Author Topic: 2016 graduates, How many of us are there here? (Read 18602 times)

morab · « **on:** January 04, 2017, 03:55:47 pm »

Has anyone counted the 2016 graduates who reached undetected this year?
I reached SVR 24 at the end of the year!
morab

kimlav · « **Reply #1 on:** January 04, 2017, 09:40:52 pm »

Hi Morab,

Congrats to you and everyone else in 2016.

I guess I am #2 on this list you are compiling.

Kim

NYCHEPCMAN · « **Reply #2 on:** January 05, 2017, 09:49:56 am »

I graduated in 2016!

Feeling much better, my brain fog is gone, and even my dentist commented last night on how my teeth had no plaque build up - which is a first.

andrew j · « **Reply #3 on:** January 05, 2017, 08:21:56 pm »

I'm clear, too (Thank the Lord!).
SVR 12 early Sept.

Congrats (again), Morab!
I will post on your other thread soon.

lporterrn · « **Reply #4 on:** January 06, 2017, 12:32:40 pm »

It would be lovely if graduates would pass along the hope by submitting their stories to Hep Stories https://www.hepmag.com/category/hep-stories

You don't need to be a writer, because we help with that. You just need to be brave and willing. Short stories are the best.

Congratulations everyone.

rainbowray · « **Reply #5 on:** January 06, 2017, 01:03:32 pm »

Well, It is over two years since Sol/riba treatment. I am not detected. My Liver pains from stage 3 are all but gone, just a few discomforts now and then on the liver. My neuropothy is still the same. Evidently nerve damage from autoimmune issue from Cryoglobunimia is not going to heal . The Cryo is still there also, although very mild.
So I guess I should count my blessings especially after knowing I had Heb C for 44 years before getting treatment.

lporterrn · « **Reply #6 on:** January 07, 2017, 08:53:11 pm »

It is so good to hear from you! And although recovery wasn't 100%, it sounds better, especially in light of 44 years!

SomewhereinTX · « **Reply #7 on:** February 19, 2017, 09:32:09 pm »

Quote from: morab on January 04, 2017, 03:55:47 pm

Has anyone counted the 2016 graduates who reached undetected this year?
I reached SVR 24 at the end of the year!
morab

Hi morab!

Had blood work done at 12 weeks on November 10, 2016.
Was undetectedfor my 12 week SVR.

Just posted in another thread that I requested a 24wk SVR and was told no as the 12 week showed me to be cured. That was the same day as my 24 week Firbroscan where I found out my Fibrosis Stage went from Stage 2 (just before treatment began) to now Stage 3.
No explaination as to why that may be.

I think I am going to seek out someone else will to do a 24 week SVR on me to be sure.

lporterrn · « **Reply #8 on:** February 20, 2017, 01:40:30 pm »

Somewhere - If you don't get anywhere with this, you can also request the test from your primary care doc. A cheaper, reasonable alternative is to request a liver panel. Generally when hep C returns, it really drives the ALT up. Your primary care doc can order that. Given that you are at stage 3, it is reasonable for you to be monitored for cirrhosis and liver cancer. Any chance that you have fatty liver disease? This is rapidly replacing hep C as the #1 liver disease. https://www.hepmag.com/basics/non-alcoholic-fatty-liver-disease-basics

Patty · « **Reply #9 on:** May 01, 2017, 08:19:34 am »

Hi Morab,
I'm here and one of the 2016 graduates. Blood test show undetected, but struggling with post treatment symptoms. Praying they go away,but see many are still suffering. All my joints ache, and ultrasound shows my liver is swollen, test show a slight increase in my blood work, so I'm wondering why and what did the treatment do as far as are immune system is concerned. Glad to be rid of hep-c, but feel I have woken some sleeping giants as far auto immune goes. Congrats on all for becoming undefeated and being hep-c free. Let's just pray everything else improves with time.
Patty

Patty · « **Reply #10 on:** May 01, 2017, 08:21:05 am »

Hi Morab,
I'm here and one of the 2016 graduates. Blood test show undetected, but struggling with post treatment symptoms. Praying they go away,but see many are still suffering. All my joints ache, and ultrasound shows my liver is swollen, test show a slight increase in my blood work, so I'm wondering why and what did the treatment do as far as are immune system is concerned. Glad to be rid of hep-c, but feel I have woken some sleeping giants as far auto immune goes. Congrats on all for becoming undefeated and being hep-c free. Let's just pray everything else improves with time.
Patty

Lynn K · « **Reply #11 on:** May 05, 2017, 03:46:25 am »

Not class of 2016 but class of 2015.

