialist, he really thinks it's go to do with scar tissue from past surgeries and wants to do an exploratory but I am not so sure I want that done so I keep delaying because I am on HCV TX and don't want to do anything that will add stress to my messed up body.

If I try to carry the recycle down the driveway to the curb by the time I have done a couple of trips the pain kicks in hard. When I am walking and it kicks in it, the pain radiates towards my hip really quickly. If I am just standing it radiates up and towards the center of my back, There is no way if I had kidney stones they wouldn't have passed by now and I am sure I would have felt that. Kidneys seem to working fine,no issues with functionality.

And here it is 2:45 am and I am still awake and miserable.

Take care.

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Katie

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Re: Pretty Intense Back Pain
« Reply #30 on: January 30, 2015, 03:39:36 am »
Darn it Mel.  I was hoping you'd be resting.  I have a similar thing for my feet and I also have a ten's unit that works really well and a drawer full of all sorts of braces.  I just got a bionic knee brace for my one bad knee. Isn't getting old fun. Good Grief.

What you are describing sounds like a pinched nerve along with tight, bunched up muscles.  Is there anywhere you could get a hot tub soak ?  If your doctor rules out the other stuff maybe a trip to a chiropractor or an acupuncturist (if you know of a good ones) would help you.  I have appointments in the next couple weeks with both my chiro/acupuncturist and then a Craniosacral therapist who is also a physical therapist who was recommended to me.  I am getting some atrophy in the calf of my bad leg, and I am still very active, so my doctor thinks it is nueropathy coming from my ruptured disc.  I'll let you know how that goes but it is a few weeks scheduled out as they are so busy.  Probably another MRI.  :P

Getting old isn't for sissies!

Try and rest.

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline BattleTheBeast

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  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #31 on: January 30, 2015, 04:47:01 am »
I know Katie, that's what happens when you have grown children with children and their little crisis that makes them think the world is going to end even when they have past the golden age of 30. I have to be the calm voice of reason for my youngest, she has her Dad's woe is me personality trait so the little things become HUGE for her. She's not very good at dealing and moving on to the nest "crisis". She tends to get stuck in the old one and tries to do the next and so on until the Mom help text session on phone call.

All good, going to lay down now. I kind of have to because I have to one eye the screen or I can't read it because it's too blurry....can we say exhaustion?

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline kate0b1

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Re: Pretty Intense Back Pain
« Reply #32 on: January 30, 2015, 06:12:52 am »
aww mel, i wish you were feeling better, i don't have any help to make make you better, but i want you to know I'm thinking of you and hoping. PS vent away, thats why we are here :-*

Offline Red Hen

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Re: Pretty Intense Back Pain
« Reply #33 on: January 30, 2015, 11:17:05 am »
Hope the pain lets up, Mel. Thinking of you. Max mentioned acupuncture, I believe. In my experience, acupuncture is great for pain and won't mess up your system with more drugs. Ice is also good. Try to relax and get some rest today!
genotype 1a
completed 12 weeks Viekira pak and ribavirin
final results due around the end of April
Undetected 12 weeks post treatment!

Offline BattleTheBeast

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  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #34 on: January 30, 2015, 11:30:13 am »
Hiya Red,

I am trying to make it to lunch time while working from home and sneak a lucnh time nap in. It's going to have to happen soon I can't see straight!

Good thing I am just listening to others talk on a meeting, I don't think I could have many intelligent words leave my mouth right now, it's actually comical.

I will ask around for someone who does acupuncture that has a good reputation. I am using the ice and my furry warm blanket right now :)

What's the latest with you?

mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Red Hen

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  • Posts: 187
Re: Pretty Intense Back Pain
« Reply #35 on: January 30, 2015, 11:39:31 am »
Glad you can get a nap later. I'm just waiting for my next appointment February 12th which will be 1 month after finishing the Viekira and ribavirin. Energy level is o.k. Still having problems with itching. On the whole, I feel a little better almost every day but find it is easy to get exhausted when I have to do extra work...like shoveling snow. It is good exercise, though!
genotype 1a
completed 12 weeks Viekira pak and ribavirin
final results due around the end of April
Undetected 12 weeks post treatment!

