Author Topic: will our S/O post treatment please post results 4, 12, 24 EOT (Read 232649 times)

sunrise · « **Reply #100 on:** January 08, 2015, 04:54:46 pm »

Ok folks
Just got a call from my doctor's office. I am end of treatment undetected!!!! Just 3 more tests and Im offically cured!! I am praying... hope you all are coming along also... Blessings Sunrise

badbradley · « **Reply #101 on:** January 08, 2015, 10:02:30 pm »

Sunrise "UNDETECTED"

It's about time! Geez! I'm happy for you. It is a good feeling for sure. Hope you stay UD forever, and don't have to wait forever for your next results. EXHALE!
Brad

bh4sons · « **Reply #102 on:** January 08, 2015, 10:37:09 pm »

Happy for you... Hopefully this is a great indicator of future things to come.

sunrise · « **Reply #103 on:** January 08, 2015, 11:03:38 pm »

Thankl you so much!!
I know I couldn't believe it took this long as well. Hopefully yes it will be a good indicator for future things to come. I really appreciate all your support people, and hope ud forever for everyone here... Blessings sunrise

Lynn K · « **Reply #104 on:** January 09, 2015, 04:39:39 am »

Finishing week 8 on Monday with blood draw on Tuesday 01/13/15. I don't expect they will be doing a viral load as I was week 4 UND. So just liver functions and a CBC most likely. Always like to see those ALT and AST scores and the Platelet count hoping one day to get back above 100 would be wonderful and a great sign.

I hope I will hear by late next week or early in the week after.

How are you doing these days Mel liking Harvoni and does Harvoni like you?

Heck Sunrise it has been way long call your doctors office and have them give the lab a nudge.

Best to all

sunrise · « **Reply #105 on:** January 09, 2015, 09:16:51 am »

Hey Lynn k
I did get the results UD at EOT. I hope your tests come out well. By the way, at what point did you relapse from S/O? Was it at end of treatment. ? I guess I'm asking because this next 2 weeks are a big indicator for me. My 4 week test is on the 20th. ..Blessings Sunrise

BattleTheBeast · « **Reply #106 on:** January 09, 2015, 02:50:36 pm »

Lynn,

I can honestly say that I am doing way better without the Olysio. That could be because I fought off the brunt of the infection while on S/O and by the time I started Harvoni (week 9) it was just out looking for stragglers because I was UD already per the blood work. I don't want to blame anything but I am doing ok and have my days of being human again so that's a huge plus.

Did the Beasts approve RibV for you? Were you able to get the date extended ok? I am wondering if I will be able to get all six bottles prescribed or be stopped at 4.

Mel

BTW: CONGRATS SUNRISE!!

sunrise · « **Reply #107 on:** January 09, 2015, 04:01:37 pm »

Thanks Mel
V yes I was so happy to hear the news although I kind of expected it because it was the end of treatment blood test. Now the real test is on I can't my 4 week post treatment on the 20th of January. I'm pretty much that I'm cured but of course I am still praying. I'm so happy to hear that you are soing better witbout it, that was one heck of a drug I tellya! Finally my anxiety is subsiding. The joint pain in my ankles and hip Iis still there, but hopefully that will fade. Just keeping fingers crossed for UD. Glad to hear you are feeling better, it is a miracle these new drugs.....Blessings Sunrise

Lynn K · « **Reply #108 on:** January 09, 2015, 11:59:50 pm »

Hi Sunrise

Yeah what Mel said CONGRATS!!!!!!!

If a person becomes UND on treatment they will stay UND through treatment there are no relapses while on treatment.

My treatment with Sov Oly was March to June 2014. My viral load was tested before start of treatment viral load was 6.315 Log 10. I was tested again at week 4 in April I was UND at week 4. I was tested at EOT 11 June again viral load UND as expected. The next time I was tested was 12 weeks post on Sept 9 Viral load was 6.384 Log 10.

So yes I was UND at EOT but was found to have relapsed when tested again at 12 weeks after I took my last pills. Bear in mind I am a multiple time null responder, GT 1a with cirrhosis. For patients like me they are now seeing more like 85% effective.

The newest recommentation and per the Olysio prescribing information sheet for a GT 1a with cirrhosis is 24 weeks Sov Oly and I think that may have done the trick but that was not the protocol when I treated. And so it goes...

Hi Mel

Glad you are felling better. I will have to wail a bit more to get the date extended Express Scripts said to ask when I am setting up for next refill in three weeks. Nope no word on Ribivirin either. Express scripts say they have not had a new prescription yet. Hummmmm. I sent a message to my doctors office through My Chart Guess I will need to give them a call to find out whats happening.

Peace

sunrise · « **Reply #109 on:** January 10, 2015, 12:52:16 am »

Thanks Lynn
yes it seems insane that you're doing well and then boom setback. it seems that my results so far is exactly like yours. The only difference is I am not cirrhotic and I've never been treated before. I guess I'm just praying that I like and one of the 90 percent that clears this dragon. Its just Lynn, where did these dragons hideout. you think in the liver? Well all we can do is just wait and hope and be positive. I hope all of us find our cure....Blessings Sunrise

Lynn K · « **Reply #110 on:** January 10, 2015, 12:55:49 am »

I think you are more like 95%. And I think the are hiding in plain site just below the tests capability of detection. The 3 of the playing cards waiting for the storm to go away

BattleTheBeast · « **Reply #111 on:** January 10, 2015, 01:24:42 am »

Lynn,

Crazy how fast you get undetected and then that bastard comes back over and over again. I didn't get UD until some time after week 4, tested at the beginning of week 9 I was finally clear. So somewhere between 4 and 9 weeks I cleared.

