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Author Topic: EOT 12 Next Week  (Read 31342 times)

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Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
EOT 12 Next Week
« on: December 24, 2015, 10:28:05 pm »
  Well here We are! Next week I go in for EOT 12 blood work. Trying to stay upbeat. The Holidays are helping. Off work on vacation for the rest of the Year. Plenty of time to rest up & recharge the old batteries. Seem to be a little scatter brained. More so than usual. Not like brain fog, just not always able to connect the dots. Been mostly skulking around & reading posts. Longing for an extended tip to the country, but the funds are lacking.
 Been feeling pretty good lately. Still getting a Migraine every couple of weeks. Not near as severe or long lasting as before. Lots of back and neck pain , as well as joint pain ( knuckles, knees, hips , and feet.) Once I get moving and get a hot shower it subsides to manageable. Against My better judgment I have been taking some pain meds. when it gets bad. Somas and Vicodin. With My past history I have to be extremely careful to not over do it.
  Seem to have the lower G.I. distress under control. Started drinking Kefir smoothies with Blueberries or Strawberries. Pretty good stuff. Plenty of good bacteria for the gut. Works like a charm after everything else I have tried over the last eleven weeks.
  Felt so good Yesterday that I baked Myself a Pecan Pie. Then made 3-4 dozen Triple chocolate chip cookies for Tomorrow. Thought about Else while I was baking them.
  Still a little apprehensive about blood work outcome. But the odds are on My side, so-----! The little green monster sitting on My shoulder just won't give it up. I choose to enjoy the Holidays and My family and deal with what comes when it comes. I'll cross that bridge when I come to it. So greatful for so many things and so many of You here on the forums that it really doesn't worry Me that much.

 HERE IS TO ALL OF YOU WARRIORS AROUND THE WORLD. I WISH YOU ALL GOOD HEALTH AND THAT YOUR BLESSINGS BE MANY. HOLD YOUR FRIENDS CLOSE AND YOUR FAMILY CLOSER. REVEL IN THE REALITY THAT OURS IS A TRUE AND WONDERFUL SECOND CHANCE AT A LIFE THAT WE HAVE MISSED BATTLING THE VIRUS AT THE COST OF MANY THINGS AND MANY PEOPLE. PAY IT FORWARD, PASS IT ON, OR WHATEVER MAKES YOU HAPPY!

 Merry Christmas and Happy New Year to all. Oh yea, and My personal message, too ;D
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: EOT 12 Next Week
« Reply #1 on: December 24, 2015, 10:32:50 pm »
Way to go, Tommy! I am sure you will emerge victorious next week after your EOT 12 labs.

Happy Holidays to you & yours,
kim :)
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #2 on: December 24, 2015, 10:36:48 pm »
 Right back at You My dear, hope this finds You feeling well. Thanx for the Well Wishes and enjoy Your Holidays :D
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: EOT 12 Next Week
« Reply #3 on: December 25, 2015, 03:29:50 am »
The odds are in your favour. And you are a warrior. All will be well. :)
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline gnatcatcher

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  • Posts: 1,372
Re: EOT 12 Next Week
« Reply #4 on: December 25, 2015, 04:57:17 am »
Quote from: slats1056 on December 24, 2015, 10:28:05 pm
. . .
Been feeling pretty good lately.
. . .
Tommy, your upbeat, caring posts help the rest of us in Heplandia feel good, so you deserve to feel great. About the pain meds: you have the wisdom of experience, and your wariness towards them will help avoid the pitfalls.

A wonderful Christmas to you and yours, and may your new year be rrrreeeeeally happy!

Gnatty (whose ALT and AST results are back and looking good: sending that + vibe to you, good buddy)
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: EOT 12 Next Week
« Reply #5 on: December 25, 2015, 05:35:20 am »
Nice numbers there Gnatty!
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #6 on: December 25, 2015, 09:51:50 am »
 A last moment of peace & quiet before all hell breaks loose here on the home front. A moment of clarity and retrospect for sure.
  First, here is to all of You caring folks out there in Heplandia that make everything so much more bearable before, during , and after treatment. I don't think We realize the impact that We have on each other here! Now that is a real Christmas present that should blow Your dress up!
  Second, the wealth of knowledge & research of everyone here is truly amazing. Between us , there is probably more info. than in the entire medical community. Yet not a doctor in the lot. Just think of the expense one would incur to achieve that level of knowledge and what good it could be put to if condensed and applied to do good?
 

  Philly, You must be at the top of Santas' VERY good list. What with the SVR thing going on , going to see family in Canada, a trip down the Eastern seaboard, and a trip to Cuba. You deserve it by the way.

  Gnatty, Always there with the right words and encouragement. You should be named the Honorary Mother Hen and Logistics Queen of the Order of Warriors of Heplandia! Hope You and the Family have a great holiday season. Thanx for the thoughts and vibes My Dear Buddy. You have no idea the enjoyment our conversations and posts have meant to Me. By the way , We are running around in shorts, tee shirts, and flip flops right now. A real redneck Christmas .
 
 WHEN YOU FALL, I WILL BE THERE TO CATCH YOU---- LOVE, THE FLOOR! ;)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: EOT 12 Next Week
« Reply #7 on: December 28, 2015, 02:03:55 pm »
Shorts, tshirts and flip flops? That's not a redneck Christmas, it's an Australian one!
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: EOT 12 Next Week
« Reply #8 on: December 28, 2015, 03:18:04 pm »
Quote from: Philadelphia on December 28, 2015, 02:03:55 pm
Shorts, tshirts and flip flops? That's not a redneck Christmas, it's an Australian one!

