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Author Topic: only been on harvoni 16 days phenomenal resultd  (Read 18968 times)

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Offline corlene

  • Member
  • Posts: 3
only been on harvoni 16 days phenomenal resultd
« on: December 21, 2014, 08:08:05 am »

Hi Everyone,

Just got my 2 weeks lab results:

VL is now at <15 from 3.3 million
AST is 24
ALT is 40

Anyone else having similar results?

Offline RiseUp

  • Member
  • Posts: 45
Re: only been on harvoni 16 days phenomenal resultd
« Reply #1 on: December 21, 2014, 08:28:35 am »
Hi corlene,  that's good news...happy for you.
started Harvoni 12/17 (12wks)
dx 1997 1a (3,900,000)
infected early 70's
infergen 1997
interferon & riba 1999 and 2000
liver bio 2/4
started riba feb 4th
undetected vl feb 10th
finished 12wks mar 10
extended to 24 weeks

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: only been on harvoni 16 days phenomenal resultd
« Reply #2 on: December 21, 2014, 09:15:03 am »
Hi Corlene....

That's good news for sure!

If you read through our posts you will see everyone's journey with Harvoni results.
We've pretty much all been sharing them.

But yes you are right on target friend.      I didn't get a VL until week 4 and my virus was still detected same results as yours.        Week 6 undetected and remains UND. 
     
 keep us posted.  we're always here supporting one another.
have a great day!

Jill


Offline HHburme

  • Member
  • Posts: 117
  • Harvoni start 12/13/14 12wks UD/24wk DET
Re: only been on harvoni 16 days phenomenal resultd
« Reply #3 on: December 21, 2014, 01:39:31 pm »
Great to see those lab results!!!!   Gives me lots of hope !!   
infected age 19, blood transfusion 1977, detected 2003  GT 1a, Harvoni relapse 06/15, Clinical Trial Study for SOF/VEL GS-9857 start 02/16. SVR12 Cured 08/16

Offline Katie

  • Member
  • Posts: 784
Re: only been on harvoni 16 days phenomenal resultd
« Reply #4 on: December 21, 2014, 02:43:21 pm »

Hi Everyone,

Just got my 2 weeks lab results:

VL is now at <15 from 3.3 million
AST is 24
ALT is 40
Anyone else having similar results?
That is fantastic, Corlene!  I am on day 18 and don't get a test until week 4 but am feeling better and sleeping better than I have in years so I know it is working.  It is SO exciting!  Best Christmas present ever!

Good luck to you and enjoy the holidays!
Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline Roger

  • Member
  • Posts: 171
Re: only been on harvoni 16 days phenomenal resultd
« Reply #5 on: December 21, 2014, 04:08:21 pm »
Corlene,

Feels good doesn't it?!

I Started Harvoni 11.21.2014 with a Viral Load of 313,593.
12 days later I had my first blood test and my Viral Load 12.03.2014 was 19!

I had my 2nd blood test Friday (2 days ago) and will know this week what my blood count is.  I feel much "lighter" than I have for years!

Genotype 1a
2006 - Dx
2009 Biopsy      - Stage 2
2013 FibroScan - Stage 2
2014 FibroSure - Stage 3

Started Harvoni 11.21.2014 Viral Load - 313,593
12.26.2014 - UND (at 5 weeks)
At 8 Weeks - UND
EOT 02/12/15 - UND
12 Week EOT Blood Work - UND

Offline corlene

  • Member
  • Posts: 3
Re: only been on harvoni 16 days phenomenal resultd
« Reply #6 on: December 21, 2014, 04:29:49 pm »
Im lucky enough to be able to see all my medical records online. It pretty amazing actually. Every blood test, surgery, medications prescribed, labs everything :)

I wish you all a speedy recovery, its a wonderful thing this drug.

Too bad alot of people are having trouble getting it. I have humana gold, but if I were to be in need, I'd claim indigent/homeless.

Offline Roger

  • Member
  • Posts: 171
Re: only been on harvoni 16 days phenomenal resultd
« Reply #7 on: December 21, 2014, 05:17:21 pm »
I have humana gold, but if I were to be in need, I'd claim indigent/homeless.

I have Blue Cross, but will have to change to Medicare very soon as I turn 65 in January.  I will be able to keep my Blue Cross for 3 months, which will be enough to cover the last bottle of Harvoni - Thank Goodness!

