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Poll

What is the main thing Hep C stolen from you?

Self-Esteem
1 (12.5%)
Life Force (energy, ambitions, your drive, ect.)
7 (87.5%)
Will to live (only existing, no interest in anything in life)
0 (0%)
Ability to form a new intimate relationship
0 (0%)

Total Members Voted: 8

Voting closed: November 26, 2015, 08:50:37 pm

Author Topic: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen  (Read 11870 times)

0 Members and 1 Guest are viewing this topic.

Offline bricksnsticks

  • Member
  • Posts: 10
HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015
12 Week Regimen
What, how, and will Harvoni do and or change in my life?


Harvoni 90-400 mg tablet

Genotype 1a
Non cirrhotic
No prior treatments
Present weight: 198

Sunday, October 25, 2015

Day 1 – no side effects, feel no different than the usual aches and pains.

Day 2 – chills, fever, loss of appetite. Still eating, just not as much.

Day 3 – chills, fever, loss of appetite. Still eating, just not as much. Muscle & joint pain all over, feel like I have a a flu. I don't... Got the flu shot 4 weeks ago. I am much more tired and achy than usual and I feel disconcerted and more foggy brained. I see many people have headaches. So far, so good. No headaches for me.

Day 4 - OMG! Chills, chills, chills - I'm freezing.. I'm not sick or getting sick, believe I know the difference. I have the heat on high in the house. Had unrelated doctor's appointment this morning, as soon as I got home fell into bed slept all day. Mental fog not so much tonight. Appetite is still not there. But that's okay. I eat enough to have something in my stomach.

Day 5 – Wow this be that Harvoni high people talk about. OMG! My brain is so clear almost feels as if it could float right out of my head. I have energy, no aches and pains. Through carrying the Hep C virus for 30+ years it stole so much from me, little by little. Mainly it stole my LIFE FORCE. If I get that back, OMG! I'm still trying to wrap my brain around the fact I am taking a pill that will cure me. OMG! Is this real???????????

HEP C you finally met your match!!!   ;D :D ;) :)

So glad I found this site. I will update how the treatment is going for me and hope it helps others beginning this journey of healing.

I weighed myself and listed it here, will keeps tabs on any weight loss or gain during the 12 weeks. Please, I encourage others to also include their weight before during and after. I believe it's an important piece to the treatment. 

Thank you to all who replied.
« Last Edit: October 27, 2015, 09:43:24 pm by bricksnsticks »

Offline gnatcatcher

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  • Posts: 1,372
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #1 on: October 26, 2015, 04:42:37 am »
Welcome, BnC.

What a powerful use of the Marquee effect -- mesmerizing! Sorry you've got Sx challenges, but maybe you'll have an easy time post-Tx, whereas I'm one of those who enjoyed the "Harvoni High" (extra energy, lessening of muscle & joint pain, etc.) during Tx only to experience the return of fatigue and pain post-Tx. What counts is whether the stuff cures us, which it is highly likely to do.

The brain fog is definitely not affecting your ability to write impeccably.

You're drinking extra fluids, right? Harvoni seems to like to guzzle the stuff. This week I got my water bill for the quarter that included 11 weeks of Harvoni :o. If only all those extra toilet flushes were tax-deductible as a medical expense!

Best wishes,

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline BillT

  • Member
  • Posts: 573
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #2 on: October 26, 2015, 08:28:58 am »
Hi Bricks and welcome to the club.

Hopefully things lighten up for you soon.I've seen a lot of people post their side effects and there is just no rhyme or reason for who gets them and why.Are you taking the riba also?I started the Viekira on the 17th and I've had one real bad day.It seemed like everything hit me at once and the next day they were more or less gone.

Btw I didn't even notice the Marquee until Gnatty mentioned it.I thought it was a ad. :)

Gnatty be glad you don't live in California using water like that.The SWAT team would be storming your house in the middle of one of your midnight runs,and drag you off to places people probably didn't know even existed. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Coach Mike

  • Member
  • Posts: 292
    • Affordable Hepatitis C Treatment
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #3 on: October 26, 2015, 12:00:22 pm »
Hi B,
We are brothers in arms!!  Started my 12 week generic s & l treatment Friday as well.  I had a cold coming on, but started anyway.  Can't tell if I have any sides yet or not because of the cold, other than a little "hazy" on the mental front.
Happy for you!
CM
Genotype 1a, Biopsy:11/2014: F-1, Tx Naive
Fibrosure, 7/20/15: F-1-2
Pre tx v/l: 1,600,000, ALT: 75, AST: 48
Started generic sofosbuvir & ledipasvir: 10/23/15
4 wk labs: 11/19/15, ALT: 21, AST: 16, V/L:  UND
Started 8 week Harvoni tx: 11/20/15
8 wk labs, 12/15/15, ALT: 15, AST: 13, V/L: UND
4/11/16 12 week EOT-Undetected
7/5/16 SVR 24

Offline bricksnsticks

  • Member
  • Posts: 10
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #4 on: October 26, 2015, 09:04:57 pm »
Hi Bricks and welcome to the club.