That's a Hawaii one too!  8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

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  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #9 on: December 30, 2015, 12:12:02 am »
 Yeah , but it's supposed to be semi cold here on the third coast! :o ??? ::)

 The old body seems to have taken a turn for the worst after Xmas. Went to the Chiropractor and Massage Therapist for the back & neck issues Monday. Go back in Tomorrow & also will see the Physical Therapist. Will be discussing different types of massage as well as possible acupressure/acupuncture treatment. Will be talking about the Migraines also.
 G.I. said check with G.P. about Migraine and lower g.i. issues. He referred Me to an internist who I also see tomorrow. The internist is a well known Head of Emergency room and Trauma surgeon at My hospital that has gone into private practice. Apparently He is highly trained and schooled in both Eastern and Western Medicine as well as Acupuncture/Acupressure treatment also!
 Then I also have two or three lab trips this week also. So much for Vacation down time! :( ??? ::). The only one I give a crap about right now is My SVR12 labs. Getting antsy just thinking about it as we speak!

 A HOSPITAL IS NO PLACE TO BE SICK. Samuel Goldwyn
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: EOT 12 Next Week
« Reply #10 on: December 30, 2015, 02:09:12 am »
I'll be glad when you can get your lab results... again my crystal ball says SVR. :)

I hope the rest of the med stuff can get organized and you can get some relief so you can relax.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline gnatcatcher

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  • Posts: 1,372
Re: EOT 12 Next Week
« Reply #11 on: December 30, 2015, 05:37:55 am »
Hi, Tommy -- Sorry Santa didn't bring you better health. It's hard to picture our tall Texan getting stuck full of needles like a voodoo doll, but if that's what it takes.... Looking forward to welcoming you to the other side!

Gnatty
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #12 on: December 30, 2015, 11:02:05 am »
  Bree, Crystal balls be damned! :P :D 8) ( NO OFFENSE just a statement) . I got this and I know it. Just need to see it on the official letter head for peace of mind!
  The weather finally cooled off to where I had to put on some shoes and a long sleeve shirt and pants after Xmas. Sounds like You are doing most excellent these days! Glad to see that, Keep up the motivational cheer and innate bubby attitude that You have. It's very infectious in case You didn't know it. I need to catch a big ol' case and not treat it! LOL! 8)

  Gnatty,  Santa was actually pretty good in that I felt pretty good through most of the Holidays. The whole CREW,(Kids , grandkids , dogs , & granddogs LOL, were here for Xmas. Made pancakes & bacon for seven people and and four dogs! I was a little tired but it was great. Kicked back after the present melee and let the girls do up a righteous midafternoon lunch. I miss the crowd. but not the mess! LOL!
 By the way , I prefer to think of it as a Texas size Prickly Pear Cactus instead of a puny little ol' Voodoo Doll! Also, don't stand in front of the door on the other side! I plan on kick in' that Sumbitch off the hinges God willing & My back don't go out!! 8) 8) 8) 8) 8) 8) 8)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: EOT 12 Next Week
« Reply #13 on: December 31, 2015, 02:15:39 pm »
I'm so excited about your upcoming labs, Tommy!!!  Been off the boards doing holiday galley duty.

Awesome that you got your tummy-troubles sorted out for the most part.

It sounds like your doctors still have some fine-tuning to do.  I like that your new doctor has a broad range of training and expertise.  That is huge!

I'm moving up on 4 wks post-tx.  Antsy is a good word.  Aside from sleeping 10 hours a night, all is well.  Two more months before I see... who?  My liver doctor is closing her practice as of today.  Hopefully, all follow-up care can be done by my GP.  Just bloodwork, I'd think.

Speaking of bloodwork, ya'll should have seen the inside panel on my car door.   ;D  A little home car repair cost me the skin on my knuckles.  Happened early on so I got to bleed all over everything - stupid bandaids float right off.  But duct tape and papertowels worked great.  And I fixed it!!!   ;D 

Now on to the chainsaw today!  (no, I probably shouldn't be doing it!  :o)



Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #14 on: January 01, 2016, 01:17:49 am »
 Hey Else,  Hope You had a good Xmas with the family. What are these bandaids You speak of??? Hell, duct tape , masking tape , electrical tape and papertowels are the standard down here in Texas. As long as it don't need stitches, pour some alcohol or Merthiolate on it & go to town wrapping it up!
  Will You be getting an SVR4 blood test? Hopefully You can hook up with a new Doc that You trust & like. The GP should be able to order Your blood work as needed.
 BTW, I'm not allowed to play with the chainsaw as last time I missed the bed of the truck with the tree and it landed on the cab! Close only counts with hand grenades, horseshoes, and nukes!LMFAO!
  Funny that for the last 7 or 8 months My blood pressure has been 135-140 over 75-80, now it has jumped to 150-160 over 88-93!! That just adds insult to injury. Now I go on BP Meds. Lucky shit, Huh? Chiropractor/Physical Therapist/masseuse seems to be making some head way on the body issues. Internist want to give BP Meds a month to see if the Migraines go away. If not it back to a new battery of tests to try to determines the cause. Says a CAT scan will be the first stop. It just never seems to stop. By the time I can retire , I won't have the money to do so. Can You see Me as the Greeter at Walmart. GET YOUR CRAP AND GET OUT OF HERE LADY!TAKE YOUR RUGRATS WITH YOU!  LOL!!
  Oh well, when life gives You lemons , make a crude electrochemical battery!

 HAPPY NEW YEAR EVERYONE, IT SOUNDS LIKE WORLD WAR THREE JUST ERUPTED OUTSIDE!


 
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: EOT 12 Next Week
« Reply #15 on: January 01, 2016, 12:22:14 pm »
Happy New Year all!!!  ;D

I hope the BP meds help with your migraines.  Do you have a BP cuff at home so you can monitor your own blood pressure?  You might be able to map out some sort of pattern.

