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Author Topic: viekra pak and riboviran approved 11-24-15  (Read 14291 times)

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Offline Super mom

  • Member
  • Posts: 27
  • Life Is Like A Box Of Chocolates
viekra pak and riboviran approved 11-24-15
« on: November 26, 2015, 01:15:59 am »
Hello I'm new here  and very happy happy I found this forum   I finally got approved for the Viekra Pak and riboviran hope I spelled that correctly .  My question is for anyone who can give me honest answers. I got approved finally after denial a million times  yesterday  I got theeee best call of my life APPROVED...

 The Dr office said my meds should be delivered by ups or fed ex  any time  so my question is has anyone been approved and if so how long after approval did you recieve  your medication ??

Also anyone going thru this specific medication how are you doing on treatment ? What should I expect  I do understand everyone has gone thru or is going thru diffrent side effects I would appreciate  all honesty and opinions  I so appreviate everyone who gets back with me
Logged
Geno type 1a
No previous tx
approved for viekira pak & modariba

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: viekra pak and riboviran approved 11-24-15
« Reply #1 on: November 26, 2015, 05:00:11 am »
Hi Supermom, congrats! I did 24 weeks of Viekira Pak and ribavirin, I took my last tablet 3 months ago and I go for my 12 week post treatment test tomorrow.

For me, the ribavirin knocked me round the most. It caused me to get quite anaemic and I had to reduce the amount I took. I also found in the first two weeks that my bilirubin shot up to about 6 times what it should be, but it settled back down. I had some nausea and fatigue too.

I found sx slammed me in the 3rd and 4th weeks, but after that things went back to pretty much normal.

I blogged my entire treatment in a fair bit of detail, so if you want to read what various times were like for me, the link is in my sig below.

If possible, you might want to think about putting your genotype, treatment type and duration and any fibrosis score in a sig, just so we stop asking you the same questions. Most people do it to keep a track of how treatment is progressing, too.

Hope all goes well for you, sx will be different for everyone, but if you put one footinfrontoftheother you'll be done in no time.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: viekra pak and riboviran approved 11-24-15
« Reply #2 on: November 26, 2015, 05:32:31 am »
Welcome, Super mom. Does your doctor's office work with a specialty pharmacy to deliver expensive drugs like Viekira Pak? If so, the specialty pharmacy will probably phone you and tell you when to expect delivery.

I was on Harvoni, not Viekira Pak, but there are lots of Viekirans on these forums. They agree with Philadelphia that the ribavirin can be a challenge -- one side effect (sx) is that people on riba can become extra emotional, including quickly angry, so if you find that happening to you, you might have to explain to your family that it's due to the medicine, and they'll have their regular mom back after this treatment stage is over.

Best of luck to you.

Gnatty
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Super mom

  • Member
  • Posts: 27
  • Life Is Like A Box Of Chocolates
Re: viekra pak and riboviran approved 11-24-15
« Reply #3 on: November 27, 2015, 02:04:13 pm »
Gnatcatcher   im not sure about anything about the delivery of my meds or how it works with my Dr.office all I know o just got a call saying congratulations you were approved  and  to beon a look out for my meds  they will be delivered via fed ex or ups.

I am a wife of almost 10 years and mother of a 14, 13 ,11 year old boys  im 32 years old  I am very nervous to go thru this   my husband is very supportive as he him self tested posiitive for hep c virus  a-1  but his body rid it onits own LUCKY  but im sure nothing can really prepare us for the journey ahead of us ...

im truly hoping  tx will go great   im hoping for minimal  side effects  I'v never chatted with anyone who has gone thru this specific tx  I have read up up on the medication alot 

I do plan on hloding a family meeting when I recieve my medication  and explaing to everyone what i will be going thru  I just dont want my kids stressing out about me

thank you so much for your advice
Logged
Geno type 1a
No previous tx
approved for viekira pak & modariba

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: viekra pak and riboviran approved 11-24-15
« Reply #4 on: November 27, 2015, 02:20:07 pm »
 Super Mom

Happy word you 'now' know

APPROVED!!!!!

Happy word you 'will' know

UNDETECTED!!!!

You have a supportive family, that and the meds is all you need.  Not everyone has a big issue with riba...but, if you do, just know that there were many before you that got through OK, and it will take a sense of humor.  It's a ride and you will be OK.  I look forward to hearing your future posts and all that good news...and the humor that the riba folks deliver to all the threads.  You have this forum and a supportive family AND you are lucky enough to have the cure on its way.  Enjoy.
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Super mom

  • Member
  • Posts: 27
  • Life Is Like A Box Of Chocolates
Re: viekra pak and riboviran approved 11-24-15
« Reply #5 on: November 27, 2015, 02:29:23 pm »
Beto , Thank you so much  ;D  I plan on a full recovery  so can be free of these chains
 I just want to be healthy and happy for myself and my family I do plan on  documenting my whole journey   thru this forum and you tube
Logged
Geno type 1a
No previous tx
approved for viekira pak & modariba

