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Author Topic: GOOD NEWS....12 wk EOT and NO HCV!!!!!  (Read 35487 times)

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Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
GOOD NEWS....12 wk EOT and NO HCV!!!!!
« on: April 09, 2015, 01:42:15 pm »
I am undetected!!

Halleluiah! 


I have another bloodtest at 24 weeks EOT but I'm certain this beast is dead!!


I am thrilled to say the least!!!!!!  I was on Harvoni for 12 weeks and it did the job it was supposed to do!
I feel great ..... and so very thankful.    Honestly......the first 2 treatments i did were horrendous (ribavirin and peg) harvoni was a breeze in the park.   I even took a trip the last week I was on it.   WHAT A MIRACLE DRUG!!!!!     You may think harvoni is making you feel bad but TRUST ME....it's nothing compared to 48 weeks on peg+RIB WHICH many of us have done several times...that was pure hell!

Count your blessings if you never did that treatment.  Harvoni is our miracle drug and it works!!!!   I was a non-responder 2 times before......and finally am virus free after 40 years with HCV!!! PRAISE GOD!!
 8) :D :)
« Last Edit: April 09, 2015, 01:50:57 pm by JillLynn »

Offline Bituman

  • Member
  • Posts: 157
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #1 on: April 09, 2015, 01:49:08 pm »
Way to go JL, you did it!  All the best.

Bob
Age = 59, male, infected likely 1975
DX 07/07 GT 1a
Biopsy 2007:  GR 1, stage 0, HAI = 2/18
Since 2007:  1.48 MM < VL < 11 MM, avg = 5.64 MM
IL28B=CT
1/26/15, AST=43, ALT=55, VL=3.59 MM
2/5 Start Harvoni 12 weeks; Treat naive
2/20 AST=29, ALT=24, VL=59
3/6 AST=29, ALT=25, VL<15
3/19 AST=24, ALT=22, VL=undet
4/3 AST=29, ALT=25, VL=undet
4/30 EOT, AST=22, ALT=20, VL=undet
5/29 EOT+4, AST=20, ALT=19, VL=undet SVR
7/24 EOT+12, AST=23, ALT=18, VL=undet SVR
10/16 EOT+24, AST=22, ALT=17, VL=undet SVR

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #2 on: April 09, 2015, 01:49:34 pm »
thank you Bob!   :)

Offline Picnic

  • Member
  • Posts: 110
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #3 on: April 09, 2015, 03:33:44 pm »
 Congratulations!!!!!! Oh what a feeling!! I am doing my post 12 week SVR test on Monday April 20. I was on Sovaldi/Olysio. I also did 3 interferon  treatments so I also understand that hell! good luck! 
Larry

Offline charly8

  • Member
  • Posts: 113
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #4 on: April 09, 2015, 03:46:52 pm »
Great Job!  Congrats.

ARe you the first official SVR 12 on the board from Harvoni?

I know what you mean about the previous tx.  Barf, blah awful stuff!!!!   I did 72 weeks and it was terrible.  Then relapsed.   Lost 40 lbs (down to 120 lbs from 160) and was already skinny.  Could hardly walk up stairs by the end.  People that have only dealt with Harvoni have no clue how lucky they are, the sides are nothing compared to the old tx.
1a, VL  1.05 Mil, ALT 47
Fibrosure F3 December 2014
Fibroscan F0-F1 March 2015
1995 INT & RYB -non-responder
2007 PEGIN & RYB 72 weeks tx - partial responder relapsed
1/23/15 Started Harvoni 12 weeks, EOT 4/17
2 week blood work -  <15 Und. (ALT 25)
4 week blood work - <15 Und. (ALT 29)
2/20/15 added RYB (4 weeks into 12 of tx)
8 week blood work - <15 Und. (ALT 23)
(EOT) 12 week blood work - <15 Und.
4wk POST tx VL - Und. (ALT16, AST 17)

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #5 on: April 09, 2015, 05:07:36 pm »
Glad to hear it!!  8)

