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Author Topic: Harvoni: What time did you pick...*?  (Read 9017 times)

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Offline morning_glory

  • Member
  • Posts: 104
  • This is the first day, of the rest of your life...
Harvoni: What time did you pick...*?
« on: May 11, 2015, 10:03:04 am »
Decided to start a new topic, there may be others with the same question, as they get approved for Harvoni.

* To those of you taking or have taken Harvoni -
What time of day works/worked best for you? AM, Midday or PM, and why? (With or without food.) If you have any other suggestion(s), please include them with your post. Thank you for your invaluable input and opinions!

This forum continues to be the best place to get informed, knowledgeable, first-hand answers from those sharing their personal experience!

Thank you one & all for your words of wisdom (& rants), throughout the Hep Forum!  :)

Blessings,
MG

(I was approved for Harvoni last week, I don't have the medicine, yet. I suspect I'll hear sometime this week - when I should be receiving it. So, I'm trying to figure out the pros & cons to taking it at certain time of day.)
Logged
Likely infected - mid 70's / Diagnosed - mid 90's
Geno type - 1a
AST - 45
ALT - 51
Viral Load - 435,120
Liver Biopsy 6/2004 - F1-2
Fibrosure 5/2011 - F1-2
Fibrosure 2/2014 - F-0
Treatment Naive, prior to Harvoni
Harvoni started on 5/16/15
8-week Treatment Completed (7/10/15)
4-week bloodwork (6/11/15) Undetected, AST 15, ALT 17
8-week bloodwork (7/13/15) Undetected, AST 14, ALT 16

Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Re: Harvoni: What time did you pick...*?
« Reply #1 on: May 11, 2015, 10:32:09 am »
Hi MG
Originally I took mine at 5 PM just in case I hade any side effects (I would be home and sleep through them)
But I noticed I couldn't sleep well at night so after a few days I switched and I take it at 8:00 AM now
I get to work about 6:00 AM and have an alarm set and take it every day at 8:00 AM
I don't have any sides so this seems to work for me

Am excited for you!
Logged
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

Offline debham

  • Member
  • Posts: 68
Re: Harvoni: What time did you pick...*?
« Reply #2 on: May 11, 2015, 01:14:05 pm »
I take my pill between 10:15 A M and 10:45 A M I get home from the gym and it's the first think I do when I walk in the door. I always remember has become part of a routine. Weekend are a little harder to remember but I do. I'm hoping I kick this disease.   Deb
Logged
Diagnosed 2003
VL 300,000
Geno type 1 a
Start TX 4/01/15
VL 2.3 million
Tx Naive
12 wk Tx
Harvoni
Last Ultra Sound
No presents of fibrosis

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Harvoni: What time did you pick...*?
« Reply #3 on: May 11, 2015, 01:18:53 pm »
Hi MorningGlory - Someone asked this a couple of months ago, and the posts there might help get you more answers: http://forums.hepmag.com/index.php?topic=2443.0

Congrats on your big adventure!
Logged
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline morning_glory

  • Member
  • Posts: 104
  • This is the first day, of the rest of your life...
Re: Harvoni: What time did you pick...*?
« Reply #4 on: May 12, 2015, 07:27:14 am »
Quote from: lporterrn on May 11, 2015, 01:18:53 pm
Hi MorningGlory - Someone asked this a couple of months ago, and the posts there might help get you more answers: http://forums.hepmag.com/index.php?topic=2443.0

Congrats on your big adventure!

Thank you for the reminder, Lucinda!  ;)
(I thought I had read that, at one time, seems like forever ago)

And...Thank you on the "Congrats on your big adventure!"  :D
« Last Edit: May 12, 2015, 07:39:08 am by morning_glory »
Logged
Likely infected - mid 70's / Diagnosed - mid 90's
Geno type - 1a
AST - 45
ALT - 51
Viral Load - 435,120
Liver Biopsy 6/2004 - F1-2
Fibrosure 5/2011 - F1-2
Fibrosure 2/2014 - F-0
Treatment Naive, prior to Harvoni
Harvoni started on 5/16/15
8-week Treatment Completed (7/10/15)
4-week bloodwork (6/11/15) Undetected, AST 15, ALT 17
8-week bloodwork (7/13/15) Undetected, AST 14, ALT 16

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Harvoni: What time did you pick...*?
« Reply #5 on: May 16, 2015, 05:17:52 pm »
I am on Day 12 of 12 weeks of Harvoni+Ribavirin (via clinical trial). Am taking my Harvoni & first 3 Riba at 9:00 am with small amount of food (I think the food is for the Riba), and taking my second dose of Riba at 5 pm.

Harvoni+Riba together in the morning is what nurse recommended. I am glad to be doing the Harvoni in the morning because I get a noticeable energy boost from the Harvoni that lasts 4-5 hours and can be very productive for me if I use the time wisely.

(My evening dose of Riba was causing big insomnia until I moved it up to 5pm at nurse's recommendation, and that problem went away.)

So far my sides have been minimal and easily manageable.

Good luck to you morning glory, and to all on this path. :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline jiff

  • Member
  • Posts: 17
Re: Harvoni: What time did you pick...*?
« Reply #6 on: May 19, 2015, 01:45:09 am »
I'm on day 39 of 12 week Harvoni tx.i decided to take it at 8a.m.since breakfast is routine around that time(more for my kids than myself),and because I wanted to be alert and awake to take note of any side effects experienced.At first I took it with food,but as time went on I stopped paying attention to anything other than being sure to swallow the pill between 8:03a.m.8:10a.m...with or without food hasn't made a difference.im happy to say that now it's equivocal to taking a B-12 vitamin as far as how it makes me feel physically.my 4 week viral load came back undetected.rapid virologic response is what the dr referred to it as.im hopeful,grateful,& anxious to see how this pans out for myself and everyone else post tx....
Logged

Offline morning_glory

  • Member
  • Posts: 104
  • This is the first day, of the rest of your life...
Re: Harvoni: What time did you pick...*?
« Reply #7 on: May 19, 2015, 07:08:48 am »
Started my adventure on 5/16/15 for 8 weeks. I decided to take it @ 11am.

When school gets out for the summer, I didn't want to have to get up early to take it. Not that I'll be sleeping until 11am, though. Just figured if I should get fatigued in the afternoon, it would hopefully hold off until I get dinner made. (I have only taken it for 3 days, today will be day 4)

Jiff - Congratulations on your VL coming back - UNDETECTED!  :D

Praying for all!

Blessings,
MG
Logged
Likely infected - mid 70's / Diagnosed - mid 90's
Geno type - 1a
AST - 45
ALT - 51
Viral Load - 435,120
Liver Biopsy 6/2004 - F1-2
Fibrosure 5/2011 - F1-2
Fibrosure 2/2014 - F-0
Treatment Naive, prior to Harvoni
Harvoni started on 5/16/15
8-week Treatment Completed (7/10/15)
4-week bloodwork (6/11/15) Undetected, AST 15, ALT 17
8-week bloodwork (7/13/15) Undetected, AST 14, ALT 16
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