But it does sound like you're getting things tended to, one at a time.  Think of yourself as a home renovation.  Or is it restoration?   :o

No more blood tests for me until 12 wks post-treatment.  My GP wants me to contact the liver clinic to contact her with follow-up protocol.  I'll call on Monday - here's hoping they'll do that.

p.s.  loves me some chainsaw!  It's hard to stop once I get going.  I get a 'slash and burn' mentality going.  :)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: EOT 12 Next Week
« Reply #16 on: January 02, 2016, 05:11:10 pm »
Quote from: slats1056 on January 01, 2016, 01:17:49 am

  Oh well, when life gives You lemons , make a crude electrochemical battery!

lol.  love it.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #17 on: January 02, 2016, 11:47:59 pm »
 Well, here We go! On the road again, I ain't been on the road in a day or two! ??? The road to repairing this ol' fixer upper body of mine. Started My BP Meds. this morning. I think it was Philly or Bree who said that keeping busy helps with the waiting (i.e. lab results ) but this is ridiculous.  The last two weeks I been to My G.I.once, internist once , chiropractor three times , physical therapy, masseuse three times, and the lab twice. I have five or six appts. set up for the next two weeks allready. I swear that I have been to more Doctors in the last two weeks than In the last twenty years!!!!! :o :( >:( ??? ::) :P
  But, if I am going to talk the talk, I'm going to walk the walk! Get to steppin' Big Boy. Onward through the frogs as it were. Keep on truckin' mamma! It does seem more than a little strange that I had didn't have Migraines or high blood pressure before Tx.! During Tx. the Migraines came but BP was O.K., now the BP goes up and Drs. say it is the BP causing the Migraines :o :o :o :o >:( Not that I'm blaming the Harvoni, it is just plain annoying the way they talk around in circles when a readily apparent cause is not apparent and they are not capable of saying " Sorry we don't know"  ???
  Oh well, more trials and tribulations of a Hepper. Suck it up. Same story different chapter. I got this , I just don't know when I'll be able to get a grip on it or when it will end! Probably never ;D ;D ;D

 IF IT AIN'T ONE THING , IT IS A DOZEN OTHERS!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: EOT 12 Next Week
« Reply #18 on: January 02, 2016, 11:58:50 pm »
Quote from: slats1056 on January 02, 2016, 11:47:59 pm
Well, here We go! On the road again, I ain't been on the road in a day or two! ??? The road to repairing this ol' fixer upper body of mine. Started My BP Meds. this morning. I think it was Philly or Bree who said that keeping busy helps with the waiting (i.e. lab results ) but this is ridiculous.  The last two weeks I been to My G.I.once, internist once , chiropractor three times , physical therapy, masseuse three times, and the lab twice. I have five or six appts. set up for the next two weeks allready. I swear that I have been to more Doctors in the last two weeks than In the last twenty years!!!!! :o :( >:( ??? ::) :P
  But, if I am going to talk the talk, I'm going to walk the walk! Get to steppin' Big Boy. Onward through the frogs as it were. Keep on truckin' mamma! It does seem more than a little strange that I had didn't have Migraines or high blood pressure before Tx.! During Tx. the Migraines came but BP was O.K., now the BP goes up and Drs. say it is the BP causing the Migraines :o :o :o :o >:( Not that I'm blaming the Harvoni, it is just plain annoying the way they talk around in circles when a readily apparent cause is not apparent and they are not capable of saying " Sorry we don't know"  ???
  Oh well, more trials and tribulations of a Hepper. Suck it up. Same story different chapter. I got this , I just don't know when I'll be able to get a grip on it or when it will end! Probably never ;D ;D ;D

 IF IT AIN'T ONE THING , IT IS A DOZEN OTHERS!

Thats just it... they don't know.... and too proud to say otherwise.
My pcp prescribed an steroid inhaler during tx.  Just to be safe , I researched it when I got home and found out that if I have used it , it would have caused some weird damaging syndrome.
When I told him I wasn't using it , he prescribe another inhaler.  This one had no issues, but it made me feel like crap and didn't work.   It also made a weird patch on the back of my throat (thrush?) , that made me try to swallow it all the time.  Went away after I ceased use.  one thing after another.  ugh.
 
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Else

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Re: EOT 12 Next Week
« Reply #19 on: January 03, 2016, 01:14:51 pm »
Way to go, Tommy.  Just keep putting one foot in front of the other, frogs be damned.  (Frogs?  :o)  When is your viral load test?

I wish they knew by what mechanism the Harvoni causes headaches in the first place.  There seems to be a missing puzzle piece.  The resulting headaches are so well-documented, you'd think there would be some research into the cause.  As in, "the medicine is doing this as well as acting as an anti-viral.  And this causes headaches."  What is the this???

DM, I'm so glad you checked out that inhaler first!  A good lesson for all.  Do your own homework, as much as possible.  Rxlist.com is a good place to start, along with a general google search.  It would be so lovely to just blindly trust all doctors and rely on their years and years of education.  But you just can't do that.  There's too much info, too much new info, too many patients, etc.



Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

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Re: EOT 12 Next Week
« Reply #20 on: January 03, 2016, 04:36:20 pm »
 Else,
    Got an extra BP cuff and am taking an AM and PM check to make a record. Did My blood draw 12-30 , so I should get results in a week or so. If not G.I. check up is 1-18 for EOT 12 week post appt.
    Frogs are a reference to the little bastards in My brain hopping around & mixing things up for Me. I am lucky that the headaches are getting fewer and less severe allready. Maybe the BP Meds. will help. Keeping My fingers and toes crossed! :) :) ;)
   Hoping this will make a difference for future Tx'ers. The new Internist wants to take care of the obvious before tackling the obscure to see what happens.

