Author Topic: EOT One Week Happy But Singing The Blues (Read 51362 times)

slats1056 · « **on:** October 14, 2015, 10:58:46 pm »

Hello all You Global Warriors, Hope this post finds everyone feeling better than I am right now!
Have not posted for about 5-6 days, been kind of out of it. EOT was 10-6-15 and I immediately started having problems. Bad lower G.I. distress, fever, migraines , and all around feeling like crap. Lower back and hips ache like hell. Neck,knuckles, and feet too, just not as bad. Sleeping much better though when the aches allow it. 6-7 hours a night where as pre Tx. was 3-5 Max. Strangely the alarm wakes Me up now. Didn't used to need an alarm to wake up even on weekends!
Appetite is there, just not hungry. Been trying to watch what and how much I'm eating. Actually lost 10 lbs. during Tx. Need to lose another 15-20 to get where I want to be at! Hopefully by Xmas.
Went for EOT viral load assay today. Have to wait until 10-19-15 for results. Then it's off to the races waiting for 12 week post EOT test. The Big Green Monster is still picking away at My subconscious even though I know better. Still!!! Cautiously optimistic thinking about the outcome.
It's been an A #1 mother effer with horns the last month , what with working full time, inventory , unavoidable drama , and all the usual B.S. that comes with a family of five. Doesn't help when Your the go to guy for the wife, kids, grandkids , and at work. The fatigue and exhaustion has been catching up lately, glad the sleep has been coming easier!!!
BTW, this My first post ON THE OTHER SIDE as it were!LOL! Everybody keep on truckin' and gettin' better. Positive thoughts make for positive results!!! Her is to EOT undetected and SVR12 AN SVR24 For everyone out there! We all deserve it!

I'M NOT LAZY, I'M JUST ON MY ENERGY SAVING MODE!

Philadelphia · « **Reply #1 on:** October 15, 2015, 05:34:52 am »

Welcome to the other side. One foot in front of the other. you will get there.

gnatcatcher · « **Reply #2 on:** October 15, 2015, 08:05:36 am »

Tommy, it's great to hear from you again. Sorry your post-Tx negatives are so bad. I had some, but mercifully they are nearly all gone now (knock on wood), so perhaps yours will be much milder next week.
You hold the record for having to wait the longest for a VL result. Did the lab ever reimburse you and your insurance for the one it lost?
It sounds like you're not a bit lazy. Your family and work colleagues keep pulling you out of energy saving mode. Who knows, your sides might subside if people would let you get more rest.

KimInTheForest · « **Reply #3 on:** October 15, 2015, 11:12:24 am »

Hi Tommy. Good to hear from you. Welcome to post-treatment! I too had a pretty heavy experience post-tx: fever, drenching sweat whenever I fell asleep day or night, wooziness and disorientation (sort of like flu but it never developed into flu), weakness and fatigue, and no appetite, which was bad since I had already lost 10 lbs on treatment due to appetite suppression and could not afford to lose more weight. I was pretty much bedridden for the first 6 weeks post-treatment. Weeks 7 and 8 were still rough, but I was able to get up and out a bit. Now at Week 11 post-treatment, I am feeling great (although probably still have some riba-anemia left).

Anyway… my theory all along on my post-treatment malaise is that some aspect of treatment, or of getting cured so quickly and then suddenly having a body/liver without Hep C after 45 years of 'hosting' the virus, left my immune system temporarily overstimulated. All of my symptoms (as well as yours) can be the result of an immune system acting up when there is nothing to defend against. I was tested for various pathogens and possible infections during my post-treatment malaise. Nothing could be found.

You'll get through it, Tommy. And I hope that happens quickly!

kim

slats1056 · « **Reply #4 on:** October 15, 2015, 09:56:45 pm »

Philadelphia, How goes it My AUS-some fellow warrior from down under? Read some of Your stuff, Sounds like You are doing good & are a busy little beaver lately! Glad You are getting back into the swing again. Thought about You the other day when the radio was playing Elton Johns' Philadelphia Freedom. Keep up the good work and keep kickin' them heels up!

slats1056 · « **Reply #5 on:** October 15, 2015, 10:21:39 pm »

Gnatty, Good to hear from You as well, haven't had much time to spend on the forums lately. Ever the techno-geek with the records and observations , sharp as a tack You are! LOL ! No word from Lab or Ins. Co. as of yet. Thinking about writing a nasty letter to the Lab about it. I may be a peon , but I'm a peon that has been paying their wages & bills For many moons!!!!
Glad You are feeling better. It is so weird that no one seems to co-relate how We are in bad shape all of the time , Yet when someone stubs a toe the world seems to come to an end!!!! HA HA HA!!!! Maybe I need to start prefacing My posts with a warning label and let them read them!! SORRY, still a bit snarky at the moment. Man am I glad I don't have to deal with the Riba Rage I've been reading about. I'm bad enough without any help!!!!

THE THING ABOUT SMART PEOPLE IS THEY SEEM LIKE CRAZY PEOPLE TO DUMB PEOPLE!!!

slats1056 · « **Reply #6 on:** October 15, 2015, 10:40:34 pm »

Kim, Glad to hear You are doing better. Too bad I can't wish My weight over to You!!! I lost 10 lbs. during Tx. But I still need to drop about 10 or 15 more!!!!LOL. Really not sure how I have been working all this time with so little time off from work and stuff other than sheer determination and will power!
My theory mirrors Yours, My G.I. thinks the same. Unless something becomes life threatening or requires a hospitable visit , Just listen to and heed Your bodies warnings. Other wise it's money spent that could be used elsewhere. But in Your case the peace of mind just knowing was worth it. I truly believe My body is going through a healing crisis of epic proportions!!!! Here is to Your health and well being!

I WON'T BE IMPRESSED WITH TECHNOLOGY UNTIL I CAN DOWNLOAD FOOD!

Bree · « **Reply #7 on:** October 17, 2015, 02:23:55 am »

Hey Tommy, good to see you "post". I just started a thread and then got so busy living life I haven't gotten back to it. It kind of seemed like the first week or so post treatment for some people is similar to the first week or so on treatment.

Anyway, glad you are doing o.k. even though there's a few rough patches. Smooth seas ahead... I can see them

drummerman · « **Reply #8 on:** October 17, 2015, 06:01:33 pm »

Hey Tommy,

I know how you feel!
I feel like crap everyday and have to work.....every...day...
(cept weekends)

hang in there.

Its gonna get better.

dm

byebyeC · « **Reply #9 on:** October 17, 2015, 07:56:38 pm »

Tommy!

I'm so SO sorry you're having such an awful post tx time. Sending prayers for you upward!

<3
Marianne

slats1056 · « **Reply #10 on:** October 17, 2015, 09:10:32 pm »

Hey BBC & DM,
Thanx for the thoughts & prayers. Greatly appreciated. I feel almost subhuman today. It's an improvement over the last two weeks though. Just wish I could get back to My usual abnormal self. But, one step at a time right? First day with out a head ache of some kind. Yippee!!!!! Go in on Tuesday for VL assay results. Gnatty pointed out I am the longest running waiter for results since Lab screwed up 4 week test results. That still has not been rectified!!!!! But thats' the past. Looking forward to better days ahead.
DM, I know what You mean. I used to enjoy My job. Been doing it in one form or another for over forty years. Always looked forward to the challenge. Now it's hard just making it through the day. Did You ever get Your test results back?

