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Author Topic: Pain under the rbs, right side  (Read 9389 times)

0 Members and 4 Guests are viewing this topic.

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Pain under the rbs, right side
« on: November 14, 2015, 03:49:08 am »
goodmorning!!
Since yesterday I have pain in the area where the liver or kidneys are. I started Harmoni 02-11-2015, so this is day 13.
Does anyone recognises this? Maybe it's a sign that te little orange ones are cleaning the  virus?
Sometimes I am a bit scared, the medicin is so new,ius it not damaging  but then I kick myself together because I know what I,m doing it for, but that is than in my dwelling mood.
Have a good day,
Greetz Madelief
« Last Edit: November 14, 2015, 04:39:55 am by Madelief »
Logged
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline jcar1175

  • Newbie
  • Posts: 1
Re: Pain under the rbs, right side
« Reply #1 on: November 14, 2015, 07:23:53 am »
The pain I get I believe to be post transplant scaring in the abdominal muscles below the ribs on the right side. The only pian issues I had before transplant were from ascites that got better after draining and diaretic treatment to help with fluid retention. Not much help in your case
Logged

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Pain under the rbs, right side
« Reply #2 on: November 14, 2015, 08:02:27 am »
Madelief, in your country, how do you contact a medical professional to get an answer to a question between appointments? If that is not easy to do, Harvoni's manufacturer, Gilead, does have "a 24/7 help line with nurses on call to provide answers and assistance" -- the web site is http://www.mysupportpath.com/help-along-the-way

Gnatty
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: Pain under the rbs, right side
« Reply #3 on: November 14, 2015, 01:56:49 pm »
Gnatty,
I can mail my docter, or call the hospital and ask them if the docter can call me back. And I have a appoinment november 23. The pain has gone away now.
Thank you,
madelief
Logged
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Pain under the rbs, right side
« Reply #4 on: November 15, 2015, 02:17:26 am »
Quote from: Madelief on November 14, 2015, 01:56:49 pm
Gnatty,
I can mail my docter, or call the hospital and ask them if the docter can call me back. And I have a appoinment november 23. The pain has gone away now.
Thank you,
madelief

Glad to hear the pain has gone away for now, Madelief. And welcome to the forums and the Harvoni Train! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: Pain under the rbs, right side
« Reply #5 on: November 15, 2015, 08:52:59 am »
Thanks Kim!
You are now post treatment and cured I read? You must be so glad , lots of congratulations!!!
Is it so that when the virus is undetectable it is for always gone? Unless reinfection but I think that there is nobody here who will overcome this ...
Madelief
Logged
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline TexasC+

  • Member
  • Posts: 72
Re: Pain under the rbs, right side
« Reply #6 on: November 15, 2015, 09:07:52 am »
Glad to read your pain is gone. I kept a small notepad and wrote questions for my doctor to ask during visits.
Harvoni is having some great results. YOU can beat this
Logged
Genotype 3a
diagnosis date 4/29/15
treatment naive
viral load 6 million
unknown date of infection
Sovaldi and ribaviron  24 weeks started 6/1/15
End of treatment date 11/15/2015 VND last 2 labs
3 month follow up 2/22/16 NEGATIVE !! NOT DETECTED

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Pain under the rbs, right side
« Reply #7 on: November 15, 2015, 01:43:14 pm »
Quote from: Madelief on November 15, 2015, 08:52:59 am
Thanks Kim!
You are now post treatment and cured I read? You must be so glad , lots of congratulations!!!
Is it so that when the virus is undetectable it is for always gone? Unless reinfection but I think that there is nobody here who will overcome this ...
Madelief

Hi Madelief. Yes, As far as I know, when these new drugs eradicate the virus and we are delcared 'cured', the virus is truly gone from the body. This is a real cure and not just a remission of disease or a suppression of the virus within the body.

The drug manufacturers call SVR12 a cure (no virus detected 12 weeks after end of treatment). And I have reached that. However most doctors (including mine) still want to wait until SVR24 before declaring a patient cured.  99.8% of patients who achieve SVR12 are still virus free at SVR24. So SVR12 seems to be a reliable indicator for being cured. And in the future it may become the new standard among doctors.

kim :)
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: Pain under the rbs, right side
« Reply #8 on: November 15, 2015, 01:50:49 pm »
Thanx Kim, I am so happy for you!!
Madelief
Logged
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Pain under the rbs, right side
« Reply #9 on: November 15, 2015, 02:05:19 pm »
Quote from: Madelief on November 15, 2015, 01:50:49 pm
Thanx Kim, I am so happy for you!!
Madelief

Thank you Madelief! It is a really good feeling to know this thing is gone from my body after 45 years of living with it! You will be there soon too. :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline jakas

  • Member
  • Posts: 265
Re: Pain under the rbs, right side
« Reply #10 on: November 15, 2015, 02:28:20 pm »
The pain you describe I have it for a year now. The docs found nothing is all the scans and tests. I still need to start the Harvoni
Logged
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3
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