Welcome, Guest. Please login or register.
March 26, 2019, 12:15:18 pm

Login with username, password and session length


Members
Stats
  • Total Posts: 53834
  • Total Topics: 4504
  • Online Today: 320
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 95
Total: 95

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: First week of Maviret DONE!  (Read 1056 times)

0 Members and 1 Guest are viewing this topic.

Offline Curious Alice

  • Member
  • Posts: 5
  • Started Maviret 12/9/2018
    • Hep C and Me Blog
First week of Maviret DONE!
« on: September 18, 2018, 08:23:30 am »
Hi guys

I was diagnosed HCV positive in 2004 and have been living with it and it's side effects for the past 14 years untreated. I have been with my Husband for 12 years and I have two beautiful children, all of which are negative.

The only treatment available here in the UK when I was diagnosed was Interferon and my consultant at the time told me it wasn't worth putting me through the side effects, especially as I was a single Mother at the time. I wouldn't have been able to look after my son, and the success rate wasn't great either.  He told me that medicine was advancing all the time and that new drugs would be available in a few years. So I left it, until this year when I went back to my GP and was told that new treatment was now available. 

Fast forward 6 months, and I have just finished my first week of Maviret. I have 7 more to go. For the most part, I haven't had many side effects; an occasional headache and I do get very tired in the evenings. For the past two days, I have had a kind of 'drunk' feeling. Not bad enough to stop me from working. I have documented my journey in a blog if anyone would like to read it.

I have found finding people to talk to in the UK difficult.  We don't seem to have the same support network as the USA do and most Hep C forums and websites are based in the USA.  Not that this matters.  It's all the same virus after all, but we have different treatments and health care services.  I was pleased to find this forum has members from all over the world. In the UK it is almost as though it's a taboo subject and I do feel like a leper, carrying this virus around with me. I have only told my family and was absolutely devastated when I found out that my Mum had told her hairdresser the other day!

I am hopeful that Maviret will rid me of this horrible virus and I can stop feeling like I'm carrying a dirty secret around with me all the time. Not to mention the risk of giving it to others.

Diagnosed with Hep C in 2004
Started Maviret 12/9/2018

Offline lporterrn

  • Global Moderator
  • Member
  • Posts: 1,937
  • LucindaPorterRN
    • LucindaPorterRN
Re: First week of Maviret DONE!
« Reply #1 on: September 18, 2018, 04:37:41 pm »
Congratulations on one week down. Cheering you on, so please keep us in the loop!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline KimInTheForest

  • Member
  • Posts: 1,927
  • Believe in yourself
Re: First week of Maviret DONE!
« Reply #2 on: September 18, 2018, 09:49:55 pm »
Congrats on starting treatment! Do you have a link for your blog where you are documenting your journey? I'd like to read it.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Curious Alice

  • Member
  • Posts: 5
  • Started Maviret 12/9/2018
    • Hep C and Me Blog
Re: First week of Maviret DONE!
« Reply #3 on: September 19, 2018, 04:02:28 am »
Thank you
Diagnosed with Hep C in 2004
Started Maviret 12/9/2018

Offline Curious Alice

  • Member
  • Posts: 5
  • Started Maviret 12/9/2018
    • Hep C and Me Blog
Re: First week of Maviret DONE!
« Reply #4 on: September 19, 2018, 04:04:10 am »
I don’t think I can post links yet as I’m a new member as my link hasn’t appeared in my post above. I think if you click on the little globe under my avatar though, it should take you there.
Diagnosed with Hep C in 2004
Started Maviret 12/9/2018

Offline KimInTheForest

  • Member
  • Posts: 1,927
  • Believe in yourself
Re: First week of Maviret DONE!
« Reply #5 on: September 30, 2018, 10:00:31 pm »
I don’t think I can post links yet as I’m a new member as my link hasn’t appeared in my post above. I think if you click on the little globe under my avatar though, it should take you there.

I don't see it on your profile either when I click your avatar to get your profile. All members can post links as far as I know, regardless of how new you may be. You can post the link directly in your post. Just copy and paste it in. Or you can add it to your signature file by going to your profile and editing/adding it to the signature box (where I think you already have some stuff).

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline KimInTheForest

  • Member
  • Posts: 1,927
  • Believe in yourself
Re: First week of Maviret DONE!
« Reply #6 on: September 30, 2018, 10:02:06 pm »
I don’t think I can post links yet as I’m a new member as my link hasn’t appeared in my post above. I think if you click on the little globe under my avatar though, it should take you there.

Oh I see - got it now!! I just clicked on the globe beneath your avatar (like you said - haha!) and got to your blog. Thanks! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

 


© 2019 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.