Offline Mike

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  • Posts: 999
Re: Pretty Intense Back Pain
« Reply #36 on: January 30, 2015, 12:20:38 pm »
Hi Mel,

You didn't mention if you have had a previous back injury, so I was wondering about this.

Also, you mentioned something about scar tissue from past surgeries. Were these past back surgeries i.e., laminectomy, discectomy?

Back injuries are difficult to dx without an MRI and/or mylogram (which aren't always conclusive, especially if there is scar tissue present).

Sometimes, the pain can be caused by a simple sprain/strain, which is a soft tissue injury that inflames the back muscles and can put pressure on the nerves exiting the spinal cord. Spasms can be present, which can do the same thing. Sprains and strains usually resolve in 4-8 weeks or so.

Neurological accesses and deficits can also provide clues about pathology, which would include numbness, tingling an/or pain that radiates down in to the limbs.

 In the case of a lumbar or lumbosacral injury, the radiation would occur in  the lower extremities (buttocks and legs). If the injury is on the right side of the spin, the symptoms generally radiate down the right extremities (though there can be bilateral radiation).

In cervical injuries, the pain can radiate through the shoulder, bicep, forearm, hand and fingers.

Best wishes, Mike
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline BattleTheBeast

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  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #37 on: January 30, 2015, 03:05:30 pm »
Hi Mike,

No I have never had a back injury or surgery. My surgery was all female related along with an emergency Appendectomy many years ago.  I have already had surgery about 20 years ago to clean up scar tissue once. The GYN thinks it may be causing issues again; this is just laproscopy to free things up a bit :)

I have no numbness or tingling, this is flat out intense pain that radiates out if I even stand for too long and it starts in my left upper butt cheek and radiates towards my hip and sometimes up my towards my waste on the left side. It gets relieved when I sit down normally but when it's bad I need to completely lay down to get it to chill out.

Thanks for the info, it's helpful :)

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Mike

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  • Posts: 999
Re: Pretty Intense Back Pain
« Reply #38 on: January 30, 2015, 04:30:35 pm »
Hi Mel,

I hope it get's better, as I know back pain is no fun.

I had intense cervical pain a couple of years ago (I have a protruding disc at C6-7) and it  had me in tears.  :( Thank goodness it subsided!  :)

Best wishes, Mike
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline BattleTheBeast

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  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #39 on: January 30, 2015, 04:40:06 pm »
Thanks Mike,

I can so relate to "it had me in tears" I am really glad your issue is better!

I was hoping to see the doctor on Monday but just found out we have a possibility of 12" of snow Sunday Night into Monday am so that's a bummer!

Marcie
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline CE

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  • Posts: 147
  • Genotype 3. Sovaldi & Ribavirin 24 weeks.
Re: Pretty Intense Back Pain
« Reply #40 on: January 30, 2015, 04:51:34 pm »
I do hope you feel better soon, Mel. I think some sunny warm weather would help too! We have a blizzard going on! Sounds like you might be having muscle spasms from an injury. It don't take much; sometimes you never know you injured yourself. Who knows, maybe you pulled something toting that recycle can!
Stay warm and get well soon!
Chris
Chris :)
Diagnosed July 2014
Genotype 3
Viral load of 950,000
Most likely from blood transfusion in 1978
Treatment started November 2014
Sovaldi and Ribavirin for 24 weeks
End of treatment April 2015
SVR12 July 2015!!!!!!
SVR24 October 2015!!!!!
Cured!!!! Praise the Lord!!

Offline Mike

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  • Posts: 999
Re: Pretty Intense Back Pain
« Reply #41 on: January 30, 2015, 04:59:18 pm »
Hi Marcie (AKA Mel),

It flares up from time to time; but nothing like it did 2 years ago (I was changing a tail light in my car and when I stood up, my head hit the trunk lid and BANG).