I have "no idea" what Plan D to choose for Medicare.  This insurance thing is such a "game" in this country!
Genotype 1a
2006 - Dx
2009 Biopsy      - Stage 2
2013 FibroScan - Stage 2
2014 FibroSure - Stage 3

Started Harvoni 11.21.2014 Viral Load - 313,593
12.26.2014 - UND (at 5 weeks)
At 8 Weeks - UND
EOT 02/12/15 - UND
12 Week EOT Blood Work - UND

Offline Katie

  • Member
  • Posts: 784
Re: only been on harvoni 16 days phenomenal resultd
« Reply #8 on: December 21, 2014, 06:05:43 pm »
My doctor told me Medicare does not cover Harvoni.  I am on Medicare and retired, but have an employer based prescription coverage.  I was so worried that I would have to fight for this but it went through without a hitch.  I did hear of someone where Medicare covered the S/O treatment but it was a real hassle and I think the co-pay was really high; I don't have any details.  Glad to hear your treatment will be on your other insurance so you don't have to worry about that.

Have a great holiday!

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline Katie

  • Member
  • Posts: 784
Re: only been on harvoni 16 days phenomenal resultd
« Reply #9 on: December 21, 2014, 06:56:44 pm »
I have Blue Cross, but will have to change to Medicare very soon as I turn 65 in January.  I will be able to keep my Blue Cross for 3 months, which will be enough to cover the last bottle of Harvoni - Thank Goodness!

I have "no idea" what Plan D to choose for Medicare.  This insurance thing is such a "game" in this country!

I'd talk to your pharmacist. Roger.  They know what covers what and my experiences with my pharmacist has been very positive. He is SO full of information.
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline RiseUp

  • Member
  • Posts: 45
Re: only been on harvoni 16 days phenomenal resultd
« Reply #10 on: December 21, 2014, 07:07:06 pm »
Hi Katie, I was approved thru Medicare part D.
started Harvoni 12/17 (12wks)
dx 1997 1a (3,900,000)
infected early 70's
infergen 1997
interferon & riba 1999 and 2000
liver bio 2/4
started riba feb 4th
undetected vl feb 10th
finished 12wks mar 10
extended to 24 weeks

Offline Roger

  • Member
  • Posts: 171
Re: only been on harvoni 16 days phenomenal resultd
« Reply #11 on: December 21, 2014, 07:36:40 pm »
RiseUp,
What Part D company are you with?
What % did they make you pay?
Genotype 1a
2006 - Dx
2009 Biopsy      - Stage 2
2013 FibroScan - Stage 2
2014 FibroSure - Stage 3

Started Harvoni 11.21.2014 Viral Load - 313,593
12.26.2014 - UND (at 5 weeks)
At 8 Weeks - UND
EOT 02/12/15 - UND
12 Week EOT Blood Work - UND

Offline Katie

  • Member
  • Posts: 784
Re: only been on harvoni 16 days phenomenal resultd
« Reply #12 on: December 21, 2014, 07:39:16 pm »
Hi Katie, I was approved thru Medicare part D.

Thank you for telling me that Rise Up!  Maybe they are more selective????  It's good to pass that along as some may not seek out the treatment and a lot of us "boomers" are being diagnosed.  Great news! 
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline RiseUp

  • Member
  • Posts: 45
Re: only been on harvoni 16 days phenomenal resultd
« Reply #13 on: December 21, 2014, 07:53:18 pm »
Roger, I am covered by my former employer thru the NJ State Health Benefits, Medicare Part D.  The pharmacy is  Acaria Health. Co-pay $45.00.  Feel very blessed I was able to start treatment once again after 14 years.  Today was pill #5, so far no sides.  Praise the Lord!
started Harvoni 12/17 (12wks)
dx 1997 1a (3,900,000)
infected early 70's
infergen 1997
interferon & riba 1999 and 2000
liver bio 2/4
started riba feb 4th
undetected vl feb 10th
finished 12wks mar 10
extended to 24 weeks

Offline Roger

  • Member
  • Posts: 171
Re: only been on harvoni 16 days phenomenal resultd
« Reply #14 on: December 21, 2014, 08:00:50 pm »
RiseUp,
You are REALLY blessed!
Maybe your Part D is so good, because it is from a governmental agency?

I have not chosen one yet, but so far, in my county, they all want the customer (me) to pay 25% - 33% of the total.

For Harvoni, that's quite a bite.
Genotype 1a
2006 - Dx
2009 Biopsy      - Stage 2
2013 FibroScan - Stage 2
2014 FibroSure - Stage 3

Started Harvoni 11.21.2014 Viral Load - 313,593
12.26.2014 - UND (at 5 weeks)
At 8 Weeks - UND
EOT 02/12/15 - UND
12 Week EOT Blood Work - UND

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: only been on harvoni 16 days phenomenal resultd
« Reply #15 on: December 22, 2014, 09:31:12 am »
Hi Roger.  Please let me know what you decide about part D.    I'm not on medicare yet because my husband is working and has BC/BS but one never knows in this day and age what may happen.

25%-33% is definitely "quite a bite" for harvoni and any other expensive treatment one may need in their "golden" years.
 