I am cirrhotic and started with 8.3 VL but this is my first treatment. I have no clue what my SVR % is but I have to think if they don't give me the full 24 weeks prescribed it could impact me.

Just going to keep pushing on and hope that whatever I end up getting works and I know we are all in the same boat. We all just want our lives back and SVR, I hear all these high percentages but I think the numbers will be much more accurate as more of us go through the treatments. How many total people were really treated in the Harvoni or S/O or AbbieV clinicals vs. how many people are actually on the approved treatments today? I think the next 12 months are going to be very telling.

Just really hope these % of SVR remain high and we all can clear this monster from our bodies and lives.

Mel

Lynn K · « **Reply #112 on:** January 10, 2015, 01:36:23 am »

Yes I was surprised it came back to where it left off in just 12 weeks. I wouldn't say comes back for me over and over that was the first time I had ever made I dent in the virus.

When I treated with interferon when I say null responder I really mean null responder. The last time I treated with Interferon and Riba my viral load actually increased while on therapy!

The dragons said yes give us more liver with this interferon Chianti.

So I was amazed and very hopeful when I was UND at 4 weeks on Sov Oly and very sadly disappointed when I relapsed at 12 weeks post.

If I beat this thing I want to go on a Hike in the cascades maybe up mount Si here in WA so I can make folks look at me wierd when I shout FREEDOM at the top of my lungs. Probably more than once ;-)

Lynn

BattleTheBeast · « **Reply #113 on:** January 10, 2015, 01:43:02 am »

I hear you! That sounds like an amazing idea, although I would probably choose a warm beach over a mountain!

It's crazy but I feel so invested in all of us to clear, not just myself.

Mel

sunrise · « **Reply #114 on:** January 10, 2015, 09:01:15 am »

Hey brad
I got your message. I don't know if my response went thru. Thanks i hope you are right. Im not discouraged. Just anxious. Thanks for the pep talk :-) Blessings. ...Sunrise

badbradley · « **Reply #115 on:** January 10, 2015, 09:22:43 am »

Good morning Sunrise
Did you get three messages by any chance? Had some site errors occurring and had to send 3 times. yes re-typing also! Hope you have a good weekend. Wind chill this morning is -22!!! It's crazy cold. Joints are a little creaky today!

BattleTheBeast · « **Reply #116 on:** January 10, 2015, 01:05:12 pm »

Hmmmmm, was it site error or user error BB??

Hope you are having a good Saturday!

Mel

sunrise · « **Reply #117 on:** January 10, 2015, 02:27:49 pm »

yes there must have been some kind of error. I hope you all stay warm. Its not too bad here just a little cloudy. Nothing like up in the Midwest Geez. Hope everyone is doing well with your treatment and you're feeling better...Blessings Sunrise

lporterrn · « **Reply #118 on:** January 11, 2015, 12:49:20 pm »

Sunrise - Congratulations on this good news. You have been so generous with your support and encouragement to others, and I am delighted to hear you are cured. If you ever feel like sharing your story, I'd love to see it: http://www.hepmag.com/hep_stories.shtml

By the way, I invite everyone to share their stories - responders, non-responders, never been treated, renegades, etc....I think stories are how we help each other.

sunrise · « **Reply #119 on:** January 11, 2015, 01:03:23 pm »

Thanks Lucinda
Its the checkered flag! 2 more tests and then hopefully we can call it a victory. I do try to stay positive. My 4 week test on 20th then hope to move to next, 12 week. It's alittle nerve wracking , but definitely am hoping. I appreciate everyones support here...Blessings Sunrise. Its a miracle that this is even happening!

JillLynn · « **Reply #120 on:** January 13, 2015, 01:42:49 pm »

Sunrise....just got home from the owl safari (that's what I call it anyway) from -20 Duluth...and it was FANTASTIC! I have to run now for my last blood test but wanted to see your news.

I AM SUPER HAPPY TO SEE YOU ARE UNDETECTED>>>>>>been praying for YOU and everyone on here~

OK guys.....good to be back and see you here! namaste.....Jill

sunrise · « **Reply #121 on:** January 13, 2015, 04:33:38 pm »

Hey Jill! glad to have you back! Well you know what I mean. Wow -20 thats ice fishing weather ! So how are you feeling? Im thankful for UD for the next 2 tests are what really matters now. I'm so thankful for everything that I've been able to accomplish since I've been here. So whatever happens it's on to the next chapter for all of us.... sending healing energy your way....Sunrise

BattleTheBeast · « **Reply #122 on:** January 14, 2015, 06:03:09 pm »

Jill,

Welcome back! We missed you

I think I just posted earlier this week that I wondered when you were going to be back.

Hope your vacation adventure was everything you wanted it to be. I don't know about that -20, oh my gosh!!

Lots of Undetected news running around, it's been mostly positive news, so exciting to see that. Pretty awesome news from our Sister Sunrise!

Mel

JillLynn · « **Reply #123 on:** January 15, 2015, 03:21:00 pm »

Mel.
HI SISTAH!!!!.......I'm finally getting caught up with everyone. boy it takes a while!

I just posted in the other forum but I guess this is the place to be now that I finished my pills.

Sending LOVE AND LIGHT TO YOU MEL and everyone on here. You were all with me in the bog everyday!
Saw 4 kinds of owls and took close to 2000 pictures......what was I thinking? ha ha...but they were my first ever owls in the wild and not in a rehab place so seeing them in the wild was incredibly special and celebrating a new year virus free so far is too!..
For all of us! This is our time! WE will beat this....we ARE beating it. I am praying everyday for each and everyone of us. xxxx Jill 0000

BattleTheBeast · « **Reply #124 on:** January 15, 2015, 03:52:07 pm »

So glad you had a great time, you deserved it. Not sure how you handled those temps though, yowza!

