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Author Topic: Cal on Viekira & Ribas 17 weeks. Post tx  (Read 28037 times)

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Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Cal on Viekira & Ribas 17 weeks. Post tx
« on: February 03, 2016, 09:30:58 pm »
Hi all my caring friends,
Sorry I haven't posted for ages. I am having a rough time post tx, I didn't want to put a negative vibe on the forum.
I have also just been so fogged and weak I didn't feel I could post. But some dear friends PM'ed me and encouraged me to post again. Thank you dear friends.

I am 8 weeks post tx now and at 4 weeks I was UND. It's looking good so far. I am happy and excited about this.

I have gall stones and a liver cyst that they are keeping an eye on (More waiting hohum). I am in pain and weak. I have gut pain and muscle pain and weakness. I am seeing a neurologist as my neuropathy has worsened. My feet burn, which is a new symptom. I am hoping all this pain and numbness is temporary. We'll see. Riba rash is still mental and I am losing hair. This happened last tx too.

But don't worry, I am just keeping my eye on the prize. 4 more weeks to EOT! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #1 on: February 03, 2016, 11:10:06 pm »
You're never a negative vibe Cal.You were one of those that had a rough treatment so give it time and do what you need to.The next time you're feet are burning put on some damn shoes before you walk a cross a hot road to get to the beach.Just a little something I learned living in Florida ll my life. 8)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #2 on: February 03, 2016, 11:46:24 pm »
I'm 4 more weeks to 12wkEOT labs myself.  Meet you at the finish line!  ;)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #3 on: February 03, 2016, 11:58:16 pm »
 What the heck is going on with the server tonite? It ate two posts in mid sentence!

  Cal, they were both to You! No worries. Let it all hang out, not at all negative. just the flip side of the coin. You go girl. All of Your friends and extended family in HEPLANDIA around the world are cheering You on! I won't let the happy dance stop until You are well enough to join in! And by God I want the first dance. Just hope You are wearing steel toed boots because I will probably trampled Your poor aching feet!!LMFAO! :) :) :)

 SMILE AND LET EVERYONE KNOW THAT TODAY , YOU ARE STRONGER THAN YOU WERE YESTERDAY! ;D ;D ;D ;D :-* :-* :-*
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #4 on: February 04, 2016, 12:06:44 am »
So good to hear from you again, Cal!!!  8)  I know exactly what you mean about post-treatment being rough. I too had a lot of problems post-tx - was quite disabled  for several months and could hardly post here for some of that time.

You mention painful feet. I developed excruciatingly itchy palms and soles of feet post-tx. Have never had that before in my life. It slowly subsided over the months, and now I just very occasionally have a wee touch of it - usually when my body is weakened or depleted from something else.

I do think that these post treatments problems some of us experience will all clear up eventually. So patience is the key word.

I am finally in a position where I am able to feel some benefits of No More Hep C! Particularly more mental clarity and better mental functioning in general.

So hang in there, Cal. And keep on posting! We want to know how you're doing. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #5 on: February 14, 2016, 10:11:25 pm »
Hang in there Cal.  We are all with you!

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #6 on: February 14, 2016, 10:13:31 pm »
So good to hear from you again, Cal!!!  8)  I know exactly what you mean about post-treatment being rough. I too had a lot of problems post-tx - was quite disabled  for several months and could hardly post here for some of that time.

You mention painful feet. I developed excruciatingly itchy palms and soles of feet post-tx. Have never had that before in my life. It slowly subsided over the months, and now I just very occasionally have a wee touch of it - usually when my body is weakened or depleted from something else.

I do think that these post treatments problems some of us experience will all clear up eventually. So patience is the key word.

I am finally in a position where I am able to feel some benefits of No More Hep C! Particularly more mental clarity and better mental functioning in general.

So hang in there, Cal. And keep on posting! We want to know how you're doing. :)

kim

I went through the itchy palms too!  Not excruciating , but weird.    Lasted about a month.