 MY DOCTOR TOLD ME TO START KILLING PEOPLE. WELL, NOT THOSE EXACT WORDS! HE SAID I HAVE TO REDUCE THE STRESS IN MY LIFE. SAME THING :D ;) :D :)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

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Re: EOT 12 Next Week
« Reply #21 on: January 03, 2016, 04:55:21 pm »
Quote from: slats1056 on January 03, 2016, 04:36:20 pm
  MY DOCTOR TOLD ME TO START KILLING PEOPLE. WELL, NOT THOSE EXACT WORDS! HE SAID I HAVE TO REDUCE THE STRESS IN MY LIFE. SAME THING :D ;) :D :)

LOL  ;D
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

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Re: EOT 12 Next Week
« Reply #22 on: January 03, 2016, 05:00:30 pm »
 :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :   Sounds good anyway! Besides , the chainsaw would come in handy! Or maybe a wood chipper? :o ::) ???
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline drummerman

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Re: EOT 12 Next Week
« Reply #23 on: January 03, 2016, 05:04:38 pm »
Quote from: Else on January 03, 2016, 01:14:51 pm


DM, I'm so glad you checked out that inhaler first!  A good lesson for all.  Do your own homework, as much as possible.  Rxlist.com is a good place to start, along with a general google search.  It would be so lovely to just blindly trust all doctors and rely on their years and years of education.  But you just can't do that.  There's too much info, too much new info, too many patients, etc.

yep,  I was surprised (not!) that the pharmacist did not catch this.
thank god for the internet.
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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Re: EOT 12 Next Week
« Reply #24 on: January 03, 2016, 05:06:09 pm »
Quote from: slats1056 on January 03, 2016, 04:36:20 pm


 MY DOCTOR TOLD ME TO START KILLING PEOPLE. WELL, NOT THOSE EXACT WORDS! HE SAID I HAVE TO REDUCE THE STRESS IN MY LIFE. SAME THING :D ;) :D :)

Damn Tommy, where do you come up with this? too funny!  Looking for laughing emoticon!
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline slats1056

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Re: EOT 12 Next Week
« Reply #25 on: January 03, 2016, 05:12:13 pm »
 A demented mind is a terrible thing to waste! ;) :o 8)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline slats1056

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Re: EOT 12 Next Week
« Reply #26 on: January 03, 2016, 05:32:41 pm »
 CHEPCFREE!!!

  Are You out there skulking around? Haven't seen anything from You in a while. Hope You are doing O.K. and all is good. Here is hoping You are feeling better.
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline slats1056

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Re: EOT 12 Next Week
« Reply #27 on: January 18, 2016, 01:38:28 pm »
 Well, Today is the day!!!! I go in this afternoon for My post EOT 12 week Lab results at G.I. Doc.! Actually have a mild feeling of paranoia at the thought of the appointment. However, I need the results straight from the horses mouth as it were. Then , Wednesday I go in for results from a new set of Labs. for My Internist. Been feeling pretty shitty lately. Headaches, though less severe are still around. Tired most of the time even while sleeping good. Every 10-14 days the lower G.I. issues pop up out of nowhere for 2-3 days then go away. Body & joint aches are being kept in check with Chiropractor, Massage Therapy(Lymphatic stimulation not deep tissue), and some P.T. advice. Neck , back , shoulders, and knees mostly. Very annoying, however not debilitating. Still working 45-50 hours a week. ( Can't afford not to.)
  Blood pressure still up in the 145-160 over 85-95 range even on Meds. I started 1-2-16. I get the feeling the dose is fixing to go up. Wish I knew the cause of that???? Odd little patches of itchy rash popping up & disappearing just as fast. When they stick around for a little while I have been using Corn Huskers lotion and Petroleum jelly to control it.
 Been wondering if the lower G.I. issues is the body purging itself of toxins and dead liver tissue? Stands to reason , since the liver is in bad shape and the virus has been wreaking havoc since 1973!
  Don't misread into this that I am blaming the Meds, I AM NOT! I knew going into treatment that this wasn't going to be easy. Still have a positive mind set. Knowing from reading other posts that this could take 6-12 months or possibly longer to level out.
  The thing I miss most is the level of concentration to read more than a chapter or two of a good book before losing concentration or getting blurry vision. I have about six or eight rather lengthy books to catch up on as I improve. Any way----------- :( :( ??? ??? ::) ::) :P :P :-X :-X :-\ :-\ 8) 8)!

 Hope everyone is doing better or improving little by little as I am! Especially Cal and Marianne , both of whom I have not seen nor heard from in a long time.

 TO ALL OF YOU OTHER NOBLE WARRIORS FOR THE CAUSE I RAISE A REBEL YELL TO GO FORTH INTO BATTLE WITH. FIGHT WELL AND FEAR NOUGHT. FOR GOD IS ON OUR SIDE!

  I THINK IT BETTER TO DO RIGHT, EVEN IF WE SUFFER IN SO DOING, THAN TO INCUR THE REPROACH OF OUR CONSCIENCES AND POSTERITY.  Robert E. Lee

   
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline KimInTheForest

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Re: EOT 12 Next Week
« Reply #28 on: January 18, 2016, 01:52:41 pm »
Good luck today, Tommy on your EOT 12 tests!! I am going in today for my EOT 24.

I hear ya about feeling like a train wreck post-treatment. All I can say is that, whatever the cause of this post-treatment 'syndrome' that strikes some of us, it does seem to gradually lessen and disappear. I am FINALLY at a good level of functioning again. And I would say my brain is definitely working better than before treatment. But it took me most of 6 months post-tx to get to this point. And I had many weird things going on in my first months post-tx that I never experienced during tx or prior to tx. But that stuff's pretty much gone now. :)

I think the lymphatic stimulation is one of the most important things you can do at this point - whether by self massage, or professional lymphatic massage, or even just walking and bathing. All help.

good luck!

kim
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Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Bree

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Re: EOT 12 Next Week
« Reply #29 on: January 18, 2016, 01:57:54 pm »
Good luck Tommy today!  I'll be excited to hear your news.

Sorry you have had a such a go of it.  The things I have experienced (and there are some) have been minor for the most part in comparison.

