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Author Topic: Harvoni: The Good, The Bad and the Unbelievable  (Read 18839 times)

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Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Harvoni: The Good, The Bad and the Unbelievable
« on: October 21, 2015, 01:51:42 am »
It's too late at night for me to be starting a thread, so I'll be brief for once.   :)

The bad?  2 or 3 minor morning headaches cured with a good 8oz. guzzle of water.  Oh, and it doesn't prevent nor cure the common cold.  Boo-hoo.  ;)

The good?  Joint pain gone, chronic fatigue gone, brain fog gone.  Peripheral neuropathy no longer progressing - good enuf.  It may reverse yet.

The unbelievable?  Per my 4wk labs "HCV Not Detected".

Just wow.  I'm stunned. 
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #1 on: October 21, 2015, 03:46:52 am »
Else,
I just love you!  Miss undetectable at 4 weeks. Cal 8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #2 on: October 21, 2015, 06:04:25 am »
Fantastic, Else! CONGRATS!!

kim :)
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cindy1955

  • Member
  • Posts: 30
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #3 on: October 21, 2015, 08:25:45 am »
That is awesome!!!  I go for my 4 week blood test next week can't wait for those results although I have to admit,  little nervous. 

These pills have helped so many, really a blessing.


Cindy
Logged
F/60
Diagnosed 1992 with non A-non B
Genotype 1A
Asymptomatic
Probably contracted blood transfusion 1972
Fibrosis score .54
Fibrosis Stage F2
Treatment naive
Harvoni started 9/28/2015
Begin: AST 55 ALT 66 VL 6,037,770
4 Week Lab: AST 26 ALT 28 VL-UND
8 Week Lab: AST 17 ALT 18 VL-UND

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #4 on: October 21, 2015, 01:27:11 pm »
Thx Cal 'n Kim.  ;D  Can't stop smiling.  Cindy, you're going to be so thrilled.  Look forward to it!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #5 on: October 21, 2015, 02:12:03 pm »
Else, great stats all around!
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #6 on: October 21, 2015, 02:21:52 pm »
Wow, congrats! It is sure good to see this kind of progress.
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #7 on: October 21, 2015, 04:24:38 pm »
Quote from: Else on October 21, 2015, 01:51:42 am
It's too late at night for me to be starting a thread, so I'll be brief for once.   :)

The bad?  2 or 3 minor morning headaches cured with a good 8oz. guzzle of water.  Oh, and it doesn't prevent nor cure the common cold.  Boo-hoo.  ;)

The good?  Joint pain gone, chronic fatigue gone, brain fog gone.  Peripheral neuropathy no longer progressing - good enuf.  It may reverse yet.

The unbelievable?  Per my 4wk labs "HCV Not Detected".

Just wow.  I'm stunned.

Cool! 8)
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #8 on: October 21, 2015, 05:18:36 pm »
Else, It's, awesome, amazing, supercalifragilisticexpialidocious! 8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #9 on: October 21, 2015, 07:42:05 pm »
Much love, all my forum friends.  :)  Now back to mowing my lawn.  My teenage son is getting such a pass from all my new energy.  8)  I used to enjoy mowing the lawn ('cause I'm just a party animal that way!  :o) but I haven't had the oomph to do it in years.  Yay!

Next up, cleaning the points on my leaf blower.  It's the little things...  :)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Mary Jo

  • Member
  • Posts: 30
  • "If not you, then who? If not now, then when?"
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #10 on: October 21, 2015, 08:25:59 pm »
You are a party animal! I can't tell you how glad I am to hear ts though-- I haven't cleaned my house in almost 2 years. No lie! You don't suppose, do you? HA! HA!
Logged
54/F
Genotype 1A
Contracted 1984-ish
Diagnosed 2004-ish
Liver Core Biopsy 2011:
No cirrhosis, stage 2 fibrosis
Opted OUT of Ribavirin/Interferon treatment
Blood levels 2015: AST 187, ALT 223
HCV Quant 715,000