I was at <15 at 3 weeks post but it was done at a different lab.
I'm not sure but I don't think I have Hep C any more.
I'm going to test it again in 2 weeks at the lab I was Und at on week 7 of 8. :)

Lukey
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline Paleface

  • Member
  • Posts: 35
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #6 on: April 09, 2015, 05:49:40 pm »
Awesome!!! I have been waiting on your post!! I am so happy for you. I go next week fingers crossed :-)
Keith
Hep C 1a
Blood Transfusion- 1977
2002-48 wks Peg Interferon+Ribavirin-relapsed 2003.
VL- 5,700,620
AST- 393
ALT- 717
Liver Biopsy- Stage 1-2
Oct.29,2014- 12 wks Harvoni
Jan.20,2015 Finished Harvoni Treatment-Undetectable
4 wk post- Undetected
8 wk post- Undetected
12 wk post- Undetected- "Cured"

Offline kate0b1

  • Member
  • Posts: 293
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #7 on: April 09, 2015, 06:02:48 pm »
 :D :D :D :D, this is such great news jilllynn !!! you must be on top off the world right now. i am patiently (maybe not) waiting for the results of my 4 week post labs that were drawn on tues (jezz come on already), then 12 week in june  :)

kate


Offline badbradley

  • Member
  • Posts: 294
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #8 on: April 09, 2015, 07:10:10 pm »
JillLynn       CONGRATULATIONS!!!    We've all been waiting and hoping to see this news for you. The wolves will be Howling tonight.    OWW....OWW.....OWWWWWW!!!   
Brad
Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24

Offline badbradley

  • Member
  • Posts: 294
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #9 on: April 09, 2015, 07:12:14 pm »
Kate       Good luck on your test results. We will be watching for the good news!
Brad


Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #10 on: April 09, 2015, 09:52:57 pm »
 

Brad....the wolves howling tonight....... I love that!! YOU are so AWESOME!!!
   owwwww....owwwwwww......owwwwwwwwwww!!!! ahhhhhhhh!!
your turn is coming my friend!!! xxx

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #11 on: April 09, 2015, 09:59:24 pm »
Keith ... you are right behind me and I'm seeing you with the big UND!     For sure!
Kate.....good luck to you....will be watching for your results.
Luckey...yes <15 is what mine said too!
Charly.....I know I'm close.   I was the first one who told my hepatologist Harvoni was approved.     He wrote the prescription immediately!     And i started a few days later.   

Still can't believe how great this is for all of us!   I'm going to keep believing it's gone for good.   If it does come back.....there are other treatment options that are good too.   

just for today..........FREE AT LAST!

Offline sunrise

  • Member
  • Posts: 463
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #12 on: April 09, 2015, 11:16:07 pm »
Thats so great JillLynn!!!!     
       So we can say SVR sister, it is a cause for celebration! This is unbelievable, so many of us are slaying this Dragon. Hope your side effects are subsiding. Much Love Sunrise

Offline kate0b1

  • Member
  • Posts: 293
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #13 on: April 10, 2015, 06:01:35 am »
I am stalking my labs web page lol, thank god i have a ton to do this w/e so i don't blow up my computer  :-[.
this is going to be my new favorite page so we can watch us all get there (go us)! I am my doctors first pt on harvioni so i know he is probably stalking the fax machine also. I wanted to retreat with s/o after i relapsed but he actually would not let me, he told me he wanted to wait for the "next" meds coming out. I was frustrated with him at the time but now look where we are.
Jilly i hope you are doing something fun/warm this w/e to celebrate your new life  :)

still waiting
kate

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #14 on: April 10, 2015, 09:52:09 am »
Sunrise....yes SVR sister!!!!    So you are undetected still! praise God!!!!!!!   This is so fantastic that we can have our bodies free of this virus.!!!

