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Author Topic: Harvoni treatment and autoimmune disease s  (Read 11736 times)

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Offline koifish54

  • Member
  • Posts: 56
Harvoni treatment and autoimmune disease s
« on: May 05, 2015, 01:35:27 pm »
I have finished 12 week treatment yesterday during treatment achey joints went at week 3 week 10 came back have hasimotos thyroid has anyone experienced joint stiffness and achey  towards end of treatment worried hep is back
« Last Edit: May 05, 2015, 01:37:50 pm by koifish54 »

Offline Kim

  • Member
  • Posts: 34
Re: Harvoni treatment and autoimmune disease s
« Reply #1 on: May 06, 2015, 12:16:22 am »
Yes, I have severe constant wrist pain...all other joints still hurt and i am 1 month EOT. Everyone speak up if you have similar symptoms please!

Offline C-FIGHTER

  • Member
  • Posts: 43
Re: Harvoni treatment and autoimmune disease s
« Reply #2 on: May 19, 2015, 07:42:13 pm »
Hi, I have a trigger finger I developed, not sure if this falls in line with the joint pain.  But I may have an autoimmune disease unrelated to Hep C, called PBC.

Otherwise near end of treatment three weeks out of 12 to go feeling much liver discomfort.  sort of a full achy feeling. feeling this for several days now.

I believe Koi had the same?
diagnosed 2010 Hep C
genotype 1b
HCV RNA >4000000 01/13/2015
F0-F1 04/2014
Harvoni March 20 2015 - June 11 - 12 weeks

April 14-Day 26 on Harvoni- Viral Load - UD
ALT 27    AST 27

Offline Kim

  • Member
  • Posts: 34
Re: Harvoni treatment and autoimmune disease s
« Reply #3 on: May 19, 2015, 07:58:07 pm »
Apparently I have "reactive arthritis" from the Harvoni treatment and my rheumatologist says or hopes rather that it will subside over the next 6 months.

Offline talbot

  • Newbie
  • Posts: 1
Re: Harvoni treatment and autoimmune disease s
« Reply #4 on: December 10, 2016, 01:25:45 am »
I am 3 months post Harvoni treatment.  My legs both ache so much.  It feels like terrible arthritis or someone mentioned reactive arthritis.  Anyone else have this reaction and does it go away?  It is really awful.

Offline POP

  • Newbie
  • Posts: 1
Re: Harvoni treatment and autoimmune disease s
« Reply #5 on: December 11, 2016, 11:06:01 am »
Hi All

First time on here. I completed 24 weeks of Harvoni in August and have just received the all clear 2 weeks ago. I've never had any arthritic issues in my 49 years. At Week 4, I awoke with severe swelling and pain in my right foot. I couldn't apply any pressure on it for days. I continued experiencing similar flair ups to both my feet for the duration of the treatment. These have subsided somewhat post treatment, however I still have mild aching in both feet. Not sure if it was caused by the treatment, but as stated above, I have never experienced anything like this before. I'm happy to put up with a few adverse reactions knowing the Hep C has finally gone after approx 30 years in my system. Good luck to everyone undergoing treatment and/or experiencing some adverse reactions. Take care

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Harvoni treatment and autoimmune disease s
« Reply #6 on: December 11, 2016, 03:03:50 pm »
Hi POP. And welcome to the forums! Congrats on being cured!

As for what you have been experiencing since treatment with regard to painful,swollen achy feet... I think it is important to see what your doctor says about any new health problems that develop during or post-treatment. are your feet noticeably cold when this happens?

You might want to google "peripheral neuropathy" and "cryoglobulinemia" and see if you think it pertains. Several people here have reported developing this either as a consequence of treatment or as a consequence of the Hep C itself.

Good luck! I hope you will keep us posted.

best,
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline bharrisrn

  • Member
  • Posts: 10
Re: Harvoni treatment and autoimmune disease s
« Reply #7 on: January 25, 2017, 09:48:39 pm »
I completed 12 weeks of Harvoni on 10/8/16. About a week before the end of treatment a few finger joints on one hand felt as if they had been hit by a hammer. Within two months all finger joints, wrists, elbows and knees also are very painful. Not swollen or red but tender to touch and flexion. It is even difficult to lift my bed covers up at night or grasp onto an object. It seems to be getting worse daily and is unrelieved by Tylenol (I can't take NSAIDS). My twelve week post treatment HCV PCR RNA is undetectable and all other labs are within normal limits. Has anyone else had a similar experience? If so, did the symptoms resolve or worsen? Thank you.

 


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