Offline MaryC

  • Member
  • Posts: 117
  • Life is not a sprint; it's a marathon.
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #11 on: October 21, 2015, 09:15:09 pm »
Awesome news Else!!   :)
Logged
GT 3a
Dx'd 4/15 not known when contracted
Labs 7/15:
-VL 537,000
-AST 32
-ALT 41
-Fibrosis score 0.46 (F1-F2)
Started tx 9/17/2015 with Daklinza + Sovaldi
6/6/16: 24 week EOT SVR!  Cured!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #12 on: October 22, 2015, 10:10:27 am »
cool beans Else...glad there was not an "ugly". :)   We see everyone's results, but when that first test hits home it is a whole different experience.  All of the numbers change so dramatically so quickly.  The next one is just as exciting.  Now I await post.  Yep EOT virgin...very happy for you
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #13 on: October 22, 2015, 12:34:15 pm »
 Well You know the UGLY had to rear up & put in two cents worth!!!! LOL. Great news Else. Numbers are dropping like a rock!!! Looks like success to Me!!!!
 Else, BTW, I need a party animal for My Yard! Do You have an extra one by any chance?????

 Beto , Are You waiting on EOT Test or results???? Mox Nix, Good luck anyway!!!

 Bree, Good Lord!!! If those words get any longer, I am going to have to get on My cheaters just to be able to make out what they are.LOL!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #14 on: October 22, 2015, 12:47:08 pm »
Yea Tommy...I head back to AZ from Seattle and gonna go in for a blood draw early next week.  The only ugly for me is waiting for results :).  Anybody read the new forum rules?  I wonder how many time I broke em'. teehee
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #15 on: October 22, 2015, 12:47:43 pm »
I don't want to get "time out"
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #16 on: October 22, 2015, 03:08:37 pm »
Am I missing a new rule posting, Beto?  The one I just read looks like it was pinned on the first of February.

Just some general feedback regarding the wording - "a temporary ban from the forums" is clear as a bell.  Adding the phrase "a Time Out" is unfortunate.  Having HCV and getting treatment for HCV can, at times, feel like a demeaning and disempowering experience.  No need to add to that even if someone does step out of line.  We're all adults here.

My two cents, yo.  :)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #17 on: October 23, 2015, 02:53:05 am »
Congrats on the 4 week not detected

"What a feeling. Bein's believin'. I can have it all, now I'm dancing for my life."

I thought I was alone in enjoying mowing the lawn.

Zen and the Art of Lawn Maintenance" lol

LK
« Last Edit: October 23, 2015, 02:02:17 pm by Lynn K »
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #18 on: October 23, 2015, 10:55:39 am »
Thanks you Marys, Beto 'n Tommy!  ;D

Lynn, ahahaha!  Flashdance!  What a lifetime ago.
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cindy1955

  • Member
  • Posts: 30
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #19 on: October 23, 2015, 11:34:05 am »
All too funny ;D  Last night after I got home from work, I moved and cleaned under the couches, behind the dressers, under the bed and behind the TV.  Maybe the pantry and kitchen cabinets will happen this weekend.  Wonder if I will get to the attic before my 12 weeks are up?

Strangely enough, I did not think that I had little energy before.  Getting ready to go to my new exercise class Orangetheory, lots of fun then back to work.

First blood test next Tuesday, can't hardly wait.
Cindy
Logged
F/60
Diagnosed 1992 with non A-non B
Genotype 1A
Asymptomatic
Probably contracted blood transfusion 1972
Fibrosis score .54
Fibrosis Stage F2
Treatment naive
Harvoni started 9/28/2015
Begin: AST 55 ALT 66 VL 6,037,770
4 Week Lab: AST 26 ALT 28 VL-UND
8 Week Lab: AST 17 ALT 18 VL-UND

Offline Per

  • Newbie
  • Posts: 1
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #20 on: November 02, 2015, 04:50:10 pm »
My name is Per.
I am on a Harvoni treatment.
I am in my 9 week.
Doctor called me today regarding my 8 week test.
My blood is clean from Hep-c
Before treatment, over one milion.
After 2 weeks it was 250
After 4 weeks it was 25
After 8 weeks it was 0
And i still got over 20 tablets left.
I am very happy that i got this treatment and i think
That is the grace of GOD.
I thank JESUS and give HIM the honour.
Logged

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #21 on: November 02, 2015, 08:36:48 pm »
Congratulations Per and welcome to the forum

All that's left for you then is finish up those remaining pills and wait for you 12 week post treatment test to be sure the virus is gone never to return!