Just wanted to share today May the Fourth makes 2 years since EOT or SVR104

Mike716 · « **Reply #12 on:** May 08, 2017, 08:55:23 pm »

Hi, all.

I'm a 2016 graduate. Tested UND one year ago after 12 weeks on Solvadi/Olysio, and again three months ago, since being diagnosed HCV+ in 2008. Now, all my liver functions are normal, including the hepatic enzymes, exceot for platelet count, which remains low.

One big plus: I just passed the first winter of my life with no flu, cold, grippe, or other major virus infection. It seems that my immune system, freed from waging a war of attrition with HCV, is now free to fight the topìcal viral infections that have plagued my life.

This is a huge positive side effect to offset all the reported negative ones.

Cheers.

Mike

hummingbird57 · « **Reply #13 on:** May 09, 2017, 10:25:02 am »

I'm also a 2016 graduate. Started generic Harvoni in 7/16 - completed 9/16 - 12 week. Undetected 12 weeks / Undetected 24 weeks in 3/17. Main complaints were numbness in fingers and in toes and general joint aches. Most have subsided. Certain that these conditions are real but the anxiety and depression created by any chronic condition can exacerbate these aches - maybe not for everyone but did for me. Trips to the chiropractor for stiff neck, shoulders were sometimes weekly. Now, no adjustments since December '16.

Hoping everyone starts getting some relief as SVR continues!

mario555 · « **Reply #14 on:** May 09, 2017, 10:39:43 am »

Hi everyone!
I was cured in April 2016 after 24 weeks treatment with Harvoni. 24 weeks test showed undetectable. I did do a blood panel this February for my alt levels (15!) after I got scared reading about someone who might have relapsed 16 months later.
I still have post treatment side effects (dizziness and ear ringing) but I feel 10 years younger than what I am! I was stage 4 so I would be in deep sh.. if I wouldn't have taken this miracle drug!
Good luck to everyone!
Mario

I fightis thetitis · « **Reply #15 on:** May 11, 2017, 05:17:08 am »

Celebrating 1 year EOT May 7. Which means I'm 16 mos @UND and virus free!
I experienced severe liver pain post eot @24 weeks (Oct 2016-Feb 2017) and the good news since feb pain has been in check.
Which makes me feel like liver is healing or at least whatever was causing that ab pain has improved.

I'll have ultras and labs next month and request a fibroscan to check F score.
Class of 2016 rocks!

Word to your liver!

Greg

NYCHEPCMAN · « **Reply #16 on:** May 23, 2017, 04:16:30 pm »

I am at the one year point too and feel terrific!

My brain fog is gone as are heart palpitations, and vertigo....

I also don't have any liver pains and don't have swallowing issues anymore.

amazing how many things hep c triggers on people.

Rickta53 · « **Reply #17 on:** June 11, 2017, 03:13:05 pm »

Hello, its been a while since my last post. I am a 2016 graduate, took my last Harvoni pill on 12/24/16. Undetected at 12 weeks and now undetected at 6 months with all normal blood test numbers. Just had an upper endoscopy done for any evidence of damage to stomach and throat, specifically to look for varices. My results were negative for damage from the hepc virus. Have never came across anyone else mentioning the scope check but my doctors both said that varices are common with hepc patients. I feel cured and feel great. No after effects no aches or pains just a future without the dreaded virus. Thank you Harvoni!