Kate...it's funny you said fun/warm.......I'm going to Far East Russia (Sea of Okhotsk) for 3 weeks in June and it's going to be FREEZING!   But the wildlife is what I'm after and it's amazing there and not traveled to by many so there won't be much stranger danger hopefully and great for photography!        Then I come home to thaw out and enjoy warm wx!  and hopefully move into my new place this year!     
  I didn't even remember to check my labs yesterday....my mom was the one who called and said "are your results in?"   I'm living life to the fullest either way......but super grateful this treatment this time worked!

Offline Mike

  • Member
  • Posts: 999
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #15 on: April 10, 2015, 12:23:20 pm »
Congrats, JillLynn!

Another dragon heads to the bone yard.

https://youtu.be/rY0WxgSXdEE

Best wishes and success with your new life, Mike
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline Espo2

  • Member
  • Posts: 30
  • Needle stick at work 1987, 1b
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #16 on: April 10, 2015, 12:51:02 pm »
Hey Jill, inspiration to us! God bless. I'm 3 weeks in n good report so far. Do good things w your new life!

Offline Long_Haul

  • Member
  • Posts: 161
  • Slayed the Dragon
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #17 on: April 10, 2015, 01:39:55 pm »
YAHOOOOOOOOOOOOO!  Congratulations JillLyn! I clicked on Mikes link and was doing  a happy dance all around my living room.  I am so happy to see another SVR, it gives us hope and such enjoyment to hear of another dragon being slayed. Enjoy your trip and hope you catch that rare photo to commemorate the victory.
Thank you for sharing the news.

@Kate0b1, I'm right behind you, still slogging through the Riba sides and waiting to get some more sustained energy. I was in Montreal last night to see Joe Bonnamasa, it was invigorating and lifted my energy quite a bit.

Best wishes to all,
AL
Genotype 1A

Diagnosed 1989
Biopsy-cirrhosis stage 4 2000, no starting VL this round

3 rounds of Int+Rib
(Combo/48wks,Peg/26 Wks,Triple with Incivek/16wks)
UND with Incivek, Relapsed
Started 12 weeks Harvoni and Rib Jan 2nd,2015
4 weeks Undetected
8 weeks Undetected!
EOT at 12 weeks Undetected
EOT at 24 weeks STILL UNDETECTED
Completed TX Mar 26th,2015

EOT plus 4 weeks UNDETECTED
EOT plus 12 weeks UNDETECTED !!!!!!!!!!! I am DONE!

NO LONGER a member of the "WAITING GANG"

Offline Mikee

  • Member
  • Posts: 28
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #18 on: April 10, 2015, 04:24:33 pm »
Congratulations Jill, I just got my 8 week Eot im also still undetected. Im also feeling a lot better than I did.

Offline Mike

  • Member
  • Posts: 999
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #19 on: April 10, 2015, 04:28:31 pm »
Hey Mikee,

Congrats!

https://youtu.be/DhlPAj38rHc

Best wishes, Mike
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline Danster

  • Member
  • Posts: 10
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #20 on: April 10, 2015, 09:09:21 pm »
Congratulations! I am doing a 24 week treatment with Sovaldi/Ribaviron. I got my 4 week lab results today. I went from + 9 Million VL to <15. Pretty impressive for 4 weeks. Of course I would rather have been completely undetectable like I have read that some people are, but I know we are kicking this thing's butt! Best of luck to you!
Genotype 3a
Sovaldi/Ribaviron 24 wks
Started Treatment 3/8/15

If you think you can or if you think you can't — You're right!   ~Henry Ford~

Offline debham

  • Member
  • Posts: 68
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #21 on: April 11, 2015, 11:28:31 am »
Great to hear this Jill!!!! There is hope. I'm only 10 days into the tx. I'm so glad to read your post! Deb
Diagnosed 2003
VL 300,000
Geno type 1 a
Start TX 4/01/15
VL 2.3 million
Tx Naive
12 wk Tx
Harvoni
Last Ultra Sound
No presents of fibrosis

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #22 on: April 13, 2015, 01:52:08 pm »
yes there is hope!      I pray for you all.......wish I could meet all you wonderful people and hug you.
YOU ALL HELPED ME SO MUCH!!!!