Hopefully things lighten up for you soon.I've seen a lot of people post their side effects and there is just no rhyme or reason for who gets them and why.Are you taking the riba also?I started the Viekira on the 17th and I've had one real bad day.It seemed like everything hit me at once and the next day they were more or less gone.

Btw I didn't even notice the Marquee until Gnatty mentioned it.I thought it was a ad. :)

Gnatty be glad you don't live in California using water like that.The SWAT team would be storming your house in the middle of one of your midnight runs,and drag you off to places people probably didn't know even existed. :)

No not taking anything but the Harvoni.

Offline bricksnsticks

  • Member
  • Posts: 10
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #5 on: October 26, 2015, 09:05:42 pm »
Hi B,
We are brothers in arms!!  Started my 12 week generic s & l treatment Friday as well.  I had a cold coming on, but started anyway.  Can't tell if I have any sides yet or not because of the cold, other than a little "hazy" on the mental front.
Happy for you!
CM

We walk this healing journey together.

Offline bricksnsticks

  • Member
  • Posts: 10
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #6 on: October 26, 2015, 09:06:11 pm »
Welcome, BnC.

What a powerful use of the Marquee effect -- mesmerizing! Sorry you've got Sx challenges, but maybe you'll have an easy time post-Tx, whereas I'm one of those who enjoyed the "Harvoni High" (extra energy, lessening of muscle & joint pain, etc.) during Tx only to experience the return of fatigue and pain post-Tx. What counts is whether the stuff cures us, which it is highly likely to do.

The brain fog is definitely not affecting your ability to write impeccably.

You're drinking extra fluids, right? Harvoni seems to like to guzzle the stuff. This week I got my water bill for the quarter that included 11 weeks of Harvoni :o. If only all those extra toilet flushes were tax-deductible as a medical expense!

Best wishes,

Gnatty

Thank-you so much.
Best wishes to you.

Offline Rosie13

  • Member
  • Posts: 297
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #7 on: October 26, 2015, 10:24:24 pm »
Hi bricksnsticks! Sorry to hear you got some tough starters there.I am almost finished month 2 & having been on the forum the whole time....experience has been really great.At the beginning I had lots of sides chills being one of them but we all have reported that the sides do go away & your body becomes used to Harvoni.I wonder when you take it...I have read some people take it at night to sleep the stuff off.Some get insomnia & that really sucks! When I took my med at noon I started getting insomnia so chose the late time instead ..sleeping really well now.Whatever you do it will all work out.Looking to hear when the chills finally go away.
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Coach Mike

  • Member
  • Posts: 292
    • Affordable Hepatitis C Treatment
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #8 on: October 27, 2015, 06:37:46 am »
Hang in there B!
My first three days were just symptoms and signs of a nasty cold, which I had. Now my wife has it and I am feeling much better. Yesterday-Day4-I felt something I haven't felt in years-a strange feeling of having energy to spare after a long day at school!! Maybe its my imagination, but I felt good. Headache is gone. I am looking at Dose #5. Down the Hatch! Off to sterlize a few million alien invaders in my liver!
Mike
Genotype 1a, Biopsy:11/2014: F-1, Tx Naive
Fibrosure, 7/20/15: F-1-2
Pre tx v/l: 1,600,000, ALT: 75, AST: 48
Started generic sofosbuvir & ledipasvir: 10/23/15
4 wk labs: 11/19/15, ALT: 21, AST: 16, V/L:  UND
Started 8 week Harvoni tx: 11/20/15
8 wk labs, 12/15/15, ALT: 15, AST: 13, V/L: UND
4/11/16 12 week EOT-Undetected
7/5/16 SVR 24

Offline chino1969

  • Member
  • Posts: 117
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #9 on: October 27, 2015, 10:17:42 am »
Bricks,
Hang in there. My first couple of weeks on Harvoni were a bit weird but nothing I could not handle.  I did Interferon/Riba 13 years ago and it was horrible.  The 24 weeks I did with Harvoni got better after the first month.  I worked full time so just stay the course.

I took mine in the morning with breakfast, drank about 1 gallon of water a day.  I slept well and my appetite was good.  Mental confusion and brain fog were apparent but appear to have subsided.  I started treat. 2/23/15 and ended 8/10/15.  Was SVR the whole time as well as 5 weeks EOT.  My 12 week EOT is coming up next week.  I feel very positive.
« Last Edit: October 27, 2015, 10:22:12 am by chino1969 »

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #10 on: October 27, 2015, 09:05:52 pm »
I hope you post your good news, chino!

Coach Mike, I came down with a nasty cold in my third week or so.  Thoroughly ruined my 'Harvoni High'.  :(  But my 4 wk lab work came back as undetected so YAY!!!