?
Hang in there indeed! It reminds Me of the poster of the little kitten hanging in mid air. LOL

Marianne, Hope You & Percy are doing well and feeling better. You should be past the half way point now , right??? Big ole' Texas SAAAALUTE up north to Alaska for Y'all.

I LOVE MY COMPUTER BECAUSE ALL OF MY FRIENDS LIVE INSIDE OF IT!!!

drummerman · « **Reply #11 on:** October 17, 2015, 10:10:15 pm »

yeah, I did finally get my results back yesterday (friday).
Still UND!

I feel so bad , I may go back to Turkey! LOL.

dm

slats1056 · « **Reply #12 on:** October 17, 2015, 11:49:23 pm »

Man the dog looked at Me like I was crazy when I busted out laughing, I really needed that right now. Thanx. LMFAO!
Great to see You UND. Hope for the same Tuesday when I get My results back for one week after EOT! It's freaking annoying not knowing what My status is after 13 weeks. Even though I am sure that the Harvoni did its' job!
Thanx again for the laugh, I smooth forgot about that faux pas!!!!

Philadelphia · « **Reply #13 on:** October 18, 2015, 01:36:49 am »

Super news dm! Tommy, you're not alone with your post Tx challenges. We are all thinking of you, your posts are a bright beacon on the forum.

drummerman · « **Reply #14 on:** October 18, 2015, 08:03:08 am »

Quote from: slats1056 on October 17, 2015, 11:49:23 pm

Man the dog looked at Me like I was crazy when I busted out laughing, I really needed that right now. Thanx. LMFAO!
Great to see You UND. Hope for the same Tuesday when I get My results back for one week after EOT! It's freaking annoying not knowing what My status is after 13 weeks. Even though I am sure that the Harvoni did its' job!
Thanx again for the laugh, I smooth forgot about that faux pas!!!!

You're welcome!

Know what you mean about the wait...my EOT blood draw was actually 2 weeks after EOT!

and then I had to wait over a week to be be told I was UND. Still haven't received hard copies so don't know other numbers.

hang in there bro!
dm

Cal · « **Reply #15 on:** October 18, 2015, 06:04:03 pm »

Tommy,
Sorry you feel like shite, that really sucks. It's challenging the post tx period but it's endured until cured time. One foot in front of the other. It does end. Cal

slats1056 · « **Reply #16 on:** October 18, 2015, 07:41:53 pm »

Philly and Cal,
Hows' the weather down under ladies? We have had a nice respite this week down here on the third coast. Turned the A/C off Friday nite & it's still off as I am posting. Sure makes it easier on the old body & brain that is for sure. It sure is funny that folks don't see that You feel bad on the inside , so they assume You are just fine. I have had to lay back a little the last couple of weeks to charge up the ole' batteries for the next days trials & tribulations , but I am trying not to let it get to me.
I am so glad that I am in the minority with My Sx's compared to most on Tx. I cannot imagine what the Tx. from the old Meds. did to people. But I will not dwell on that as I await My Lab results tomorrow. Getting a little antsy with the waiting!!LOL!!
Philly, You are an inspiration ! As I have been catching up on Your odysey , it seems You can't keep a good girl down!!!!!
Cal, How have You been holding up? You still have control over My phone by the way!!!!LOL. I might have to call Marianne to get Percis' help on that one.

Here is to both of You guys health & well being. I am going to keep on trucking and hangin' in there ( or out there ) flappin' in the breeze like a freshly washed shirt on the line!

WHEN I AM BORED, I SEND A TEXT TO A RANDOM NUMBER SAYING " I HID THE BODY......NOW WHAT?"

KimInTheForest · « **Reply #17 on:** October 18, 2015, 08:00:06 pm »

Quote from: slats1056 on October 18, 2015, 07:41:53 pm

WHEN I AM BORED, I SEND A TEXT TO A RANDOM NUMBER SAYING " I HID THE BODY......NOW WHAT?"

So that was YOU Tommy. I should have known. Too bad I didn't know before I changed my name and left town…

kim

Cal · « **Reply #18 on:** October 18, 2015, 10:57:10 pm »

Hi Tommy.
I'm kicking and gouging on that extra riba dose. Bit fidgeting, speedy, headachey, riba rash gone bonkers. But other than that I'm peachy thanks. Cal

slats1056 · « **Reply #19 on:** October 18, 2015, 11:06:59 pm »

Kim, I am almost totally innocent I swear!!!! WINK WINK. Got some ocean front property for sale out in West Texas I can sell You. It is all just a teency weency lil' misunderstanding officer.

Cal, I have a spare bunk in My rubber room and Perci let Me use His Tye Dyed straight jacket!!! Just don't let Marianne find out!!!!!

WHY ARE THERE NEVER ANY GOOD SIDE EFFECTS??? JUST ONCE I WOULD LIKE TO SEE A DRUG COMMERCIAL THAT SAYS---MAY CAUSE EXTREME AWESOMENESS!!!!!

Bree · « **Reply #20 on:** October 19, 2015, 12:00:02 am »

I think they could say that about Harvoni. I saw a girl on another forum say the only side effect she was having was a big smile on her face!

Cal · « **Reply #21 on:** October 19, 2015, 02:08:55 am »

Tommy,
I have my own floral straight jacket, been dying to wear it

cal

Bree · « **Reply #22 on:** October 19, 2015, 02:18:01 am »

Quote from: Cal on October 19, 2015, 02:08:55 am

Tommy,
I have my own floral straight jacket, been dying to wear it cal

Do you have a hat that matches it? Shoes?

Cal · « **Reply #23 on:** October 19, 2015, 04:57:12 am »

Bree,
How can you ask? I'm a shoe and bag girl. I live in Brisbane hats are mandatory against our sun. Yes I have matching shoes, bag and hat. I think I may have a scarf too, but they may not let me take that into the rubber room? hehe Cal

slats1056 · « **Reply #24 on:** October 19, 2015, 10:57:36 am »

Dang, You guys have it made in the shade. The only accessories for the Guys are Chrome Wrist and Anklets with chains attached!!!!!! Well there is that funny little mask they gave Me once!!!!!!!!!!LOL

slats1056 · « **Reply #25 on:** October 19, 2015, 02:33:19 pm »

GOING BAT SHIT CRAZY HERE AGAIN!!!! Fourteen weeks not knowing My viral load since before treatment! I know, I know. Don't sweat the small stuff. The Meds have done their thing. It's just driving Me up the wall not knowing after seeing everyone elses' results. That little monster deep down in My brain keeps casting doubts & won't let Me give it up!! It's weird to obsess over things that are out of our control!! That is just Human Nature. I have to wait until 3:oo PM to find out. I swear if the Lab screws this one up I am going right downstairs & give 'em hell. Maybe I better go smoke a cigarette and calm down. Don't leave work for another 1/2 hour , then traffic , road construction , & inept drivers on the Freeway all the way to the Dr.s' office!!! There, I already feel better after venting. Sorry to ramble , but right now I feel much calmer. Sorry Guys.

SOMETIMES I PRETEND TO BE NORMAL BUT IT GETS TO BE BORING.SO I GO BACK TO BEING ME!!!!!!