Thinking of you and happy you'll get this part over with. Bree  8) 
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

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Re: EOT 12 Next Week
« Reply #30 on: January 18, 2016, 02:08:44 pm »
 Thanx Kim. I have been talking with several of the Massage Therapists about the Lymphatic system and manipulation. I wanted to have some deep tissues massage for the back and neck muscles, but the Chiro & therapist say NO!!! The lymphatic system responds to gentle massage and movement.  Deep tissue manipulation closes the passageways, therefore RETAINING fluids rather than RELEASING them. Also, they have been showing Me self massage and movement techniques I can do on My own. Funny that one came up is bouncing on the trampoline for short periods in My spare time. Still have the big ass trampoline in the back yard that I bought for the kids Years ago. Still in good shape too! Still have several certificates to use as needed for Massages . I bought a bundle package when I first saw the chiropractor.

                 Thanx Again,
                          Tommy.
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline slats1056

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  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #31 on: January 18, 2016, 02:22:27 pm »
 Bree, I appreciate it. The thought that comes to mind as appointment time approaches is the sound track from Jaws just before the attack. Staring slowly and at low volume then ever increasing  as the shark closes in.
 Very dramatic effect indeed, or was that My elevated blood pressure and heart rate ;D ;D ;D
  Something else crossed My mind as I read Your post. Do I remember You saying something about redoing old dental work?  I have always had bad teeth due to damage, lifestyle choices,and Hep C as well. I have always tried to keep them repaired as much as possible. That being said , I have a mouthful of lead based fillings in My mouth. As soon as I level off I am going to speak with the dentist about them.

 I RECENTLY APPLIED FOR A PART TIME JOB AT A MENTAL HOSPITAL. NOW I'M THERE FULL TIME AND THEY WON'T LET ME LEAVE :) :)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

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Re: EOT 12 Next Week
« Reply #32 on: January 18, 2016, 02:33:16 pm »
Geez, now I'm confused!  :o  I posted to this thread right after Tommy's post today.  Hmmmm.

I'm so excited for the good news you'll be getting today!!!  Not so glad you have other medical details to sort out.  :(
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline drummerman

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Re: EOT 12 Next Week
« Reply #33 on: January 18, 2016, 02:34:14 pm »
Quote from: slats1056 on January 18, 2016, 01:38:28 pm
Well, Today is the day!!!! I go in this afternoon for My post EOT 12 week Lab results at G.I. Doc

   


You've got this.
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline slats1056

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Re: EOT 12 Next Week
« Reply #34 on: January 18, 2016, 02:41:57 pm »
 Else, Don't feel bad. The other day I posted a lengthy reply to Scout and it went into the ozone. I was so frustrated that I just shut off the computer and said screw it.  Wish I was at home so I could bake up a batch of cookies to get My mind off of the B.S.! If that shark bites My ass You guys are really going to hear about it. How are You feeling there girl? I need me some chainsaw time I tell You!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline slats1056

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  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #35 on: January 18, 2016, 02:46:05 pm »
 DM' isn't it strange that knowing all is good yet in Your mind the little seed of doubt can grow exponentially to a field of weeds clogging up the better judgment? Hope You have been able to crawl out of Your crap hole some and are feeling better. Funny the words on the paper can soothe the doubt so well!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

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Re: EOT 12 Next Week
« Reply #36 on: January 18, 2016, 03:04:24 pm »
Funny you should mention chainsaws!  I had the pro's out to thin out my dinnerplate maple tree in the backyard.  It felt so wrong.  :(  I HAVE a chainsaw.  And I can climb a tree as well as any young pup.  But!  I don't have the insurance that would cover me dropping a massive limb on my neighbor's shed.  Said shed has a rather spendy gas kiln inside.  Boom!   :o    So I wimped out and left it to the pro's.   ::)

My 12 wk EOT isn't due until Feb 29th.  In the meantime, I'm short one doctor.  My hepatologist's (who closed her practice on Dec. 31st to move elsewhere) office is not returning my calls.  I want to do my follow-up labs with my GP but she wants "follow-up care instructions" from my liver doc first.  ???

Seriously debating on going to a public health clinic and getting tested for Hepatitis C.  That's all I want to know.
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Bree

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Re: EOT 12 Next Week
« Reply #37 on: January 18, 2016, 03:05:10 pm »
Hey Tommy, speaking of lymph drainage, during treatment I tried to find a lymph massage therapists but she was busy and told me to buy a rebounder, which I did and jumped on every day during the last month or so of treatment.  I wanted every nook and cranny exposed.  I'm not using it now, but you inspired me to use it again.

For the teeth thing, I grew up in the south, where apparently they don't believe in dentist. Just kidding!  A few years ago, I had all those old fillings replaced with the newer and prettier and healthier white ones.  Over the last few years, I have gotten a few crowns and just recently got 2 more.  Trying to keep it all together man!  I want to end up with teeth!  And nice ones.

Instead of jaws music, think of my theme song by Imagine Dragon... Sitting on top of the world  8)  https://www.youtube.com/watch?v=w5tWYmIOWGk
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: EOT 12 Next Week
« Reply #38 on: January 18, 2016, 03:43:20 pm »
Quote from: slats1056 on January 18, 2016, 02:46:05 pm
Hope You have been able to crawl out of Your crap hole some and are feeling better. Funny the words on the paper can soothe the doubt so well!

Yep,  I still have my own doubts.  Hard to process.

Feeling a little better each day.  Just want to feel the way I did before tx.