Welcome to both you and Bricks.   :)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Coach Mike

  • Member
  • Posts: 292
    • Affordable Hepatitis C Treatment
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #11 on: November 09, 2015, 08:04:52 pm »
Hi Brick,
How's it going? Got my 4 week labs scheduled a
11/20. Feeling really good!
I hope you are too!
Mike
Genotype 1a, Biopsy:11/2014: F-1, Tx Naive
Fibrosure, 7/20/15: F-1-2
Pre tx v/l: 1,600,000, ALT: 75, AST: 48
Started generic sofosbuvir & ledipasvir: 10/23/15
4 wk labs: 11/19/15, ALT: 21, AST: 16, V/L:  UND
Started 8 week Harvoni tx: 11/20/15
8 wk labs, 12/15/15, ALT: 15, AST: 13, V/L: UND
4/11/16 12 week EOT-Undetected
7/5/16 SVR 24

Offline bricksnsticks

  • Member
  • Posts: 10
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #12 on: November 10, 2015, 04:48:39 pm »
Hello,

I have blood work scheduled as well. Hope your doing well with the treatment. I have good days and some not so good. I sleep so much any more, maybe that's good. I don't know. Just scheduled delivery of my next 4 week refill of meds.
Let me know how you blood work goes.

Kat

Offline Coach Mike

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  • Posts: 292
    • Affordable Hepatitis C Treatment
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #13 on: November 10, 2015, 05:01:25 pm »
Will do Brick!
Your brother in battle.
Mike
Genotype 1a, Biopsy:11/2014: F-1, Tx Naive
Fibrosure, 7/20/15: F-1-2
Pre tx v/l: 1,600,000, ALT: 75, AST: 48
Started generic sofosbuvir & ledipasvir: 10/23/15
4 wk labs: 11/19/15, ALT: 21, AST: 16, V/L:  UND
Started 8 week Harvoni tx: 11/20/15
8 wk labs, 12/15/15, ALT: 15, AST: 13, V/L: UND
4/11/16 12 week EOT-Undetected
7/5/16 SVR 24

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #14 on: November 10, 2015, 05:12:12 pm »
Hello Brick,
I have the same questions as you as with you opened this thread.
I am now on day 8 and I cannot sleep well because op the speedy feeling inside, kind of arousal and headaches.
Good to hear that you are sleeping a lot, that must be,good for the healing body en the medical factory inside   ::) I guess.
I like to hear about your bloodwork.
My docter says he maybe will not do bloodworks during treatment...and I hoped he will change his mind. The only thing I heard yeatserday my alt was lowered from 145 to 45 in just 1 week   :)
When is your bloodwork?
I take sleepingpills to get some rest and relaxation because of the constant feeling of arousal and high bloodpressure. I hope that will become beter next week, Imhave now a week off from work for my study. I take the pill in the morning and during the day I feel fine  :D
I am new here and its nice to read and talk to my 'parners this boattrip' Together.
Whishing you and others all the best,

Groetjes Madelief x
« Last Edit: November 10, 2015, 05:13:49 pm by Madelief »
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline Rosie13

  • Member
  • Posts: 297
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #15 on: November 10, 2015, 06:42:47 pm »
Hi Medelief, sorry you are having sleep problems lately.We have all shared about our pill taking times & how sometimes during treatment you have to adjust that time.When I started in September I thought noon was a good time because I got so tired after taking dose that for 2 hours I just layed on the floor with my foster kitten.I used the morning to get all my stuff done & then the afternoons were just stop time.After awhile I started being more awake & taking my dose no longer caused drowsiness & at night I was tossing.So I changed my time to nightt & slept through everything awaking refreshed & feeling awesome.I hope you find the best time to rid you of sleeplessness. Lots of water! Be well!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline bricksnsticks

  • Member
  • Posts: 10
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #16 on: November 10, 2015, 10:24:02 pm »
So happy for you!!!   ;D ;D ;D ;D ;D

Offline Coach Mike

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  • Posts: 292
    • Affordable Hepatitis C Treatment
Re: HARVONI TREATMENT BEGAN FRIDAY, OCTOBER 23, 2015 12 Week Regimen
« Reply #17 on: November 25, 2015, 11:41:49 am »
You get your 4 week reults?
CM
Genotype 1a, Biopsy:11/2014: F-1, Tx Naive
Fibrosure, 7/20/15: F-1-2
Pre tx v/l: 1,600,000, ALT: 75, AST: 48
Started generic sofosbuvir & ledipasvir: 10/23/15
4 wk labs: 11/19/15, ALT: 21, AST: 16, V/L:  UND
Started 8 week Harvoni tx: 11/20/15
8 wk labs, 12/15/15, ALT: 15, AST: 13, V/L: UND
4/11/16 12 week EOT-Undetected
7/5/16 SVR 24

 


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