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Author Topic: Starting Harvoni 10/20/15  (Read 26049 times)

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Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Starting Harvoni 10/20/15
« on: October 18, 2015, 12:57:57 am »
Not sure if I'm doing this right, but 2 people suggested I start a new thread. I got approved by Gilead through Support Path coordinator at in-house Walgreen's pharmacy at hospital where GI doc is based. Expected nothing at all and have no idea why/how I got approved, but I did. 8 week Harvoni RX/TX and I start on 10/20/15. I am excited and nervous. After waiting forever and just knowing it would go nowhere, suddenly I was approved and and the meds were in the mail. $0.00 due by me, period. I am working-class poor and have no insurance. She told me that worked in my favor as people "with insurance" are having a hard time with denials, appeals, etc. How sad is that... For what it's worth, I know I am one of the lucky ones and I will do my best to honor the ones who are still fighting not only the disease but the system as well. Wish me luck and regards and best wishes to everyone else trying to get their meds. I will keep daily track of how the meds affect me and update as time goes on. I hope my "stats" show on my post, because I don't know if they do?       
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting Harvoni 10/20/15
« Reply #1 on: October 18, 2015, 01:28:19 am »
Congrats Mary Jo! And good luck on your Harvoni journey. Yes, your stats show just fine in your sig file. Well done! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #2 on: October 18, 2015, 02:08:47 am »
Thank you! I had no idea :)
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Starting Harvoni 10/20/15
« Reply #3 on: October 18, 2015, 06:54:43 am »
all the best for an uneventful but successful treatment!
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting Harvoni 10/20/15
« Reply #4 on: October 18, 2015, 01:16:47 pm »
Good luck Mary Jo and welcome.

Great that you got the treatment.  Yes I have known 2 other people that were able to get Harvoni for free...which is wonderful.  I am one of those that fought my insurance through denials.  However, I ended up with 12 weeks and a mere 35.00 co pay.  I had cirrhosis and everything, but they still fought me tooth and nail.  Whereas, I gave a friend of mine all the Gilead info and in a few days she was accepted, just like that.

Now begins your cure.
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #5 on: October 18, 2015, 05:47:40 pm »
It's good that people are, at least, getting there. God knows it has taken long enough. Hope your next labs reflect well.
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Starting Harvoni 10/20/15
« Reply #6 on: October 18, 2015, 08:17:54 pm »
 Cool, You did it! LOL, if I can figure it out anybody can!!! Here is to Your good health & good fortune on Your journey to SVR land!

 GET UP AND START WALKING, WHO WANTS TO LEAVE BUTT PRINTS IN THE SANDS OF TIME?????
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting Harvoni 10/20/15
« Reply #7 on: October 18, 2015, 08:43:57 pm »
Mary Jo meet Tommy  :)
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #8 on: October 18, 2015, 08:59:43 pm »
Welcome Mary Jo!  I too am one of those that was helped by Support Path at no charge (right before they changed their policy) and I'm 3 weeks post treatment and Undetected! ...  That's what you have to look forward to :)

I feel like you, that i want to do my best to honor this gift!  I wish you all the best on treatment and beyond!  Bree
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #9 on: October 18, 2015, 10:20:27 pm »
Aww, those are the words I love to hear!! Thank, Bree and so glad you're doing well :)
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Starting Harvoni 10/20/15
« Reply #10 on: October 18, 2015, 10:37:12 pm »
  Mary Jo, Sometimes things are just meant to be! Good for You. I have pretty decent ins. through work, But in about a month I had maxed out My deductible of $3500.00 , plus met My out of pocket at $9000.00 , and decimated My HSA account. I was starting to sell off stuff to get the cash to pay for Rx. as My Dr. said he was fast tracking Me to Meds, because of all the tests, scans, biopsies, and such. Said with the fibrosis & scarring as well as the Genotype that I was a prime candidate for treatment. That was like July 6th.  I was settling in for several months wait to get the Harvoni . Imagine My surprise when everybody started calling Me 10 days later to set up delivery of the Meds!!!!!!!! When the spec. pharm. called and said we need $5.00 for the first Rx. WOW, I was ecstatic. Even more surprising was when second and third Rx. came due I was told nothing more was owed!!!!!!! Truly blessed and Karma changed for the better. I feel kind of guilty that some of the more deserving & those more in need were having such a hard time. I guess it was just My time! Calling it a gift seems trivial, more like a Godsend to Me!!!!! Can't say it was free but I thank My lucky stars that I am in the right place at the right time for sure.