Else · « **Reply #26 on:** October 19, 2015, 02:48:28 pm »

So just a few hours!

slats1056 · « **Reply #27 on:** October 19, 2015, 02:51:13 pm »

1 HOUR AND 9 MINUTES AND COUNTING DOWN!!!! LOL

slats1056 · « **Reply #28 on:** October 19, 2015, 02:58:27 pm »

I HAD ALL I CAN STANDS AND I CAN'T STANDS NO MORE!!! I AM OUTTA HERE!!! YUK YUK YUK!!!!

chino1969 · « **Reply #29 on:** October 19, 2015, 03:39:36 pm »

I must be one of the lucky ones. I did 24 weeks of Harvoni with minimal side effects. My end date was 8/10/15. I really don't feel that bad now aside from age and normal aches & pains. Have been SVR the whole ride. My 12 week EOT blood work will be the 1st week of November. It's time to take the Life off Pause and begin living again.

Here's a hope that this disease is eradicated once and for all. Hopefully, future generations will look back on Hep C as we do Polio.

slats1056 · « **Reply #30 on:** October 19, 2015, 05:41:52 pm »

Hands are shaking, My mind is going 90 MPH. DRUM ROLL PLEASE!!!!!!!!!!!!!!!!!!!!!!!!!!
ONE WEEK EOT BLOOD WORK RESULTS ARE IN AND THE WINNER IS---------MEEEEE!!!
HCV RNA VIRAL LOAD NON DETECTED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
HCV RNA Log 10 <1.2 IU/ML!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Yes Margaret there is a Santa Claus. Now I can relax a little as the adrenaline rush subsides!!!!! What a long strange trip it's been. I don't know what else to say or think at the moment. LET'S DANCE EVERYBODY!! THE CONGA LINE STARTS ON THE RIGHT!!!!

BE A FRUIT LOOP IN A WORLD FULL OF CHEERIOS!

P.S. No spell check on this post.

Cal · « **Reply #31 on:** October 19, 2015, 06:39:33 pm »

Quote from: slats1056 on October 19, 2015, 10:57:36 am

Dang, You guys have it made in the shade. The only accessories for the Guys are Chrome Wrist and Anklets with chains attached!!!!!! Well there is that funny little mask they gave Me once!!!!!!!!!!LOL

Well Hannibal,
At least your accessories suit you. I'm terrible in floral. Hehe cal

Cal · « **Reply #32 on:** October 19, 2015, 06:42:16 pm »

Well done Chino,
And great to hear. That's not too far to wait. You seem like a calm person, I wish I was that laid back about tx and whether I'll SVR etc. you're lucky if that is part of your make up. I've always been a drama queen! Cal

Cal · « **Reply #33 on:** October 19, 2015, 06:45:08 pm »

Go a Tommy,
Amazing! Virtual Congo line, come on gang join in.... Cal

Bree · « **Reply #34 on:** October 19, 2015, 07:52:03 pm »

Yea for Tommy!!!! You deserved an answer!!!! And the right answer!
You had to endure a lot of patience during your treatment just to know.

My granddaughter and I were dancing to "Everybody Dance Now" on Friday...
That's a great song! Great video: https://www.youtube.com/watch?v=LaTGrV58wec

I'm so happy for you

Bree

gnatcatcher · « **Reply #35 on:** October 19, 2015, 07:56:41 pm »

Quote from: slats1056 on October 19, 2015, 05:41:52 pm

Hands are shaking, My mind is going 90 MPH. DRUM ROLL PLEASE!!!!!!!!!!!!!!!!!!!!!!!!!!
ONE WEEK EOT BLOOD WORK RESULTS ARE IN AND THE WINNER IS---------MEEEEE!!!
HCV RNA VIRAL LOAD NON DETECTED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
HCV RNA Log 10 <1.2 IU/ML!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

YES!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

slats1056 · « **Reply #36 on:** October 19, 2015, 08:26:09 pm »

Gnatty, OOOOH pretty colors!!! I love it. How are Your My Dear

?
Bree , YEEESSS, My patience was rewarded ten fold!!!! Dance on!!!
Cal, By God I think Hannibal & I need to learn the Conga! Hey Senator, Love the suit!

Thank Ya'll

byebyeC · « **Reply #37 on:** October 20, 2015, 01:11:52 pm »

Hey y'all!,

Way to go Tommy!!! Couldn't happen to a nicer guy! Would've lost what's left of my mind without you, Cal, Julu, Bree, Gnatty, Kim, so much owed to Philly! And, especially Lucinda for making a place for us all to join up and support each other...

Joining Tommy's conga line with Cal & Percy too

, just don't get upset if I, (or a reasonable facsimile of me), loses it for no reason and starts either screaming or crying..., k? :

<3
Marianne

slats1056 · « **Reply #38 on:** October 20, 2015, 01:18:58 pm »

WHAT??? You have mind left??? I'm still looking for mine. After I got the test results back I took it out to play & lost it!!! Now when I shake My head there are no marbles to rattle around.

byebyeC · « **Reply #39 on:** October 20, 2015, 01:27:41 pm »

Lol Tommy!

My hubby and I were just guessing there were only about two marbles left up there

Great lost minds think...uuuh, hmm?, bubblegum,FACT!, bears eat beets, Battlestar Galactica

slats1056 · « **Reply #40 on:** October 20, 2015, 04:57:37 pm »

Bears look like Wookies , but beets don't look like R2D2!!!! I thunk once therefore I was_____ Uhh something!!!

Cal · « **Reply #41 on:** October 20, 2015, 07:08:36 pm »

Bree,
Great song. If you can dance to that you are doing really well! I'm still laying down and breathless etc. I guess it's the ribas again! Cal

Cal · « **Reply #42 on:** October 20, 2015, 07:13:36 pm »

Tommy, Hannibal, Marianne (or hologram) and Percy.

Conga line yeah baby! Join in everyone.....cal

Cal · « **Reply #43 on:** October 20, 2015, 07:16:24 pm »

Marianne,
You've got more marbles than me, it's not fair! Hey marbles procreate all by themselves, you'll be back to normal soon. Not long now Chickee babe! Cal

beto · « **Reply #44 on:** October 20, 2015, 11:45:15 pm »

Just heard the great news!!!! Three cheers for Tommy!!!

Can't believe you had to wait all that time. Sweet! Keep those result around and look at them every time you get bummed.

woohoo

slats1056 · « **Reply #45 on:** October 24, 2015, 01:26:22 am »

Got word from My G.I. that he wants to do a HIDA scan of the old gall bladder. Something to do with gall stones he is worried about. Wants to wait until after 12 week EOT labs to do it. I.m gonna ask Him about doing it earlier since I'm caught up on deductible & out of pocket expenses for this year. 12 week EOT won't be until mid January , 2016. By then I will have to start over again for next Year. Pockets are kinda empty at the moment.
Any thoughts on the matter Y'all?

