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Author Topic: Waiting my turn  (Read 6471 times)

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Offline pmrad5

  • Member
  • Posts: 4
Waiting my turn
« on: January 26, 2017, 10:39:10 am »
Hello folks,
I'm a 52 yo male with cirrhosis who failed Harvoni with Rib. I'm still compensated and hopeful for cure this year. My doc trying to get epclusa and rib approved. Just frustrated. This will be my fourth treatment

Geno 1a
1989 infected
2011 dx
2011 Bx stage 3-4 grade 3

Offline Lynn K

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  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Waiting my turn
« Reply #1 on: February 10, 2017, 01:28:42 am »
Hi pmrad and welcome.
 If it helps I treated 3 times with interferon based treatment the first time was interferon monotherapy with 3 shots of interferon a week with no other medicines duration 6 months.

I was a null responder to those treatments my viral load actually increased on treatment.

I also treated with sovaldi and olysio for 12 weeks. I was not detected at end of treatment (EOT) but was found to have relapsed 12 weeks after treatment ended.

I next treated with Harvoni for 24 weeks and ribavirin for 15 or those weeks. I am now clear of hep c for almost 2 years now post EOT. This was my 5th treatment. Just to add I was diagnosed with cirrhosis on a liver biopsy in January 2008.
So my point is if I can be cured you can be cured too.

Best of luck to you
Lynn
« Last Edit: February 10, 2017, 04:34:37 pm by Lynn K »
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline pmrad5

  • Member
  • Posts: 4
Re: Waiting my turn
« Reply #2 on: February 10, 2017, 08:17:07 am »
Thanks Lynn,

 My meds are approved, just waiting for them to arrive. It's gonna work this time.

Pat

Offline Lynn K

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  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Waiting my turn
« Reply #3 on: February 10, 2017, 04:36:18 pm »
I hear Epclusa is great stuff you can do it!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline pmrad5

  • Member
  • Posts: 4
Re: Waiting my turn
« Reply #4 on: February 15, 2017, 12:20:24 pm »
Started epclusa and ribivirin today. Yes!!!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Waiting my turn
« Reply #5 on: February 15, 2017, 04:45:03 pm »
All right congrats and good luck!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline pmrad5

  • Member
  • Posts: 4
Re: Waiting my turn
« Reply #6 on: March 09, 2017, 04:38:38 pm »
Week 3 labs "Not detected". Yay!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Waiting my turn
« Reply #7 on: March 09, 2017, 09:02:06 pm »
All the sweeter after what you've been through -- congratulations!

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline elias

  • Member
  • Posts: 285
Re: Waiting my turn
« Reply #8 on: March 09, 2017, 09:19:02 pm »
Epclusa has highest success rate for your GT of all the antivirals currently approved.
Contracted HCV ~age 12
Diagnosed: September 2016 GT2b
F3 by Fibrosure: 0.66
Necroinflammat activity: A3 0.76
================
VL Sep. 12, 2016: 1.44 million/ Log: 6.157
AST:71/ ALT:114   Sept. 1, 2016 Before treatment
==================
4 week after beginning  Epclusa:
Viral Load: UNDETECTED
AST 17/ALT 11
===============
Began Epclusa:  October 22, 2016
End of Treatment [EOT]: January 13. 2017
====================
EOT+4 Weeks: UNDETECTED
====================
SVR 12 April14-HCV Not Detected

 


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