Rickta53 (now 63 lol)

jakas · « **Reply #18 on:** June 11, 2017, 03:38:00 pm »

63 WEEKS UNDETECTED

Thanks to all of you for the support along the way.

mario555 · « **Reply #19 on:** June 11, 2017, 04:46:27 pm »

Happy for you Ripta! I finished my treatment in April 2015. After 6 months my specialist wanted me to have an endoscopy for varices. I refused the treatment based on the fact that while I was sick, no mention of this procedure was made but now that I am cured, he wanted the procedure! If anything, my throat would have been better after the cure so, what's the use? My specialist was very mad at me because I dared to have an opinion and he kicked me out of his office never to see me again! When I think I was the public spokesperson for the hospital patients and was instrumental for the acquisition of a large piece of equipment, I was rather disturbed. Then it downed on me! I was not a money maker for him anymore!
Is this test required? Probably in a portion of the patients but probably useless for the large majority of us! In any case, I am not a doctor but I have never heard of previous hep c patients to bleed to death from their throat!

Flaco · « **Reply #20 on:** June 30, 2017, 03:54:50 pm »

I'm one.

Started Harvoni March, 2016, was undetectable in like 2 weeks and stayed that way until EOT @ 24 weeks in August. Was SVR24 in Feb. '17, and will be going for my 1 year checkups in August. I'll get my ~~thump test (forgot whatchacallit)~~ Fibroscan around that time.

I was stage F4 at my preliminary Fibroscan back in Feb. '16, but really didn't feel like I was on my death bed, which was how I figured one would feel at end stage - cirrhosis. Except for chronic painful neuropathy I felt pretty OK. Now, however, I dunno. I hurt all over all the time - nerve pain in my extremities and limbs as well, but I've had that for years (though it has intensified) - sometimes little twinges in my right side as well, infrequent. Also I'm experiencing a fair amount of itchiness.

At every liver doc office visit he would rave about how great my test charts looked.

So I don't know. We'll see.

CureSeeker · « **Reply #21 on:** June 30, 2017, 04:59:43 pm »

I'm not sure if I qualify. *shrugs*

I took my last dose at the end of November 2015, and achieved SVR12 in February 2016.

A big CONGRATULATIONS to the class of 2016 (whether I qualify or not), and everyone who has slain their dragons - EVER!

MommaT · « **Reply #22 on:** July 15, 2017, 03:49:25 am »

Hello All!
I am a 2016 Graduate checking in! I took My Epclusa from Sept to December 2016.
I hope WE all keep Clear of Hep C and maybe even reverse THE damage??? I am Compensated Cirrhosis with Lots of Nerve Pain and No Sleep! But, good thing is if I can stay clear and I have changed my diet-avoiding meat and processed food. I have no idea if it will work but worth a try! Can the liver regenerate? Let's hope so!
I am seeing Liver Specialist soon to have a plan. Might as well look at transplant connected Dr who REALLY knows his stuff because honestly-Gastroenterologist are limited. My theory find the worse case scenerio Dr and get good care!
Good Wishes Alumns!

mario555 · « **Reply #23 on:** July 15, 2017, 07:15:24 am »

Congratulations and good luck with your liver! The great news is that you have stopped the disease in its path!

Flaco · « **Reply #24 on:** August 27, 2017, 01:10:29 pm »

Update:
My peripheral neuropathy pain had become such a central part of my life that I got on my GP about it. He prescribed gabapentin (Neurontin) which seemed to make matters worse (or at least my pain and twitches (myoclonic jerks are they called?) got worse during the time I was taking gabapentin), so I gradually took myself off of it.

Doc changed me to Lyrica a month or so ago, and the change is dramatic. Very little pain now (reduced to (relatively) minor pain in my hands and feet), and unvoluntary movements - jerks & twitches are minimized. Not sure about liver impact, though. Need to look that up...

Now if I can just get my blood sugar under control I should be in pretty good shape. I'm taking metformin (Glucophage) 1000mg 2x/day and it's not doing the job. I'm lucky to get 200mg/dl 2 hours post prand.

While I was waiting for my thump test (fibroscan) I thumbed through a Hepatitis C magazine there which included an article on coffee and how good it may be for the liver. As a home roaster of coffee, that's good news!

It did not occur to me at the time to look and see if the magazine was Lucinda's

I suspect it might have been, though.

lporterrn · « **Reply #25 on:** August 28, 2017, 12:59:50 pm »

All these wonderful outcomes make especially good stories. Please tell your hep story at Hep Stories https://www.hepmag.com/category/hep-stories

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Author Topic: 2016 graduates, How many of us are there here? (Read 18602 times)