Been feeling alot better the last couple of days. Headaches have eased up. Still get a rush when I look at that NON_DETECTED on the Lab report. Still have some joint aches & pains. But , what the hell. UNDETECTED pretty much trumps that!!!

beto · « **Reply #46 on:** October 24, 2015, 12:16:24 pm »

EOT is wonderful, but another chapter in the long saga of transitions for us heppers. All optimism aside, EOT does bring some new challenges. I am week 3 and am amazed at the aches and pains that came with ending the therapy. I did not have a lot of muscle and joint issues before starting and only a tolerable and fleeting amount during tx. Nothing debilitating but, it is like just became "old" overnight. Also, I had pretty good energy through tx with a few bouts of fatigue. Since ending I seem to have a bit lower energy factor going on...fairly consistently...yet again...not to a troubling degree. If I had not been on this forum and heard of the post symptoms from others, I might be a bit more concerned. The pre-results anxiety is maybe worse than during the treatment, because on treatment it seems like everybody is getting results. I speculate (and not alone in this assessment) that the immune system is finding itself and vacillating between over and under active. I personally believe that it (immune system) is also taking care of "other" business that it could not deal with when it was facing trillions of new copies of them little boogers hourly and 24/7.

I guess however, that the bliss of ignorance could be a saving grace for some who avoid information and forums. Here, we all support each other and there is plenty of good news and reports...but we also must endure the downers. It is difficult to hear of treatment failures on many levels. Yes it makes us worry that we could find ourselves in that camp, but even worse is the pain we feel for our brothers and sisters who might relapse. Instantly, we can imagine after all of the years of rejection, stigma, failed cures, disappointments, fears and uncertainty how it must feel.

We are all in this together. We are truly happy when the words undetected pop up on a post of another. Our connection is inescapable. If we are cured in the end, our battle is not over until everybody with hep all types and biotypes are cured or on their way. We are truly an army, one body of a common goal, not just a collection of individual needs. Long live Hep-forum...SVR to all.

Bree · « **Reply #47 on:** October 24, 2015, 07:54:58 pm »

Quote from: slats1056 on October 24, 2015, 01:26:22 am

Got word from My G.I. that he wants to do a HIDA scan of the old gall bladder. Something to do with gall stones he is worried about. Wants to wait until after 12 week EOT labs to do it. I.m gonna ask Him about doing it earlier since I'm caught up on deductible & out of pocket expenses for this year. 12 week EOT won't be until mid January , 2016. By then I will have to start over again for next Year. Pockets are kinda empty at the moment.
Any thoughts on the matter Y'all?

Been feeling alot better the last couple of days. Headaches have eased up. Still get a rush when I look at that NON_DETECTED on the Lab report. Still have some joint aches & pains. But , what the hell. UNDETECTED pretty much trumps that!!!

Don't know about the scan and what's best there but I'm having a photodynmaic treatment (pdt) this week (blue light therapy) on my face. I tabled it till after treatment... it's not urgent and probably not as invasive. I know I have insurance to cover it now and may not have in a couple of months... I am not anxious to tax my body but I have it covered now so trying to get all this medical stuff over with. I know it's apples and oranges but I understand about med coverage and also deductibles. It matters how we make decisions.

drummerman · « **Reply #48 on:** October 24, 2015, 08:05:02 pm »

Quote from: beto on October 24, 2015, 12:16:24 pm

EOT is wonderful, but another chapter in the long saga of transitions for us heppers. All optimism aside, EOT does bring some new challenges. I am week 3 and am amazed at the aches and pains that came with ending the therapy. I did not have a lot of muscle and joint issues before starting and only a tolerable and fleeting amount during tx. Nothing debilitating but, it is like just became "old" overnight. Also, I had pretty good energy through tx with a few bouts of fatigue. Since ending I seem to have a bit lower energy factor going on...fairly consistently...yet again...not to a troubling degree. If I had not been on this forum and heard of the post symptoms from others, I might be a bit more concerned. The pre-results anxiety is maybe worse than during the treatment, because on treatment it seems like everybody is getting results. I speculate (and not alone in this assessment) that the immune system is finding itself and vacillating between over and under active. I personally believe that it (immune system) is also taking care of "other" business that it could not deal with when it was facing trillions of new copies of them little boogers hourly and 24/7.

I guess however, that the bliss of ignorance could be a saving grace for some who avoid information and forums. Here, we all support each other and there is plenty of good news and reports...but we also must endure the downers. It is difficult to hear of treatment failures on many levels. Yes it makes us worry that we could find ourselves in that camp, but even worse is the pain we feel for our brothers and sisters who might relapse. Instantly, we can imagine after all of the years of rejection, stigma, failed cures, disappointments, fears and uncertainty how it must feel.

We are all in this together. We are truly happy when the words undetected pop up on a post of another. Our connection is inescapable. If we are cured in the end, our battle is not over until everybody with hep all types and biotypes are cured or on their way. We are truly an army, one body of a common goal, not just a collection of individual needs. Long live Hep-forum...SVR to all.

I'm with you Beto. I feel exactly the same way. The only thing that keeps me going is (like you said) reading about others going through the same thing AND it also the exact same way I felt after my first tx. It lasted a good 4 months. It really surprised me at the time. Seems to be a common theme.

dm

Philadelphia · « **Reply #49 on:** October 24, 2015, 08:47:25 pm »

Tommy I missed your fantastic news. I am so very happy for you. Gall stones often go hand in hand with HCV. I have them too but we have an agreement that I leave them alone and they'll leaveme alone. The moment they start to bother me, they're gone.

KimInTheForest · « **Reply #50 on:** October 24, 2015, 09:00:06 pm »

If I haven't said so already… CONGRATS TOMMY on your UND!! Keep on truckin' (or bikin' as the case may be).

kim

slats1056 · « **Reply #51 on:** October 25, 2015, 01:20:52 am »

Don't know what just happened. I was keying a rather long reply & the screen blinked & it was gone

Oh well, the fingers are willing but the brain ain't able

!

Kim, Philadelphia, Bree, DM, Beto, Thanx to all of You guys for the posts & thoughts. The old pea brain just ain't clicking today or I would try to replicate My ranting post that I lost.
I was trying to say The forums are the best bar none. I have a wee bit of pea soup brain fog going on at the moment. Mere mortals cannot fathom the things we heppers go through on a day to day basis , much less the stress & anxieties involved in our lives . Things that are tattooed on our Psyche for ever.
At the moment I am suffering from OLD TIMERS SYNDROME , so I will log off and bid You all goodnite and wish SVR to everyone.

byebyeC · « **Reply #52 on:** October 25, 2015, 09:37:56 am »

Perfectly said Beto.

Tommy,
Make your case to your Doc. They understand the end of the year financial thing almost as well as we patients do.

Marianne

beto · « **Reply #53 on:** October 25, 2015, 12:35:32 pm »

Tommy, "old timers syndrome" is a real side of EOT. A few of us have observed that we kind of wake up one day all achy and a cruddy memory. That occasional sharpness of mind and lack of brain fog that fleeted by during harvoni highs, bite the dust again...welcome to EOT senility Tommy

. let the senior games begin. Never a dull moment in the quest for SVR. Oh yea, and remember the anxiety attacks before results...you though they were bad during tx (insert evil laugh here).