Sounds like you need a little rest after the vacation but you just take good care of you, eat good and regroup and in a couple of days you will be 100% again!

You were missed here and happy to have you back with us. I'd love to see some of those pictures sometime!

Mel

sunrise · « **Reply #125 on:** January 15, 2015, 04:19:55 pm »

Hello Ladies
Last blood test Jill? I thought you are doing 24 weeks of harvoni. I'm alittle dense with my memory. So good to see you're doing well. Mel you are so right. We must all take good care of ourselves. I am still having these dang leg pains and back of ankles are inflamed. Hope ot subsides. Blessings .. Sunrise

BattleTheBeast · « **Reply #126 on:** January 15, 2015, 05:17:50 pm »

Hi Sunrise,

Sorry you are so achy, it's not fun at all but guess what your liver isn't infected anymore and you are going to start feeling a tiny bit better every day!

Remember glass half full sister!

Mel

Katie · « **Reply #127 on:** January 15, 2015, 07:33:56 pm »

Sunrise...have you gotten your results yet? Doesn't the lab send your doctor the results? I'd be calling the doctor's office and get them involved. Waiting is difficult and to delay results is like abuse!

Hope you are doing OK.

Opps...for some reason the newer posts didn't show up so I see you got your results and they were GREAT! I am happy for you but sorry you are still having issues. Maybe you need to go to physical therapy to get your joints moving and loosened up. I really get good results from acupuncture too. Just a thought.

Take care Sunrise!

Katie

sunrise · « **Reply #128 on:** January 15, 2015, 07:57:38 pm »

Hi Mel hi Katie
Thank you so much for your compassion. Yes got tbe EOT results. Now have to get 4 week post tx test next tues. Im really nervous as I still get pain on side. We shall see. I am hopeful.
The doctors office called with results. What makes me angry is I asked for them to send in mail. Never did receive them. So annoying.
I do walk and I work standing which I figure does mpre harm. I dod start some weight resistance work outs in morning. Got to fo something.. I have gained too much weight with the tx. Wierd huh. Hope ypu are all feeling better. I can sense in the posys that we are all seeing the benefits of thos new medication. What a miracle...Blessings Sunrise

Katie · « **Reply #129 on:** January 15, 2015, 08:14:24 pm »

I make sure to get all of my results for my file. I actually bought a binder and a hole punch. Maybe go to the office and have the clerk make copies for you.

The walking is good, but the standing not so much. I have a real bad arthritic knee that they've wanted to replace for about 12 years HA! In spite of that, I painted the siding of my entire house, up and down ladders and the ortho just can't figure that one out when he looks at my x-rays. One thing I found out is that we modify our walking when we have issues and so without even realizing it, things can seize up. My problem is when I walk, I don't roll my foot normally so my ankle was getting stiff and it would creak and pop when extended. I have fixed that, first with physical therapy and now every morning and night, in bed, I flex it and rotate it and it is doing good. Things sneak up on you.

Weight gain seems to happen at the most inopportune times and new medication will do that. I have really been carefully watching my scale and I jumped up 5 pounds almost overnight so I have gotten rid of 4 of those, and I would be better off if I lost another 15, so I am going to work on that. Every extra pound puts extra pressure on our joints and as we get older the harder it is to take off, keep off and keep our muscle mass. So keep up the exercise and be sure you are wearing good supportive shoes at work. Really important.

Katie

sunrise · « **Reply #130 on:** January 21, 2015, 08:59:24 am »

Good morning warriors
Got my blood drawn yesterday. 4 week post treatment. Doc said this is a new test that comes back faster. I should have my results next week. Hope everyone is doing great in their treatment!
I will let you all know the results when they post. Thank you for all your support and knowledge, it has helped sooo much..Blessings Sunrise

badbradley · « **Reply #131 on:** January 21, 2015, 09:08:32 am »

Good luck Sunrise. Praying for you!
Brad

BattleTheBeast · « **Reply #132 on:** January 21, 2015, 09:20:08 am »

Sunrise,

You are going to beat this beast! You've got this sister!

Mel

sunrise · « **Reply #133 on:** January 21, 2015, 10:40:12 am »

Thanks Brad thanks Mel
How are you kids doing? Hope well.
You won't believe I've gained 8 lbs this month! I'm changing that. I really think those tx meds really sent me over the edge with food. I don't know how or why. Sometimes I wonder if it's the ambien. Well either way. I'm on a mission to lose weight!!! Thanks for the prayers and good wishes :-) blessings Sunrise

Katie · « **Reply #134 on:** January 21, 2015, 06:44:44 pm »

We are all thinking of you and sending out positive, healing thoughts. You ROCK Sunrise and death to this monster! Just think...in a few years it could be a thing of the past!

Katie

sunrise · « **Reply #135 on:** January 21, 2015, 10:02:35 pm »

Thanks so much Katie
I just saw your post. That is a great way to look at it. Gotta stay positive. Just trying to keep up and moving. It would be a huge shift it this eradicates hepc from humanity. We were so fortunate to live in a cutting edge time like this as well. Again thanks Katie feels like we are all in this together....Blessings Sunrisr

sunrise · « **Reply #136 on:** January 27, 2015, 04:48:05 pm »

Ok folks
4 week post treatment blood test results UNDETECTED!!! I am so thankful to everyone who has helped me with getting thru this. Ot has been a hell of a ride. Now 8 then 12 more weeks and im out of the woods. My doctor seems confident I beat hep c! I hope the same for everyone. Blessings Sunrise

Katie · « **Reply #137 on:** January 27, 2015, 04:55:12 pm »

CONGRATULATIONS SUNRISE!!!!