Still feel weird everyday too.  I keep reading that it can take up to a year to feel normal... and that was the case my first go around.  So that thought gets me through each day.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #7 on: February 15, 2016, 06:37:16 pm »
You're never a negative vibe Cal.You were one of those that had a rough treatment so give it time and do what you need to.The next time you're feet are burning put on some damn shoes before you walk a cross a hot road to get to the beach.Just a little something I learned living in Florida ll my life. 8)
Hi Bill,

You're a darling. I live in a hot climate too and have to put shoes on to walk outside, boy can it burn those tootsie! Thanks for your encouragement. Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #8 on: February 15, 2016, 06:38:51 pm »
I'm 4 more weeks to 12wkEOT labs myself.  Meet you at the finish line!  ;)
Hi Else,
Neck and neck again! Great to have you as a txing partner. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #9 on: February 15, 2016, 06:41:22 pm »
What the heck is going on with the server tonite? It ate two posts in mid sentence!

  Cal, they were both to You! No worries. Let it all hang out, not at all negative. just the flip side of the coin. You go girl. All of Your friends and extended family in HEPLANDIA around the world are cheering You on! I won't let the happy dance stop until You are well enough to join in! And by God I want the first dance. Just hope You are wearing steel toed boots because I will probably trampled Your poor aching feet!!LMFAO! :) :) :)

 SMILE AND LET EVERYONE KNOW THAT TODAY , YOU ARE STRONGER THAN YOU WERE YESTERDAY! ;D ;D ;D ;D :-* :-* :-*

Hi Tommy,
Heplandia, love it! Thanks for being such a hoot. I needed that. Yes my dance card is empty so first dance definitely. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #10 on: February 15, 2016, 06:45:24 pm »
So good to hear from you again, Cal!!!  8)  I know exactly what you mean about post-treatment being rough. I too had a lot of problems post-tx - was quite disabled  for several months and could hardly post here for some of that time.

You mention painful feet. I developed excruciatingly itchy palms and soles of feet post-tx. Have never had that before in my life. It slowly subsided over the months, and now I just very occasionally have a wee touch of it - usually when my body is weakened or depleted from something else.

I do think that these post treatments problems some of us experience will all clear up eventually. So patience is the key word.

I am finally in a position where I am able to feel some benefits of No More Hep C! Particularly more mental clarity and better mental functioning in general.

So hang in there, Cal. And keep on posting! We want to know how you're doing. :)

kim
Thanks dear Kim,
I occasionally get the itchy thing but its still and all over. I have come up in new riba spots today, will it ever end phew!
So you were wiped out for a while too, sorry to hear that but relieved selfishly that it validates me. Thanks for reminding me that most of this crap passes. I forget sometimes. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #11 on: February 15, 2016, 06:48:37 pm »
Hang in there Cal.  We are all with you!

dm

Thanks DM, Weirdness I can definitely relate to ::) It's a rollercoaster and we're all sitting on the front carriage white knuckling! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #12 on: February 15, 2016, 06:58:45 pm »
Thanks DM, Weirdness I can definitely relate to ::) It's a rollercoaster and we're all sitting on the front carriage white knuckling! Cal :)

Puts a smile on my face to see a new post from you!   ;D

Actually, I had my labs done 2 weeks early.  10 weeks post-treatment.  So I should know by Wednesday or so?  Liver panel in and looking okay.  Smidge of a rise in AST & ALT from EOT levels, but nothing I'm gonna sweat over.

The concordance between SVR at 4wks post-treatment and SVR at 12 post-treatment is 98%.  So I'm comfortable with doing them just a little early.   I've had some post tx issues, so I just need to know, yanno?  ;)

About that rollercoaster, I'm not white-knuckling it.  I'm one of those tools waving their arms over their heads and screaming.   ;)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #13 on: February 15, 2016, 07:54:58 pm »
Thanks DM, Weirdness I can definitely relate to ::) It's a rollercoaster and we're all sitting on the front carriage white knuckling! Cal :)

yep.... I finally caved and went to see my gp today.  Decided I must be depressed.  Got back on celexa which i was on about 5 years ago.  Don't remember if it helped...but I do remember I did not have any scary side effects which is a BIG problem with antidepressants.