I don't like pain medication, and have found that a hot shower really helps. I'll sit in the bathtub and let the shower hit my neck and shoulders. In your case, draw a hot bath, light a candle, put on your favorite tune, lay back, relax and let the warm water do its miraculous magic!  8)

Best wishes, Mike

PS I think I live in the state below you (Go Buckeyes!) and we're going to get hit by the same storm in Toledo. -O, well, after last winter I say bring it on!
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline BattleTheBeast

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  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #42 on: January 30, 2015, 05:09:45 pm »
Mike,

I am actually in NJ, perhaps you saw my posts a couple weeks back about a soaker tub! This was the reason, I have a tub but I want a big deep one!!! I am totally a water person so yes I do the shower/bath trick all the time...

M
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline BattleTheBeast

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  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #43 on: January 30, 2015, 05:14:40 pm »
Hi Chris,

Sunny warm weather for sure would help but that's not going to happen any time soon. I am working on scheduling a Float which I am totally looking foward to!

Way amazing - totally relaxing and might help me if it's muscles flipping out!

http://halcyonfloats.com/

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline CE

  • Member
  • Posts: 147
  • Genotype 3. Sovaldi & Ribavirin 24 weeks.
Re: Pretty Intense Back Pain
« Reply #44 on: January 30, 2015, 05:49:26 pm »
Oooh, that float looks so good! I never heard of it! I'll have to tell my daughter about that. She travels there frequently and takes advantage of spas, massage, and pedicures! Hope it helps you. You'll have to tell us how it was!  :)
Chris :)
Diagnosed July 2014
Genotype 3
Viral load of 950,000
Most likely from blood transfusion in 1978
Treatment started November 2014
Sovaldi and Ribavirin for 24 weeks
End of treatment April 2015
SVR12 July 2015!!!!!!
SVR24 October 2015!!!!!
Cured!!!! Praise the Lord!!

Offline BattleTheBeast

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  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #45 on: January 30, 2015, 05:58:02 pm »
Looks like i am going to have to wait because apparently you absorb magnesium into your body from the Epsom Salts :(

I refuse to do anything that could mess up my potential SVR !!!

On a good note, my next door neighbor has a nice indoor jacuzzi tub that I will be borrowing at some point tomorrow!

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Katie

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  • Posts: 784
Re: Pretty Intense Back Pain
« Reply #46 on: January 30, 2015, 06:03:26 pm »
Hot Tub delight!  Good for you , Mel.  I hope it gives you some relief.  It is a terrible thing to go through day after day.  Been there, done that!

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline Islandgirl

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  • Posts: 295
  • Started Harvoni 12/3/14 - EOT 2/25/15
Re: Pretty Intense Back Pain
« Reply #47 on: January 31, 2015, 02:09:47 pm »
Our own sweet, supportive, POSITIVE, and helpful Mel - I cannot believe anyone would consider you anything else!  I didn't see this site before and started at the beginning and read it through.  I'll not dwell on the negative parts, that subject is done, however, since I joined the Forum and started Harvoni on 12/3/14, YOU have always been a positive, supportive guiding light for me - and many others.  Thank you so very much!

I'm sorry for all the pain you're going through.  My 91 year old mother who lives with me is under pain management care for disc issues and sciatica and I know how terrible that can be.  It is heartbreaking to see that kind of pain and I hope they find the cause and an effective treatment for you.  To think of having a grandchild to support and care for at the same time is double tough to say the least.  My heart goes out to you.  You are one strong lady - a true warrior.  Feel a hug and know that I keep you in my thoughts and prayers. ....Islandgirl
1b, treatment naive, positive for Hep C since 1994; thought to be transmitted via blood transfusions in 1976
Started Harvoni 12/3/14, EOT 2/25/15
12/31/14 labs - Virus Undetected, ALT/18, AST/34
3/25/15 labs - 1 mo post 12 wk Harvoni TX Virus Undetected!!  :) ....Islandgirl

Offline BattleTheBeast

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  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #48 on: January 31, 2015, 02:54:23 pm »
Thanks Katie and IslandGirl,

I am doing ok today, it's way better after I finally got some sleep. I am alternating heat and ice today and just taking it easy :)

And you Islandgirl, it's a lot to take care of your Mom, that's a huge responsibility but you are so lucky to still have her around.

