Welcome, Guest. Please login or register.
February 26, 2024, 01:45:56 pm

Login with username, password and session length


Members
  • Total Members: 6307
  • Latest: golfer
Stats
  • Total Posts: 55122
  • Total Topics: 4850
  • Online Today: 127
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 47
Total: 47

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: 4 weeks completed today on Harvoni  (Read 7657 times)

0 Members and 1 Guest are viewing this topic.

Offline bassman55

  • Member
  • Posts: 45
4 weeks completed today on Harvoni
« on: May 28, 2015, 08:58:11 am »
Well,I'm 4 weeks in of 12. The treatment has been a breeze,no serious side fx,except one day about 10 days in had a bout with vertigo(about 6 hrs) I'm very happy I've gained 6 lbs! I'm eating like crazy now! Do I call my doc about blood work at 4 weeks or do they usually set that up? I keep seeing people have tests at 4 weeks? My urine has been nice and clear,that's a big improvement,my right side hasn't been sore or tender(liver area) I'm impressed my meds get overnighted to me from Florida to Maryland! If anyone needs help with copays,try Patient Access Network...those wonderful folks covered my $ 900 copay due to my income,I'm on SS disabilty. I still have "the itch" mostly my back,it has eased up slightly,I'm really hoping THAT ends,it's been torture for a few years now,a sign of cirrosis as I've read. I wish everyone success in their treatments,I'm counting down the days on my calendar every day I take my Harvoni....8 more weeks
Alt 215
Fibrosis score 0.88
GGT 137
necroinflammat activity grade A3 severe activity
necroinflammat activity score 0.92

Offline catladyx

  • Member
  • Posts: 21
Re: 4 weeks completed today on Harvoni
« Reply #1 on: May 28, 2015, 10:22:23 am »
Congrats on your 4 weeks! You can do this!

I am on day 3, looking forward to my pill tonight. My end date should be July 21. I can't wait. No sides YET, but as long as things work I will be happy.
dx 2010
Geno 1a
probably infected 1992

Offline sabre

  • Member
  • Posts: 77
Re: 4 weeks completed today on Harvoni
« Reply #2 on: May 28, 2015, 10:23:32 am »
Hey Bassman,

My hepa doc said, "everyone goes undetected while treating with Harvoni. The only test that matters is EOT12." So, consequently, I have not had one blood draw since beginning treatment on 3/28/15. I didn't question it and I'm just going to ride it out.

Some people get really hungry on treatment and I'm in that boat. But, since I have kidney disease with high blood pressure, I can't just raid the refrigerator. I'm on a low sodium/low potassium diet and I've lost 28 pounds since January 2015. A lot of that is muscle, unfortunately.

Good luck with the rest of your treatment, and hopefully, SVR.
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline dragonslayer

  • Member
  • Posts: 873
Re: 4 weeks completed today on Harvoni
« Reply #3 on: May 28, 2015, 10:28:14 am »
>> "everyone goes undetected while treating with Harvoni."<<

Sabre, 

With all due respect to your doctor, that is a load of crap; several of us never reached UND while on or at the EOT marker, but did go on to achieve SVR4 and SVR12. It's as inaccurate as saying, 'Everyone on Harvoni gets cured'.. Most do, but not 'everyone'..   But I do agree with him that the biggie of modern day treatment testing is the  SVR12 one.
« Last Edit: May 28, 2015, 10:33:51 am by dragonslayer »
Paul

DX 2008
Started Harvoni 11/26/14 for 8 wks
Completed 8 wks Harvoni 01/20/15
EOT RNA Quant result:  Detected 29
7.5 wk post tx: Detected < LLOQ(12)
11 wk post tx: UNDETECTED SVR12
24 wk post tx: UNDETECTED SVR24; AST 26; ALT 22; ALP 73
48 wk post tx: UNDETECTED SVR48; AST 18; ALT 18; ALP 70
GT 1a
vl 2.4mil
2008 bpx: Stage&Grade 0
2013 bpx: Stage&Grade: 0-1
IL28B: TT
likely infected early '70s

Offline sabre

  • Member
  • Posts: 77
Re: 4 weeks completed today on Harvoni
« Reply #4 on: May 28, 2015, 11:04:48 am »
Dragonslayer,

I don't disagree with your comment at all. I didn't push back only because of the EOT12 qualifier for SVR.

He made a comment back in 2008 when trying to get me on Interferon to the effect of "don't read what other people say about side effects...they're not that bad." I walked away from that visit with a very bad feeling having schooled myself on the SOC at the time and the suffering of those who had to endure it.

Take care.
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline bassman55

  • Member
  • Posts: 45
Re: 4 weeks completed today on Harvoni
« Reply #5 on: May 28, 2015, 11:10:33 am »
Thanx for some insight to all this.. I've also wondered does ANYONE...doctors,pharma,etc. even know long range fx of Harvoni,like years down the road,since it is very new. I will say,I feel better than I did 4 weeks ago, and I too look forward to my pill in the morning!! 8)
Alt 215
Fibrosis score 0.88
GGT 137
necroinflammat activity grade A3 severe activity
necroinflammat activity score 0.92

Offline sabre

  • Member
  • Posts: 77
Re: 4 weeks completed today on Harvoni
« Reply #6 on: May 28, 2015, 01:42:20 pm »
In terms of long-term effects of Harvoni, I think we're all guinea pigs, to a certain degree.

Perhaps you've seen this document:
http://www.gilead.com/~/media/Files/pdfs/medicines/liver-disease/harvoni/harvoni_pi.pdf

Section 13 may be of particular interest to you.
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

 


© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.