Simply marvelous news and we are all rooting for you!

Katie

sunrise · « **Reply #138 on:** January 27, 2015, 04:57:38 pm »

Thanks Katie
Im rooting tor you all too!

BattleTheBeast · « **Reply #139 on:** January 27, 2015, 05:55:35 pm »

Sunrise

CONGRATULATIONS!!!!!!!!! WOOHOOO!!!!!!!!!!!!!

Almost there!!!! This is a big one!!!!!!

bh4sons · « **Reply #140 on:** January 27, 2015, 07:13:42 pm »

That's excellent news Sunrise! Congrats and hope for continued success.

badbradley · « **Reply #141 on:** January 27, 2015, 07:38:05 pm »

Sunrise You have truly brightened my day! I am so happy for you! Brings me much Joy and Hope......Thank you for that!
Happy SVR4 Day!!!!
Brad

sunrise · « **Reply #142 on:** January 27, 2015, 08:15:54 pm »

Thank you bh4sons, thank you Brad
Same for you both. I know how this can mess with ones mind. It is a relief. I hope we all reach permanent UD that will be awsome.

lporterrn · « **Reply #143 on:** February 03, 2015, 09:12:54 pm »

I am so happy for you Sunrise. Enjoy the ride, and hopefully we'll be celebrating an SVR12 with you.

sunrise · « **Reply #144 on:** February 03, 2015, 10:19:50 pm »

Thank you Lucinda.
I feel like the year remission will be the brass ring. I so appreciate all tbr help and support here. So far so good. To be honest, hats off to all endured Pegasus and riba and the harsher DAAs. Those drugs I took were still one heck of a ride. Still working on the up side journey. Joints were really effected. Small price to pay for no more hepc....Take care....Sunrise

badbradley · « **Reply #145 on:** February 03, 2015, 10:35:37 pm »

HEY Sunrise, Ive been wearing a warrior sword necklace for a while now. Im hoping to have SVR12 engraved on the back of it next week! 1 year mark seems like a long way off but we will reach it!

Katie · « **Reply #146 on:** February 03, 2015, 10:55:12 pm »

My thought will be with you Brad! That is the big test we all wait for and it is nerve wrecking. I have about 3 weeks on Harvoni and the hardest part will be the wait for the 12 week test. In another few months we will be finding out how many have done and I am expecting GOOD news for everyone. This forum has been such a blessing!

Katie

How are you doing Sunrise? Are you feeling better? Hopefully all is going well and you are noticing improvements

Healing thoughts sent your way.

Katie

sunrise · « **Reply #147 on:** February 04, 2015, 06:51:23 pm »

Thanks Katie
Such sweet thoughts... I feel the same for you. Im ok cept for this weight gain and joint pain.
Hey Brad hope you are still wearing your sword! I am anxious to hear your UD RESULTS! Keep on slaying! They have been defeated!
Blessings Sunrise

badbradley · « **Reply #148 on:** February 05, 2015, 07:30:54 am »

Katie - Thanks for the well wishes. I wish good news to all as well. I handled the impatient part of the wait fairly well, now entering the nervous phase. I remain cautiously optimistic. This forum ROCKS right? Hope you are doing well Katie.

Sunrise - Still wearing the warrior sword! I even went to Walmart and got myself a results day shirt. It has a few skulls on it and a ferocious looking Dragon that appears to be exiting the center skull. (Im so immature)! It's hanging in my closet begging to be worn. I have no signs that the virus has returned - still feeling progressively better but it's a sneaky beast so not getting cocky with the evil reptile.........yet! Good day warriors. Battle Hard!
Brad

sunrise · « **Reply #149 on:** February 05, 2015, 07:39:59 am »

Hi Brad
That shirt sounds fierce. So when do you get the results? Next week? Im sending UD vibes across the nation to you. Hope your day goes smooth. Breathe breathe :-)...Sunrise

badbradley · « **Reply #150 on:** February 05, 2015, 03:59:38 pm »

Im breathing Sunrise! I figured my results date to be Feb. 10 If I don't get them by then, I will probably throw a tantrum, like I did on treatment waiting for my 4 wk result! Lucinda will again have to yank on the reins and remind me that the whole world isn't against me and they might just be backed up a little and she will be right and hopefully I will see them same results - UD! Heres to waiting! Brad

sunrise · « **Reply #151 on:** February 05, 2015, 04:07:17 pm »

Hey Brad
My doc said these new tests take a week. How far they've come. Well just a few more days. We will keep you sane. Just holler if you need a virtual smack to snap you out of the panic mode. You are doing great. Seem alot less freaked out than I was a couple of weeks ago. Keep up the good spirits Brad...Blessings Sunrise

badbradley · « **Reply #152 on:** February 05, 2015, 04:27:41 pm »

Quote from: sunrise on February 05, 2015, 04:07:17 pm

We will keep you sane. Just holler if you need a virtual smack to snap you out of the panic mode.