Also, looking for an ACT therapist.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #14 on: February 15, 2016, 08:37:36 pm »
I'm glad you're being proactive, Kiddo.  I had to google ACT.  Acceptance, mindfulness, committed action.  Sounds like an excellent path.

Best to you - and I hope you keep us posted. 
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #15 on: February 16, 2016, 01:40:56 pm »
 Welcome back Cal, Sure is good to hear from You!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #16 on: February 16, 2016, 02:20:32 pm »
yep.... I finally caved and went to see my gp today.  Decided I must be depressed.  Got back on celexa which i was on about 5 years ago.  Don't remember if it helped...but I do remember I did not have any scary side effects which is a BIG problem with antidepressants.

Also, looking for an ACT therapist.

dm

Funny...just recently I was having all these weird issues with...well...my brain.  Odd sensations and anxiety...etc.  Then I realized I was depressed.  Another old bedfellow of mine that I struggled with ever so often over the years.  I was like...aight...bring it on bitches.  Went right to the feeling and stayed mindful of how it felt in the body.  For me, the only way out is through.  Mindfulness is so freaking helpful.  Also, there is something called somatic experiencing developed by a renown trauma therapist for PTSD that seeks to guide over whelming feelings into body sensations and throuh their expression, which is how the deep centers of the brain communicate emotional pain and unresolved trauma.  Only thing that works for me...hard part is to be patient with the process.  The wave of depression sometimes feels like it has a mind of its own.  Peace DM and Cal and all who are visited periodically by dysphoria. 
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #17 on: February 16, 2016, 09:37:43 pm »
Funny...just recently I was having all these weird issues with...well...my brain.  Odd sensations and anxiety...etc.  Then I realized I was depressed.  Another old bedfellow of mine that I struggled with ever so often over the years.  I was like...aight...bring it on bitches.  Went right to the feeling and stayed mindful of how it felt in the body.  For me, the only way out is through.  Mindfulness is so freaking helpful.  Also, there is something called somatic experiencing developed by a renown trauma therapist for PTSD that seeks to guide over whelming feelings into body sensations and throuh their expression, which is how the deep centers of the brain communicate emotional pain and unresolved trauma.  Only thing that works for me...hard part is to be patient with the process.  The wave of depression sometimes feels like it has a mind of its own.  Peace DM and Cal and all who are visited periodically by dysphoria.

Yep, ACT is great.  I think I would be much worse if I had not been working on the diffusion techniques.  Just felt like I needed little extra help.  Lot going on in my life and lot of changes coming down the pike.
dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #18 on: February 16, 2016, 11:50:14 pm »
you know best DM...follow your heart.  You are gonna be OK. You've been through so much.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #19 on: February 17, 2016, 01:30:14 am »
Hey Cal, nice to see a some posts from you. I know you have had a rough treatment and post treatment. It's hard sometimes to be positive when your mind and body are in torment. It's nice to know that so many people here care about you and are pulling for you. It's really a good group of folks that have gone through this together. Just knowing we are here for you, whether to vent or to just have a laugh is nice knowing that you have support. My daughter just committed to the University of Nebraska for college in the fall, may have to take a second job. Luckily she is getting quite a bit in scholarship money. Don't think my body is quite up to working 2 jobs just yet. Hope you can get some relief soon, it's coming girl, maybe a little slow, but it's coming


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #20 on: February 20, 2016, 06:09:46 pm »
Thanks all.

Well the celexa did not work out so well.  It made me extremely nervous and nauseous.
After four days I gave up.  So I looked around and found that these are standard sides and it gets better after a week or two.  So I am going to wait and try again on spring break when I don't have to teach classes.
Funny think is , I don't remember feeling any of this side effects when I was on celexa for a while 5 years ago.  Guess being 5 years older makes a difference.