Offline Cecil Michael

  • Member
  • Posts: 12
Re: only been on harvoni 16 days phenomenal resultd
« Reply #16 on: December 22, 2014, 10:57:46 am »
Harvoni is an amazing medication. I was undetected at 2 weeks.

Mike

Offline Roger

  • Member
  • Posts: 171
Re: only been on harvoni 16 days phenomenal resultd
« Reply #17 on: December 22, 2014, 12:22:49 pm »
Harvoni is an amazing medication. I was undetected at 2 weeks.

Mike


Mike,
How long did you take (or are taking) Harvoni?
Genotype 1a
2006 - Dx
2009 Biopsy      - Stage 2
2013 FibroScan - Stage 2
2014 FibroSure - Stage 3

Started Harvoni 11.21.2014 Viral Load - 313,593
12.26.2014 - UND (at 5 weeks)
At 8 Weeks - UND
EOT 02/12/15 - UND
12 Week EOT Blood Work - UND

Offline Cecil Michael

  • Member
  • Posts: 12
Re: only been on harvoni 16 days phenomenal resultd
« Reply #18 on: December 22, 2014, 02:07:30 pm »
I started Harvoni 11/21/2014 for 12 weeks. Pre-treatment VL was 1.5 million, genotype 1a, grade 1 fibrosis  per biopsy, diagnosed 1999, symptomatic hepatitis 1973. Biopsy X 3 since 1999 that showed grade 1 fibrosis/inflammation each time.

Mike

Offline dragonslayer

  • Member
  • Posts: 873
Re: only been on harvoni 16 days phenomenal resultd
« Reply #19 on: December 22, 2014, 03:05:05 pm »
I started Harvoni 11/21/2014 for 12 weeks. Pre-treatment VL was 1.5 million, genotype 1a, grade 1 fibrosis  per biopsy, diagnosed 1999, symptomatic hepatitis 1973. Biopsy X 3 since 1999 that showed grade 1 fibrosis/inflammation each time.

Mike

Mike, just curious; with a viral load that low, and such good biopsy results, how'd you ever get them to give and approve you for 12 wks treatment?
Paul

DX 2008
Started Harvoni 11/26/14 for 8 wks
Completed 8 wks Harvoni 01/20/15
EOT RNA Quant result:  Detected 29
7.5 wk post tx: Detected < LLOQ(12)
11 wk post tx: UNDETECTED SVR12
24 wk post tx: UNDETECTED SVR24; AST 26; ALT 22; ALP 73
48 wk post tx: UNDETECTED SVR48; AST 18; ALT 18; ALP 70
GT 1a
vl 2.4mil
2008 bpx: Stage&Grade 0
2013 bpx: Stage&Grade: 0-1
IL28B: TT
likely infected early '70s

Offline Cecil Michael

  • Member
  • Posts: 12
Re: only been on harvoni 16 days phenomenal resultd
« Reply #20 on: December 22, 2014, 07:23:00 pm »
Nothing more than visiting with my GI doc on 10/7/2014 who has followed my case since 1999. We discussed future treatment that did not involve interferon, as I was actually assumming I would treat in 2015. I did not know about Harvoni at that visit, but he explained that the FDA was probably going to approve a new drug within the next 2 weeks. I found out the next week about Harvoni, did all the pre-treatment testing and was approved 10/21/2014 for 12 weeks. I started treatment 11/21/2014.

Mike

Offline PaulG

  • Member
  • Posts: 38
Re: only been on harvoni 16 days phenomenal resultd
« Reply #21 on: December 22, 2014, 07:37:07 pm »
Yes that sounds like a 8 week treatment. But if I had the chance I do 12 over 8. I was approved for just 8 weeks no prior treatment f3 2.5 million vl.

Offline Katie

  • Member
  • Posts: 784
Re: only been on harvoni 16 days phenomenal resultd
« Reply #22 on: December 22, 2014, 08:11:49 pm »
My case is very similar to Mike's.  I waited for 10 years to get something not so long or so harsh and had been following the research.  When I saw Harvoni being available in October, I went to my doctor, had the tests done, was approved for 12 weeks without question.  I have 2.5 million vl (which is the lowest in those 10 years) and fluctuating liver enzymes but mostly normal.  Never had a biopsy as I didn't like the idea of stirring up a compromised organ, and my ultra sounds have all showed my liver in good shape.  I haven't had a drop of alcohol in those 10 years, never did illegal drugs and watched what over the counter meds or antibiotics I was taking to make sure they were the easiest on the liver and think those precautions are helping me out now.  I probably drove my pharmacist crazy but he was really good to me and invaluable.  My nurse practitioner warned me insurance was only approving those who were the sickest so I was really surprised and am grateful I am getting the full 12 weeks.  I have good prescription insurance and am one of the very lucky ones.
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

 


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