I'm still laughing at this!! I'm sure there are plenty of volunteers here for that job!! You are too funny! I needed that! BB

Lynn K · « **Reply #153 on:** February 06, 2015, 12:24:26 am »

Good Luck hope you get you results before we all have to slap you around for a bit lol. But only in a caring and concerned way lol

badbradley · « **Reply #154 on:** February 06, 2015, 08:28:45 am »

Anxiety level is definitely increasing as those last grains of sand trickle through the hourglass! My sleep pattern is similar to early treatment days. I may need that "virtual smack" sooner than later!! BB

sunrise · « **Reply #155 on:** February 06, 2015, 08:48:59 am »

Good morning Brad
It' s gonna be alright. Try not to worry. Easy for me to say. I know this is a trying time for you, but I have a good feeling about your test. Just focus on how good you feel. I am here for you cheering you on! It's gonna be UD!!! Sunrise

sunrise · « **Reply #156 on:** February 06, 2015, 12:06:46 pm »

Brad
Good news. My friend in Fla just got her 12 week post tx results today. She got the blood draw Monday. UD!!!! See we are gonna beat this. She had it 40 yrs. Luckily she was only F1. A big health foodie. So see we are gonna do this!!!!

badbradley · « **Reply #157 on:** February 07, 2015, 09:50:36 am »

Hi Sunrise, Thank you for your encouragement. You are so kind and uplifting! I appreciate that. Big Cyber high five to your friend in Fla. Very good news indeed! I'm doing better.Just needed some decent sleep. We are going to beat this Yes we are!
Have a great weekend everyone!
Brad

BattleTheBeast · « **Reply #158 on:** February 10, 2015, 05:11:40 am »

Quote from: badbradley on February 05, 2015, 03:59:38 pm

Im breathing Sunrise! I figured my results date to be Feb. 10 If I don't get them by then, I will probably throw a tantrum, like I did on treatment waiting for my 4 wk result! Lucinda will again have to yank on the reins and remind me that the whole world isn't against me and they might just be backed up a little and she will be right and hopefully I will see them same results - UD! Heres to waiting! Brad

I've been MIA but wanted to check on you Brad, I am thinking about you sitting around waiting to hear SVR!!! I wish they would call you already!! I think you have been very patient

Mel

badbradley · « **Reply #159 on:** February 10, 2015, 10:32:31 am »

I have received the news that this round of treatment has been unsuccessful. I was diagnosed 3 yrs ago and for a moment, this treatment failure news gripped me with almost the same intensity. I am encouraged by the successes of these new treatments. I will get the right combination and I will be free from this disease forever! Treatment failures unfortunately are part of the progression towards the eventual eradication of Hepatitis C. I am fortunate in that today I have the necessary tools to help navigate through this process, thanks to the tireless searches, unselfish efforts, and generous support found on these forums. I will continue to stay healthy. I will not let this disease define me.
I have HCV, HCV does not have me!!!
Brad

Picnic · « **Reply #160 on:** February 10, 2015, 10:59:25 am »

BadBrad!,
Sorry to hear the bad news. Please keep us updated as you proceed to the next level. You are in my prayers!!

Mike · « **Reply #161 on:** February 10, 2015, 12:04:18 pm »

Hi Brad,

I'm really sorry to hear this - we were all pulling for you and an SVR12.

You have the right attitude that will carry you forward.

There are some promising treatments out there, and you'll get this nest time!

Best wishes, Mike

badbradley · « **Reply #162 on:** February 10, 2015, 12:28:49 pm »

Picnic Much appreciated. You are in my prayers as well.

Mike I will get this next time. I will one day say "Dragon Down And Out"!!!
Thanks much.
Brad

Katie · « **Reply #163 on:** February 10, 2015, 12:39:39 pm »

Sorry to hear that Brad! With your determined positive attitude I know you will succeed and you have everyone's support. It's a reminder to all of us, it isn't over until it's over and the fight continues. Thank you for sharing!

Take care and know you aren't alone.

Katie

BattleTheBeast · « **Reply #164 on:** February 10, 2015, 01:03:58 pm »

Sending you a big hug Brad! You are gonna beat this beast, you will win and I'll be right here with you when it happens!

Mel

badbradley · « **Reply #165 on:** February 10, 2015, 01:39:43 pm »

Quote from: BattleTheBeast on February 10, 2015, 01:03:58 pm

Sending you a big hug Brad! You are gonna beat this beast, you will win and I'll be right here with you when it happens!

Mel

Mel,
Thank you for the hug! You are such an inspiration to this forum! We will all beat this beast! It's prep time for round 2 for me and the bastard is going down!
My PRAYers are up for you Mel! Give it all you got! Thank you again.
Brad

sunrise · « **Reply #166 on:** February 10, 2015, 03:52:49 pm »

Hi Brad
Im having a tough time digesting this news. I realize it is just a setback, and not by any means the end. It is the beginning of a better tx. Keep strong Brad. When do you think you will be gettingthe next round? We are all here for you.... Sunrise

Long_Haul · « **Reply #167 on:** February 10, 2015, 04:28:50 pm »

Sorry to hear your news Brad, Keep your head high, you gave it a valiant effort. YOU WILL GET IT NEXT TIME. Keeping you in my thoughts and prayers, your positive attitude help keep us all moving toward the goal.

Best Wishes,

AL

badbradley · « **Reply #168 on:** February 10, 2015, 05:21:51 pm »

Katie Yes, the fight continues. It is much easier with supportive people pulling you along. Thank you for your support Katie I appreciate that.

Sunrise It is disappointing getting the no go news. It is much easier to bear having your support and encouragement as well as others on the forum. Don't know specifics about treatment no. 2 but will discuss with Doc soon. I will stay strong Sunrise. Keep making healthy choices and battle hard warrior!

Al I will keep my head held high and I will keep my eye on the prize! We will all reach the goal! Just did 50 push-ups, sits-ups to follow! Best wishes to all.