God Bless.....thank you for all the well wishes, they mean SO much!!!!!
I'll be checking in to see how you are all doing.  MUCH LOVE and SUCCESS to all ridding the beast of HCV!!!

Jill

Offline nicole_1234

  • Member
  • Posts: 134
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #23 on: April 13, 2015, 08:26:46 pm »
Congrats JillLynn!!!! That's incredible news. I'm tagging right behind you. Just got 6wk post EOT lab work in and I am still undetected. Feeling very optimistic about my 12wk test now. And the sx are all but gone now, truly a miracle drug.

Genotype 1a
TX interferon/riba 2007 (relapsed)

TX Harvoni 12 week start Dec 3 2014
Starting vl 650,000  ALT 55 AST 63
2 week  vl <15
4 week vl UND
8 week vl UND
12 week EOT ALT 11 AST 18
6 week post tx UND ALT 15 AST 20
12 week post tx UND (CURED!!!!) ALT 11 AST 20
24 week post tx UND ALT 11 AST 18

Offline Katie

  • Member
  • Posts: 784
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #24 on: April 13, 2015, 08:35:50 pm »
Congratulations to all of you!!!!!  It's amazing to see the results coming in and it really perks me up.  I LOVE Harvoni and the lives it is saving!  Live long, Live happy, live with contentment and enjoy every moment of every day with your new freedom!

The best to all of you!

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline BubbaT

  • Member
  • Posts: 267
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #25 on: April 13, 2015, 10:14:03 pm »
JILLLYNN! that is awesome news!

So glad another one bites the dust!
It's a real treat to hear someone has cleared the dreaded enemy!
All I can say is Praise God with you!
rejoice!

Week 6 here, hammering down! Killing bugs!
Age 57 male
Infected late 70's
Diagnosed 95
1a, 2 prev biopsy 95, 2004
Ct 2007, 2015
Treatment Naive
F4 A3. Fibrosure/ CT 2-5-15. Ammonia 222
VL 2.2 mil.
Started Harvoni  3-3-15. 12weeks, finished 5-26-15
4 week VL undetected
12 week EOT undetected

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #26 on: April 14, 2015, 02:00:31 am »
Hey JillLynn !!!!

That is fantastic news made my day!!

A big congratulatory hug to you!!!! Woo Whooooooo
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #27 on: April 14, 2015, 08:25:03 am »
thank you Nicole, Katie, Bubba and Lynn!

It's been a long time coming.   They did send me a 24 week bloodtest to get as well.....I guess just in case.     I still can't believe it's gone for good....I believe it, but I don't believe it because it was so easy with the Harvoni.

It's like come on....the RIB/INT nearly killed me twice.....Harvoni a piece of cake and my Hep C is gone???????      It doesn't make sense but it doesn't have to as long as it stays gone!

And just for today.........I am rejoicing, praising God and going to enjoy this beautiful spring day and keep all of you close in my thoughts!

I'll still be here because I want to see how you all are doing.    This community is so supportive and means a lot to me.    We've walked the walk together....and I don't want to stop walking with you!

Much love and hope you have a great day!

Jill

Offline Katie

  • Member
  • Posts: 784
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #28 on: April 14, 2015, 01:54:52 pm »
You HAVE to stay here Jill as I NEED to hear about your trip to Russia.  That sounds awesome!  I know you weren't feeling good for awhile.  Is that diminishing for you?  Just curious.

I am so very happy for you!
Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #29 on: April 14, 2015, 04:15:28 pm »
Congratulations!! You have inspired me!!  Thank you for that!
And good luck to those following ...  I'm sure there will be a lot of WOOOO HOOOO and YAHOOOOOS in the coming days

12 wk EOT and NO HCV!!!!! post made me happy and hopefull today
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

Offline Islandgirl

  • Member
  • Posts: 295
  • Started Harvoni 12/3/14 - EOT 2/25/15
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #30 on: April 15, 2015, 01:11:36 pm »
Happy Congratulations to JillLynn and to all of us who reached UND, especially at EOT and post treatment - on to SVR!!!!!!!!!!!!!!!!! 

