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Author Topic: A Simple, Powerful Way to Make a Difference  (Read 6404 times)

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Offline lporterrn

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A Simple, Powerful Way to Make a Difference
« on: August 03, 2015, 02:58:17 pm »
Do you want to help raise awareness about hepatitis C, but are unsure how to do so? Tell your Hep Story. Hepmag.com has an easy to use format. You don't need to be a writer in order to tell it - you just need a computer, internet connection, willingness, and a story about viral hepatitis. Telling your story is a radical act. Our stories show the world that we have hearts, and souls, and faces. To read stories and share yours, go to http://www.hepmag.com/hep_stories.shtml
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline KimInTheForest

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Re: A Simple, Powerful Way to Make a Difference
« Reply #1 on: August 03, 2015, 03:27:56 pm »
This is a great initiative, Lucinda. And very powerful indeed! I don't see the method though by which someone adds their story. Is there an online form to fill out? Or does someone email a Word doc to a moderator for uploading and posting? Are the stories edited? I.e., are the writer's words altered before being posted?

Congrats to all who have told their story so far.

best,
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline KimInTheForest

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Re: A Simple, Powerful Way to Make a Difference
« Reply #2 on: August 03, 2015, 03:38:37 pm »
Never mind. I see it now. It's that GIANT RED BOX that says "Click here to Share Your Story". Ha ha! ;) (Open your eyes, Kim)

cheers,
kim
« Last Edit: August 03, 2015, 03:43:45 pm by KimInTheForest »
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline KimInTheForest

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Re: A Simple, Powerful Way to Make a Difference
« Reply #3 on: August 03, 2015, 04:08:51 pm »
Another question… a number of the stories already up there include hyperlinked text that takes the reader to another website in a new window when clicked. How does one add that in the uploading process using the online submission form? By hand-coding the html for a hyperlink? Does the online submission form accept and recognize html?

thanks,
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline lporterrn

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Re: A Simple, Powerful Way to Make a Difference
« Reply #4 on: August 03, 2015, 04:29:32 pm »
I know - I hate that when things are hidden in plain view.

I am the contact for the stories, so when I get your story, I can contact you regarding hyperlinking. It would help me if you named the organization you want hyperlinked - add it anywhere in the story (such as the end, unless it makes sense to put it in the middle). When I get the downloaded text, I'll work with you.

I am delighted you are considering this. I wish I had every Forum members' stories.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline KimInTheForest

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Re: A Simple, Powerful Way to Make a Difference
« Reply #5 on: August 03, 2015, 04:49:14 pm »
Thanks Lucinda! It will be a little while before I submit. I am going to wait until I am cured and am ready to out myself. Probably near end of this year. But glad to know how to do it. I do plan to submit my story at some point.

best,
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Tig56

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Re: A Simple, Powerful Way to Make a Difference
« Reply #6 on: August 13, 2015, 12:07:01 am »
Hello Lucinda,


This is a wonderful idea! Thanks for sharing the information and your willingness to handle yet another task to enlighten and support. I don't know how you do it! You should be Knighted or Sainted or something equally impressive!
59 YO GT1A, Tx X 2, Int. mono in 96 and Victrelis triple in 13. SVR 5/13

Offline lporterrn

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Re: A Simple, Powerful Way to Make a Difference
« Reply #7 on: August 13, 2015, 12:57:51 pm »
Thank you Tig - sure glad you think so highly of me. Now if I could only convince people who know me well of that! ;)
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline Rosie13

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Re: A Simple, Powerful Way to Make a Difference
« Reply #8 on: August 22, 2015, 02:23:04 pm »
Hi Kim! That's a great idea about all our stories getting out there.I feel like Kim though & want to wait till I'm cured ...ready to  help in a few months ...still waiting for approval. You have been such a great help ...grateful beyond words!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Rosie13

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Re: A Simple, Powerful Way to Make a Difference
« Reply #9 on: August 22, 2015, 02:25:39 pm »
So bad at posting! I meant to tag on Kim's post & comment on Lucinda's idea.HepC brain!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline KimInTheForest

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Re: A Simple, Powerful Way to Make a Difference
« Reply #10 on: August 22, 2015, 05:21:10 pm »
So bad at posting! I meant to tag on Kim's post & comment on Lucinda's idea.HepC brain!

Yes, all praise goes to Lucinda for this great initiative of getting people telling and sharing their Hep C stories on the special section of the website. I hope to be part of that at some point down the road. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

 


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