Brad

Lynn K · « **Reply #169 on:** February 11, 2015, 02:33:22 am »

Hi Brad

So sorry to hear this I definitely feel your pain. I was reading through your old posts and figure you treated for 12 weeks but I dont know if you have treated before or your fibrosis.

But anyway I guess you can join me when you are ready on the Harvoni 24 train unless your doctor wants to wait for the next shiny new thing.

I have read Sovaldi resistance should not be a concern.

Shine up your armor and sharpen your sword warrior! Once again into battle.

Hugs to you

kate0b1 · « **Reply #170 on:** February 11, 2015, 06:44:08 am »

@brad, i have nothing to add that has not been said already, just wanted to throw in my support, hearing the word relapsed is such a crappy day (i cried in the parking lot). just remember we have your back for the next round.

@mel, i was just last night wondering where you were, hope your feeling well

kate

badbradley · « **Reply #171 on:** February 12, 2015, 11:05:23 am »

Lynn and Kate, Thank you both for your support. As you both know, the no go news is a tough day indeed! Trying to pinpoint what may have went wrong is maddening! I will not spend much longer in that space. Just couldn't trap the heartiest of the little beasts that were swimming around laughing at me!
Brief profile - Geno 1a or 1b ( they never determined which) I assumed 1a
Radiologist report - "mild increase in hepatic echotexture". "can be seen in early hepatic steatosis". GI told me he didn't think i had hepatic steatosis (fatty liver). Said he thought it was just inflammation. So another uncertainty! I think he may have been judging on my apparent healthy appearance. I am 5 ft, 2 in, 120lbs and muscular. I do a lot of resistance training. I am aware that you do not have to be obese to have fatty liver.
Perhaps it was a factor in treating. I believe fatty liver patients are harder to treat so I may have required to treat for 24wks vs. 12wks. Very frustrating.
Still waiting to hear on what plan B might be. For now its back to jumping jacks and eating leaves! I am 52 yrs old, fit, and determined! I will conquer this beast. Sun is shining, it's a good day!
Battle on warriors!! Brad

Islandgirl · « **Reply #172 on:** February 12, 2015, 07:54:50 pm »

(posted on another topic as well)
OMG, Rick and Brad! I'm stunned and brokenhearted for you both. I'm praying that you will be approved for Harvoni and that it will work for you!

My 12 wks Harvoni ends on the 25th and will have labs done at one month post treatment and again 6 months from then I can't imagine how I would feel to get the news you just did, although I do think about it off and on - scares the hell out of me.

I almost missed these posts but you can be sure I'll be looking for them in the future. You are in my thoughts and prayers - sending you positive thoughts and energy and praying for the blessing of complete healing. ...Islandgirl

trapper · « **Reply #173 on:** February 12, 2015, 09:49:58 pm »

Damn Brad Sorry to hear you relapsed. I'm waiting my 4 week post s/o treatment labs, should hear by tomorrow or Monday. Its always in the back of my mind about relapsing cause I'm on old protocol of 12 weeks. I tried for 24 but couldn't get it done. My condition calls for 24 weeks on new protocol. I don't know how close your stats are to mine but mine are, f-3, chirrosis, 23 million vl, non-det. at 4, and 11 weeks. It sounds to me like people with chirrosis need 24 weeks of s/o because of pockets of the virus hiding in the scar tissue or somewhere where the drugs can't get to in 12 weeks. I haven't even thought of "whats next" if I relapse. I'll cross that bridge if I have to. I'll be watching your posts to see what you do. good luck trapper

sunrise · « **Reply #174 on:** February 12, 2015, 10:08:17 pm »

Hey Trapper
I hope your tests come back UD. My 4 week post labs are undetected January 21, and still am stressing about relapse with my 12 week post tx labs. I am trying to stay upbeat for us because as we follow the new protocols, it's only a matter of months til we get cured. I'm with you all thru our journey... blessings. Sunrise

Katie · « **Reply #175 on:** February 12, 2015, 10:17:22 pm »

I saw this on Facebook today:

"Healing doesn't mean the damage never existed, it means the damage no longer controls our lives."
author unknown

I can't say I am there yet, but I am definitely moving in that direction!

Good wishes to all of you. Many of us are getting to the wait and see time period. I find waiting to be the most difficult part and I still have 2 weeks of Harvoni. I am so grateful for everyone on this forum as the support of this caliber can not be compared! Thank you!

Katie

sunrise · « **Reply #176 on:** February 12, 2015, 10:23:29 pm »

Hi Katie
You as well! You always are the voice of kindness and hope towards all. Wow just 2 weeks to go? That flew by, seems like. How are you feeling? Please let us know how your labs go. Best wishes Sunrise

Katie · « **Reply #177 on:** February 12, 2015, 10:32:03 pm »

Thanks Sunrise..it did fly by, at least the first 8 weeks when I was SO Happy! 9th week...not happy anymore. Still sleeping good but in a rather glum place. Having the remodeling done was not a good idea at this time but I didn't have much choice and that has been stressful instead of joyfully exciting. Very tiring.

But nothing major to complain about. Just weak and tired and gloomy and wanting nothing but solitude instead of strange men and their hammers and dust and muddy boots. HA!. Part of it I am sure is I am anticipating the wait and because of my fatigue I let the unknown take it's toll.

I will definitely stay in touch and send healing colors of light to all of my forum warriors!

Katie

Lynn K · « **Reply #178 on:** February 13, 2015, 02:58:51 am »

Hi Trapper

F3 is not quite cirrhosis F4 is cirrhosis so that is most likely why you were not able to get the 24 weeks

Most will cure so the odds are in your favor.

