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Author Topic: Anyone taking AHCC with Harvoni?  (Read 8894 times)

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Offline opaleye

  • Member
  • Posts: 68
Anyone taking AHCC with Harvoni?
« on: March 09, 2015, 07:24:20 pm »
Hi All,

I figured I'd ask the community this because most health care professionals don't really know. I have been using AHCC (and before that MGN-3) for the past decade or so to boost my immune system. I can tell it helps because whenever I run out of it I get swollen glands, ear infections, and such that tells me my immune system is overloaded.

AHCC works to active NK-cells to 'kill' the virus where Harvoni works by shutting down the virus's ability to replicate. Since those are different mechanisms, perhaps it is fine to have both armies wearing down the enemy?
1982 Dx Non-A Non-B infection
1998 Dx HVC genotype 1a; VL < 1 Million; Liver Biopsy F0 A0
2006 Liver Biopsy F1 A1
2015 Harvoni Tx 8 wks: 15 wks post-EOT: VL ~670,000 -- Relapsed
2018 Mavyret Tx 16 wks: VL 90 at 12 wks, dr stopped Tx per VL detected, severe fatigue, dizziness (soon after got pacemaker for bradycardia)
2021 Liver biopsy: No fibrosis
2023-12-14 Started Vosevi: ALP 141, AST 91, ALT 75, VL 1824750
2024-03-14 EOT Not Detected!
2024-06-22 EOT Not Detected! I AM CURED!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: Anyone taking AHCC with Harvoni?
« Reply #1 on: March 15, 2015, 05:28:42 pm »
Please clear any meds you are taking or considering taking with your doctor. Generally as not all possibilities that a patient might take either prescription, over the counter, or herbal may not have been considered it is best that unless you MUST take a medication you should consider not taking it for the brief period we are taking these new very expensive medications don't want to risk being treated successfully.

Rule of thumb when in doubt about a drug of herbal don't take it especially without coordinating with your health care professional.

Good luck on treatment
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline opaleye

  • Member
  • Posts: 68
Re: Anyone taking AHCC with Harvoni?
« Reply #2 on: March 16, 2015, 07:32:28 pm »
Hi Lynn,

Thanks for your feedback. I did let my health care professional know I was taking this supplement, and since it isn't on Harvoni's drug interaction list I was cleared to take it. I was just curious if anyone else was or had been taking AHCC.

Hope the addition of RIBA does the trick for you!
1982 Dx Non-A Non-B infection
1998 Dx HVC genotype 1a; VL < 1 Million; Liver Biopsy F0 A0
2006 Liver Biopsy F1 A1
2015 Harvoni Tx 8 wks: 15 wks post-EOT: VL ~670,000 -- Relapsed
2018 Mavyret Tx 16 wks: VL 90 at 12 wks, dr stopped Tx per VL detected, severe fatigue, dizziness (soon after got pacemaker for bradycardia)
2021 Liver biopsy: No fibrosis
2023-12-14 Started Vosevi: ALP 141, AST 91, ALT 75, VL 1824750
2024-03-14 EOT Not Detected!
2024-06-22 EOT Not Detected! I AM CURED!

Offline opaleye

  • Member
  • Posts: 68
Re: Anyone taking AHCC with Harvoni?
« Reply #3 on: April 02, 2015, 07:24:01 pm »
Hi Lynn,

I just wanted you to know, that after reflecting on your feedback, that Harvoni is such a new drug that there may be interactions that haven't been studied yet, so even though my doctor okayed me taking AHCC I stopped taking it a few days after posting the March 16 reply, and about a week ago I also stopped taking milk thistle (it was okayed by my doctor, too).

Fighting the dragon with this new sword is too important. It's just not worth the risk to dull its edge.

Thanks again.
1982 Dx Non-A Non-B infection
1998 Dx HVC genotype 1a; VL < 1 Million; Liver Biopsy F0 A0
2006 Liver Biopsy F1 A1
2015 Harvoni Tx 8 wks: 15 wks post-EOT: VL ~670,000 -- Relapsed
2018 Mavyret Tx 16 wks: VL 90 at 12 wks, dr stopped Tx per VL detected, severe fatigue, dizziness (soon after got pacemaker for bradycardia)
2021 Liver biopsy: No fibrosis
2023-12-14 Started Vosevi: ALP 141, AST 91, ALT 75, VL 1824750
2024-03-14 EOT Not Detected!
2024-06-22 EOT Not Detected! I AM CURED!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: Anyone taking AHCC with Harvoni?
« Reply #4 on: April 03, 2015, 04:31:26 am »
Wishing you the best of health, an easy and successful treatment, and SVR forever!
:)
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline SIXFOOTFOUR

  • Member
  • Posts: 89
Re: Anyone taking AHCC with Harvoni?
« Reply #5 on: April 03, 2015, 04:50:00 pm »
Opaleye

Good decision IMO. Harvoni is a very powerful and new drug and just because anything does not show up as counter indicted at this time does not always mean it wont later be counter indicated or decrease Harvoni effectiveness.

Ive called Support a few times as well as my MD and the Accredo Pharmacy support to check on interactions and I had the answer a few times that we dont have information that or it has not been tested or nothing reported. But as its been explained to me Harvoni or any new drug does not hit the market having been tested against every other drug or especially herbal supplement. Specifically one that I called about was methypredisone    that I use for back pain and I was told there is no counter indication but also that they had no data specifically on it used with Harvoni.

Id rather err on the safe side as Im hoping for the success of this new generation of drug and kicking the sh-t out of my Hep C
Sixfootfour
* Contracted Hep C 1971 post transfusion (non A - non
   B Hep dx in 1971)
* Dx as Hep C early 2000
* Geno 1b
* Stage 3-4 Fibrosis by Biopsy and FibroScan
* VL at start of TX > 6 mil
* ALT/AST High normal range at start of Tx 
* Started Harvoni 12 week course 3/6/15 -
   completion 5/29/15
* Undetected at 6 weeks on Tx
* ALT/AST Mid normal range at 6 week blood test
* Completed 12 weeks (84 pills) 6/28/15
* Undetected at 11 weeks & 6 months EOT

 


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