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Author Topic: Joint Pain  (Read 8386 times)

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Offline almostfinished

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  • Posts: 32
Joint Pain
« on: January 31, 2018, 10:18:39 pm »
Hope everyone is well...got my GP to contact the liver specialist about the test results.
All she got was a fax saying I was negative, great news, now waiting for the 12 week test, it is March 1st. The anemia is under control and most side effects have disappeared. I have developed severe joint pain since the last week on Epclusa, elbows, shoulders and knees. Also a weird spot on one leg had it biopsy'd and waiting for the results. My GP said she suspected fibromyalgia although I have never had any joint pain before treatment. I asked if it could be arthritis as I am 65 but she didn't think so and will do some blood tests and x rays. It is pretty brutal but after how sick I was on treatment, I can stand it. I am waiting for the 12 week test and them I will contact the link that Lynn gave me to report all the symptoms I had during treatment and now the joint pain.
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Offline andrew j

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  • Posts: 477
Re: Joint Pain
« Reply #1 on: February 01, 2018, 03:50:41 am »
Hi almostfinished,

Congrats on the results - and sorry that you are still having problems post-treatment.
I remember you having a rough time on Tx.
You thought at one stage that you were experiencing an allergic reaction?

Unfortunately some do experience adverse reactions.
I have certainly read a number of accounts of people getting these fibromyalgia-like body pains, both during and after Tx.

You're doing the right thing reporting this.
... And don't let  anyone try to minimise what you're going through! ...

Insofar as these drugs are relatively new [and we are therefore guinea-pigs] - we have to hope that tests will be devised that will be able to pick up potential adverse reactions in advance.

Hang in there!

Best wishes,
A.

« Last Edit: February 01, 2018, 03:52:36 am by andrew j »
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Offline Lynn K

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  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Joint Pain
« Reply #2 on: February 01, 2018, 04:36:43 pm »
Absolutely report your experiences hopefully this will help those who come after
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Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline almostfinished

  • Member
  • Posts: 32
Re: Joint Pain
« Reply #3 on: February 04, 2018, 10:38:32 am »
 Thank You Andrew and Lynn for getting back...I am having a good day today. I also just saw a link on face book for people in Canada who were infected between 86-90 to receive compensation. This specific fund had run out of money but has been replenished. Don't know if the people on this forum are Canadian or American but so far in Canada there has been three settlements. I was infected in the late sixty's and although it was not detected until the ninety's I produced the transfusion docs. from the hospital and the after effects and I was compensated.
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Joint Pain
« Reply #4 on: February 04, 2018, 04:05:32 pm »
I assume this would only apply to those who received a transfusion and that this is their source of infection is that correct?
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline almostfinished

  • Member
  • Posts: 32
Re: Joint Pain
« Reply #5 on: February 04, 2018, 06:05:27 pm »
 Yes Lynn it is for transfusion infected people, you have to pay for your hospital records and show the transfusion.
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Joint Pain
« Reply #6 on: February 04, 2018, 07:08:26 pm »
Just in case others needed more info.

I’m in the US and have never had a transfusion.
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline almostfinished

  • Member
  • Posts: 32
Compensation Link for Canada
« Reply #7 on: February 04, 2018, 07:55:09 pm »
Lynn
http://hepcclassaction.ca/?
utm_source=Facebook&utm_medium=Newsfeed&utm_campaign=Hep-CPhase1&utm_term=RCAEN&utm_content=Hepc2018EN this is the link for the Canadians seeking compensation from transfusion infection.
When I was getting compensated they ran out of money but do to this new class action suit the gov't made more funds available. Those infected by tainted blood in the US should start the same kind of law suit.
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Joint Pain
« Reply #8 on: February 04, 2018, 08:39:54 pm »
Thanks for sharing this information I am sure many will find it useful.
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline almostfinished

  • Member
  • Posts: 32
Re: Joint Pain
« Reply #9 on: February 04, 2018, 08:46:05 pm »
  No problem I will keep you undated, you all were awesome when I was so very ill.
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Offline andrew j

  • Member
  • Posts: 477
Re: Joint Pain
« Reply #10 on: February 05, 2018, 01:35:37 am »
Hi almost,

I'm so glad that you had a good day (- or at least - part of a day?!) ...

I live in New Zealand.

My father got compensation years ago for receiving 'Bad Blood'.
... A transfusion he got in 1989 or 1990, I think it was.
I think he got something like $40K NZD - lawyers fees.
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Offline almostfinished

  • Member
  • Posts: 32
Re: Joint Pain
« Reply #11 on: February 05, 2018, 09:15:37 am »
 Hi Andrew: In Canada it was a huge class action, two in fact, the blood services company here actually closed down and was transferred to a new one called Canadian Blood Services. We have some problems with blood transfusions now as donors who heard about the tainted blood  don't want to give their blood. They are misinformed and think they can catch it from the equipment. The first settlement was no problem until they ran out of funds. the second one which was a larger amount was brutal. Even if you showed your medical documents from the transfusion they said if you had a tattoo or pierced ears you could have got it from that and didn't want to pay you. Now that the original settlement is refunded I will call and ask if I still qualify as I have have treatment and so far I am negative ?????
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