I am trying Sam E now.  Which I have used before with some success.

dm
« Last Edit: February 20, 2016, 07:44:57 pm by drummerman »
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Philadelphia

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Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #21 on: February 20, 2016, 06:17:51 pm »
Hope you find the right answer soon dm. Thinking of you.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline drummerman

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  • For those regarded as warriors....
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #22 on: February 20, 2016, 06:21:19 pm »
Hope you find the right answer soon dm. Thinking of you.

Thanks Philly!
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Else

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Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #23 on: February 20, 2016, 07:00:20 pm »
I am trying Sam E now.  Which I have used before with some success.

See Interactions:

http://www.webmd.com/vitamins-supplements/ingredientmono-786-same.aspx?activeingredientid=786&activeingredientname=same

Maybe the SAMe was potentiating the SSRI?  Were you taking it the last time you were on Celexa?
« Last Edit: February 20, 2016, 07:02:06 pm by Else »
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline drummerman

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Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #24 on: February 20, 2016, 07:08:34 pm »
See Interactions:

http://www.webmd.com/vitamins-supplements/ingredientmono-786-same.aspx?activeingredientid=786&activeingredientname=same

Maybe the SAMe was potentiating the SSRI?  Were you taking it the last time you were on Celexa?

Man, that was so long ago and I was taking a lot of sups.

I know you are not supposed to mix Sam E with anti depressants though, so I doubt I was  doing both.  Thats why I waited a couple of days after I ceased the celexa to start the sam E.   
Its just so weird that I got super nervous and nauseous on the celexa this time aorund.  I'm going to have my doc go back and see if I am taking the same celexa.  Might be a generic this time around.  Actually though, I'm not going to mess with the celexa anymore , it was just too much....and I was on the lowest dose possiblle.
ugh.

I do remember that when I was on sam E a few years ago that I never slept better in my life.  Hopefully the same results this time.


dm
« Last Edit: February 20, 2016, 07:13:11 pm by drummerman »
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Scoutdoy

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Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #25 on: February 20, 2016, 08:02:25 pm »
Dm are you at the same pharmacy as you were 5 years ago? When my husband switched bp med a few  years ago he had terrible reactions and it was because the in active ingredient from a different manufacturer really affected him


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline drummerman

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  • For those regarded as warriors....
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #26 on: February 20, 2016, 08:51:59 pm »
Dm are you at the same pharmacy as you were 5 years ago? When my husband switched bp med a few  years ago he had terrible reactions and it was because the in active ingredient from a different manufacturer really affected him


Scout

yeah, same pharmacy , but lower dose.  If I do decide to try it again, I'm going to have my doctor check and be sure it is the exact same med.  I know some people have trouble with generics and that is what my insurance company approves ... don't know if I was on generic 5 years ago,,. will check.

I'm hopping the sam E works.

Sorry, cal,.... not meaning to highjack your thread.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #27 on: February 21, 2016, 04:05:55 pm »
Hey Yall.... Just a shout out to Cal and my peeps!  Cal, I looked in the crystal ball and I can see balance restoring for you...I know it will come!

I'm so glad I get to experience you all on this forum and I feel forever warm fuzzies in my heart toward our group.

Interesting dialogue on the emotional healing and brain chemistry front.  I'm real into ACT (thanks Cal!) and Beto, I just googled somatic experience... interesting stuff.  Now that we don't have Hep C we get to deal with all forms of healing.  If we have survived and conquered this disease, we can find a way for the other stuff and it's pretty awesome that we are dialed in so much that we want to so we can create our best selves!  it's a journey, no doubt about it.   Love, Bree 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline chuck3a