 I WILL BE POSTING TELEPATHICALLY TODAY , SO IF YOU THINK OF SOMETHING FUNNY--- THAT WAS ME!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #11 on: October 18, 2015, 11:47:15 pm »
No kidding! I have a certain amount of guilt--- not that I haven't paid my dues in a number of way over the years, but it just seemed like "yeah, right..." I have said many times in my life that there is no magic pill for any of life's ails, but somehow THIS seems to actually be one! I am so glad you finally got yours and am so grateful to have mine. One pill, one day, $1125 @ and I'm sure my (our) life will change. Hopefully for the best! 
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #12 on: October 19, 2015, 12:20:42 am »
Quote from: slats1056 on October 18, 2015, 10:37:12 pm

..."Calling it a gift seems trivial, more like a Godsend to Me!!!!! Can't say it was free but I thank My lucky stars that I am in the right place at the right time for sure.

 I WILL BE POSTING TELEPATHICALLY TODAY , SO IF YOU THINK OF SOMETHING FUNNY--- THAT WAS ME!!!

Hi.  I just wanted to say that when I  called it a gift in my earlier post I was in no way intending to trivialize the blessing of this treatment, quite the opposite...rather my intention was with the utmost reverence for the opportunity that I/we have been given.  Sorry if my choice of words was misunderstood.  The sentiment was definitely there.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #13 on: October 19, 2015, 12:32:31 am »
Nah, I don't think anyone's interpretation of this RX-- be it gift or godsend-- can be wrong or misconstrued. It is what it is and it's both and it's all of the above. "We" have all waited a very long time and have stayed upright (mostly) while waiting. You are all, we are all, on the same page. The sentiment is the same regardless of verbage. Love, light and luck to all!
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #14 on: October 19, 2015, 12:40:21 am »
Yep, well said Mary Jo.  Agree 100%.  Here's to October 20 for you... Improved health is at your doorstep! 8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #15 on: October 19, 2015, 01:22:48 am »
https://www.youtube.com/watch?v=0p4drWtJ0Ug

For you, me and all of us, Bree!!!
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #16 on: October 19, 2015, 01:43:41 am »
I like you already Mary Jo!  Love Paul too... open the door and let them in!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #17 on: October 19, 2015, 02:00:06 am »
Little things make me happy in the giant scope of it all. Music is paramount. Glad you picked up on the Paul reference :) I added you to my "buddy list" and I have no idea what that even means, but it felt like the right thing to do. Ha!   
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #18 on: October 19, 2015, 02:12:19 am »
I don't know what it means either for the buddy thing, but I like it too.
I love the little things... I love to dance, in fact, when I played the song, I was dancing (dog was staring)... I dance in the car, I dance around the house, way more since I got Harvoni.   My 2 year old granddaughter and I danced in Ace Hardware on Friday.  I hadn't seen her for a month and she said "I'm so glad I found you again."  I'm glad I found me again too!  ahhh.  Happiness level increased dramatically!  It is our time!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #19 on: October 19, 2015, 02:16:40 am »
Where's that buddy thing on this forum and I'll add you too.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #20 on: October 19, 2015, 02:53:10 am »
I know I clicked on your profile pic/avatar and it took me to your page. I think under that it allowed me to add you to my buddy list. I swear, the more I say buddy list, the funnier it sounds!!
« Last Edit: October 19, 2015, 02:54:46 am by Mary Jo »
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Starting Harvoni 10/20/15
« Reply #21 on: October 19, 2015, 10:22:57 am »
 Bree , please tell Me I didn't hurt Your feelings????? It was not at all meant that way. Just My interpretation & observation. I in no way intended to diminish or belittle Your view at all. So Sorry if I did. Please forgive Me as You know My filter is non-existent!!! Always uplifted by Your shiny outlook and looking forward to more!!!
 Your Humble Minion, Tommy. I make funny, You make bright as always!!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting Harvoni 10/20/15
« Reply #22 on: October 19, 2015, 11:14:22 am »
Tommy you can do no wrong.  Everybody loves you.  You just keep putting smiles on everyone's faces...
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #23 on: October 19, 2015, 12:36:48 pm »
I love all the positivity!! A virtual carton of good eggs here :)
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #24 on: October 19, 2015, 07:42:35 pm »
Quote from: slats1056 on October 19, 2015, 10:22:57 am
Bree , please tell Me I didn't hurt Your feelings????? It was not at all meant that way. Just My interpretation & observation. I in no way intended to diminish or belittle Your view at all. So Sorry if I did. Please forgive Me as You know My filter is non-existent!!! Always uplifted by Your shiny outlook and looking forward to more!!!
 Your Humble Minion, Tommy. I make funny, You make bright as always!!!!