Been almost 4 months.  Keep reminding myself that it took me almost a year to get over interferon/riba.

dm



Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: EOT 12 Next Week
« Reply #39 on: January 18, 2016, 03:47:43 pm »
-looking forward to Tommy and Kim reporting SVRs just as soon as they get them back.
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #40 on: January 18, 2016, 10:43:31 pm »
 Ladies--- May I have this dance? ;D ;D Hell, who am I kidding?? I want to dance with everybody right now. I mean everybody, all at once! I don't care who you are or where You are, or what You are!!!! Everybody gets a whirl!!!! At least as long as I can last! HA! Take that You little dead HVC bastards! That is right, I am dancing on Your grave! Here is to all that have gone before Us , All that are to follow. Three cheers, HIP HIP HOORAY! HIP HIP HOORAY! HIP HIP HOORAY! I just hope that I can sleep tonite. ::)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: EOT 12 Next Week
« Reply #41 on: January 18, 2016, 10:53:25 pm »
Yes, it is a good day... time for this song... posting again as I want you to see it!

 https://www.youtube.com/watch?v=w5tWYmIOWGk
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #42 on: January 18, 2016, 11:05:58 pm »
  Amazing, I love it! Very fitting 8)! Amazeballs!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: EOT 12 Next Week
« Reply #43 on: January 18, 2016, 11:07:06 pm »
Woooo-hoooo!!!  ;D ;D ;D  That is awesome!!!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #44 on: January 18, 2016, 11:10:56 pm »
 Yes, Yes it is. Yours is coming Else! I'll be watching Texas Chainsaw Massacre and baking cookies in the mean time! ;D ;D ;D ;D
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline HazelAustralia

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  • Posts: 178
Re: EOT 12 Next Week
« Reply #45 on: January 19, 2016, 12:36:32 am »
great news!
Logged
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline Lynn K

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  • Get tested, get treated, get cured, fight Hep c!
Re: EOT 12 Next Week
« Reply #46 on: January 19, 2016, 01:21:50 am »
Thanks Bree

So that explains the lunar landing lol too funny

Congrats again Tommy
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline perineuro

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Re: EOT 12 Next Week
« Reply #47 on: January 19, 2016, 03:25:49 am »
What is EOT 12 Week?  And also read something here about lymphatic massage?  All sound good!
Thanks, Perineuro
Logged
Dazed and confused
is just a temporary setback  :)

Offline Lynn K

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Re: EOT 12 Next Week
« Reply #48 on: January 19, 2016, 03:54:40 am »
12 weeks after EOT (end of treatment) the officially cured test.

The other I don't know about that
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Mugwump

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  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Re: EOT 12 Next Week
« Reply #49 on: January 19, 2016, 04:19:23 am »
Quote from: Lynn K on January 19, 2016, 03:54:40 am
12 weeks after EOT (end of treatment) the officially cured test.

The other I don't know about that


lymphatic massage is a new trendy ("natural")/ come homeopathic way to relieve the pressure of a patients stuffed wallet by gently squeezing the lymph glands over multiple treatments and telling them it will help them heal infections whether imaginary or real.


https://www.youtube.com/watch?v=QA-wi0d7-Ro


Whether or not massaging the lymph glands will help to remove any dead HCV particles post treatment is very dubious, considering they are largely cleared by the renal system and digestive tract. This is because of the nature of the cell and chemical processes that clear hep rna strands and dead liver cells. Thank heavens lymph system is not effected by HCV in the same way as it is with some diseases especially advanced cancers.



But heck if it feels good and you believe it is helping? Go for it! Personally I think a good pedicure post treatment would be a better choice though.
« Last Edit: January 19, 2016, 04:32:14 am by Mugwump »
Logged
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline gnatcatcher

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  • Posts: 1,372
Re: EOT 12 Next Week
« Reply #50 on: January 19, 2016, 06:21:36 am »
Wow, Tommy and Bree, that was fast! It's wonderful to wake up to so much good news ;D
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #51 on: January 19, 2016, 02:30:24 pm »
 That might be a wise decision looking at the avatar! LMFAO :D Old school Swedish style massages were basically the same thing. Now everyone wants to name it & charge extra. Greedy just like big Pharma. A massage therapist that has been properly trained in this day and age knows about the Lymphatic system and generally includes manipulation in a general massage.  When specified , they will usually spend time on the complete system. Not just the glands! The Lymph system as has been explained to Me is similar in structure to blood vessels with out the pump (Heart Muscle) . Therefore stimulation manually increases flow, but is not a cure all or medical procedure. It is an effluent massage rather than a muscle manipulation or deep tissue sports massage as these close and impede the flow of the system. It works for some people but not others. Like hair products or lotion.
 A matter of personal preference. It is not meant to remove dead HCV cells, but to improve the flow of Lymph fluids in the system. If it doesn't flow through it doesn't reach the renal system or digestive tract. especially since modern day life styles have become more sedentary , as well as all kinds of nasty stuff in our food and what we breathe or touch daily.  Granted nothing has been proven in relation to HEP C, it does no harm! AND it feels great!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: EOT 12 Next Week
« Reply #52 on: January 19, 2016, 03:35:23 pm »
Quote from: Lynn K on January 19, 2016, 01:21:50 am
Thanks Bree

So that explains the lunar landing lol too funny

Congrats again Tommy

Hey Lynn,  that's one of my favorite songs... I have it on my ipod when I walk and it reminds me of how I feel being cured 8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: EOT 12 Next Week
« Reply #53 on: January 19, 2016, 03:42:28 pm »
Re:  Lymph drainage.  Tommy's answer was excellent and way more in depth than I know.  What I had heard, read about and believe, is that clearing lymph can also detox and clear toxins and things that hide out (like HCV).  That's why I sought a specialist for lymph massage which is different than muscle massage (check out you tube).  I was told to buy a rebounder (which I did) and jump on that to get lymph system flowing. 

Having failed a prior treatment (or rather the treatment failed me) I didn't want those nasty buggers to have anywhere to hide. If there is something I could do to help it out, I wanted to try. If someone told me standing on my head would help, I would do it.  And by the way, inversion does help or laying on floor with legs up wall all help lymph drainage.  NOT an expert, just read about it and studied exercises and did them.  Nothing to lose, everything to gain. 