You are almost there. Good luck with your remaining treatment
Lynn

Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Tom1952

  • Member
  • Posts: 29
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #22 on: November 03, 2015, 10:41:29 am »
Quote from: Else on October 21, 2015, 01:51:42 am
It's too late at night for me to be starting a thread, so I'll be brief for once.   :)

The bad?  2 or 3 minor morning headaches cured with a good 8oz. guzzle of water.  Oh, and it doesn't prevent nor cure the common cold.  Boo-hoo.  ;)

The good?  Joint pain gone, chronic fatigue gone, brain fog gone.  Peripheral neuropathy no longer progressing - good enuf.  It may reverse yet.

The unbelievable?  Per my 4wk labs "HCV Not Detected".

Just wow.  I'm stunned.




Congratulations!  I just received my 6 week lab results yesterday and have the same good result and same reaction.  Stunned is exactly how I feel.  Stunned and grateful.
Logged
Infected - Best guess hospital 1984
2004 - Diagnosed Geno 1a
2015 - Viral 3.250.000

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #23 on: November 03, 2015, 12:49:34 pm »
Quote from: Tom1952 on November 03, 2015, 10:41:29 am



Congratulations!  I just received my 6 week lab results yesterday and have the same good result and same reaction.  Stunned is exactly how I feel.  Stunned and grateful.

Seeing Not Detected is the best feeling in the world!  Congrats!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #24 on: November 03, 2015, 01:10:01 pm »
Awesome news, everyone!!!  ;D  Harvoni really is a miracle drug!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Allen in cedar

  • Member
  • Posts: 4
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #25 on: November 07, 2015, 09:24:04 pm »
Well i had the expectation this would be a piece of cake. Headaches the whole way through. Every old broken bone,joint,sprain etc came back to haunt me to the point i had to get on pain meds lwhich i only take a 1/4 to 1/2 at a time to take the edge off, leg swelling. Im 10 yrs clean and sober and dont want to risk my sobriety plus the pills make me sick now. Fatigue, Nausea, fogginess. Arches denied me at first. got the biopsy and was stage 1 hep with 14 million viral load. stage 2 liver and my doc said insurance probably wouldnt ok but they did HOORAY. 9 pills left and feel a little better today. The specialty pharm called yesterday and want to ship me more pills i told them in done but they insisted and billed my card 5$ co pay so i called the doc to have him straighten it out. The pharm. want to give me 5 months and doc said 3 UGH. 32,000 a bottle. i messed up and didnt test til 3 weeks ago but in undetectable. i tried the peg interferon 10 years ago and made it 2 months before i quit. thought i was going to DIE ! plus i was still drinking and using im excited to get this done and over and cured and maybe feeling better all around. ive been packing hep since 1984 and diagnosed in 92
« Last Edit: November 07, 2015, 09:26:34 pm by Allen in cedar »
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Offline Else

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  • Appeal, appeal, and appeal again!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #26 on: November 07, 2015, 10:38:10 pm »
Hi Allen,

So 9 pills left in your third bottle?  Very strange that your specialty pharmacy would want to ship more medication than your doctor prescribed.