My 12 wk EOT and 4 wks post treatment labs were both UND and my doc says she fully expects my final labs in September will be the same - I even had to ask her to repeat the other labs as she felt it was only necessary to reaffirm the viral load UND portion.  Since I still have to read and re-read my results to "believe it can really be true", she humored me and rewrote the order for September to include everything lol  I expect all of us feel like pinching ourselves to believe we're finally free of that monstrous dragon..

God bless and keep us all.  ...Islandgirl 8)
1b, treatment naive, positive for Hep C since 1994; thought to be transmitted via blood transfusions in 1976
Started Harvoni 12/3/14, EOT 2/25/15
12/31/14 labs - Virus Undetected, ALT/18, AST/34
3/25/15 labs - 1 mo post 12 wk Harvoni TX Virus Undetected!!  :) ....Islandgirl

Offline lking

  • Newbie
  • Posts: 2
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #31 on: April 15, 2015, 06:27:28 pm »
I know this may not be the place for me to start my first Forum conversation, but I needed to hear some results from treatment.  I am about to start treatment this month if I get approved.  I have had Hep since I was 16, I am now 48.  Just complete my 5th Ironman. But my body hurts and I have to push myself.   I don't really remember what it was like to be normal.  I want to cry when I hear you say (Jill) you are healed.  I am sooooo happy for you.  I know this sounds like a dumb question, but do you feel any different.  No pain? I just want to wake up and feel normal again.  The only people that know I have Hep are just my immediate family.  Feels good to finally talk to or listen to others. Thank you!!!! 

Offline lovinglife

  • Member
  • Posts: 21
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #32 on: April 15, 2015, 07:35:41 pm »
THANK you for the inspiration and good news. Congrats!! I think we are all so tired of worrying and thinking about this, so the great news you report is so needed for those of us still on the path, and wonderful and hopeful to hear.  For over 25 years I have had this terrible virus lurking in the back of my mind and my health (although I have tried hard to be positive and proactive).  I/we are sick of this!!  God bless and continue to keep us in your prayers, and in your reports!!!

Offline Tom

  • Newbie
  • Posts: 2
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #33 on: April 16, 2015, 12:00:57 am »
Well. Finished my Harvoni on 4/2 and found out that I am virus free!  Detected 27 years ago and now finally have that burden behind me.  I had pretty minor side effects and have more energy than ever before.  Thank you for the all the comments on the website, it made me feel I could talk with someone.  No one new my silent journey except for my wife.  Thanks again.  Another dragon slayed.  Good luck everyone and may your treatments be successful.
Tom

Offline belgianista

  • Member
  • Posts: 11
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #34 on: April 18, 2015, 09:01:08 pm »
As a newbie to the family may I say congratulations on a long hard fought battle and well earned victory Jill. Yours is an inspiration to all of us that have fought the battle and are excited about the successes of Harvoni. I am entering my 12 week post tx and have been U/D throughout. Fingers crossed on both the exit blood work I'm currently waiting on and I am scheduled for the 12 week which for me is the final scheduled test. Enjoy your newly recovered life and the trip to Eastern Europe/Russia. I also am a travel nut and am heading for France and on to Italy hiking in Cinque Terre in July very hopefully as the newest SVR!

