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Author Topic: 3 days after treatment finished, sore muscles, and fatigue!  (Read 9693 times)

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Offline pansy

  • Member
  • Posts: 40
I woke up with pain in my upper back, right side.
Did some stretching to alleviate it.
But I'm noticing regular chores are exhausting!
Walking, cycling, things that I usually do everyday, are so draining, since I've been off Harvoni.
Ugh.
How long will this last, any imput, please!

pansy
Diagnosed 2002, geno: 1a.
Treatment naive.
Started Harvoni 3-3-2016
ALT: 78 AST:60 VL  = 6.3
3-17- 2016 (2 wks Harvoni)
ALT: 16  AST: 21 VL = 2.2
3-28-2016  (4 wks Harvoni)
ALT: 17  AST: 21 VL = Undetected
4-14-2016 (6wks Harvoni)
ALT:17 AST:22 VL = Undetected
4-25-2016 (8 Wks Harvoni)
ALT=18 AST= 21 VL=Undetected
5-9-2016 (10 Wks Harvoni)
ALT=16 AST=25 VL=Undetected
Finished Meds 5-25-2016
5-30-2016 (12 wks Harvoni)
ALT=18 AST=24 VL=Undetected
6-27-2016  (4Wks EOT)
ALT=19 AST=24 VL=Undetected

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: 3 days after treatment finished, sore muscles, and fatigue!
« Reply #1 on: May 28, 2016, 07:28:02 am »
Pansy, I had some days of fatigue and exhaustion very soon after I finished treatment. I'm sure some of the difference was just the absence of the Harvoni High. You've also been tapering off prednisone, so being on Harvoni may have masked the fatigue you probably would have felt if you had tapered off prednisone without being on Harvoni.

Because I finished Harvoni 8 months ago, it's hard to recall the exact pattern, but after those first days of needing a lot of extra sleep, most of my days felt like normal energy (still considerably less energy than the Harvoni High had given me, but definitely more energy than before treatment). Probably everyone's experience is different, but I hope this helps.

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline brie41

  • Member
  • Posts: 191
Re: 3 days after treatment finished, sore muscles, and fatigue!
« Reply #2 on: May 28, 2016, 12:16:24 pm »
Hi Patsy,

  I also felt worse as soon as I stopped taking my Harvoni.  I felt fatigued and weak for a few weeks.  Not all the time but just didn't feel good.  I am feeling like myself the last few days so hoping it is all behind me!  Hope you feel better very soon.  I waited for 2 weeks before starting any supplements and adding my protein powder back in my smoothies.  Think that is helping too.  Brie
Diagnosed  HCV, 1A 2006
Viral load 6 million
Ast/Alt always in the 20's
F0-F1, never changed
Treatment naive, started 8 week Harvoni 3/15/16
4 and 8 week labs undetected
6 week eot labs undetected
13 week eot UNDETECTED!

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: 3 days after treatment finished, sore muscles, and fatigue!
« Reply #3 on: May 28, 2016, 03:23:55 pm »
Hi Pansy, it sure is interesting how these DAAs affect each of us differently. My "Harvoni High" leveled off  in the second half of treatment; energy certainly was better but not like it was in the first 4 weeks. So, I'm feeling about like I've been feeling for the past 6 weeks,  overall pretty good, with some days more energetic than others.  I'm finding a good night's sleep plays a big role.

So, give it some time and hopefully this will be a short-lived phase. We are still learning how these very powerful drugs affect us.  I do hope you are feeling better very soon! Keep the faith, FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline pansy

  • Member
  • Posts: 40
Re: 3 days after treatment finished, sore muscles, and fatigue!
« Reply #4 on: May 28, 2016, 06:42:53 pm »
Hi Gnatty, Brie41, and FutureThinker!

Thanks so much, for replies!

Gnatty, you know I never thought of that, it's true about the prednisone, 1mg every other day now, and I hope soon to get off it, entirely. I know others have said it is awful coming off it.
Harvoni has helped in more ways than one! ;)

Brie41, I stopped taking my calcium/mag/vitD during tx, I will start after my next dr appt. I'll see both my dr's on 5/30.
I take a once a week bone-strengthener as a side-drug with pred., so I didn't want to overtax the kidneys, while on tx.
I'll also start my full suppliments soon!  ;)

FutureThinker,
I think my "Harvoni High" was similar to yours, towards the last month and a half, I didn't feel anything...
The ear ringing has also lessened.
I am trying hard staying active, but wow, do I feel gravity!
I am napping more, which may help.
I rarely napped during tx, but now I feel a little sleepy in afternoon...