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: viekra pak and riboviran approved 11-24-15
« Reply #6 on: November 27, 2015, 05:47:57 pm »
Super mom, you sound very well prepared. Having a supportive spouse is priceless. You are going into this with a good attitude -- that helps make things go smoothly. I hope some of the Viekirans will find this thread soon -- there are quite a few with great senses of humor who can become wonderful companions along the journey. Every good wish,

Gnatty
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline guitarplayer86

  • Member
  • Posts: 34
Re: viekra pak and riboviran approved 11-24-15
« Reply #7 on: November 27, 2015, 07:28:38 pm »
Hey .. just wanted to wish you good luck. Im in the same spot im 29 .. I start my viekira with riba in the morning so feel free to hit me up ill be posting during my treatment as well and I as well am nervous but excited to rid this disease. Goodluck n Godbless
Logged
Hcv 2014 vl 1.6 mill
12 weeks harvoni ud
Six months post relapsed
Vl 330,000 started viekira pak with riba 11/28/15
2 week labs. VL Undetected ast alt wasnt checked

Offline Super mom

  • Member
  • Posts: 27
  • Life Is Like A Box Of Chocolates
Re: viekra pak and riboviran approved 11-24-15
« Reply #8 on: November 27, 2015, 08:59:35 pm »
Guitarplayer86
thank you and congrats  to you starting treatment  I havent chatted much with anyone who is on these same meds please do keep us in the loop  and how you feel on your tx journey  how long  did it take for you to get your meds ?
 
Today I got a package with  all the medicine info from a company called  proCeed   im not sure how long it will be till I get me meds tho and I can totally understand your feelings im feeling the same

you're going to  do GREAT  #StayStrong #PositiveAttitude # KeepYourEyeOnThePrize #Fight
Logged
Geno type 1a
No previous tx
approved for viekira pak & modariba

Offline guitarplayer86

  • Member
  • Posts: 34
Re: viekra pak and riboviran approved 11-24-15
« Reply #9 on: November 27, 2015, 10:43:18 pm »
Yes proceed is the company that does the meds through abvie. Did your doctor send them the prescription. The way it worked for me is they sent the prescription then proceed called three weeks later and aproved me for theire assisted patient program and its been over a month in all and I got the meds today. They are pretty good about it. If I were you I would call proceed and find out where you are in the process. It helps to stay on top of it cuz sometimes there might be a,lapse in communication and you staying on them could speed it up but I hope you get yours soon and if you need everyone on here is great and you can hmu anytime if u need someone to talk to bout this. Feel free to pm or hmu on facebook. Goodluck my friend
Logged
Hcv 2014 vl 1.6 mill
12 weeks harvoni ud
Six months post relapsed
Vl 330,000 started viekira pak with riba 11/28/15
2 week labs. VL Undetected ast alt wasnt checked

Offline Super mom

  • Member
  • Posts: 27
  • Life Is Like A Box Of Chocolates
Re: viekra pak and riboviran approved 11-24-15
« Reply #10 on: November 28, 2015, 01:22:38 am »
guitarplayer86
thank you so much for the advice  I plan on calling monday I did speak with my dr.office and they did tell me the company tried calling me  Re:delivery so will most  def contact on monday  im really hoping tx goes well for you ..

I will be checking post to see how your first day of tx goes and to see how you pulling along my friend you will do just great  ...

thank you so much for telling me I can stay in touch  best wishes my friend
Logged
Geno type 1a
No previous tx
approved for viekira pak & modariba

Offline BillT

  • Member
  • Posts: 573
Re: viekra pak and riboviran approved 11-24-15
« Reply #11 on: November 28, 2015, 12:33:22 pm »
Hi Super Mom and welcome to the forum,
                           I on the Viekira only but was on the interferon and ribas in 2004(unsuccessful).The biggest thing you can do for yourself right now is relax.You've been approved and the meds are on their way so it's all good.You'll have plenty of time to stress later...um...did I just say that out loud? :) Seriously you're going to be just fine and you're on your way to getting cured.The sx are effecting everyone differently as has been pointed out so until they start don't even give them a thought.There are ways to deal with them so just ask.I haven't had any to speak of,or at least they didn't last long.As Philly said one foot in front of the other.I like the family meeting thing.If they have any questions that you can't answer just ask them here and we'll do our best to get you one.This is a great group of people and we're laughing and crying our way to SVR.You're not alone so join the conga line.Remember that this isn't a forever thing and you will get there.