Take care,
Russ

« Last Edit: April 19, 2015, 10:48:45 pm by belgianista »

Offline Lynn K

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  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #35 on: April 18, 2015, 09:33:03 pm »
Right behind you guys  finish Harvoni in 2 weeks then just have to wait for the 12 week post treatment test in late July to know if I have finally been cured!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline moma

  • Member
  • Posts: 48
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #36 on: April 19, 2015, 06:59:24 pm »
Everyone sounds so WONDERFUL! So much good news. I finished Harvoni 10 days ago.
Thought everything would go back to "normal" right away, but still feeling tired and have joint pains. Not complaining, just hope to be as lucky as the rest of you. It's been great to follow all you warriors.
Stay Strong, MoMa

Offline Islandgirl

  • Member
  • Posts: 295
  • Started Harvoni 12/3/14 - EOT 2/25/15
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #37 on: April 19, 2015, 07:32:20 pm »
Congrats, MoMa and anyone I missed earlier.  I know how you're feeling about thinking you'd be feeling better by now.  I finished 2 months ago and am just now starting to feel more normal.  Still tire out too easily, but full of joy to be UND!

Hang in there - I guess we need to be more patient with the process ;D

Blessing ....Islandgirl 8)
1b, treatment naive, positive for Hep C since 1994; thought to be transmitted via blood transfusions in 1976
Started Harvoni 12/3/14, EOT 2/25/15
12/31/14 labs - Virus Undetected, ALT/18, AST/34
3/25/15 labs - 1 mo post 12 wk Harvoni TX Virus Undetected!!  :) ....Islandgirl

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #38 on: April 19, 2015, 07:36:03 pm »
With knowing I have hep c for 25 years feeling tired and achy has been my normal.

I just want to have the anemia from the Ribavirin to resolve quickly so I won't be out of breath after a flight of stairs.
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #39 on: April 20, 2015, 03:19:55 pm »
Lynn K......that sounds awful!     I know you've been here before as have I.......sure hope this is the last treatment you will ever need!   

Russ.......enjoy your travels too!   and thank you!!!

Island Girl...yahoo!!!!   :)

Thank you Debula!

Tom...congratulations on slaying the dragon!

Katie...I'll tell you about it when I get back.  Not leaving until June 3.   I know it's going to be fantastic.....I feel it in my HEP C FREE body!  xxx   I feel a lot better now..thank you..I did start a small dose of celebrex for arthritis pain....taking 1/2 what the DR recommended.    Are you feeling good?
« Last Edit: April 20, 2015, 03:21:58 pm by JillLynn »

Offline Katie

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  • Posts: 784
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #40 on: April 20, 2015, 04:18:15 pm »

Katie...I'll tell you about it when I get back.  Not leaving until June 3.   I know it's going to be fantastic.....I feel it in my HEP C FREE body!  xxx   I feel a lot better now..thank you..I did start a small dose of celebrex for arthritis pain....taking 1/2 what the DR recommended.    Are you feeling good?

So good hearing from you my wildlife buddy!

I am feeling good with small, very subtle improvements.  My energy level isn't all that good and I fade in the afternoon, but am still getting things done.  My remodel went well and I am upholstering the day bed in Tie Dye making the already bright room very cheery.  Having a ball doing the final touch ups and organization.  Bedroom turned out beautiful.

As for the improvements...last couple weeks, no ache in my liver gallbladder area, skin in smoothing and little bumps disappearing (that I have had for years) and then I had this one itchy area that would bleed on and off on my neck and even had a biopsy on it probably 5 years ago since I have a history of basal cell on my face, and it is GONE!  It was just one of those small irritating things but I really think as insignificant as these are it shows that my liver is doing it's job.  I go in for a blood draw today.  Ready to leave the house and I saw your post.  I am nervous and anxious and hopeful and looking forward to getting on with my life.  No matter what the results, Harvoni was a blessing and I have felt better than I have in YEARS.  I get the results on the 27th so I am hoping we can do a Happy Dance together, along with Island Girl, Paul, Nicole, Kate and everyone else who has conquered the alien parasitic dragon giving hope to everyone on this miracle treatment!!

