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Author Topic: 1st Day PT  (Read 11379 times)

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Offline Butterflykisses

  • Member
  • Posts: 21
1st Day PT
« on: October 12, 2015, 01:12:24 pm »
Wow, can't believe today is day 1 pt.  So nervous and excited to know my eot 12 wk labs and of course the BIG one, 12 weeks pt.  Yesterday I was filled with so much energy, went shopping all day, made a wonderful dinner, my husband and I were dancing around to our favorite music celebrating my official last day of treatment.  Not sure if I could have gone through this w/o his love and support.

I looked at my empty Harvoni bottle this am knowing how blessed I am to have had a chance to take this miracle drug, praying to rid the evil demon that has been hanging over me like a black cloud.  My sides have been minimal compared to others.  I have had a skin rash the entire time on treatment, a bit of dizziness, and neck and joint pain that has somewhat subsided.  My thyroid levels have been another issue, I am running a bit hyper, meds have been adjusted so we shall see.   Feeling a little jittery today, slight heart palpitations, maybe Harvoi w/d?   The fun never ends.   Maybe a good nights rest will happen soon.

Question for the Ladies, Can you Hi-light and Color your Hair soon after treatment? 

Best of luck to EVERYONE on this journey.  I have read many of your posts, you have made me laugh and made me cry, so many of use going through this treatment, god bless.

I get eot labs drawn on Wed, will post results as they become available.   

GT: 1a
2008: Interferon/Riba NR
VL: 851,413
7/20/15:  Started Harvoni (12 Weeks)
8/17/15:  4 week Lab VL Undetected
9/16/15:  8 week Lab VL Undetected, ast 20, alt 18
10/21/15:  EOT Lab VL Undetected, ast 15, alt 13
1/18/16:  14 Weeks Post VL Undectected, AST 21, ALT 15

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: 1st Day PT
« Reply #1 on: October 12, 2015, 02:11:57 pm »
Congrats on reaching the end of tx and making it to The Other Side, ButterflyKisses!

Good luck on your lab results. :)

kim

Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st Day PT
« Reply #2 on: October 12, 2015, 04:35:02 pm »
Congratulations on the finish line Butterflykisses
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Mugwump

  • Member
  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Re: 1st Day PT
« Reply #3 on: October 13, 2015, 06:56:41 pm »
Congratulations! Now the hard part of waiting begins. By all means change your hair color. Get nasty with someone who deserves it. Eat ice cream ever day for a week. DO WHAT EVER it takes to let off steam is what I say.

All the very best
Eric
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st Day PT
« Reply #4 on: October 13, 2015, 08:45:27 pm »
Congrats Butterfly!  I'm two weeks post now... hard to believe!
Feeling good too! 

I too had the hair color question.  I used hair color and highlights (same as I have done for decades) while I was on Harvoni and scalp broke out in a rash.  Wasn't painful but scary.  I think this drug has a half life and is mostly out of our system by two weeks.  So, that's my plan now that I'm two weeks - to color my hair soon!

Funny you mentioned heart palpitations , I had that for about a week post and it went away.  I had a bug to so hard to tell what was what.  Slightly light-headed, other than that, everything is better for me.   

My plan is to not focus too much on the waiting but go ahead and live as much as I can!

Good luck to you!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Butterflykisses

  • Member
  • Posts: 21
Re: 1st Day PT
« Reply #5 on: October 13, 2015, 10:53:17 pm »
Thank you - Kim, ByebyeC, Eric, Bree.

Eric you are too funny!  I LOVE Ice Cream, my favorite.  You are so right, the waiting is the hardest part.   My 12 week EOT labs will not happen until late next week,  very disappointing, the Dr put the order in for my labs to be drawn after 10/19, my EOT was 10/11.  The only good thing is I will see the results before I go to the Dr in Nov for my fu appt.

Bree, I called my Dr's office today, I asked about getting my hair colored soon after treatment.  Apparently no one has ever asked that question, Really???  The nurse had to ask the Dr, they called back and said it will be fine.  Will keep y'all posted on the outcome.  I have an event this weekend, I have to cover the rash on my neck and chest, thank goodness for all the beautiful scarves out this fall season, lol!   

I slept a full 7 hours last night, first time that has happened in weeks.