I really look forward to swimming outdoors!
It has always been the thing that makes me feel right.
I'll check back here after next dr. visit.

Thanks so much, for all your imput, it helps...

Hoping for all our best results!
Big hugs!

pansy

Diagnosed 2002, geno: 1a.
Treatment naive.
Started Harvoni 3-3-2016
ALT: 78 AST:60 VL  = 6.3
3-17- 2016 (2 wks Harvoni)
ALT: 16  AST: 21 VL = 2.2
3-28-2016  (4 wks Harvoni)
ALT: 17  AST: 21 VL = Undetected
4-14-2016 (6wks Harvoni)
ALT:17 AST:22 VL = Undetected
4-25-2016 (8 Wks Harvoni)
ALT=18 AST= 21 VL=Undetected
5-9-2016 (10 Wks Harvoni)
ALT=16 AST=25 VL=Undetected
Finished Meds 5-25-2016
5-30-2016 (12 wks Harvoni)
ALT=18 AST=24 VL=Undetected
6-27-2016  (4Wks EOT)
ALT=19 AST=24 VL=Undetected

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: 3 days after treatment finished, sore muscles, and fatigue!
« Reply #5 on: May 28, 2016, 07:04:08 pm »
About a month or two ago I got slammed with physical aches. It was like I was sore to my very bones. I was stiff, getting up and down hurt, it was hard to exercise. The only thing that kept me sane was a Thai massage I had once a week.

I wondered if it was related to treatment as so many people were mentioning it, but it came months after the cessation of treatment- about 7 months - so I don't know. I'm 57 and I've knocked my body round with a range of physical sports and I've sustained numerous broken bones as a result, so I rather think time us catching up with me.

As I was off treatment I went back on chondroitin and glucosamine and now I feel normal again. 
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline pansy

  • Member
  • Posts: 40
Re: 3 days after treatment finished, sore muscles, and fatigue!
« Reply #6 on: May 30, 2016, 05:17:15 am »
Hi Philly,

Thai massage sounds great, not available here, but there is shiatsu and acupuncture, which has always been a winner for me, when I needed pain relief, but didn't want to overload liver with pain meds...

I've used chondroitin and glucosamine once, while doing therapy /recuperating from a herniated disc in back...
Like an oil can for the tin man! :)

Glad it worked for you!


pansy
Diagnosed 2002, geno: 1a.
Treatment naive.
Started Harvoni 3-3-2016
ALT: 78 AST:60 VL  = 6.3
3-17- 2016 (2 wks Harvoni)
ALT: 16  AST: 21 VL = 2.2
3-28-2016  (4 wks Harvoni)
ALT: 17  AST: 21 VL = Undetected
4-14-2016 (6wks Harvoni)
ALT:17 AST:22 VL = Undetected
4-25-2016 (8 Wks Harvoni)
ALT=18 AST= 21 VL=Undetected
5-9-2016 (10 Wks Harvoni)
ALT=16 AST=25 VL=Undetected
Finished Meds 5-25-2016
5-30-2016 (12 wks Harvoni)
ALT=18 AST=24 VL=Undetected
6-27-2016  (4Wks EOT)
ALT=19 AST=24 VL=Undetected

Offline brie41

  • Member
  • Posts: 191
Re: 3 days after treatment finished, sore muscles, and fatigue!
« Reply #7 on: May 30, 2016, 11:38:28 am »
HI Patsy,

 I hope everyday gets a little better, but sure are all of people feeling a wide range of symptoms after treatment.  Can't all be a coincidence.  Hopefully a small price to pay to finally be rid of this disease!  Enjoy that swim!!  Brie
Diagnosed  HCV, 1A 2006
Viral load 6 million
Ast/Alt always in the 20's
F0-F1, never changed
Treatment naive, started 8 week Harvoni 3/15/16
4 and 8 week labs undetected
6 week eot labs undetected
13 week eot UNDETECTED!

 


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