Have a good week and talk to you soon!   8)

Katie
« Last Edit: April 20, 2015, 04:22:27 pm by Katie »
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline CE

  • Member
  • Posts: 147
  • Genotype 3. Sovaldi & Ribavirin 24 weeks.
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #41 on: April 20, 2015, 07:36:03 pm »
Hi all, I am only 3 days off meds and I am occasionally getting twinges of liver pain. I haven't had that since 4 weeks into meds. I'm really worried that it's the virus coming back already. Did anyone else have this?
Chris :)
Diagnosed July 2014
Genotype 3
Viral load of 950,000
Most likely from blood transfusion in 1978
Treatment started November 2014
Sovaldi and Ribavirin for 24 weeks
End of treatment April 2015
SVR12 July 2015!!!!!!
SVR24 October 2015!!!!!
Cured!!!! Praise the Lord!!

Offline Katie

  • Member
  • Posts: 784
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #42 on: April 20, 2015, 07:44:23 pm »
Hi CE...I had a mild ache on and off during treatment and then the first couple weeks after.  It is gone now for several weeks.  I wouldn't worry at this point as I figure the liver is kicking into gear, and it may be your gallbladder and not even your liver!

Have you gotten your EOT tests back?

Hang in there!  The waiting can be a difficult time but you aren't alone.

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline CE

  • Member
  • Posts: 147
  • Genotype 3. Sovaldi & Ribavirin 24 weeks.
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #43 on: April 20, 2015, 07:49:26 pm »
I see the doc on the 1st. I'll get my EOT results then. I feel fine except for that all to familiar discomfort in the liver area. Unfortunately for us geno 3's, there is no alternative if this fails. That worries me too. I do hope it's just withdrawal pains.
Chris :)
Diagnosed July 2014
Genotype 3
Viral load of 950,000
Most likely from blood transfusion in 1978
Treatment started November 2014
Sovaldi and Ribavirin for 24 weeks
End of treatment April 2015
SVR12 July 2015!!!!!!
SVR24 October 2015!!!!!
Cured!!!! Praise the Lord!!

Offline Mike2

  • Member
  • Posts: 14
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #44 on: April 20, 2015, 08:35:37 pm »
Hi All,
My question today is have we heard of anyone  relapsing after being undetected at EOT. I know Harvoni is relatively new but I have not read of anyone relapsing on this forum. Am I correct in this observation?
.

Offline Katie

  • Member
  • Posts: 784
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #45 on: April 20, 2015, 10:26:15 pm »
A few have been detected at EOT with uncountable or very low viral load...   me included (<12 IU/mL)...and one has gone forward to be undetected at 11 weeks post treatment.  YAY  They have found, being a strong responder but still detected at EOT does not mean you will not clear the virus altogether and that is amazing news.

I just had my blood drawn today for a ~ 8 week post treatment and am keeping my fingers crossed.  I don't think there have been any relapses that have been reported but most haven't been off treatment 12 weeks (they are just now coming in) and none for 24 weeks so we'll have to wait and see.  Right now everything looks very promising.

Here's to the alien parasitic monster being annihilated, forever!

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline kate0b1

  • Member
  • Posts: 293
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #46 on: April 21, 2015, 06:09:41 am »
@katie, oh I'm so excited for your labs, I'm sending all the vibes i can find  8). i am going to see my GI guy today, I'm not sure why i have an app lol, I'm pretty sure he just wants to make sure I'm all in one piece (i was in a million pieces end of last treatment lol). i am his first (I'm sure I'm not alone anymore) on harvioni so he has a vested interest in me but I'm pretty sure i am breaking up with him today  ;), last labs are first week of june !
@islandgirl, i am about 6 weeks out now and am really just starting to feel really well, i get tired easily still and am finally warm !

kate
« Last Edit: April 21, 2015, 06:11:40 am by kate0b1 »

