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Author Topic: A beacon of hope!  (Read 5780 times)

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Offline Cyrgen

  • Member
  • Posts: 4
A beacon of hope!
« on: February 21, 2017, 10:32:31 am »
A beacon of hope

I posted a few weeks ago(day 6) the problems that I was having taking Harvoni. This is now day 26 and hopefully my personal journey may be of help with those struggling.
Five years ago, I almost died from meningitis
(bacterial). I was in a coma and missed 8 months of work, and eventually had to retire in 2015. The past few years, I have been tired, lack of stamina, severe arthritis in my thumbs and neck, and skin problems on the back of my head. I had accepted that I had to live with the results of the meningitis. I'm a fighter, but it got me down more than once.
A year ago, my family doc was concerned because my liver enzymes were high normal to slightly elevated, so he ran a test confirming Hep C. Was sent to a specialist and I could not get approval from insurance. Fortunately I did a month ago. I'm lucky because my viral count is very low, I'm subtype 1-a and my fibroscan showed my liver was normal, no fibrosis at all F-0.
My reason for posting this is simple. Once I got past the first couple of weeks, I have had zero side effects. It's like I'm taking a vitamin. The remarkable thing is that starting a couple of weeks ago, I started feeling better, much better, like I did several years ago....and the energy, I feel 20 years younger. It is humbling. The arthritis in my thumbs is going away. My range of motion is almost normal and my pain is half gone and getting better. Even my scalp is clearing up and returning to normal.
I return for a check up and viral load test next Monday. I have no doubt what the outcome will be.
I went from despair on day six to exhilaration in 3 weeks.
For those of you a bit down, take heart. What a blessing of a drug and how fortunate am I.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: A beacon of hope!
« Reply #1 on: February 21, 2017, 03:35:47 pm »
So glad to read you are doing better and feeling better

Good luck with the rest of your treatment!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline andrew j

  • Member
  • Posts: 477
Re: A beacon of hope!
« Reply #2 on: February 22, 2017, 01:13:28 am »
Fantastic!

I was full-blown symptomatic for twenty years when I had Hep C - but started feeling better almost immediately on Tx.
Certainly, the brain-fog was clearing that quickly.

You're right, Cyrgen.
It's such a blessing, isn't it?




« Last Edit: February 22, 2017, 01:25:18 am by andrew j »

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: A beacon of hope!
« Reply #3 on: February 22, 2017, 12:45:40 pm »
Glad to hear your body has adjusted and hopefully you are now on a smooth path to SVR! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

 


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