Good luck to all.
Butterfly



GT: 1a
2008: Interferon/Riba NR
VL: 851,413
7/20/15:  Started Harvoni (12 Weeks)
8/17/15:  4 week Lab VL Undetected
9/16/15:  8 week Lab VL Undetected, ast 20, alt 18
10/21/15:  EOT Lab VL Undetected, ast 15, alt 13
1/18/16:  14 Weeks Post VL Undectected, AST 21, ALT 15

Offline willie g

  • Member
  • Posts: 427
  • geno 1 25million etc. s/o for treatment
Re: 1st Day PT
« Reply #6 on: October 13, 2015, 11:44:53 pm »
DANCE AWAY BUTTERFLY. CONGRATS! It will take time to get back your innards,outters, and any other areas that have been on this journey with you and don't let your mind persuade you of this or that.Just keep dancing,you have a lot to dance for. "Just WILLIE g" GatorFalls

Offline Bucky

  • Member
  • Posts: 341
Re: 1st Day PT
« Reply #7 on: October 15, 2015, 11:26:05 am »
Hello Butterflykisses,
Not a lady but I can share some hair info with you. Have your hairdresser do a test patch on the back of your head where if something goes wrong it won't show. My sister's hairdresser did this when she had finished chemo. They pulled her hair up and did it along the nape of her neck. Her hair dresser does this for all her clients who have been on chemical treatments.
Bucky

I HAVE SLAYED THE DRAGON.....CURED SVR24!

Offline Butterflykisses

  • Member
  • Posts: 21
Re: 1st Day PT
« Reply #8 on: October 15, 2015, 02:18:38 pm »
Hey Bucky & Willie G,

Thank you both so much for taking the time to reach out, means a lot!  I'm kind of a newbie here.  We all have been through so much before, during and post tx.

Stay positive, wishing you much Happiness and Good Health.  Keep on Dancing my Friends!

Butterfly
GT: 1a
2008: Interferon/Riba NR
VL: 851,413
7/20/15:  Started Harvoni (12 Weeks)
8/17/15:  4 week Lab VL Undetected
9/16/15:  8 week Lab VL Undetected, ast 20, alt 18
10/21/15:  EOT Lab VL Undetected, ast 15, alt 13
1/18/16:  14 Weeks Post VL Undectected, AST 21, ALT 15

Offline willie g

  • Member
  • Posts: 427
  • geno 1 25million etc. s/o for treatment
Re: 1st Day PT
« Reply #9 on: October 16, 2015, 12:19:20 am »
Well your welcome but remember by thanking me    you also helped me             D A N 'cE     M U S I C EQUALS   Life    " just Willie  g " Gator Falls

Offline willie g

  • Member
  • Posts: 427
  • geno 1 25million etc. s/o for treatment
Re: 1st Day PT
« Reply #10 on: October 16, 2015, 12:20:15 am »
Well your welcome but remember by thanking me    you also helped me             D A N 'cE     M U S I C EQUALS   Life    " just Willie  g " Gator Falls

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st Day PT
« Reply #11 on: October 16, 2015, 05:27:31 am »
I told my dermatologist about the scalp rash after using a hair color (which had never happened before with decades of use) and he told me to do a test patch before I used it again.  I was thinking I would do the color anyway... but maybe I should try the patch test first. 
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline willie g

  • Member
  • Posts: 427
  • geno 1 25million etc. s/o for treatment
Re: 1st Day PT
« Reply #12 on: October 16, 2015, 10:23:50 am »
yes BRE go slow, those chemicals on top of treatment will all depend on YOU,  everyones systems are different it seems  but hey I can dig you want to get back in the fast lane again,strutting your NEWNESS  lol  ''just Willie g'' GatorFalls

Offline coastal girl

  • Member
  • Posts: 36
Re: 1st Day PT
« Reply #13 on: October 16, 2015, 09:01:11 pm »
WHAT!!!  Keep the gray roots...Nooooooo.  I'm 6 weeks into treatment with no sides.  I was going to make an appointment to have my hair colored as I have a bunch of Holiday art shows coming up and Of course I must look good ;)  My scan says I have cirrhosis but my LFTS are now good and I'm very careful about what I put into my body but when it comes to vanity...well it makes me feel good to look good and thats important...feeling good I mean.  I guess a test patch would be a important step.  Happy I read this post.
I have a very positive attitude about beating this virus and turning liver around but I must be cautious...Hmmmmm grey hair hmmm...nope, just can't imagine..LOL
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline Butterflykisses

  • Member
  • Posts: 21
Re: 1st Day PT
« Reply #14 on: October 16, 2015, 10:06:20 pm »
Hey Coastal Girl,

Best of luck to you on the Harvoni train.  Great to hear you are doing well w/o major sides.

I don't have gray hair, but was way over due for some highlights.  Saw my stylist this week, everything turned out just fine.  If anything it made me feel better, lifted my spirits.  Go for it, but try the patch test first, I did
GT: 1a
2008: Interferon/Riba NR
VL: 851,413
7/20/15:  Started Harvoni (12 Weeks)
8/17/15:  4 week Lab VL Undetected
9/16/15:  8 week Lab VL Undetected, ast 20, alt 18
10/21/15:  EOT Lab VL Undetected, ast 15, alt 13
1/18/16:  14 Weeks Post VL Undectected, AST 21, ALT 15

 


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