Thank you so much Tommy for saying that.  I try to be as honest with people as I can (in a considerate way) without putting my stuff on them even if I fear what happens next.  It did hurt my feelings. I meant what I said with a good heart. I did my best not to take it personal like I try to do with most things...I had a super sensitivity to everyone around me this weekend.  Not quite sure what's up with that... I know ... side effect!!! lol. It means so much to me that you care and acknowledged that.  You are a stand up guy!
We're good.  Much Love to you!  8)  Bree on the Beach   P.S.  Mary Jo... welcome to us!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #25 on: October 19, 2015, 07:44:46 pm »
Mary Jo, I added you to the buddy list.  When you figure out what we can do with that, let me know :)

Tomorrow... drum roll... is your big day!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Starting Harvoni 10/20/15
« Reply #26 on: October 19, 2015, 08:17:32 pm »
 Bree , Mea Culpa , Mea Culpa. I am so devastated that You would have taken offense in any way to My post! You are truly a bright gem here on the forums. I am but the lowly Jester to Your Royal Brightness My friend.
 All sides aside, have a beachin time with Your new reading material. I guess that makes You Breedle Dee to My Breedle Dum!!! LOL!! Right back atcha kiddo!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #27 on: October 19, 2015, 08:21:18 pm »
Quote from: slats1056 on October 19, 2015, 08:17:32 pm
Bree , Mea Culpa , Mea Culpa. I am so devastated that You would have taken offense in any way to My post! You are truly a bright gem here on the forums. I am but the lowly Jester to Your Royal Brightness My friend.
 All sides aside, have a beachin time with Your new reading material. I guess that makes You Breedle Dee to My Breedle Dum!!! LOL!! Right back atcha kiddo!

Nothing but love for you, my friend, nothing but love!!! ....So nice we can be real with each other ... even makes our friendship that much sweeter! 8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Starting Harvoni 10/20/15
« Reply #28 on: October 19, 2015, 08:38:18 pm »
  YES, THAT"S what I'm talkin' about!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Rosie13

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  • Posts: 297
Re: Starting Harvoni 10/20/15
« Reply #29 on: October 19, 2015, 10:35:12 pm »
I sure to enjoy reading posts from breedaldee & breedaldum!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Else

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  • Appeal, appeal, and appeal again!
Re: Starting Harvoni 10/20/15
« Reply #30 on: October 20, 2015, 01:20:11 pm »
Congratulations on your start day today!  Nothing but good from here on out.  Remember to drink tons of water.  Harvoni likes its water!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Mary Jo

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  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #31 on: October 20, 2015, 03:02:14 pm »
Yepper! Tonight's the night. Just having major nerves and anxiety waiting for 9:00 PM. I want to have the first pill down my gullet so I know I have officially started! Hope everyone is well and thanks for all the encouragement :)
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #32 on: October 20, 2015, 03:22:13 pm »
Quote from: Rosie13 on October 19, 2015, 10:35:12 pm
I sure to enjoy reading posts from breedaldee & breedaldum!