Cal · « **Reply #54 on:** October 25, 2015, 06:05:06 pm »

Oh yuk!
I am looking forward to EOT but not this post tx RIBA crap again. Don't we suffer enough? I don't want to be anxious ( and I know I will) and I am so sick on this tx, my brain has become clear and I don't want to give it up again! Cal

beto · « **Reply #55 on:** October 25, 2015, 06:12:32 pm »

No worries Cal...you will sail right through

Bree · « **Reply #56 on:** October 25, 2015, 07:07:41 pm »

My two cents. Try not to project post side effects, you never know. Take it as it comes. You might be pleasantly surprised

Philadelphia · « **Reply #57 on:** October 25, 2015, 07:17:56 pm »

I didn't find post treatment sx became worse Cal. I felt much better.

beto · « **Reply #58 on:** October 25, 2015, 07:56:01 pm »

Hey Cal,

I was kinda joking around with Tommy. I mean I have been a bit fatigued and achy and older, but it is really nothing...and my angst is actually subsiding. I need to be aware that posting is like emails...it's OK to kid around, but missing the body language and voice inflections...a happy face sorta helps. You are going to be totally fine after.

I'm OK with some of the sides...I understand they are temporary.

Cal · « **Reply #59 on:** October 25, 2015, 10:54:11 pm »

You're all absolute darlings. I couldn't feel more supported and cared about, thank you.

Don't worry, I was kinda fooling around too. I have been through post tx before, so I can't help but project. It is what it is. I'll take it as it comes. Meanwhile I'm throwing everything at tx. Thanks for your kind posts though. Cal

slats1056 · « **Reply #60 on:** October 26, 2015, 02:34:41 pm »

WARNING! POSTINGS ON THIS THREAD ARE NOT THE SIDE EFFECTS EXPERIENCED BY THE MAJORITY OF PEOPLE TREATED FOR HEPATITIS C! THEY ONLY REFLECT THE MINORITY ( 2-3 % ) OF THOSE WHO HAVE EXPERIENCED MORE DRASTIC SIDE EFFECTS OF THE TREATMENT!
PLEASE DO NOT LET THE OPINIONS AIRED HERE IN ANYWAY DISCOURAGE OR KEEP YOU FROM GETTING TREATMENT. JUST REMEMBER THAT 97-98 % HAVE LITTLE OR NO SIDE EFFECTS RELATED TO TREATMENT. PRETTY GOOD ODDS I THINK!!!
OLD FARTS LIKE MYSELF ARE PRONE TO BE OPINIONATED AND PUT IN MY TWO CENTS WORTH WHETHER YOU ASKED FOR THEM OR NOT. I IN NO WAY INTEND TO SPEAK FOR THE MASSES WHEN IT COMES TO THESE AMAZING AND WONDERFUL MEDS. AND BREAK THOUGHS THAT ARE CREATED BY THEM. I CAN ONLY WISH AND HOPE THAT ALL CURRENTLY ON TREATMENT AND THOSE CONTEMPLATING TREATMENT WILL HAVE SMOOTH SAILING AND CALM SEAS FOR THEIR JOURNEY THROUGH HEPLANDIA!!!! MY PERSONAL EXPERIENCE IS JUST THAT!!!! MY EXPERIENCE!!!!

BTW, I have been in the fog since Friday. Low grade fever, stomach ache , calf muscle cramps , general all around feeling like crap. But not bad enough that I can't handle it. Just makes me want to lay up & do nothing. Glad it's rainy outside , that way I get a reprieve.
Over all I don't want to give any one the impression that I am bedridden or debilitated by all of this. Just feel like Shit in general. I have not missed a day of work during or post treatment. Other than taking a couple of hours off here and there for Drs., labs, tests. & a couple of Migraine no work missed. It's been rough. But personally I stick it out and do My best. I refuse to give up or roll over. I HAVE My good days as well as My bad days.
I AM SLAYING THE DRAGAON. I WILL LIVE UP TO MY AVATAR AND PERSONAL MESSAGE. HEP C BE DAMNED.

UH-OH, getting a little wound up there as the fog begins to lift. (insert demonic grin and chuckle here!!)

Hope everyone is feeling good or better, whichever the case may be.

Old people at weddings used to poke Me and say " Your next "!!! So , I started doing the same thing at funerals!

beto · « **Reply #61 on:** October 26, 2015, 03:03:30 pm »

Tommy,

I would imagine that more intense (or different than reported) side effects are more common than 2-3 percent. Whatever the case, the listed side effects are not only the most common, but also the easiest to report. A headache is just that and diarrhea just that. however, the more subjective side effects either go unreported or end up in an approximate category. I personally can't even describe some to the symptoms I have had pre...during...and post. Symptoms are even more difficult to express than pain. The old 10 point scale for pain is pretty in-exact but really all we have. There are perhaps several distinct feelings folks might have, that are all described as "dizzy". Anyway your experience is your experience and it is real. I feel bad that you have to go through it, but I also know how tough you are. This is an open forum and we are guinea pigs to an extent. More side experiences will be reported over time. Lots of folks are having a rough post. Even I have had weird stuff.

Besides, funerals

can be fun

slats1056 · « **Reply #62 on:** October 26, 2015, 10:14:22 pm »

HELLO ALL YOU FELLOW HEP C WARRIORS OUT THERE AROUND THE WORLD

Finally coming out of the fog I was deep into over the weekend! Some body turned on the lights , It must have been Little Miss Sunshine Bree. How are ya girl? Need a dose of sunshine after three days of constant rain here in the ole' U.S. of Texas! Hope all are well & kickin' butt out there.
Marianne, Yea I called the G.I. to see if He had a reason for waiting until next Year for the scan , if not let's do it now & get it over with! Waiting on the call back. As usual , hurry up & wait!

Haven't messed with You lately, Is all well up there in the North Country? Been cleaning Your Igloo lately?

Philly , Doing some research on what the HIDA scan involves & what happens if the results come back bad. Been checkin' out Your blog off & on. One question??? Is that Your lovely little ear in the Pic.??
Kim, Great to hear from You. Hope You are taking care of Yourself as well as all of Your little flora & fauna buddies.
Beto, What can I say? A headache is a headache unless it's a Migraine. Diarrhea still sucks, But explosive Diarrhea , well that's a different story

!! Picture this for the Senior Games. A 20 yard dash with souped up walkers. All mag wheels ( no tennis balls here ) Dual calipers brakes , cup holder , folding seat for resting the ole' body with under seat storage for the essentials ( padded of course ) and to top it off!!! Wait for it---- an OOGA horn & sick flame job to top it off

Cal, How goes the Trials of the Viekirans?

Hope You have been feeling better.

Else · « **Reply #63 on:** October 26, 2015, 10:42:42 pm »

A sick flame job on your chair? By god, there goes a Texan!

slats1056 · « **Reply #64 on:** October 26, 2015, 10:48:52 pm »

No by God it's a walker

I ain't ready for a chair YET

How Ya doin' Else? You should be about 2/3 done with the ol' diamonds right? Hope you are doin' good & feelin' well?? That avatar still throws Me! LOL!

slats1056 · « **Reply #65 on:** October 26, 2015, 11:38:50 pm »

Scout?

Where are Your lurking?

I keep missing You! Doin' all right I take it. How is life treating You?? Gimme some good news, I could use it!!!

JUST POPPED IN TO LURK AWHILE!

Else · « **Reply #66 on:** October 27, 2015, 12:12:58 am »

My apologies, Tommy. My vision's not quite right lately. That and I can't say w-w-w-w-walker!

I'm all bent over the latest goings on on The Walking Dead. Seems as if the walkers might have killed Glenn. (or did they?