    Oh and never forget the Viekirian motto now that you're one of us:  "We don't take no stuff from no stinking virus." 8) 
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline BillT

  • Member
  • Posts: 573
Re: viekra pak and riboviran approved 11-24-15
« Reply #12 on: November 28, 2015, 01:02:33 pm »
While I'm at it Super Mom,
                                     Tell you husband to hide the cutlery.He'll understand and thank me later. :)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Super mom

  • Member
  • Posts: 27
  • Life Is Like A Box Of Chocolates
Re: viekra pak and riboviran approved 11-24-15
« Reply #13 on: November 28, 2015, 07:48:18 pm »
BillT
Thank you for your kind words  and I definitely had a great laugh over your last  post   he said  he's going to seal up the whole kitchen  and super glue all the throwable things in the house lol

You're absolutely right  I should not stress myself out   apart of me is second thinking this whole thing I keep asking myself if im strong enough to do this  then I remind myself that im stronger then I think....

 Im super happy I found this support group  im new here but can already feel the love  from everyone   I thank you very much  for your kind words and very funny words of advice   im here to join the conga line
Logged
Geno type 1a
No previous tx
approved for viekira pak & modariba

Offline Super mom

  • Member
  • Posts: 27
  • Life Is Like A Box Of Chocolates
Re: viekra pak and riboviran approved 11-24-15
« Reply #14 on: November 28, 2015, 07:59:05 pm »
Quick question is there any  warning about getting flu shot before tx  because I have not gotten my flu shot and do to start tx  next few day to week   is it safe to get and take  before tx
Logged
Geno type 1a
No previous tx
approved for viekira pak & modariba

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: viekra pak and riboviran approved 11-24-15
« Reply #15 on: November 28, 2015, 08:12:00 pm »
It sounds like you enjoy BillT's humor every bit as much as I do. As to getting the flu shot, please DO! I got mine during Tx, but before is fine, too. Our RN moderator Lucinda Porter wrote, "I asked three well-known hepatologists if they recommend the flu shot to patients on current hepatitis C treatment, and they all said 'yes.'" That excerpt came from here:
http://blogs.hepmag.com/lucindakporter/2014/09/hepatitis_c_and_flu.html
   In this year's post, Lucinda recommends being sure to get enough sleep after you get the shot, to maximize its effectiveness: http://blogs.hepmag.com/lucindakporter/2015/09/hepatitis_c_or_no_he.html
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Super mom

  • Member
  • Posts: 27
  • Life Is Like A Box Of Chocolates
Re: viekra pak and riboviran approved 11-24-15
« Reply #16 on: November 28, 2015, 08:21:53 pm »
gnatcatcher

Thank you so muchh and yes I sure do enjoy BillT 's sense of humor I will be sure to read that thread thx you just saved a worry for me thx
Logged
Geno type 1a
No previous tx
approved for viekira pak & modariba

Offline Super mom

  • Member
  • Posts: 27
  • Life Is Like A Box Of Chocolates
Re: viekra pak and riboviran approved 11-24-15
« Reply #17 on: November 29, 2015, 12:50:22 am »
To: Anyone who can answer another ?  For me yes I know another question
so im on suboxion 1/2 strip every morning  .. is being suboxion safe to take with abbvie pak and riba ?

im trying my hardest to stop stressing  but I just want to be sure my doc knows what he is doing cuz my doc is one of those that just says everything is fine he seems to have an issue with just being honest  .....

im not seeing any type of specialist just a good ol  clinical physician he has not botherd to even talk about side effects or the tx priod that I will be going thru here in the next week or so  just kinda been tske the meds youll be fine ...

yes yes yes im going to slow my stressing down  im just one of those people that is afraid of the unknown
Logged
Geno type 1a
No previous tx
approved for viekira pak & modariba

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: viekra pak and riboviran approved 11-24-15
« Reply #18 on: November 29, 2015, 06:31:08 am »
If you have a smart phone, open your App Store or google play and search for the University of Liverpool Hep iChart. Lists many many drug interactions with hc drugs. Useful app.

If you are talking about buprenorphine, it lists a possible interaction - a warning to check cognitive effects and sedation. No mention of drug dose  reduction.
« Last Edit: November 29, 2015, 06:37:49 am by Philadelphia »
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline BillT

  • Member
  • Posts: 573
Re: viekra pak and riboviran approved 11-24-15
« Reply #19 on: November 29, 2015, 09:46:43 am »
Good morning Super Mom and Gnatty,
                                                     I got my flu shot 3 days before I started treatment without even thinking about it.It wasn't until I saw them to get my meds that it even came up.I got lucky.As far as my sense of humor goes,I didn't know I had one.At least that's what every kid that knows me will tell you. 8)


             "If you kids want your ball back you'll have to mow my lawn first."


I didn't know about that app Philly.That helps a lot.Thanks :)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Super mom

  • Member
  • Posts: 27
  • Life Is Like A Box Of Chocolates
Re: viekra pak and riboviran approved 11-24-15
« Reply #20 on: December 07, 2015, 09:21:50 pm »
Tomorrow first day of tx  :o so many emotions but  I'm going into this strong 
Logged
Geno type 1a
No previous tx
approved for viekira pak & modariba

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: viekra pak and riboviran approved 11-24-15
« Reply #21 on: December 07, 2015, 09:29:20 pm »
You'll do great, Super Mom! Go get 'em!  :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/
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