Always appreciate the support, you are all my rocks!

Mel



~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Red Hen

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  • Posts: 187
Re: Pretty Intense Back Pain
« Reply #49 on: January 31, 2015, 07:02:16 pm »
Glad you are feeling better and got some sleep, Mel. I agree with Island Girl. You are always positive and helpful even when you are in pain.
genotype 1a
completed 12 weeks Viekira pak and ribavirin
final results due around the end of April
Undetected 12 weeks post treatment!

Offline Katie

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  • Posts: 784
Re: Pretty Intense Back Pain
« Reply #50 on: January 31, 2015, 07:05:44 pm »
Great news Mel.  Sleep helps everything!  Glad you're doing the ice and heat as it really does help and hope the hot tub does too.  Enjoy and relax this weekend....and no lifting....anything....promise?

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline BattleTheBeast

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  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #51 on: January 31, 2015, 08:23:28 pm »
I will try but I have to pick up groceries tomorrow but I did order online so I just have to pull up and they will load them up for me. The big problem will be getting them out of my car.  The GS will be too tired or have a headache or whatever else he can think of to get out of helping.

Then we have the snow coming and my neighbor who normally clears my driveway for me left on a trip for two weeks. He did show me how to start the snow blower if I need it. Honestly as bad as it hurts I doubt I would be able to do it. We will see if it's better by Monday am. We could get lucky and have it mostly miss us like the last one.I checked an hour ago and the projected totals are golng down now and hopefully it will stay more north and we will get more rain then snow...


Take care,

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Katie

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  • Posts: 784
Re: Pretty Intense Back Pain
« Reply #52 on: January 31, 2015, 08:36:03 pm »
How old is your grandson?  Maybe you need to explain to him that if the groceries aren't in the kitchen, you can't cook and then he can't eat! 

Since I live alone I have requested the checker at the store to make very light bags and keep things that can stay in the car in separate bags so I just deal with the perishables that can't freeze (if it's cold out) or those things that don't need refrigeration (if it is hot out).  Then I can bring them in a little at a time.  This is due to my knee and I used to have steps to carry stuff into the house.  Last year I added a garage where I have immediate access to the house without steps.  The best thing I ever did, but I still bring things in slowly. 

There went my traveling money, but I don't care.  Didn't feel good enough to travel anyway!  HA!  It was expensive as I had to have rock removed and a slab poured before any construction started, but now U have a garage!  YAY!

I know we still have stuff we have to do, but try and take it easy, and stock up in case you can't get shoveled out.  Sometimes being snowed in, is a good thing.  Hope you don't lose power!

Take care Mel.  I'm always thinking about you.

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline BattleTheBeast

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  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #53 on: January 31, 2015, 09:16:38 pm »
Katie,

That's so nice! My grandson is 13 and he has some challenges. He was born addicted and it took them almost 2 months to detox the crap out of the poor baby. We spent many many years getting him to where he is today which to anyone on the outside looking in is a normal lazy teenager. He can very easily fall off the rails although he is getting better as he gets older, I have to deal with a little differently than a "normal" teen.  Since I have been sick we lagged on weekly therapy visits but do see the Psych monthly for session. He loves to argue (he would be a great lawyer if he didn't hate homework) and I am just the total opposite and do everything I can to avoid conflict. It's total opposites in our house!  Sometimes I choose to just not ask because it's not worth the conflict. Then on the other hand he will come up and cuddle with me or give me a hug out of nowhere. He's got a heart of gold but I am his safe place to let go and so we are a work in progress, probably always will be. He's been with me since he was 7 months.

I love my garage! We are in a townhome and that was one of the most important things. I wanted an attached garage, a walk in closet and my own bathroom, check check check! I forgot about the soaker tub, next place that's being added!!!

You totally need one so I am happy you made that choice for yourself! I end up pulling the stuff out of the car and putting it on the garage floor but tomorrow I may just leave it all in the back of the car and back it into the garage!