Happy Camper = Bree
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Lynn K

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  • Get tested, get treated, get cured, fight Hep c!
Re: EOT 12 Next Week
« Reply #54 on: January 19, 2016, 04:11:01 pm »
I did read a little about lymph system in cirrhosis. They believe ascities and edema are partly caused by excess lymph fluids in the interstitial space however they did not mention massage as a method to reduce this fluid. Although they are looking for methods to reduce lymph fluids and thus ascities. Otherwise I didn't see anything about hep c and lymph fluids
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #55 on: January 20, 2016, 10:47:31 am »
  Went to the Gilead Website to the Harvoni Wall to check it out. I was mildly surprised that only two people were signed up from the State of Texas!!! I know of several people post treatment and a couple currently on treatment, and apparently they don't know or haven't checked out the site! While I was there I signed up for My complementary after treatment completion Harvoni key chain and got on the Wall. Has anyone else checked out the Website? I remember reading that Lynn K. had when she achieved SVR. Debating on whether or not to mount My SVR lab results for shits and giggles!
 
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline gnatcatcher

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  • Posts: 1,372
Re: EOT 12 Next Week
« Reply #56 on: January 20, 2016, 11:11:48 am »
Quote from: slats1056 on January 20, 2016, 10:47:31 am
. . . only two people were signed up from the State of Texas!!! I know of several people post treatment and a couple currently on treatment, and apparently they don't know or haven't checked out the site! . . .
Or maybe they don't want their initials on a site run by a price-gouger?
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #57 on: January 20, 2016, 11:41:26 am »
 OOOOOOHHHHHH! Good one Gnatty ::) ::) ::) I didn't think about it like that :-X :-X :-X
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Lynn K

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  • Get tested, get treated, get cured, fight Hep c!
Re: EOT 12 Next Week
« Reply #58 on: January 20, 2016, 02:55:43 pm »
And I never did get my complementary key chain either
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline KimInTheForest

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  • Believe in yourself
Re: EOT 12 Next Week
« Reply #59 on: January 20, 2016, 03:13:02 pm »
Quote from: Lynn K on January 20, 2016, 02:55:43 pm
And I never did get my complementary key chain either

You'd think with their billions in profits, they could cough up a keychain. ;)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline slats1056

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  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #60 on: January 20, 2016, 07:10:52 pm »
  Kim, Nope---No coughing up anything! That would require a new Med. for the market! LOL!
  Lynn, We don't need no stinkin key chain ;D ;D

   I feel like I won the lotto! Just got back from My new internist with the results from a new set of results from last weeks blood draw and Urinalysis. ANOTHER  UNDETECTED ??? ??? ??? That makes two in three days. Bet BCBS is going to like that one ;) ;)
  Anyway, also got ALT 17 ; AST 17 ; Glucose is above high # of 99 by seven points at 106.
HDL (good) cholesterol low 37 of 40 , LDL(bad) cholesterol high at 141 of 130.
 Two more pages of results all in range! Good news overall. Tumor marker below 6.1 at 5.7 :)
  Thought about celebrating a new birthday of 01-19 which is Robert E. Lees' birthday by the way, then thought about it. Nope , that's' My older brothers' birthday for the last 64 Years, So---- no bogarting somebody elses day.
  Now if I can just get the headaches and joint pain under control My restoration project ( Thanx Else ) will be almost complete! Time to start planning out some long ever due projects that have been on the back burner for years ;)

  HERE WE GO STARTING ANEW WITH A GREAT OUTLOOK ON LIFE! ONE DAY AT A TIME , THINGS WILL GET BETTER AND BETTER.


  DO YOU REMEMBER THE TIME WHEN WE COULDN'T WAIT TO GROW UP? HMMMM----WHAT THE HELL WERE WE THINKING ??? ??? ??? ???
 
 
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

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  • Appeal, appeal, and appeal again!
Re: EOT 12 Next Week
« Reply #61 on: January 20, 2016, 08:05:38 pm »
Fantastic numbers, Tommy!  Now what about that long-overdue camping trip of yours?  Seems like you should be ready to howl at the moon for a bit.  :D
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline gnatcatcher

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Re: EOT 12 Next Week
« Reply #62 on: January 20, 2016, 08:11:49 pm »
Tommy, those are terrific ALT and AST results -- I have enzyme envy again! Were the glucose and cholesterol tests done after >= 9 hours of no food/drink (except water)? If it wasn't a fasting test, your glucose level may actually be okay and the LDL cholesterol result will be inaccurate. To take care of the HDL, just eat a little more "foliage" (as my mother likes to tease my vegetarian cousin).
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #63 on: January 20, 2016, 10:22:03 pm »
 Else, Looks like the camping trip,bonfire, and howling will have to be in the back yard until I can get get some cash together. New Year, new copay ,new deductible, and new out of pocket to meet! :( >:( ::) :P >: I am really happy with the numbers. Still won't be the same. Can't see all the stars or critters cruising around. I need to try to do it before it gets warm and the rattle snakes come out! :P ::) ??? >:(

 Gnatty,Yes they were fasting tests. Dinner at 8:00 PM the night before. Waiting on the door step at 7:00 AM the next morning. First one there. Boy I was eyeing the lab techs breakfast snacks with malicious intent :-\ :-X :P ;)! Tried to be a gentleman and let a older lady that looked like she had a good twenty years on Me go first (my Mamma made sure we new our manners, still say yes ma'am and no ma'am) but she wouldn't even think of it. Then she started talking My ear off.LOL.
 Trying to eat more trees and shrubs and less cows and pigs, Man that is hard on and ole' Texas boy raised on meat!! :) :) :) :)

  ONCE YOU LICK THE FROSTING OFF OF A CUPCAKE , IT BECOMES A MUFFIN! AND MUFFINS ARE HEALTHY!!! YOUR WELCOME.
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #64 on: January 20, 2016, 10:26:23 pm »
 Else,  P.S.  Now if I can only find out where they hid the chainsaw----- The neighbors tree needs some trimming---- and I need some firewood. Nah, they won't miss it ;D ;D ;D :-X :-X :-X Me like fire!!!!Fire good!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: EOT 12 Next Week
« Reply #65 on: January 21, 2016, 04:09:33 am »
Just want to say... hey Tommy, there are no snakes in Hawaii.  Being originally from the south, I'm stoked about that.

Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: EOT 12 Next Week
« Reply #66 on: January 21, 2016, 06:32:27 am »
Quote from: slats1056 on January 20, 2016, 10:22:03 pm
  ONCE YOU LICK THE FROSTING OFF OF A CUPCAKE , IT BECOMES A MUFFIN! AND MUFFINS ARE HEALTHY!!! YOUR WELCOME.

That one's a gem. Thanks, Tommy -- what would we do without you?
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

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  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #67 on: January 21, 2016, 09:26:52 am »
  Bree, I actually think snakes are interesting & pretty cool critters. Does that make Me a wanna be HERPETOLGIST?? ??? ??? ???  When You are on the look out for them it fine, when You relax & drop Your guard the results can be bad! Especially for dogs that are not trained to avoid snakes! :( :( :(

   Gnatty, Probably be bored. Just another plain jane forum with the usually HO-HUM atmosphere. I like to think that I shake things up a bit with My lack of filtering :o as well as throwing in a little humor ;)

  BIRTHDAYS ARE GOOD FOR YOUR HEALTH :) STUDIES HAVE SHOWN THAT PEOPLE WHO HAVE MORE BIRTHDAYS LIVE LONGER ;D ;D ;D ;D ;D
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Mugwump

  • Member
  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Re: EOT 12 Next Week
« Reply #68 on: January 21, 2016, 10:52:33 am »
Quote from: Lynn K on January 19, 2016, 04:11:01 pm
I did read a little about lymph system in cirrhosis. They believe ascities and edema are partly caused by excess lymph fluids in the interstitial space however they did not mention massage as a method to reduce this fluid. Although they are looking for methods to reduce lymph fluids and thus ascities. Otherwise I didn't see anything about hep c and lymph fluids
Interesting, this would indicate that clearing too much lymph fluid all at once might become a slight problem for those who have compromised renal functions and ascites from cirrhosis leaking fluids into the abdominal space. Makes sense. I would think that gentle slow full body exercises and healthy habits will do more to improve lymphatic flow than any massage technique can especially for those of us living with cirrhosis and the possibility of ascites because of HCV.
Logged
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline slats1056

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  • SVR to all and to all a good life!
Re: EOT 12 Next Week
« Reply #69 on: January 21, 2016, 01:24:00 pm »
 That being said, it stands to reason that the gentle slow full body exercises would also stimulate the Lymphatic system to a greater degree. I would assume that the issues of ascites and edema would be addressed medically before one takes on any actions that could possibly compromise themselves to the point of harm. As far as the healthy habits I believe that all of us strive for that goal. As with any actions taken one should become informed and consult with their medical  team before adding or changing anything in their regimen as I have. Personally , the things that I have been doing have been run by My G.I. , Chiropractor, G.P. , as well as My Internist before applying them . To bad that there isn't a regimen that is one size fits all.
  ALWAYS , AND I REPEAT ALWAYS, CHECK WITH YOUR DOCTORS ABOUT THESE THINGS BEFORE IMPLEMENTING THEM IN YOUR REGIMEN AS THE SLIGHTEST THING CAN BE DETRIMENTAL TO YOUR HEALTH AND WELL BEING.
   My internist is schooled in Eastern and Western medicine and has consulted with My G.I. about the problems I have been having. Starting with range of motion in the neck and back. We have been discussing a course of action for My situation which has included the aforementioned massage, It is not a prescription , it is meant to aid in My recovery. Just as one uses hot showers, saunas, Yoga, Tai chi, and stretching exercise to achieve better range of body motion.
 As I still am working 45-55 hours a week full time , as well as keeping up the household and the family, I will take all of the help I can get. I hope this perspective is helpful to some of You out there.

  AGAIN, RESEARCH & GET INFORMED. THEN DISCUSS ALL OF THE OPTIONS WITH YOUR MEDICAL TEAM PRIOR TO UTILIZING SAID KNOWLEDGE. BE CAREFUL ABOUT WHAT YOU READ AND GOOGLE AS SOME THINGS CAN BE WRONG AS WELL AS MISINTERPRETTED LEAD TO HARM.



   
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: EOT 12 Next Week
« Reply #70 on: January 21, 2016, 03:13:23 pm »
What Tommy said.  There are even articles on other Hep C websites about Lymphatic health. Lymph massage is a gentle stroking of the skin.  I even followed a do it yourself instructional article along with using the rebounder.  No need to dive off the deep end with too much too soon of anything.  The idea is everything flowing in the body is a good thing.  My two cents.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: EOT 12 Next Week
« Reply #71 on: January 21, 2016, 03:17:03 pm »
Quote from: slats1056 on January 21, 2016, 09:26:52 am
  Bree, I actually think snakes are interesting & pretty cool critters. Does that make Me a wanna be HERPETOLGIST?? ??? ??? ???  When You are on the look out for them it fine, when You relax & drop Your guard the results can be bad! Especially for dogs that are not trained to avoid snakes! :( :( :(

  BIRTHDAYS ARE GOOD FOR YOUR HEALTH :) STUDIES HAVE SHOWN THAT PEOPLE WHO HAVE MORE BIRTHDAYS LIVE LONGER ;D ;D ;D ;D ;D

Hey Tommy, my sister got bitten on two of her toes by a cotton mouth when we were young.  I'll spare the details but that took a normal healthy fear of snakes to a whole new level.... a phobia.  Which is why I can't handle the thought of snakes.  (probably under the TMI category, but want to share it;)

Love the Birthday quote, btw...
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Lynn K

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  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: EOT 12 Next Week
« Reply #72 on: January 22, 2016, 05:03:12 am »
I did not see anything saying a massage would have any effect.

Only that cirrhosis induced leakage of lymphatic fluids is related to ascities. They are looking for medical solutions to reducing cirrhosis caused portal hypertension induced lymphatic leakage not massage.

Still waiting for my magic pill to reduce my liver scarring and portal hypertension to keep my esophageal varicies away and get rid of my edema.

Hey it could happen 2 years ago I never would have thought I would be hep c free now
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!
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