Thanks... I think I'll call you RightonRosie!  8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #33 on: October 20, 2015, 03:25:49 pm »
Quote from: Mary Jo on October 20, 2015, 03:02:14 pm
Yepper! Tonight's the night. Just having major nerves and anxiety waiting for 9:00 PM. I want to have the first pill down my gullet so I know I have officially started! Hope everyone is well and thanks for all the encouragement :)

Hi Mary Jo.  That's when I took my pill.  9 p.m. every night.  Worked well for me.  Felt like it helped put me to sleep and slept through misc. sensations.  I think you will do fabulously, you are going into this so upbeat... drink the water and listen to your body, especially first week.  Just getting going on this is a major part of the hurdle.  May the force be with you :)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Mary Jo

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  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #34 on: October 20, 2015, 07:47:09 pm »
Thank you, Bree! T minus about 2 hours! Been a nervous wreck all day. Glad to hear it might help me sleep?! Wouldn't that be a bonus! I am a huge water drinker already, so I'm really glad of that. Hope I don't miss my St. John's Wort too much :( Catch you all a little later in. Be well <3
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline Rosie13

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  • Posts: 297
Re: Starting Harvoni 10/20/15
« Reply #35 on: October 20, 2015, 09:00:55 pm »
Mary Jo, I was nervous too but don't worry .....we are all cruising thru this with minimal problems.I sat there staring at the bottle & cried....so scared I was going to be sick but guess what ...I already was sick!!!!Harvoni is making me well.May the force be with you!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Mary Jo

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  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #36 on: October 20, 2015, 09:55:32 pm »
Such good news, Rosie. I have been shaking all day, but I just downed my 1st pill, so here we go!!!! Thank you-- keep up the good work!
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline KimInTheForest

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  • Believe in yourself
Re: Starting Harvoni 10/20/15
« Reply #37 on: October 20, 2015, 10:13:57 pm »
Quote from: Mary Jo on October 20, 2015, 09:55:32 pm
Such good news, Rosie. I have been shaking all day, but I just downed my 1st pill, so here we go!!!! Thank you-- keep up the good work!

Congrats Mary Jo! All aboard the Harvoni train! Enjoy the journey.

kim :)
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Mary Jo

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  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #38 on: October 20, 2015, 10:19:23 pm »
Thank you, Kim. I'm just sitting here picturing what that pill is doing in there. I could drive myself mad... HA! I really just need to go to bed, but I am geeking out a bit. Oy! Have a good night, all.
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Starting Harvoni 10/20/15
« Reply #39 on: October 20, 2015, 10:30:42 pm »
Quote from: Mary Jo on October 20, 2015, 10:19:23 pm
Thank you, Kim. I'm just sitting here picturing what that pill is doing in there. I could drive myself mad... HA! I really just need to go to bed, but I am geeking out a bit. Oy! Have a good night, all.

You can visualize that pill doing wonderful things in there - because it is. ;)

Nighty night.

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #40 on: October 20, 2015, 11:24:03 pm »
Yea, you got started... that's what matters!  Harvoni will do the heavy lifting now!  Just take it easy, eat well, sleep, drink water, be good to yourself.  One day at a time!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline beto

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  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting Harvoni 10/20/15
« Reply #41 on: October 21, 2015, 12:01:51 am »
Quote from: Bree on October 19, 2015, 07:42:35 pm
Thank you so much Tommy for saying that.  I try to be as honest with people as I can (in a considerate way) without putting my stuff on them even if I fear what happens next.  It did hurt my feelings. I meant what I said with a good heart. I did my best not to take it personal like I try to do with most things...I had a super sensitivity to everyone around me this weekend.  Not quite sure what's up with that... I know ... side effect!!! lol. It means so much to me that you care and acknowledged that.  You are a stand up guy!
We're good.