)

Until I can figure out how to change my avatar to one from the interwebs (preferably Carol of said Walking Dead fame) I'm stuck with my surly boy rapper. heh

beto · « **Reply #67 on:** October 27, 2015, 12:23:38 am »

Glenn is toast and rick got bit

Else · « **Reply #68 on:** October 27, 2015, 12:58:13 am »

No, I think Rick's folding knife wasn't locked open - good way to cut yourself. If that was a bite Rick would have lost a paw by now. Karma, when you think about Merle.

Ahem, I'm in la-la-land.

Geez, exactly 1/2 way outta the diamond mine tomorrow, Tommy.

p.s. Beto - you realize someone fell on Glenn, right? Never say never. He's always been the cat with nine lives.

Bree · « **Reply #69 on:** October 27, 2015, 01:24:04 am »

Quote from: Else on October 27, 2015, 12:58:13 am

No, I think Rick's folding knife wasn't locked open - good way to cut yourself. If that was a bite Rick would have lost a paw by now. Karma, when you think about Merle.

Ahem, I'm in la-la-land. Geez, exactly 1/2 way outta the diamond mine tomorrow, Tommy.

p.s. Beto - you realize someone fell on Glenn, right? Never say never. He's always been the cat with nine lives.

No spoiler alerts you guys!!! I haven't had a chance to watch Sunday night's episode!!!

Philadelphia · « **Reply #70 on:** October 27, 2015, 05:02:55 am »

Hey Tommy - I go walking with my dog early each morning. Well semi-early, I'm usually out the door by 6:30. That's me attempting a selfie one morning. 6:30am and I needed a hat and a singlet top. And I was sweating. Yes that's my ear.

beto · « **Reply #71 on:** October 27, 2015, 12:15:07 pm »

Yo Philly,

Just read your blog. You know I recall you 1st posting it, but I guess I had just looked at the pictures and blew off the words...hehe. Must have been rushing...I do recall commenting on the beautiful pastoral settings. Anyway you brought up an interesting analogous symbolism that resonated with me. And that is the quixotic idea of our glorious quest. I feel like I have been tilting at windmills throughout my quest for health and understanding. It would seem that maybe there is a little Don Quixote in all of us and perhaps that is why we are all still alive and fighting. As was the case with most of us, the original information, at the time most of us were diagnosed with hep C was that: we might look into "putting affairs in order" not to far down the road. I refused to believe that and one day perhaps I will tell my own story.

Would love to hear more about the meeting in Australia. Not crazy at all to travel 600 miles to see your hep peeps. I think we all need to get together in Hawaii at Kim's house and Tommy can grill gator and Marianne can make the biscuits and so on

.

Glad you are back to your crazy workaholic chops...but...maybe you take it a little easier this time around. Getting a little better each day with some set backs seems to be the norm for us. I will report that yesterday I noticed (while at the gym) I was suddenly stronger and could lift more. The weight amounts that I had been using forever, seemed light. Interesting because I have been doggedly going to the gym for years and my muscles just would not advance much. This is because my liver could not sufficiently build the proteins necessary...but I alway showed up like Don Quixote...tilting at the weight machines.

Bree · « **Reply #72 on:** October 27, 2015, 01:51:07 pm »

Hey Beto, it's Bree who lives in Hawaii. I say, yes, let's all meet here!

beto · « **Reply #73 on:** October 27, 2015, 03:47:39 pm »

Hey Bree...maybe I got you and kim mixed up. Truly the most central place would be Hawaii. Given all the aussies and yanks. A bit far fetched but, would be fun. Not too many folks can just pick up and go to Hawaii and leave jobs and family to see what's up with the hep peeps. So of course I am half kidding. I have a brother and nephew and niece in Oahu, Kailua side that I need to see...but, realistically...well...We never expected a cure either.

Fun to speculate anyway...OK your house. Don't bring poi though

KimInTheForest · « **Reply #74 on:** October 27, 2015, 03:51:00 pm »

I'm up for Hawaii (even though I live in a forest). Let's do it! Half in jest, here. But I would try to get my butt there if others are game. I have never been to Hawaii.

kim (intheforest)

Bree · « **Reply #75 on:** October 27, 2015, 04:44:48 pm »

No worries on the poi... Not my thing. It would be cool if we could all get together in Hawaii! I live on an outer island although I'm in Honolulu today or tomorrow.

Cal · « **Reply #76 on:** October 27, 2015, 06:09:37 pm »

Bree,
I'm coming to Hawaii to see you I promise, get that spare room sifted! Cal

Cal · « **Reply #77 on:** October 27, 2015, 06:11:14 pm »

Tommy,
You asked me how I was. Bloody ill. I was put up a RIBA and it's having it's evil way with me! Cal

Else · « **Reply #78 on:** October 27, 2015, 08:27:58 pm »

Beto, I've always pictured you as a mad, medieval Spaniard.

I would happily travel to the most remote chain of islands on the earth (really! technically speaking, they are!) to meet any or all of you.

Bree, should I bring ice?

Hang in there, Cal. $:-\$

beto · « **Reply #79 on:** October 27, 2015, 09:30:00 pm »

Else you pictured correct. I will sing the Impossible dream karaoke.

Kim- Yea, why was I a thinkin' you were the Hawaii one? You live in a dalburn forest.

Cal- So sorry...If we do this Hawaii thing maybe we can curse the evil riba god Hawaiian style.

Of course my son is moving to Texas...maybe texas...

dudes...meeting is a pretty out there Idea...but you never know. Maybe Gilead can pay for it...it would be great advertizing if we chronicled it

the cost of one harvoni is an airfare.

Cal · « **Reply #80 on:** October 27, 2015, 10:16:38 pm »

Hey stuff the Ribas!

I'm coming to Hawaii to party! (Gently)

Cal

slats1056 · « **Reply #81 on:** October 27, 2015, 10:24:52 pm »

Cornbread and iced tea took the place of pill and 90 proof

Hank Williams Junior.

slats1056 · « **Reply #82 on:** October 30, 2015, 11:07:59 pm »

Well here I am playing the waiting game once more. Three weeks & three days Eot. Waiting until Jan.11, 2016 for 12 week Eot blood work, until Friday for the HIDA gall bladder scan , waiting for the fatigue to let up , etc. etc.

!! Overall I have been feeling better. Sleep is so much better that I can't believe it. Still getting the headaches just not as bad. Still dealing with lower G.I. issues. The most prevalent and annoying is the lower back and joint pains. Brain fog has let up big time, But concentration is lacking. Get side tracked extremely easily. Slamming water as usual but seem to feel dehydrated most of the time.
Wanting to head to My place out west for some R & R but lacking funds to do so. Feel I need some alone time to recharge the old batteries. All the fair weather buddies seem to have vanished when most needed. But , I am used to that. I'll just have to figured out something. After all I need it, and it's long over due. Besides I need to see how long I can do a solo without going stir crazy. It has been a couple of Years since I have done it. Pack it all in , pack it all out. No electricity or running water. Cell phone for emergency. Just the basics. Food, water, propane lantern & stove. A few cigars. Kind of like Church , just Me, Mother Nature, and the Big Guy Upstairs. Oh yeah , the stars are something else. No city lights close by to deal with. Light a camp fire and a cigar kick back and stare at the night sky. Very peaceful. Man I wish I could head out right now.
Oh well, the time will come soon. Here is to all You Happy Helpful Heppers around the world out there fighting the good fight one battle at a time.