I hope you feel better soon.
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F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Allen in cedar

  • Member
  • Posts: 4
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #27 on: November 07, 2015, 11:26:19 pm »
yes on 3rd bottle, i told the doctor i got approved but forgot & didn't tell him when i started so when it came time for my third bottle i called the specialty pharm and said im almost out 2 pills left and they said we have no proof of blood work so i rushed out and got it done and had a 4 day break from the meds cuz there is no Saturday delivery here. Procrastination at its best
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Offline BillT

  • Member
  • Posts: 573
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #28 on: November 08, 2015, 07:48:16 am »
Congratulations Per and Tom.I love reading the forum in the morning because it's always full of good news and sets the tone for the day.
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Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline roberto

  • Newbie
  • Posts: 2
  • contacted HCV 1968-1970
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #29 on: November 09, 2015, 03:42:40 pm »
Hello
I'm so happy to have found this forum & I hope I'm responding in the correct way.  Great news on your results!!  I'm in my 7Th week of Harvoni & have just had my first visit with the nurse.  My blood work came back as detectable, not the best news but OK.  I've failed interferon in 1999 & interferon ribavirn combo sometime in 2000, so not surprised.  My side effects from the drug have been fatigue & headaches which have not been too bad.  The worst has been joint pain, mainly in my hips.  I was told by the nurse that the joint pain was uncommon, which led me to this site.  Thank you all for sharing your experiences!!
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Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #30 on: November 09, 2015, 05:10:50 pm »
Hi Roberto,

Welcome.  You will find loads of support and information here.  As to you detectable status, was it nonquantitative detectable? or, much lower than before treatment?  These are important questions.  I is helpful if you post your stats and your length of treatment, that way everyone can help an give good advice.  I will tell you that there are some folks who are late bloomers and the great labs come a little down the road of treatment.  good luck.
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HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #31 on: November 09, 2015, 05:53:03 pm »
Welcome Roberto!

Did your labs read "detectable <15" by any chance?

Anyway, strange deal about the joint pain.  I had that from long-term HCV infection, most noticeably in my hips.  Went away by week 2 or 3 on Harvoni treatment.

This is a new medication so I wouldn't be surprised if someone didn't chime in.  The side-effects of these new DAA's are varied, odd and thankfully mostly very mild.  That's one of the wonderful things about this forum - info exchange!  :)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline roberto

  • Newbie
  • Posts: 2
  • contacted HCV 1968-1970
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #32 on: November 09, 2015, 07:33:02 pm »
I forgot to get a copy of the results & have asked for them to be mailed.  I will update when they arrive.  Thank You!!
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Offline Allen in cedar

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  • Posts: 4
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #33 on: November 10, 2015, 02:42:06 am »
Well Shoot, As to the call i got from the specialty pharmacy last week to ship more meds i told them im done and they said i have 2 more months for a total of 5. I talked to my doctor and they said they would straighten it out. Well i just got an e mail saying UPS will be delivering tomorrow. So i guess i need to call my doc in the morning to see i i should refuse delivery. The thought did occur to sell them on the black market lol . Sounds like luxury problem . My insurance arches had to drop 45,000 people in utah cuz the federal government didn't pay 12 million $$ to them so im looking at new insurance now. Im finally feeling decent i dont want 2 more months i dont need 2 more months
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Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #34 on: November 12, 2015, 07:18:36 pm »
8 wk labs!   ;D  No viral load again 'til 12 wks.  Just relieved to see my liver function panel holding strong. Yay!  ;D 8) ;D
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #35 on: November 12, 2015, 07:40:50 pm »
Nice! Keep it up Else! My 6 week EOT just got today.  We are like undetected twins. 
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Harvoni: The Good, The Bad and the Unbelievable
« Reply #36 on: November 12, 2015, 09:02:01 pm »
Else, TERRIFIC!!! 

Beto - AMAZING!!!  As far as I'm concerned if you are UND at 6 weeks post, and liver function is normal and liver status as actually reversed it's fibrosis, you are pretty much home free.

Did you see Mel's post where his fibroscan came back like yours, with huge decrease in liver status?

I'm waiting for mine VL, should get tormorrow.  The LFT and all else came back normal so I think that's a good sign VL will too.  Except my platelets are low: 88 (they were low already and now even lower) but no one seems too concerned.  I just need to see the VL UND!

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Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!
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