Like my doctor says "Think Negative" as in not detected SVR12

Islandgirl · « **Reply #179 on:** February 14, 2015, 09:38:04 am »

Katie, we're both down to those last 2 weeks and your post describes how I'm feeling - exactly! Well, maybe not the strange men with hammers and muddy boots - I expect I could find some dust here, though

Thanks for those healing colors of light - we all need them. Sunrise is right, you are" always the voice of kindness and hope". Beautifully put, Sunrise. Lynne, I love your doc's instruction to "Think Negative" as in not detected SVR12! Perfect

Have a good weekend, send you all hugs ...Islandgirl

badbradley · « **Reply #180 on:** February 14, 2015, 09:41:14 am »

Trapper,
Wishing the best of luck on your results! I am sure it is somewhat worrying for you. We're all pulling for you. Hopefully your virus wasn't as stubborn as mine!
Best wishes and we will be seeing your Undetected soon!
Brad

Islandgirl · « **Reply #181 on:** February 14, 2015, 10:13:12 am »

Trapper,

Lynne's input on F3 not being not quite cirrhosis made me feel better for you being on the 12wk tx, hope it made you feel better too - great to have someone who can explain these things (sounds like you were able to start tx at a good time). Sending you positive healing thoughts and wishing you (and everyone) a Happy Valentine's Day! Looking forward to seeing your test results and hearing that you are undetected

...Islandgirl

trapper · « **Reply #182 on:** February 14, 2015, 11:08:34 am »

thanks brad and islandgirl. what lynn said did make me feel better and I did ask my dr about the chirosis and high vl which both call for 24 weeks of treatment now. He thinks i'll be ok and I hope so. they changed protocol right after I started treatment. I think ins. co. should of upgraded everyone on old 12 week protocol to new one without hassel providing you are still on treatment. Now it seems like people with chirosis and well advanced hcv are relapsing and having to go through 24 weeks of more treatment and more costs to ins. co's. has anyone seen any stats on 12 week vs 24 week relapses on any treatment or is it to early yet. later trapper

Lynn K · « **Reply #183 on:** February 14, 2015, 01:53:35 pm »

To clairfy for others who may be unsure

http://hepatitiscnewdrugresearch.com/staging-cirrhosis.html

Fibrosis:
Stage 1 none or mild peri-portal fibrosis
Stage 2 peri-portal fibrosis with/without extension and portal-portal bridging
Stage 3 portal-central bridges but no nodular formation
Stage 4 probable or definite cirrhosis

trapper · « **Reply #184 on:** February 14, 2015, 09:51:29 pm »

Thanks for the link Lynn, a lot of good info. later

wordforthewise1 · « **Reply #185 on:** February 16, 2015, 10:23:37 pm »

Good news!!! Got my 12 weeks post treatment lab results that show the HepC virus UNDETECTED, thank you Jesus, thank you doctors/nurses, thank you scientists/researchers, thank Lucinda and thanks to all of you guys on this forum!
We are WARRIORS and HepC will soon be a disease of the past for everyone. Praying for all!

Much love,
Sharon

Genotype - 1a
Liver stage - 3/4
Infected (transfusions) - 1983
Diagnosed - 2003
Treated with Interferon/ribaviron twice 2004, 2006, stopped early, relapsed
Treated with S/O August 2014, 12 weeks
Cured/HEALED! February 2015, 12 weeks post

Lynn K · « **Reply #186 on:** February 16, 2015, 10:33:08 pm »

Wow Sharon!

That is great and fantastic news! Congratulations!

May you have a long, happy and healthy life!

sunrise · « **Reply #187 on:** February 16, 2015, 10:33:53 pm »

Such Great. News word!
I'm so happy for you! You must be so relieved as well as excited. This is a big one. Will you get a 24week post tx test? Happy tears you. Enjoy your new status!! undetected. Yayayayay!.... blessi.g Sunrise

Katie · « **Reply #188 on:** February 16, 2015, 10:38:50 pm »

Sharon, YOU GO GIRL! What great news and an inspiration for all of us following you. Happy for your success and for everyone!

Katie

Islandgirl · « **Reply #189 on:** February 17, 2015, 11:13:18 am »

FANTASTIC!!!! I'm so happy for you!! Every confirmation of UND is a VICTORY for us all! thanks for sharing

...Islandgirl

sunrise · « **Reply #190 on:** February 17, 2015, 03:24:14 pm »

Hi everyone
I don't know if i'm the only one, but my joints hurt so much. I have trouble walking. This has been happening ever since tx. Let me know if same thing is happening to you....blessings. Sunrise

Katie · « **Reply #191 on:** February 17, 2015, 04:04:27 pm »

Hi Sunrise, Lots of us are complaining about joints hurting. I already have issues so it is difficult to tell if the treatment is making them worse but there are others who are definitely noticing it. Check the Side Effects thread.

Sorry to hear you are suffering! I am thinking since I can barely walk and my knee brace isn't even helping maybe the treatment has increased my joint issue too. I also have a severe pain from my right shoulder up into my neck which is definitely new, and I use my tens unit to relieve it. That has been reoccurring throughout treatment. It hurts so bad I can hardly breathe.