Hey Bree... all,

I have most definitely had surges of sometimes overwhelming insecurity/hypersensitivity/anxiety come over me for spells of time.  Things that normally would not affect me, suddenly do.  Then later I can't imagine how they could have.  I recently compared notes about this with scout.  I do believe there is a strange Tx and post Tx side effect of intermittent spells over sensitivity.  Not to take away normal sensitive feelings.  They come in varying degrees.  A few time almost obsessive.  I have been able to tell myself the feeling will pass... anyway weird.  Just thought I would share... don't mean to be keeping on anybody's drama :)
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #42 on: October 21, 2015, 05:30:40 pm »
Quote from: beto on October 21, 2015, 12:01:51 am
Hey Bree... all,

I have most definitely had surges of sometimes overwhelming insecurity/hypersensitivity/anxiety come over me for spells of time.  Things that normally would not affect me, suddenly do.  Then later I can't imagine how they could have.  I recently compared notes about this with scout.  I do believe there is a strange Tx and post Tx side effect of intermittent spells over sensitivity.  Not to take away normal sensitive feelings.  They come in varying degrees.  A few time almost obsessive.  I have been able to tell myself the feeling will pass... anyway weird.  Just thought I would share... don't mean to be keeping on anybody's drama :)

Thanks for sharing that Beto.  I have been strangely sensitive this week.  Good news is, it passes.
No drama at all, it's really neat to be able to be friends and talk things through that come up  in a healthy constructive way... makes relationships even stronger.   That's how I feel.  Happy to have you all as friends on this forum... it's truly is a community / lifeline for me!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #43 on: October 21, 2015, 05:32:16 pm »
Mary Jo,  I just wanted to check on you... how are you doing after Day 1 on Harvoni?
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Mary Jo

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  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #44 on: October 21, 2015, 06:50:22 pm »
I'm okay-- feel weird, like everything's a little amplified or muffled, but okay. Hopefully, a good night's sleep will tamp it for tomorrow. Thank you. #2 tonight!
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Starting Harvoni 10/20/15
« Reply #45 on: October 21, 2015, 07:28:55 pm »
Yep.  "Feel weird".  Me too and someone else agreed with that term - can't remember who.  Weird.  Odd.  Not bad though, right?  For me, that feeling wasn't at all unpleasant but sadly went away when I caught a really bad cold for a couple of weeks.  Never did come back.  So long to the "Harvoni high".   :(  Now I just have Harvoni energy.  Can't complain.  :)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Mary Jo

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  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Starting Harvoni 10/20/15
« Reply #46 on: October 21, 2015, 08:24:06 pm »
Oh, I wouldn't call it that yet. I look forward to the "Harvoni high!" I feel just sideways and super tired, but I had to quit my St. John's Wort cold turkey too, so that may have something to do with it. But I don't feel anything that's any worse than a normal bad day. Tomorrow is a new day!
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline Paulie G

  • Newbie
  • Posts: 1
Re: Starting Harvoni 10/20/15
« Reply #47 on: November 04, 2015, 06:56:13 am »
I did both Interferon/riboviran treatments and they did not work. Side effects were so bad I decided I would rather live with virus than treatment again. However I was told the new Harvoni treatment had little or no side effects so I started it August 01,2015. I was shocked at the little side effects. Just a  slight headache once in a while (alleve works fine on it) and I also noticed some more "fatigue" than I had normally. I feel real "heavy" and out of energy even after lite grocery shopping trip, but nothing compared to the Riboviran.
The best news is virus "FREE" at "1st blood test" after 30 days of Harvoni. I am doing 6 months of treatment and finish towards the end of Jan. 2016. The final test to be considered "cured will be 3 months after end of treatment. Lots of luck and do not be scared or nervous. This seems like a Miracle drug.