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  • I'm Neo, his guardian angel now
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #28 on: February 24, 2016, 03:23:29 am »
Hi Cal, looks like i get to join you on this side of the forum a little bit sooner than I thought.
 My new insurance and pharmacy couldn't get it straight that I was approved for my last 4 wks  until 14 days after my last dose that i was approved on the day of my last dose. so I told them in a riba rage moment that would have made you proud where they could shove it. so april 27th is my 12 wk eot labs. did manage to get 20 of 24 wks done. Sorry to hear that you are having so many other problems going on that you have to deal with. but if the same fighter that I met on the other side, I know you will persevere and put all the other things behind you just like the hep dragon. Thank you my Friend for helping me make it through some rough patches during tx. 
diagnosed 2008 hep c 3a
viral load of 1656491 08/2015
treatment 2/2009 - 7/2009 pegasys and ribapak  failed
treatment starting: 09//16/2015 for 24 wks daklinza, sovaldi, and ribavirin
4/30/2013 alt - 133  ast - 143
7/24/2015 alt - 65    ast - 73   vl - 1656491
9/29/2015 alt - 21    ast - 24
10/14/2015 alt - 22   ast - 26   vl - not det.
11/11/2015 alt - 15   ast - 22
12-15-2015 alt - 14   ast - 21  vl - not det.
2-2-17 1 year 1 month hep c free
1-26-2016   alt - 11   ast - 19 vl - not det.

Offline KimInTheForest

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Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #29 on: March 10, 2016, 10:23:07 pm »
So you were wiped out for a while too, sorry to hear that but relieved selfishly that it validates me. Thanks for reminding me that most of this crap passes. I forget sometimes. Cal :)

How are you Cal? I have not seen much of you on the forums for a month now. Hope all is okay. You have lots of people thinking of you and wishing the best for you! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Else

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  • Appeal, appeal, and appeal again!
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #30 on: March 10, 2016, 10:49:31 pm »
What a trip.  I almost PM'd Cal today.

What up, Cal?  Miss you!!!
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Bree

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  • "Today is a good day for a great day!"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #31 on: March 10, 2016, 11:20:48 pm »
Yep Cal, your tribe loves you and is wishing you well! 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

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  • SVR to all and to all a good life!
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #32 on: March 10, 2016, 11:25:56 pm »
 Hello all, I was going to give her a little more space before PM'ing her. don't want to seem to be annoying or pushy. That is not at all like Me :o ??? No way, not Me :)
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline beto

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  • "no risk it, no biscuit"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #33 on: March 11, 2016, 10:40:06 am »
Yea dudes, hanging out on Cal's thread without the Calqueen herself is a bummer yo.  Anyway, nice to know the ol group from my grad class are still feisty and uppity.  Hope everyone is doing well and hope the Cal  chirps up soon.   
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #34 on: March 11, 2016, 11:52:32 am »
Here is my monthly check in...lol....all is well except I have a cold...other than that I am glad this is all over....for me anyway....good luck all

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #35 on: March 24, 2016, 02:27:29 am »
My Lovely lovely Heplandia friends,

You were right, I Svr'ed at 12 weeks EOT. I found out a few days ago. What a trip! Just goes to show that previous RAV inducing drugs don't have to alter the outcome of our new tx''s.
I'm slowly getting better. I need to sleep most days and still have a bit of pain. I am seeing a Neurologist about the peripheral neuropathy which worsened during tx. I blame the ribas of course! But am taking PEA Pure for 3 weeks now and my feet have stopped burning already. I am hopeful it will help me.
I am doing brain exercises in neuroplasticity to sharpen that dreadful memory and dementia like symptoms and it's really working.

I walk daily with my dog Smithers and we walk quite a long way now. I am so happy to be reconnected with the outside world again.

I'm a writer and have had a lot of trouble writing, but I am moving towards finishing a play I was writing 4 years ago. So I am very excited as this is the true indication for me that I am well. The words aren't flowing as easily as they used too, but I have faith they will. I get my thyroid removed soon, I saw the surgeon yesterday.