Katie

sunrise · « **Reply #192 on:** February 17, 2015, 04:42:05 pm »

Hey Katie
I feel you. Hope you feel better also. I am in fear as i hope these issures subside.Going to work is hard as i stand the whole time. Thanks for responding. Sure helps to get some feedback.. Sunrise

Katie · « **Reply #193 on:** February 17, 2015, 05:48:20 pm »

Quote from: sunrise on February 17, 2015, 04:42:05 pm

Hey Katie
I feel you. Hope you feel better also. I am in fear as i hope these issures subside.Going to work is hard as i stand the whole time. Thanks for responding. Sure helps to get some feedback.. Sunrise

Oh Sunrise, I can't imagine all of that standing. I certainly wouldn't be able to do it. This past week I have had to go in and out of my shop so it is up and down stairs (only 4) but it really has done some damage doing it every day all day for the past week. The guys putting down the floor and trim have been great but I did a bunch of the prep work and of course the moving of everthing before so my joints are feeling it. Could hardly get out of bed this morning. They are gone now...<Big Sigh> and I am going to take a day off with my clutter and then have to paint the one bedroom. I did have them paint the ceiling and so the walls will be easy...and I like painting.

I hope you are wearing good supportive shoes and is there any way you could have a high stool to sit on periodically? I don't know what you do at work so that may not be an option but even if it was just for a few minutes here and there it could give some relief. A full body massage might benefit you too, and I go for acupuncture and it has saved me over the years with my back and even helped my knees and feet. I know all of these special treatments cost money and sometimes that isn't an option, but do what you can for yourself. You need it now more than ever.

I'm thinking about you and sending you healing, pretty colored thoughts your way! (like a beautiful sunrise!)

Katie

wordforthewise1 · « **Reply #194 on:** February 17, 2015, 06:07:22 pm »

Thanks everyone and YES, I am relived!!! It's so good to be finished with the meds even though S/O was nothing compared to treating with interferon/ribaviron twice. I'm really sorry that some of you relapsed, I've been there in the past, but hang in there - your cure is coming, for sure!!! I will see my doctor on Monday and discuss follow up for labs, etc.

About joint problems, sorry some of you are having pain, my joints hurt so bad I had to get into physical therapy, much better now. I am still having some problems with my eyes burning, but they're getting better too.

You guys are wonderful, stay strong, we'll all be doing the "Happy Dance" real soon!

Blessings,
Sharon

bh4sons · « **Reply #195 on:** February 17, 2015, 06:53:13 pm »

I had tests done at 8 weeks due to some issues with bloating I have been having. ALL of my levels were well within the normal range. The lab accidentally tested for Hep B, so I had to be retested for Hep C viral load at 9 weeks. I found out last week that they are still undetected!

I have been taking Prilosec the last couple of weeks and am starting to see real improvement with the digestive issues. I still have to believe that the treatments contributed to those issues, but the good news is that it doesn't appear to be related to my liver, but rather irritation with my stomach lining.

I went this past Friday for my 12 week test and I hoping to find out next Monday that I'm undetected at the 12 week mark.

Praying that we all will be healed and on the road to good health.

sunrise · « **Reply #196 on:** February 17, 2015, 07:54:03 pm »

Thanks Katie
I do need a massage thats for sure. I am a Barber so i just work mornings which has effected my business, but if people don't understand, at the point of tellin then screw off. I sure can't tell them i have hepc and took strong drugs to try to cure me. I would be out of biz completely. So i tell them i have back issues, which is true, so i cannot work all day. Good luck getting help, no skilled labor around here. Im so thankful to have you all here for support.
So wordforthewise
Really glad your feeling good, and still UD. That is encouraging.
and bh4sons, best wishes on your test results. I cannot believe its going so fast. My 12weeker is coming in less then 4weeks!
Thanks for the responses , blessings. Sunrise

Lynn K · « **Reply #197 on:** February 17, 2015, 08:09:32 pm »

Hi bh4sons

I hope you are taking the PRILOSEC at the same time as the Harvoni on an empty stomach per the prescribing information sheet table 3 page 5 instructions

http://www.gilead.com/~/media/Files/pdfs/medicines/liver-disease/harvoni/harvoni_pi.pdf

Potentially Significant Drug Interactions: Alteration in Dose or Regimen May Be Recommended Based on Drug Interaction Studies or Predicted Interaction

Proton-pump inhibitor doses comparable to omeprazole 20 mg or lower can be administered simultaneously with HARVONI under fasted conditions.

Best of luck on treatment

badbradley · « **Reply #198 on:** February 17, 2015, 09:07:06 pm »

Quote from: wordforthewise1 on February 16, 2015, 10:23:37 pm

Good news!!! Got my 12 weeks post treatment lab results that show the HepC virus UNDETECTED, thank you Jesus, thank you doctors/nurses, thank you scientists/researchers, thank Lucinda and thanks to all of you guys on this forum!
We are WARRIORS and HepC will soon be a disease of the past for everyone. Praying for all!

Much love,
Sharon

Genotype - 1a
Liver stage - 3/4
Infected (transfusions) - 1983
Diagnosed - 2003
Treated with Interferon/ribaviron twice 2004, 2006, stopped early, relapsed
Treated with S/O August 2014, 12 weeks
Cured/HEALED! February 2015, 12 weeks post

Hi Sharon,
SVR ACHIEVED! CONGRATULATIONS!!! I am glad to see you return to the forum with this news! Thank you. As we share our struggles and successes along our journey, it is nice to see the thrill of triumph!! So many fade away never to return. Thank you for sharing your experience. There is a smile on my face and it feels nice! Sincerely
Brad

(we started treatment one day apart)

bh4sons · « **Reply #199 on:** February 17, 2015, 09:29:45 pm »

Hi Lynn, I should have been more specific. I am 12 weeks post treatment.

Sorry, I had posted earlier in the thread. I originally had a false positive at 2 weeks post treatment (a count of 600). I was retested at 4 weeks and was undetected.

So, the test I just had last week was my SVR12 test.

Thanks,

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