Paulie G
Logged

Offline Else

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  • Posts: 523
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Re: Starting Harvoni 10/20/15
« Reply #48 on: November 04, 2015, 10:42:21 am »
Hi Paulie - welcome and congratulations on your awesome lab tests!!!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cindy1955

  • Member
  • Posts: 30
Re: Starting Harvoni 10/20/15
« Reply #49 on: November 04, 2015, 10:59:54 am »
Just FYI...Have enjoyed this thread.  Listening to Paul in the background from earlier post.  Thank you Mary Jo.
Good luck to all.  We should have a post HCV party in 2016 on some awesome beach somewhere and celebrate after living with this devil 40+ years (for most of us).

Happy day to all :-*
Cindy
Logged
F/60
Diagnosed 1992 with non A-non B
Genotype 1A
Asymptomatic
Probably contracted blood transfusion 1972
Fibrosis score .54
Fibrosis Stage F2
Treatment naive
Harvoni started 9/28/2015
Begin: AST 55 ALT 66 VL 6,037,770
4 Week Lab: AST 26 ALT 28 VL-UND
8 Week Lab: AST 17 ALT 18 VL-UND

Offline beto

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  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting Harvoni 10/20/15
« Reply #50 on: November 04, 2015, 11:22:21 am »
party at Bree's house
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Cindy1955

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  • Posts: 30
Re: Starting Harvoni 10/20/15
« Reply #51 on: November 04, 2015, 11:47:24 am »
Count me in... 8)
Logged
F/60
Diagnosed 1992 with non A-non B
Genotype 1A
Asymptomatic
Probably contracted blood transfusion 1972
Fibrosis score .54
Fibrosis Stage F2
Treatment naive
Harvoni started 9/28/2015
Begin: AST 55 ALT 66 VL 6,037,770
4 Week Lab: AST 26 ALT 28 VL-UND
8 Week Lab: AST 17 ALT 18 VL-UND

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting Harvoni 10/20/15
« Reply #52 on: November 04, 2015, 12:50:44 pm »
Yep, Cindy party discussions are underway... We're all hanging loose till we get our equilibrium back and the final SVR cured status.  I'm in Hawaii so we are brainstorming possibilities.

Paulie, good for you.  I too, did the interferon/riba combo from hell.  Harvoni totally different experience.  I'm so grateful for this miracle drug!

Mary Jo, how are you doing?  You've been so quiet....
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline RedFoxJean

  • Member
  • Posts: 8
Re: Starting Harvoni 10/20/15
« Reply #53 on: November 10, 2015, 11:58:14 am »
I just received my approval letter to start Harvoni treatment. After I read the letter I was paralyzed with fear. But after reading all the posts I feel confident about my treatment. I am an upbeat positive person. Always see the brighter side of any situation. Also strong. I feel confident about my treatment. I have no clue what my stats are. I will find that out later. I do know my genotype is 1A or was. I will keep posting until I am cured. :D
Logged
F/65
Contracted 1980 blood transfusion
Diagnosed 2013
Genotype 1A
Fibrosure F1-F2

Offline Bree

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Re: Starting Harvoni 10/20/15
« Reply #54 on: November 10, 2015, 02:18:04 pm »
RedFoxJean,

Welcome to the forum and congratulations to you!  I am like you , I am upbeat and strong and positive and went into the treatment believing with all my being.  I am a pretty easy ride with the treatment and afterward. I'm so happy I often just start dancing.

I didn't give much power to the minimal side effects and still don't.  I'm 6 weeks post and will get lab results in a few days.  From 4 weeks till end of treatment I show undetected so expecting the best!!  It's looking more and more like I'm cured!  It's so worth it.

Drink lots of water and when you get your stats, if you put them in the signature line, it will show in all your posts and people can respond effectively.

Warmly, Bree
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline RedFoxJean

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Re: Starting Harvoni 10/20/15
« Reply #55 on: November 10, 2015, 02:24:17 pm »
Bree,
Thanks for your words of encouragement and info about signature line. I am so looking forward to being free of this thing. I am already high energy, more will be awesome!
Logged
F/65
Contracted 1980 blood transfusion
Diagnosed 2013
Genotype 1A
Fibrosure F1-F2
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