Offline KC

  • Member
  • Posts: 46
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #47 on: April 21, 2015, 03:24:18 pm »
I was just told I was undetected at <15? What does this mean? I have been on Harvoni for 5 weeks.
2/16/15                                     
2/16/15     VL:  3,577,985           
AST:  81  ALT: 94
Fibrosis: F1 - F2
3/18/15:  Began Harvoni  (12 week treatment)
4/16/15: VL "UNDETECTED" <15
ALT: 29   AST: 30
14 weeks post TX UNDETECTED
23 weeks UNDETECTED

Age 59
DX early 90's

KC

Offline Katie

  • Member
  • Posts: 784
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #48 on: April 21, 2015, 03:41:24 pm »
Congratulations!  That means your test's sensitivity is 15 IU/mL so it can only count 15 or more virus, however the test does not detect any virus below it.  That is VERY good news, but continue with your treatment as there could be some hiding out somewhere that could replicate again!  You are well on your way to a complete cure, so keep doing what you are doing!   8)

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline KC

  • Member
  • Posts: 46
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #49 on: April 21, 2015, 07:08:33 pm »
Thank you Katie. My nurse told me I was "undetected" but I thought (<15) meant I still had some of the virus in me. I will keep on target with my treatment for 7 more weeks. Feeling very fortunate to be taking this drug.  8)

KC
« Last Edit: April 21, 2015, 07:11:14 pm by KC »
2/16/15                                     
2/16/15     VL:  3,577,985           
AST:  81  ALT: 94
Fibrosis: F1 - F2
3/18/15:  Began Harvoni  (12 week treatment)
4/16/15: VL "UNDETECTED" <15
ALT: 29   AST: 30
14 weeks post TX UNDETECTED
23 weeks UNDETECTED

Age 59
DX early 90's

KC

Offline Katie

  • Member
  • Posts: 784
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #50 on: April 21, 2015, 07:22:08 pm »
KC:  The tests vary.  They have a level they can count and a level they can detect.  It doesn't necessarily mean it is at zero if it isn't detected, but being such a strong responder at 5 weeks indicates you will remain undetected.  Harvoni is incredible and working so well for so many.  Keep the faith and be good to yourself.

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline Katie

  • Member
  • Posts: 784
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #51 on: April 21, 2015, 07:28:21 pm »
@katie, oh I'm so excited for your labs, I'm sending all the vibes i can find  8). i am going to see my GI guy today, I'm not sure why i have an app lol, I'm pretty sure he just wants to make sure I'm all in one piece (i was in a million pieces end of last treatment lol). i am his first (I'm sure I'm not alone anymore) on harvioni so he has a vested interest in me but I'm pretty sure i am breaking up with him today  ;), last labs are first week of june !
@islandgirl, i am about 6 weeks out now and am really just starting to feel really well, i get tired easily still and am finally warm !

kate

Thanks Kate!  I am so happy for you.  I am feeling good too, but still really tired even though I am sleeping well.  Absolutely no endurance.  I haven't been eating as well as I should because I run out of steam and don't feel like cooking.  That's not like me as I love to cook so I had a talk with myself today and am going to do better at that.  Salmon and salad tonight whether I feel like it or not!  HA!

Other than that I am good!  No brain fog or abdominal pain  so all is good!

Always good hearing from you and keep those vibes  coming!   8)

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline Mike Conwell

  • Member
  • Posts: 43
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #52 on: April 21, 2015, 08:46:55 pm »
Got my EOT today and I'm undetectable. Yay this journey may be over for me!!!!! Still feeling bad BUT at least I made it. The Harvoni drug is a miracle that came along just in time for me. VL was 11,000,000 ALT73 AST84. Now all are in the normal zone. Thank you Jesus

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: GOOD NEWS....12 wk EOT and NO HCV!!!!!
« Reply #53 on: April 23, 2015, 09:42:50 am »
that's awesome Mike!  Congratulations!  Agree, Harvoni is a miracle drug!

Katie....I wish my remodel was as far along as yours.....they finally measured and are putting prices on everything.    So happy you like how yours turned out!   Your place sounds amazing!!!!  keeping those good vibes going out to you and everyone!

love,
Jill

 


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