You guys!!! Thank you for being such staunch supporters, even when I was convinced I was going to relapse. Your wisdoms and laughter made me get through. I had a really hard time on tx and the past 3 months post have been hard too.

I'm sorry to hear that  some are wrestling with anxiety and depression. I do think it's the chemical imbalance and that it will get better. Post tx is such an alien landscape to navigate, it's a day by day trip.

Hugs to all my mates. Love Calx :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #36 on: March 24, 2016, 02:33:43 am »
Woo hoo! I knew it!!! Congratulations :)
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #37 on: March 24, 2016, 02:47:19 am »
Hey Cal, sounds like all things considered you are really doing well... and you are doing it one step at a time, one day at a time.  You are on the road to recovery (I could feel that you were cured of HCV) and happy to have the confirmation!

And,you are writing again.  That's amazing!  Love, Bree  8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

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  • SVR to all and to all a good life!
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #38 on: March 24, 2016, 09:04:42 am »
 The triumphant return of the Riba Queen ;D, less the Ribas of course. That's' My girl. Keep it up! So happy to see Your post. I was on the verge of pestering You with a PM yesterday, but thought I would wait until the weekend. Always good to get out in the fresh air and smell the roses.

  I DON'T KNOW ABOUT WHERE YOU LIVE , BUT THE WEATHER HERE IS SOMEWHERE BETWEEN BIPOLAR AND DOWNRIGHT PSYCHOTIC THIS SPRING!
 :) :) :) :) ;) ;) ;) ;) :D :D :D :D ;D ;D ;D ;D 8) 8) 8) 8)
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline gnatcatcher

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Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #39 on: March 24, 2016, 09:38:22 am »
Cal, I'm grinning from ear to ear over your great news! Best o'luck with the thyroid surgery.
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Scoutdoy

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Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #40 on: March 24, 2016, 12:22:03 pm »
Cal, so happy to hear that you cleared the virus. I know you have had a very rough tx and post tx, but even though it may be going at a snails pace, at least that snail is going in the right direction.

Tommy, it was 80 degrees yesterday, and it is snowing right now. Bipolar weather is exactly the way to describe it here also..


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #41 on: March 24, 2016, 01:10:48 pm »
Cal!!! That is beyond good news! I'm so happy for you!
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline KimInTheForest

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  • Believe in yourself
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #42 on: March 24, 2016, 02:42:58 pm »
You were right, I Svr'ed at 12 weeks EOT. I found out a few days ago...

I'm a writer and have had a lot of trouble writing, but I am moving towards finishing a play I was writing 4 years ago. So I am very excited as this is the true indication for me that I am well. The words aren't flowing as easily as they used too, but I have faith they will.

Congrats Cal!!! So glad the words are starting to return to you. This has been one of my biggest problems too as a writer who had Hep C for decades. I too have noticed the words returning both during and post treatment. My brain is working better. I have had a lot of physical challenges post-tx. And my blood work still is not great (all types of blood cells too low). But writer to writer, I can tell you it is great to see our brains coming back online! :)

kim
« Last Edit: March 24, 2016, 02:44:37 pm by KimInTheForest »
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline beto

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  • "no risk it, no biscuit"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #43 on: March 24, 2016, 06:10:01 pm »
Way to go Cal pal.  Truly made my day seeing your dal-burned post.  Now we can all breath again...been holding out breath a long time.  Now we can finally have a party at Bree's house.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #44 on: March 25, 2016, 01:42:01 am »
Way to go Cal pal.  Truly made my day seeing your dal-burned post.  Now we can all breath again...been holding out breath a long time.  Now we can finally have a party at Bree's house.