BE HAPPY, BE HEALTHY, AND ENJOY LIFE ONCE AGAIN. ANY DAY THAT YOU CAN SMELL THE FLOWERS INSTEAD OF STARING IT THE ROOTS IS A BEAUTIFUL ONE

Rosie13 · « **Reply #83 on:** October 30, 2015, 11:37:51 pm »

Hey Tommy sorry to hear you are still dealing with the annoying sides.nice that you are sleeping well...half the battle is resting the old carcus!!!sorry!camping out under the stars will be great when you get there...for now just thinking about it is relaxing ...all but that cigar!!!sorry again!Today I had the epic battle with Florida blue who are immoral bastard's that left the decision about my Harvoni scrip to a gal named Lakeesha.not sure if she has medical background but she sure doesn't like being accountable to a 17 page appeal that says URGENT from Mayo Clinic.They finally gave me her name & voicemail so I made sure to fill it with one big ass message.It started professional & very polite from my bullet points.then my emotions took over & it was academy award worthy.The fallout was after 2 denials for continuation of my tx..they agreed to peer review with my Dr.one hour later!! I should hear tomorrow...too many relapses on 8 wks ...fighting hard just took last pill for now ..fingers crossed for us all .Hang in there Tommy ...you are gonna feel good tomorrow!

slats1056 · « **Reply #84 on:** October 30, 2015, 11:57:12 pm »

Way to keep after them Rosie, hope all goes Your way, You deserve it. Stay the course and keep fighting them. The old body really likes the good sleep, but I wear down mid afternoon at work. I really don't know how I've worked full time all these years without time off except for vacation time. I have everything possible crossed for You. Let us know how it goes.
Hope You are feeling and doing well. Thanks for the shout out. BTW, the smoking is My only vice left and I am working on that!

THE MAN UPSTAIRS NEVER GIVES US MORE THAN WE CAN HANDLE! HE ALWAYS GIVES US A SECOND CHANCE! IT IS CALLED TOMORROW!

Else · « **Reply #85 on:** October 31, 2015, 01:26:37 am »

You're in my thoughts, Rosie. Sending you positive vibes for your appeal ~ ~ ~ ~

Tommy your getaway sounds heavenly. Makes me miss my cattle dog. He loved trips like that. Best companion a gal could ask for.

Bree · « **Reply #86 on:** October 31, 2015, 02:43:44 am »

Hey Tommy, et al. Just catching up with the forum a bit. I was in Honolulu these past two days (not for play, unfortunately, another medical thing, knocked the wind of my sails, not serious, but wanted to pack it in while I have insurance).

Tommy that retreat sounds awesome. Makes me think I should go camping here and I'm more of a room service kind of gal. I have managed to keep my circle of friends close and let the acquaintances go. Just no time or energy for superficial relationships and I really guard my self time.

Rosie, good for you to stand your ground! I just know things will work out well for you. You remind me of me and the lengths I went to get treatment.

Now, for Hawaii... loved reading the posts about that. Cal your room is ready anytime! And, I have a friend who does a Hawaiian chant to the ancestors. Wouldn't it be neat to have her do a chant for healing for us...and for everyone!

Else, no need to bring ice - we have ice here if needed

Beto, it would be neat if we could get someone to pay for it... hmmm.

Kim, everybody... it would be so cool. We have excellent hiking here, and best beaches, I am on a smaller island (most beautiful) I'm biased probably. If we got serious about this, say next year, I could figure something out for us. Just sayin'

Have a fab weekend yall! Bree

Rosie13 · « **Reply #87 on:** October 31, 2015, 09:27:03 am »

Thanks Tommy for the quote about tomorrow.I got really emotional reading ....not saying you shouldn't do cigars tho ...I just tried one once & it didn't go well!
Else & Bree, just love the support ...Hawaii sounds just the best right now but next year when everyone has been cured ...too perfect for words.the chant would be other worldly ...I'm dreaming now right?

Rosie13 · « **Reply #88 on:** October 31, 2015, 09:40:24 am »

If anyone on this forum is a writer...... A trip to Hawaii after treatment to meet folks that got close on a forum about a life threatening disease sounds like a best seller!Its something so dear to be able to type about stresses of treatment &help & encouragement comes rushing in from multi timezones...crying now but happy tears

slats1056 · « **Reply #89 on:** October 31, 2015, 10:47:58 am »

Let's see here , Hawaiian ancestral chants , maybe some Didgeridoo action from the Awesome Aussies, a little Cowboy guitar serenade under the Moon & Stars, an American Indian Medicineman, sounds like an all niter what with the dancing & all!!!!
Rosie, Hope it was GOOD emotions!!! Probably shouldn't do the cigar thing. Don't know what kind You tried , but there are more varieties than Hep C treatments available these days. If You get the chance find someone versed on the Nuances of a good cigar. Have them recommend a small ring gauge, dark (or maduro ), mild tobacco cigar. You can even get cigarillos which are tiny cigars! Flavors are an option also, although Purists will flip out! LOL! STRICTLY FOR OCCASIONAL USE AND ENJOYMENT ONLY!!!!!!
Bree, I thought I saw a ray of Sunshine peeking through the clouds!!! How are You? Hope Your Medical thing went well. ROOM SERVICE

? I wish! LOL! Fab indeed. I haven't heard that in a while. Not trying to occlude Your sunshine , but it's rainy again this weekend. I kind of like the rain as long as it ain't a damned HURRICANE!!! Peaceful , relaxing , and rejuvenating!! The old circle of life thing!! Besides I don't like drought!!!!!LOL!

Else, Never have figured out why dogs are always MANS best friend. Sounds kinda sexist to Me ( Coming from the ex-biker redneck from sexist central here in Texas!! ) It reminds Me of a huge ( 110 Lbs,! ) German Shepherd I had years ago, His name was Snapper and the kids used to ride him like a horse. Kinda like the Mutton Busting You see at the Rodeos for the little ones. I wish I had pictures or videos. They used to used him as a pillow at nap time. Best damned dog I ever had. Never so much as growled at any kids , But if You messed with them or they got hurt or were crying , I was about the only one who could get by Him . He was that protective. Never hurt anyone but his growl & barked would scare the shit out of grown men. Oh yea, and He ate like a Horse!!!

byebyeC · « **Reply #90 on:** October 31, 2015, 12:01:51 pm »

Tommy,
So sorry those little bleepity bleeps are being cruel to you still and Cal, me and so many others

Not much of a hater, but BOY do I HATE them and wish there was a way to literally stomp them to death and set them on fire... (I know... sorry folks, just a little riba rage left over from my psycho crisis

Rosie,
Bless your every need and sending prayers up you get your win <3

Hawaii, oh how I love you! Mixing Bree, Cali, Tommy, Else, Rosie and everyone else that's rolling through this delightful fight would be Heaven on Earth!... LOVE that idea!!!

