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Author Topic: Quick, Urgent Action Alert  (Read 8597 times)

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Offline lporterrn

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  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Quick, Urgent Action Alert
« on: April 16, 2015, 02:16:17 pm »
Please read Rick Nash's post "Google #Hep C" http://blogs.hepmag.com/ricknash/2015/04/google_hep_c.html

Here is what the CDC says abut HCV sexual transmission:
Quote
Can Hepatitis C be spread through sexual contact?
Yes, but the risk of transmission from sexual contact is believed to be low. The risk increases for those who have multiple sex partners, have a sexually transmitted disease, engage in rough sex, or are infected with HIV.

Let's get this bad info out before it spreads. It takes a few seconds to notify Google.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Quick, Urgent Action Alert
« Reply #1 on: April 16, 2015, 04:03:58 pm »
Google changed their hep C info from "mainly spread by sexual contact" to "spread easily." Yikes - they just jumped from the frying pan in to the fire. Not only do they say that hep C is spread easily, under treatment it says:
Prescription Antiviral: Simeprevir, Ribavirin (Rebetol)
Other treatments: Sofosbuvir, Interferon alfa-2b by injection, Interferon alfacon-1 by injection
Also common
Procedures: Liver transplantation

Please continue to give Google feedback
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline sapphire101

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  • Posts: 238
  • "Stop worrying and start living"
Re: Quick, Urgent Action Alert
« Reply #2 on: April 16, 2015, 11:24:40 pm »
Lucinda can you give simple instructions for us who are technically challenged on how to give feedback/notify Google?
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline Lynn K

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  • Member
  • Posts: 4,355
  • Get tested, get treated, get cured, fight Hep c!
Re: Quick, Urgent Action Alert
« Reply #3 on: April 17, 2015, 03:19:30 am »
Done!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: Quick, Urgent Action Alert
« Reply #4 on: April 17, 2015, 03:24:13 am »
Done. Interestingly it doesn't show up on google.com.au. I had to switch to google.com to see it.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Quick, Urgent Action Alert
« Reply #5 on: April 17, 2015, 02:20:59 pm »
Sapphire - Rick Nash has step-by-step instructions on http://canythingbutaverage.blogspot.com/2015/04/please-help-google-presently-has.html
Note: you can't fix this by clicking on his site - you must go to google, put "hepatitis C" in to the search field, and then look to the right side of the screen for Google's hep C info - the "feedback" button is how you send them info.
Thanks for asking.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline morning_glory

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  • Posts: 104
  • This is the first day, of the rest of your life...
Re: Quick, Urgent Action Alert
« Reply #6 on: April 19, 2015, 11:27:24 pm »
Thank you Lucinda for the alert... And Thank you Rick, for the step-by-step instructions!  :)

Blessing,
MG
Likely infected - mid 70's / Diagnosed - mid 90's
Geno type - 1a
AST - 45
ALT - 51
Viral Load - 435,120
Liver Biopsy 6/2004 - F1-2
Fibrosure 5/2011 - F1-2
Fibrosure 2/2014 - F-0
Treatment Naive, prior to Harvoni
Harvoni started on 5/16/15
8-week Treatment Completed (7/10/15)
4-week bloodwork (6/11/15) Undetected, AST 15, ALT 17
8-week bloodwork (7/13/15) Undetected, AST 14, ALT 16

Offline rainbowray

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  • Posts: 263
  • Gen 1B
Re: Quick, Urgent Action Alert
« Reply #7 on: April 22, 2015, 10:25:00 am »
Done

 


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