I can always get shoveled out even if I do it myself. I could send you some pictures of those days. Now my next door neighbor uses he snow blower for me but he just left on business for 2 weeks. I do have access to get it if I need to use it :)

I think about you as well,I think about all my Forum sisters and brothers. You are the only ones who really get it. Others may try but they really don't. They think we should be able to take the meds and we better when the virus is UND, it's just not that simple is it?

Have a good night, stay warm...

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Katie

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  • Posts: 784
Re: Pretty Intense Back Pain
« Reply #54 on: January 31, 2015, 09:24:39 pm »
Mel,  What a good gran you are.  Sounds like you've done a wonderful job and hope he continues his improvement.  You are quite the special lady.  I don't like conflict either and understand.  I think that is one reason I live alone.  Seems some just really feed off the negative and try to draw you in, and I just don't go there. (talking about partners)

I don't know what shape I'd be in if I didn't have this forum.  I'd get through it because I am tough and a survivor but this has been such a help in so many ways.
Thanks again to you and to everyone!!!

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Pretty Intense Back Pain
« Reply #55 on: January 31, 2015, 09:55:39 pm »
Wow, sound like you are describing me in a few ways. I struggle about being alone without a partner because sometimes having someone to just hold me and take some of the burden off would be nice but I just have always picked ones that handed me more of a burden. No can do any more! I would be alone if it weren't for the GS.

I get through everything because I am tough and a survivor too but this forum and all of you sure do make it so much easier!

Forever grateful for all of you!!

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: Pretty Intense Back Pain
« Reply #56 on: March 01, 2015, 10:07:01 am »


@Lukey -  I have no clue why you are attacking me, you posted something that made no sense to me. I am in pain, don't feel good and just wanted some support. Your post was a little off kilter so I felt like anything I said would be taken wrong, therefore i choose not to respond because I have no clue why you posted that here in the first place or what you were talking about. I still don't know what's going on and I really don't want to know.

If you have something positive to say and contribute I'd love to hear it but I don't need negativity or hostility.

Mel

Sorry, I guess I thought you were ignoring me.  Sometimes I have an inferiority complex.
I've gotten on the wrong side of at least one person here, or they got on the wrong side of me.
I'll try not to dwell on it.

Lukey
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline Maddawg46

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  • Posts: 31
Re: Pretty Intense Back Pain
« Reply #57 on: March 01, 2015, 11:43:05 am »
I like your "Beast Mode" avatar. The right kind of attitude to have. You should discuss with your Doctor.  When things pile up on me, I figure it's a way to make me tougher.  Last week my Mother and Mother in law passed away within 3 days of each other, wife ad I Both sick for a couple of weeks,, the crazies from Prednisone, 4 weeks into Harvoni.
Sometimes like puts. Major challenges to you.  You have to get through them.  You hang in there!
It's a battle.  Your at war.  Better get tough.  The virus is, so you better get the warrior mentality

Offline Amj1951

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  • Posts: 118
Re: Pretty Intense Back Pain
« Reply #58 on: March 01, 2015, 11:56:37 am »
I like your "Beast Mode" avatar. The right kind of attitude to have. You should discuss with your Doctor.  When things pile up on me, I figure it's a way to make me tougher.  Last week my Mother and Mother in law passed away within 3 days of each other, wife ad I Both sick for a couple of weeks,, the crazies from Prednisone, 4 weeks into Harvoni.
Sometimes like puts. Major challenges to you.  You have to get through them.  You hang in there!

Maddawg46 - I am so sorry for your losses and it sounds like you have a lot piled on your plate, you and your wife. I don't even know the rights words to say if there are any.. just please know you are in my thoughts : )

Meredith

Offline Maddawg46

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  • Posts: 31
Re: Pretty Intense Back Pain
« Reply #59 on: March 01, 2015, 12:09:27 pm »
It's all part of life.  It got me wired because I had other major thing I had to do. Now it's catching up.  But maybe a little stress helps the Harvoni.  Glad I still have health care through my last employer that's paying for the Harvoni.
My 4 week RNA test showed detectable but not quantifiable.  See good news too.

This lady has worse things going on in her life.
It's a battle.  Your at war.  Better get tough.  The virus is, so you better get the warrior mentality

 


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