Yep, party at Bree's house.  We'll start working on our plan for that in the next few months... Else was just at my house last night, believe it or not.  She agrees, we can have a party here! 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline beto

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  • "no risk it, no biscuit"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #45 on: March 25, 2016, 12:05:03 pm »
My bro lives on Oahu.  So I can take a trip to see him.  I also need to see my distributor there (have not done any biz in HI for about 4 years.  Maybe in the Fall.  If some folks can't afford it we can start a Go-Fund-Me.  Though the American perception of Heppers is probably that we are a bunch o' junkies...teehee

We could airbnb in your area I wonder?  I don't even know what Island you are on.  Will be a gas.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #46 on: March 25, 2016, 12:44:15 pm »
Your exactly right Beto. The stigma unfortunately is still there. I had a cardiologist ask me a few weeks ago how I got it, and I replied what and why do you feel the need to know or to ask? I said its ignorant medical professions like you that put this "stigma" on us and I don't appreciate it at all! I never did tell him I got it from a tattoo, none of his business!

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #47 on: March 25, 2016, 01:11:22 pm »
 Hey Scout, Did You figure out the picture thing? How are You doing on the smoking? Personally , I have increased lately with all the BS going on around Me. Still trying to get My Lab paperwork set up for My SVR24 test so I can post with You and Beto! Not looking good at this juncture. Nobody has been answering or returning messages all of a sudden!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline beto

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  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #48 on: March 25, 2016, 01:51:30 pm »
Scout

You tell em' .  Glad you are still spunky.  That is a good sign.  Now that I am approaching cure, I have been telling people about the 40 years of hep struggles.  Funny how we pretend we are 100% for so long and hide everything so we don't get shunned or fired or chastised.  Some people are kinda weird when I tell them, like I was putting them in harms way for all those years.  Then there are those to whom it never mattered, but everyone wants to know if you shot drugs.  That is just much more tabloid information.  All of the stories we tell that rivet us from our fellows struggles..the rest of the world could pretty much care less, unless it involves near death experiences or run ins with drug dealers.  But our trial and tribulations...whatever...

Tommy- not only have you had to put up with HCV and all the trimmings, TX and EOT woes, but you can't seem to get the damn health system to cooperate.  Another drop in the bucket they say.

Cal- nice of you to chirp up on your thread that we have all hijacked.  Trivia: Cal's thread is one of the most read and commented on in the forum's collective history...no kidding check out the stats.  So get on it Cal let's get back to all that yakity yak we were all so good at as newbies.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #49 on: March 26, 2016, 09:25:59 pm »
Your exactly right Beto. The stigma unfortunately is still there. I had a cardiologist ask me a few weeks ago how I got it, and I replied what and why do you feel the need to know or to ask? I said its ignorant medical professions like you that put this "stigma" on us and I don't appreciate it at all! I never did tell him I got it from a tattoo, none of his business!

Scout

BOOM! way to go scout!  I had a kidney doc lecture me about how my drug use was so hard on my heart, and probably damaged my heart... I said.." doc... I wasn't and addict, just experimented a few times.   Give me a break.
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • For those regarded as warriors....
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #50 on: March 26, 2016, 09:31:18 pm »
My Lovely lovely Heplandia friends,

You were right, I Svr'ed at 12 weeks EOT. I found out a few days ago. What a trip! Just goes to show that previous RAV inducing drugs don't have to alter the outcome of our new tx''s.
I'm slowly getting better. I need to sleep most days and still have a bit of pain. I am seeing a Neurologist about the peripheral neuropathy which worsened during tx. I blame the ribas of course! But am taking PEA Pure for 3 weeks now and my feet have stopped burning already. I am hopeful it will help me.
I am doing brain exercises in neuroplasticity to sharpen that dreadful memory and dementia like symptoms and it's really working.


Love it, love it , love it!!  I am absolutely thrilled for you!!!!!  Virtual hugs coming your way!

My depression is better.  Taking SAMe every a.m before I eat.  After about 2 weeks it seems to really help.  Was doing SAMe that contained mannitol... not good.  Had to find SAMe w/o mannitol.  Much better!

anyway,  glad to hear you are on the mend!
dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Viekira & Ribas 17 weeks. Post tx
« Reply #51 on: March 27, 2016, 12:54:06 am »
dm sam-e is the bomb yo.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

 


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