(((HUGS))) to all y'all you're the best!!!

slats1056 · « **Reply #91 on:** October 31, 2015, 12:06:06 pm »

Hey Gnatty, LynnK, Phil, Lucinda!!!! I seem to remember some posts about How Long It Takes Harvoni ( Ledipasvir and Sofosbuvir) to clear the body. I remember & found some posts that referred to it being 2-4 days for Ledipasvir and 1-2 days for Sofosbuvir to clear the system. And 2-4 weeks for the residual to excrete. Doing a little research into it and was hoping some of You techno-geeks and more highly informed forum Pals could help with some stats or links on the subject.
Thanx in advance before My computer craps out or the inter-web goes down! LOL! $:-\$ $:-\$ $:-\$ . Weather is pretty crappy around here at the moment , so I don't know how long My connectivity will last

HERE IS HOPING ALL IS WELL AROUND THE WORLD IN HEPLANDIA FOR EVERYONE!!
SHHHHH!!! BE VEWY VEWY QUIET! I AM HUNTING DWAGONS. Damn Saturday morning cartoons are effecting My brain!

slats1056 · « **Reply #92 on:** October 31, 2015, 12:21:20 pm »

HEY HEY HEY Marianne is back

. Hope You are feeling better!! Rage on My dear, don't hold it in!!! Mu bleepity-bleeps aren't squat compared to You and Cal, and many others. Don't stomp them , use a big hammer. Don't want to hurt Your foot. Man I would love to start a big ol' bonfire to fry up some Dragon for You!!!
No Psychosis, just a Psychosomatic Manifestation pertaining to Your Fear of Dragons and the eradication side effects thereof! Man I can't believe Perci didn't fill You In on that crap. Me and Hannibal are going to have a little talk with Him over a VIRTUAL Chianti and some Fava beans

Gotta go, lights are flickering again!

beto · « **Reply #93 on:** October 31, 2015, 12:44:52 pm »

"All the fair weather buddies seem to have vanished when most needed. But , I am used to that."

Tommy...you don't need no stinking fair weather friends...you got all us sweet smelling foul weather friends...and we are much funnier. I am a bit of a loner these days...that why I clocked 72 hours kibitzing with all you foo's. "Cwazy wabbits". Dude enjoy your cigars.

Rosie- In the middle of my forth denial I wrote a letter that floored a few folks at the insurance company and beyond. Keep up the pressure. I now wished I had pushed for more time on harvoni. What these folks, who's job it is to play hardball with us happy heppers, don't understand is; if we relapse we find ourselves in in a difficult situation. The problem is, we are not seen as people...we are "insureds". let the emotions fly...it gets results...hehe

Bree- Yea...half serious. Big opportunity for Gilead and Big Pharma, "hep C survivors unite in Hawaii paid by Gilead" One BBQ a camera follows us around clammering about how lucky we are...bla bla bla. Then we set aside a couple of days to party down yo. Great PR for Pharma and big fun for us. These forum pages are packed with "heart felt" stories and accounts...a lot of material here. tee hee.

slats1056 · « **Reply #94 on:** October 31, 2015, 02:06:22 pm »

Beto ,

Did You say foul smelling sweet weather fiends?

I know about the loner part, been that way most of My life, never have been able to put up with the status quo or hold My tongue when faced with all the B.S.! Trying to break that habit. Wish I could enjoy a nice Cabernet or three fingers of Jack Green label with those stogies!

But we all know that ain't gonna happen!

I think Gilead should subsidize the trip to Hawaii as scientific research pertaining to treatment and obtaining updated info. so all can have clearer info. about the Meds. and true unadulterated stories about what really occurs during Tx.! Might as well get the other Drug companies in on it to help defray the cost too. I might need some Meds. to help keep Me in check though!LOL.

WHAT A WONDERFUL WORLD IT WOULD BE IF EVERYONE WERE HEP C FREE

Bree · « **Reply #95 on:** October 31, 2015, 03:53:51 pm »

Hey Yall... Beto, Tommy, this concept might be in the realm of possibility.

What if...let's say a dozen post treatment Hep C people came to Hawaii and did a documentary. We could have a few group sessions on camera talking about... what it means to get treatment, the process of getting treatment (insurance, etc), being on treatment, post treatment and then what it's like to be cured. The good, the challenges, the health benefits and ultimately the process of freedom.

It doesn't have to be a commercial but a documentary and could be used to sway insurance and government to move toward making treatments more readily approved for everyone. It would be in, let's just say, the powers that be, best interest to subsidize this effort even if quietly.

Beyond that, we could have our own separate special times together.

I have experience as a facilitator, I could even get the camera crew over here.
I'm not ready to reveal which island I'm on for anonymity at this moment, but let's just say it's known as a healing island.

And, if this turns into a serious discussion, I think we should take it "off forum" to discuss. Food for thought....

gnatcatcher · « **Reply #96 on:** October 31, 2015, 04:01:27 pm »

Quote from: slats1056 on October 31, 2015, 12:06:06 pm

Hey Gnatty, LynnK, Phil, Lucinda!!!! I seem to remember some posts about How Long It Takes Harvoni ( Ledipasvir and Sofosbuvir) to clear the body. . . .

Hi, Tommy -- Ledipasvir has a half life of not more than 47 hours (Sofosbuvir is quicker, so Ledipasvir is all we have to consider here). That means 47 hours (or less) after you swallow an orange diamond, only 50% of the Ledipasvir remains. Another 47 hours (or less) later, only 25% remains. A week after you swallowed that last orange diamond, you had around 9% or so left. Two weeks after you swallowed that last orange diamond, there was less than 1% left.

HTH,
Gnatty

Bree · « **Reply #97 on:** October 31, 2015, 04:04:23 pm »

Tommy, I took this off my thread that Gnatty answered my question about how long Harvoni stays in your system:

Bree, the way a half life of 2 days works is that after 48 hours, only 1/2 (50%) of the original remains. After another 48 hours, only 1/2 of the 50%, or 25% remains. After another 48 hours, it's down to 12.5%, etc., so after 2 weeks, there's less than 1% (0.78%) of the original amount left. The really interesting thing is that there's always some of the original left, even though it soon becomes an infinitesimally small amount.

Oh, I see she just answered but I'll post this anyway.

slats1056 · « **Reply #98 on:** November 01, 2015, 12:21:29 am »

How great is it that one can get info. faster here on the forums than one can get a return call from the Docs' office, get power back on, get Lab results, or info. from the makers of the Meds. we are on. Too, cool

. And on top of that the info. We share is usually more direct, to the point, and reliable than from the so called knowledgeable people that We rely on :

Thanx Gnatty & Bree, as usual right there when needed My Amigos en las armas de Guerra! Much appreciated. Sometimes when the grey matter confuses Me, it's nice to have back up brains on My helpful friends list

Cal · « **Reply #99 on:** November 01, 2015, 12:32:33 am »

Hi my dear forum family,
I can't wait to meet up in Hawaii! Post SVR and post tx crapola! I'm a writer. I'm a playwright, I am currently writing a play about hep C and me, how it slowly insinuates itself into every aspect of your life. Producing the play would mean giving up my anonymity so I am looking at the impact that would have on my family.

I haven't been able to write for 4 years since last tx which stole my brain, but I keep having moments of supreme clarity lately! I am keen to get out producing again.

I think a doco is a great idea. I love the idea of us all meeting up. SO many people here I'd love to hug for real! Cal

I'm happy to write a boo

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Author Topic: EOT One Week Happy But Singing The Blues (Read 51362 times)