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Author Topic: latest research on Harvoni not being released by Gilead?  (Read 8134 times)

0 Members and 1 Guest are viewing this topic.

Offline CharlieM

  • Member
  • Posts: 8
latest research on Harvoni not being released by Gilead?
« on: November 10, 2015, 10:11:36 am »
Just heard this from my gastro doc yesterday.  He was trying to convince me that 8 weeks Harvoni will be as effective as 12 - have read all the research and it sounds like the jury is still out on that count.  He said that he had read some more recent research that "Gilead was refusing to release" saying 8 weeks=12 weeks.  Anyone heard of this?
Diagnosed 2005,
Acquired virus @ 1977
VL @ 2million
F3
treatment naive
Began Harvoni on 10/2
4 week SVR Undetected!!!!
appealing insurance for 12 weeks vs. 8.

Offline lin44

  • Member
  • Posts: 15
Re: latest research on Harvoni not being released by Gilead?
« Reply #1 on: November 12, 2015, 10:31:27 pm »
 I just finished 8 weeks of harvoni.My insurance company denied me the additional 4 weeks stating that their analysis of the scientific findings support the 8 week treatment. They feel it  is sufficient for na├»ve 1a with VL under 6 million who responds quickly. My doctor said it lowers my cure rate by only 1 PERCENT.
after 20 days my first blood was undetected.  Now I have the waiting game,
 

Offline CharlieM

  • Member
  • Posts: 8
Re: latest research on Harvoni not being released by Gilead?
« Reply #2 on: November 16, 2015, 08:21:23 am »
Thanks for your response, Lin44.  Sounds like we're in the same boat.  I'm still waiting to hear about the final answer in the next couple of weeks.  I'm  und at 4 weeks, and will finish the 8th week on Thanksgiving Day.  I think I've gotten caught up in that 1% difference.  Just never want to go through this again.  Trying to stay grateful that I've had access to 8 weeks of this amazing drug.  Great news about you test results!!!!!!  sounds like you'll be joining the CURED group@!!!
Diagnosed 2005,
Acquired virus @ 1977
VL @ 2million
F3
treatment naive
Began Harvoni on 10/2
4 week SVR Undetected!!!!
appealing insurance for 12 weeks vs. 8.

Offline Rosie13

  • Member
  • Posts: 297
Re: latest research on Harvoni not being released by Gilead?
« Reply #3 on: December 15, 2015, 03:44:15 pm »
I missed this thread in November but wanted lin44  & chariem to know I am in the sa!me 8 wk tx & share your concern.I don't want to have to go thru this again either.waiting now for my 12 results .praying we all will celebrate svr soon!Merry Christmas!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: latest research on Harvoni not being released by Gilead?
« Reply #4 on: December 15, 2015, 03:59:04 pm »
Good luck to all 3 of you - Rosie, Charlie, Lin! And may you all reap your SVR12 in the New Year!

kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: latest research on Harvoni not being released by Gilead?
« Reply #5 on: December 15, 2015, 04:22:27 pm »
Here is a link to a recent (last month) and very encouraging report on real world results for 8 weeks of Harvoni, evaluating a large group of German patients:

http://www.hepmag.com/articles/real_world_Harvoni_2501_28040.shtml

Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Rosie13

  • Member
  • Posts: 297
Re: latest research on Harvoni not being released by Gilead?
« Reply #6 on: December 15, 2015, 07:57:24 pm »
Thanks Kim! I feel pretty confident now but must say it was nerve wracking during the 2nd month when it was being denied.Grateful & hopeful as we enter the holidays.Traveling & having peaceful thoughts for us all.You are always there with the best comments....thanks !!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

 


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